Guest guest Posted July 8, 2000 Report Share Posted July 8, 2000 Laurie, it is so wonderful to hear this. How incredible that you can see tangible things such as playing with your daughter. Happy vibes going your way!!! << I'm finally convinced I'm really truly improving. Laurie Lassesen >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2001 Report Share Posted April 23, 2001 'oxyplus ' wrote: ==== - OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other alternative self-help subjects. - - THERE IS NO MEDICAL ADVICE HERE! - - This list is the 1st Amendment in action. The things you will find here are for information and research purposes only. We are people sharing information we believe in. If you act on ideas found here, you do so at your own risk. Self-help requires intelligence, common sense, and the ability to take responsibility ...' > Take a look to the attachment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Dr. Al Robbins in Boca Raton, FL takes insurance. He is an allergist who specializes in chemical exposure. He has testified in many lawsuits thru the years. DR. R. LIPSEY PROFESSOR TOXICOLGIST Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 , don't give up on that window. mary was six when stated with Dr. G. she's still non verbal but has made astounding progress. I know you'd like specifics, but I'm not feeling well right now. E-mail me privately with the same question in a couple of days and I'll run it all down to ya. Tina Tina M. Hendrix Cure2000@... Vice-President, California Coalition Neuro-Immune Dysfunction Syndromes Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Casein is a milk protein. thank you > > I would like to go on record as a member of the list to thank " raptor 1 " for the invaluable service she provides posting relevant articles from credible medical journals. I cannot say I understand all of them, certainly, but I understand enough of them to realize their relevance and affirmation to our cause. Thank you " raptor b " . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2002 Report Share Posted February 28, 2002 Hello Everyone, My son is 6 years old and almost completely nonverbal. (He chatters a lot and makes verbal sounds, just not language.) He has been in an ABA program for four years with many improvements, but still no language. He does not look or act like a child who is mentally retarded. We have our 1st appointment with Dr. Goldberg soon. I was wondering if anyone started with a similar age/ability child and where they are now. I've read lots of vague comments that improvements have been seen, but I would like to hear some specifics. I feel like our window of opportunity is closing as he ages (though I will never give up). He is so sweet and loving. I would love to hear from people who have been in treatment for a year or more especially if your child was similar to mine in the beginning. Thank you for sharing. Little Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Hi! We started with Dr. Goldberg when our son was five years, four months and he is now ten and a half. When we began with Dr. Goldberg our son was in a special education classroom for children with varying exceptionalities, spoke but a few words, was sweet and loving but experienced inordinate frustration because of his lack of ability to communicate.We looked into ABA several times but frankly, we could not agree with the approach or philosophical premise for our child. Well, five years later, we have a star student in a regular classroom who is virtually indistinguishable from his peers save his smaller stature and a few lingering, but minor, social comprehension difficulties. NO ONE WOULD BELIEVE THAT THIS IS THE SAME CHILD! And yet, as his parents we always knew that the stereotypic features and attributes of autistics didn't really fit him. In the midst of the darkness in his early development, there was always a light deep within that beckoned us to acknowledge it and DEVELOP IT! We spent many years in speech, occupational, physical and even in vision therapy and though it wasn't much fun and was physically and financially draining, today we have an independent child who is at the top of his class, talks (sometimes too much!), and has all the options for a future that any child would want and deserve. My message to you is this: Believe what YOU see in your child. To the degree possible, do all that is necessary to help him make the long journey out of the darkness and into the light of HIS potential. Undoubtedly, it will take a lot of effort on everyone's part. BUT EVERY MOMENT AND DOLLAR OF SACRIFICE IS WORTH IT!!!!! Even if the results fall somewhat short of your expectations, what alternative is there? Hopelessness?? Things seldom improve without intervention and in the case of our children, it typically means extensive intervention. We moved 1200 miles to find a public school that would meet his needs and we have been blessed to have found one. They believe in him and have challenged him and synergistically, along with the help of superlative professionals like Drs. Goldberg, Fosnot, and Silton, this child has been able to exceed everyone's expectations. I no longer have the same feelings and beliefs I had when he was age five and told that, in time, he have to be institutionalized. My heart sinks over the thought of " what if I had followed their guidance? " The self-fulfilling prophecy is so operative in these circumstances. One more thing: our son's journey has not only changed him but