NEW to Group

[Guest guest]

Hello,

I am very new to this group and have several questions. My son is

currently 4 1/2. He was diagnosed with severe autism last May. He

is not a classical autistic child because they believe his autism is

from a larger problem - rare genetic syndrome(can not determine a

name).

My son's symptoms:

Take hours to do a bowel movement(sometimes up to 7 hours) and then

it would be soft. He had rectal prolapse at a year of age and was

on myralax(would also add fiber if needing to give extra doses) as

needed to get at least 1 bowel movement a day. He has chronic

sinusitus which hospitalizes him because he gets so dehydrated and

so they always put him on antibiotics when he starts to throw up

after having cold symptoms for longer than 2 weeks. He is nonverbal

and so does not express anything. This last year he has been

hospitalized 5 times. His immune system is way below normal

although not at zero and so they will not do anything(from the

immunologist). I therefore decided to try to boost his system by

changing his diet. He has been on the gluten-casein free (gfcf)

diet now for 2 weeks. I have added a magnesium supplement(3 1/2

weeks) where I stopped giving him myralax every day. He has still

been going regularly every day without needing the myralax(I read

that the Magnesium is a natural laxative). I have also changed to a

gfcf multi-vitamin that has more B6 and B12 in it(200%)(1 week). I

just started selenium and zinc (3 days). He used to get Culterelle

probiotic which I stopped(4 weeks ago) because I was not sure if it

was gfcf or not. I noticed when he was on antibiotics, his stools

changed from a flourescent green color(which GI doc said was from

the coloring in foods) to a normal brown color and did not smell as

foul. When he has stools this brown color, he has better days with

not stimming and his focus is way better. He had a really hard day

today and cried several times today for which I could not find a

reason. He was totally distracted all day and would not focus on

me. His stool was the yucky green color again this afternoon. I am

not sure if one of the supplements may be causing this and how to

determine which it is?? Should I just jump into giving him

something else? We had an EGD this last spring because I wanted to

know for sure about celiac(family history), reflux(family history)

and I would ask where his " owey " was and he kept pointing to

his stomach(sad!) for 2 weeks straight. The EGD only showed that he

has extra white blood cells in his upper intestines which is not a

significant finding. The GI doc said that because of the other

blood work that was done (IGG and some other one) that only

had a .00002% chance of having celiac, he had no reflux and no

hernia. He also found no yeast or other abnormalities. His IGG

allergy test showed low allergy to wheat, corn, and peanuts. I

think the casein is an intolerance(milk showed normal on IGG). I am

limiting his corn intake to only be from corn syrup and derivatives

found in food(salt, xantham gum, etc.). If anyone has any help with

understanding my son or a similiar history? Please let me know what

you have found to work. Thanks in advance.

-annie