Your Opinion?

February 8, 2010

Saw a DAN! doc for the first time for DS, age 13, recently.

DS is mainly mild Aspie-ish, OCD was obvious when age 7-9, has had gut issues

for most of life since stopped breastfeeding, enzymes have been extremely

helpful. I have provided his history before, so won't repeat here unless you

want it.

The DAN! has advised this as a starting point with NO TESTS having been

performed:

1. continue Enzymatic's DigestGold, continue Calcium & Magnesium, continue

Biotin 1000 mcg/day

2. Add DIFLUCAN and FLAGYL (gave us a script for them)

3. Add Kirkman Pro BioGold probiotic 1 cap/day (we were taking Enzymatic's brand

of Pro Bio ... so ??)

4. Omega-3 with DHA + EPA adding to 1000mg/day apx. (he was taking 1

Coromega a day, so I can up it to 2/day)

5. Add N-acetyl-cysteine. Start at 500mg 2x/day and work to 1000 mg. 2x/day

(I'm worried about this supplement .... what is it needed for? Shouldn't we test

first to see if this is required? I'm finally getting some good behavior from

him with controlling yeast and using neurofeedback ... won't this potentially

throw a monkey wrench into the equation?? If so, what test should we take and

who can do the test to see if this is really needed??)

6. Add Methyl B12. He wanted to do shots of 25mg/ML per day, but I knew that

ds's father would never comply. So, DAN! backed off to oral methyl B12 (Kirkman)

2500 mcg/day

7. Continue Vitamin D3 but reduce from 5K iu's/day to 1K iu/day (I disagree

based on recent reports from the Vitamin D Council. I will have his 25 OH(D)

level tested, but the Vitamin D Council suggests that ASD patients need to have

their activated Vit D3 levels higher than normal to function).

Please reply with your opinion on any of these. In particular, I am concerned

about item#5 and possibly item#6. I already have item#2 (prescriptions) in hand

and am wondering if I can administer them now without #3, #5 and #6 or not. I am

thinking that I would need #3 to accompany, but that the others can be entered

into the equation later IF they are deemed " needed " based on testing results.

I really do not want to go backwards in behavior. So, advice sorely needed.

Thanks,

M

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