has changed the entire family, and I believe, for the better. I have been so profoundly moved by such transformational change, that I chose to change careers, return (again) to graduate school, and have just completed a graduate program in Learning Disabilities and am in my first year of a doctoral program in clinical psychology. There is much for all of us to learn from these 'blessings', and I have personally chosen to use these lessons to expand my own understanding and knowledge and humbly, try to help others in their moments (and years) of need for support. Hang in there. Listen, reflect, and choose what you feel is best for your six year old. ly, the feelings you are having now not only are common and necessary, but if you allow them to, will help lead you in the direction of your son's true needs. You and your child are not alone. Reach out, continue seeking what's best and TRUST your instincts. You are wished the strength, support, and courage needed to continue in this journey! Pat Re: Digest Number 1042 > Hello Everyone, > My son is 6 years old and almost completely nonverbal. (He chatters a lot > and makes verbal sounds, just not language.) He has been in an ABA program > for four years with many improvements, but still no language. He does not > look or act like a child who is mentally retarded. We have our 1st > appointment with Dr. Goldberg soon. I was wondering if anyone started with > a similar age/ability child and where they are now. I've read lots of vague > comments that improvements have been seen, but I would like to hear some > specifics. I feel like our window of opportunity is closing as he ages > (though I will never give up). He is so sweet and loving. I would love to > hear from people who have been in treatment for a year or more especially > if your child was similar to mine in the beginning. > Thank you for sharing. > Little > > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Hi Pat, I am not a sentimental person at all but I almost cried reading you message. We just started with Dr.Goldberg with 3y old son. He is nice sweet boy, he is verbal (behind his age,of course), but he generally loves people and he fights for communication, he likes to communicate. Dr.Goldberg believes that Simon will be able to attend regular school at first grade. I hope for this too. But I promised to myself , if it happens, I will be back to medical school (I did not finish and went to grad school) and I'd like to be pediatrician. Well, I am young enough to do this...What do you think? Thanks for shearing you wonderful story with us. Regina Re: Digest Number 1042 Hi! We started with Dr. Goldberg when our son was five years, four months and he is now ten and a half. When we began with Dr. Goldberg our son was in a special education classroom for children with varying exceptionalities, spoke but a few words, was sweet and loving but experienced inordinate frustration because of his lack of ability to communicate.We looked into ABA several times but frankly, we could not agree with the approach or philosophical premise for our child. Well, five years later, we have a star student in a regular classroom who is virtually indistinguishable from his peers save his smaller stature and a few lingering, but minor, social comprehension difficulties. NO ONE WOULD BELIEVE THAT THIS IS THE SAME CHILD! And yet, as his parents we always knew that the stereotypic features and attributes of autistics didn't really fit him. In the midst of the darkness in his early development, there was always a light deep within that beckoned us to acknowledge it and DEVELOP IT! We spent many years in speech, occupational, physical and even in vision therapy and though it wasn't much fun and was physically and financially draining, today we have an independent child who is at the top of his class, talks (sometimes too much!), and has all the options for a future that any child would want and deserve. My message to you is this: Believe what YOU see in your child. To the degree possible, do all that is necessary to help him make the long journey out of the darkness and into the light of HIS potential. Undoubtedly, it will take a lot of effort on everyone's part. BUT EVERY MOMENT AND DOLLAR OF SACRIFICE IS WORTH IT!!!!! Even if the results fall somewhat short of your expectations, what alternative is there? Hopelessness?? Things seldom improve without intervention and in the case of our children, it typically means extensive intervention. We moved 1200 miles to find a public school that would meet his needs and we have been blessed to have found one. They believe in him and have challenged him and synergistically, along with the help of superlative professionals like Drs. Goldberg, Fosnot, and Silton, this child has been able to exceed everyone's expectations. I no longer have the same feelings and beliefs I had when he was age five and told that, in time, he have to be institutionalized. My heart sinks over the thought of " what if I had followed their guidance? " The self-fulfilling prophecy is so operative in these circumstances. One more thing: our son's journey has not only changed him but has changed the entire family, and I believe, for the better. I have been so profoundly moved by such transformational change, that I chose to change careers, return (again) to graduate school, and have just completed a graduate program in Learning Disabilities and am in my first year of a doctoral program in clinical psychology. There is much for all of us to learn from these 'blessings', and I have personally chosen to use these lessons to expand my own understanding and knowledge and humbly, try to help others in their moments (and years) of need for support. Hang in there. Listen, reflect, and choose what you feel is best for your six year old. ly, the feelings you are having now not only are common and necessary, but if you allow them to, will help lead you in the direction of your son's true needs. You and your child are not alone. Reach out, continue seeking what's best and TRUST your instincts. You are wished the strength, support, and courage needed to continue in this journey! Pat Re: Digest Number 1042 > Hello Everyone, > My son is 6 years old and almost completely nonverbal. (He chatters a lot > and makes verbal sounds, just not language.) He has been in an ABA program > for four years with many improvements, but still no language. He does not > look or act like a child who is mentally retarded. We have our 1st > appointment with Dr. Goldberg soon. I was wondering if anyone started with > a similar age/ability child and where they are now. I've read lots of vague > comments that improvements have been seen, but I would like to hear some > specifics. I feel like our window of opportunity is closing as he ages > (though I will never give up). He is so sweet and loving. I would love to > hear from people who have been in treatment for a year or more especially > if your child was similar to mine in the beginning. > Thank you for sharing. > Little > > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 In a message dated 3/1/2002 1:45:30 PM Central Standard Time, pkoltun@... writes: > even in vision > Great story! Thanks for posting! I love when people share their successes! One thing, can you share what vision therapy is and what does it involve? Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Pat, Thank you so much for your inspirational words. I save posts like yours, to reread and also to pass on to parents who have never heard of and are discouraged and feel that there is no hope. I want them to know that our children can be helped, this is a reality.It would be great if there was an area within the website that people could post their success stories for those who need a pick me up. That way your message could reach thousands and further help spread the word about . Re: Digest Number 1042 > > > > Hello Everyone, > > My son is 6 years old and almost completely nonverbal. (He chatters a lot > > and makes verbal sounds, just not language.) He has been in an ABA > program > > for four years with many improvements, but still no language. He does not > > look or act like a child who is mentally retarded. We have our 1st > > appointment with Dr. Goldberg soon. I was wondering if anyone started > with > > a similar age/ability child and where they are now. I've read lots of > vague > > comments that improvements have been seen, but I would like to hear some > > specifics. I feel like our window of opportunity is closing as he ages > > (though I will never give up). He is so sweet and loving. I would love > to > > hear from people who have been in treatment for a year or more especially > > if your child was similar to mine in the beginning. > > Thank you for sharing. > > Little > > > > > > > > > > Responsibility for the content of this message lies strictly with > > the original author, and is not necessarily endorsed by or the > > opinion of the Research Institute. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Regina, Thanks for your heartfelt message. Know that there are a lot of us out there pulling for Simon, you, and your entire family. I do hope a return to medical school is in your not-too-distant future. We need all the informed, dedicated, and enlightened professionals we can get. I went back to grad school at age 46. So, I guess it really is " never too late " ! I choose to believe that our lives, like Dr. Goldberg and others, are touched by these challenges/blessings (its a doubled-sided coin, as you know) for a reason. Each of us may respond differently, but I believe we are invited to join in creating solutions, options, and above-all, bonafide hope for all the Simons in our world. You are wished the very best! Pat Koltun Re: Digest Number 1042 > > > > Hello Everyone, > > My son is 6 years old and almost completely nonverbal. (He chatters a lot > > and makes verbal sounds, just not language.) He has been in an ABA > program > > for four years with many improvements, but still no language. He does not > > look or act like a child who is mentally retarded. We have our 1st > > appointment with Dr. Goldberg soon. I was wondering if anyone started > with > > a similar age/ability child and where they are now. I've read lots of > vague > > comments that improvements have been seen, but I would like to hear some > > specifics. I feel like our window of opportunity is closing as he ages > > (though I will never give up). He is so sweet and loving. I would love > to > > hear from people who have been in treatment for a year or more especially > > if your child was similar to mine in the beginning. > > Thank you for sharing. > > Little > > > > > > > > > > Responsibility for the content of this message lies strictly with > > the original author, and is not necessarily endorsed by or the > > opinion of the Research Institute. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 > Hi! > > We started with Dr. Goldberg when our son was five years, four months and he > is now ten and a half. When we began with Dr. Goldberg our son was in a > special education classroom for children with varying exceptionalities, > spoke but a few words, was sweet and loving but experienced inordinate > frustration because of his lack of ability to communicate.We looked into ABA > several times but frankly, we could not agree with the approach or > philosophical premise for our child. > > Well, five years later, we have a star student in a regular classroom who is > virtually indistinguishable from his peers save his smaller stature and a > few lingering, but minor, social comprehension difficulties. NO ONE WOULD > BELIEVE THAT THIS IS THE SAME CHILD! And yet, as his parents we always knew > that the stereotypic features and attributes of autistics didn't really fit > him. In the midst of the darkness in his early development, there was always > a light deep within that beckoned us to acknowledge it and DEVELOP IT! We > spent many years in speech, occupational, physical and even in vision > therapy and though it wasn't much fun and was physically and financially > draining, today we have an independent child who is at the top of his class, > talks (sometimes too much!), and has all the options for a future that any > child would want and deserve. > > My message to you is this: Believe what YOU see in your child. To the degree > possible, do all that is necessary to help him make the long journey out of > the darkness and into the light of HIS potential. Undoubtedly, it will take > a lot of effort on everyone's part. BUT EVERY MOMENT AND DOLLAR OF SACRIFICE > IS WORTH IT!!!!! Even if the results fall somewhat short of your > expectations, what alternative is there? Hopelessness?? Things seldom > improve without intervention and in the case of our children, it typically > means extensive intervention. We moved 1200 miles to find a public school > that would meet his needs and we have been blessed to have found one. They > believe in him and have challenged him and synergistically, along with the > help of superlative professionals like Drs. Goldberg, Fosnot, and Silton, > this child has been able to exceed everyone's expectations. I no longer have > the same feelings and beliefs I had when he was age five and told that, in > time, he have to be institutionalized. My heart sinks over the thought of > " what if I had followed their guidance? " The self-fulfilling prophecy is so > operative in these circumstances. > > One more thing: our son's journey has not only changed him but has changed > the entire family, and I believe, for the better. I have been so profoundly > moved by such transformational change, that I chose to change careers, > return (again) to graduate school, and have just completed a graduate > program in Learning Disabilities and am in my first year of a doctoral > program in clinical psychology. There is much for all of us to learn from > these 'blessings', and I have personally chosen to use these lessons to > expand my own understanding and knowledge and humbly, try to help others in > their moments (and years) of need for support. > > Hang in there. Listen, reflect, and choose what you feel is best for your > six year old. ly, the feelings you are having now not only are common > and necessary, but if you allow them to, will help lead you in the direction > of your son's true needs. You and your child are not alone. Reach out, > continue seeking what's best and TRUST your instincts. > > You are wished the strength, support, and courage needed to continue in this > journey! > > Pat > > > > Re: Digest Number 1042 > > > > Hello Everyone, > > My son is 6 years old and almost completely nonverbal. (He chatters a lot > > and makes verbal sounds, just not language.) He has been in an ABA > program > > for four years with many improvements, but still no language. He does not > > look or act like a child who is mentally retarded. We have our 1st > > appointment with Dr. Goldberg soon. I was wondering if anyone started > with > > a similar age/ability child and where they are now. I've read lots of > vague > > comments that improvements have been seen, but I would like to hear some > > specifics. I feel like our window of opportunity is closing as he ages > > (though I will never give up). He is so sweet and loving. I would love > to > > hear from people who have been in treatment for a year or more especially > > if your child was similar to mine in the beginning. > > Thank you for sharing. > > Little > > > > > > > > > > Responsibility for the content of this message lies strictly with > > the original author, and is not necessarily endorsed by or the > > opinion of the Research Institute. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2002 Report Share Posted October 6, 2002 Don't know what condition yur liver is in, but msm makes your hair thicker. msm doesn't have any side effecs but I think it may thin your blood some so if you're on tx that may not be good. After tx my hair came in just as thick if not thicker than before and curly--it was straight. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 In a message dated 2/15/2005 11:38:27 AM Eastern Standard Time, writes: Here's a letter I recently wrote my congressman about this " marriage penalty " for people with disabilities: A GREAT and well written letter Jenn! Mind if I send it to my reps. too? I'm in the not legal group and know what a pain it would be keep my att. care and medicaid if Bob and I got married. Take care, Vickie in Ga. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 Sure, Vickie, you or anyone can circulate it as you see fit! Vic549@... wrote: >In a message dated 2/15/2005 11:38:27 AM Eastern Standard Time, > writes: >Here's a letter I recently wrote my congressman about this " marriage >penalty " for people with disabilities: >A GREAT and well written letter Jenn! Mind if I send it to my reps. too? I'm >in the not legal group and know what a pain it would be keep my att. care and >medicaid if Bob and I got married. Take care, Vickie in Ga. > -- Jenn Malatesta http://www.isoc.net/brokeninside/nekrosys/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2006 Report Share Posted June 29, 2006 Hi Sev, It was Divina who taught me about the IV when the testa is in the meat. It is quite true coz when we made vco and there were lots of testa in the meat, the fermentation smelled so bad we had to throw the whole thing out. From then on, we tried as much as possible not to include it and it was ok. --------------------------------------------- Magat " sev_magat@... sev_magat Sun Jun 25, 2006 8:06 pm (PST) Hi ! I'm unclear with the point raised by Banagale concerning iodine value and coconut testa. I feel there is a need to clarify what iodine value (IV) of plant oils/fats. Referenced to the book of Banzon and Velasco (1982) and PROSEA No.14 (2001), the IV (one of the chemical properties of fats and oils) is a measure of the unsaturation or number of double bonds in its chemical structure) expressed as grams of iodine absorbed by 100 grams of oil, the higher the IV, the more unsaturated the oil or less saturated. Accordingly, by the chemical process catalytic hydrogenation (discovered by frenchmen Sabatier and Senderens), the unsaturation of an oil can be reduced but it produces hydrogenated oil or produces transfatty acids which is known to be unstable and could cause cancer problems in human health. Consider this IVs of some vegetable oils: coconut oil, 10, palm kernel oil, 15; palm oil, 55, canola, 105, soybean,130;corn,120; peanut, 90 and sunflower, 130, data from Gunstone et al (1986) and others. Hoping this helps understand the matter. Cheers, Sev Magat Wilkins <montemomma2002@...> wrote: Yes , I find it very interesting. stated that when making ones own VCO to avoid the testa because the high iodine content would make it spoil quickly. But apparently the testa has some benefits that can be vey valuable...Perhaps a production method or preservation method could make the vitamin E from the testa stable. Or perhaps a whole other process to simply produce a high quality vitamin E from the coconut testa. IN NC sev_magat <sev_magat@...> wrote: Hi folks ! Apparently, there has been inconsistencies in the information about the presence of Vitamin E ( known to be a powerful anti-oxidant, for muscle development, making red blood cells resistant to haemolysis or breakdown, normal reproductive function in both sexes, among many others) in the saturated medium chain fatty acid-rich coconut oil (CNO), either as in the now known virgin coconut oil (VCO) or refined (RBD form. While, a study (Manalac,1970 mentioned by Banzon and Velasco (1982) decades ago reported that unrefined CNO contains 700 - 900 mg tocopherol/g oil,in alkali-refined CNO reduced to 300 mg/g oil and further steam-deodorized to only 55 mg/g oil. From a natural state to a refined form, a strong tendency to reduce the content of the inherent vitamins of the matter due to various processing factors. Now, however, a recent intensive (published) study (Laureles and co- workers, 2002, J. Agric. Food Chem. 50: 1581-1586) comparing RBD, VCO oils from various processe and varieties of coconut, coconut milk and coconut testa ( the outer brownish layer or portion of the coconut meat/kernel found between the meat and the shell of the matured nut revealed that only the testa contains Vitamin E at 732 microgram/g oil (detected by a modern HPLC equipment). This workers surmised that the ealier work of Manalac used testa-rich CNO samples and not limited to the whitish coconut meat, usually used for coconut oil/milk production. One of the implications of this new knowledge points out that VCO, even natural and unaltered by high heat may not supply any Vitamin E at all, unless, it includes the testa (as in the coconut paring oil from dessicated coconut plants). In other applications as filled milk for infants and the like, I understand, the CNO from coconut parings has a much different fatty acid profile than CNO. This paring oil(extrated from dried testa and portion of white meat) is rich in polyunsaturated fatty acids as oleic (C18:1) and linoleic (C18:2) compared to CNO but could provide vitamin E. It may be of interest to present ( next posting), the composition of CNO and testa-rich paring oil (a by-product from dessicated coconut manufacturing). This explains why coconut paring oil is used in filled milk formulations and other applications. I'm not in the pharmaceutical or nutriceutical industries, but probably some of the participant of this forum know more about the applications of refined CNO, VCO and coconut paring oil in these industries. Hoping this topic interests you. Cheers, Sev Magat Wilkins http//:www.juiceplus.com/+lw55887 The Children's Research Foundation Children 6-15 FREE for 3 years --------------------------------- Do you ? Next-gen email? Have it all with the all-new Mail Beta. Quote Link to comment Share on other sites More sharing options...
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