Re: Re: Help with natural cure for childhood Epilepsy...

[Guest guest]

Have you heard of the Ketogenic Diet?

 

Apparently, it does wonders for people with Epilepsy.

http://www.epilepsy.com/epilepsy/treatment_ketogenic_diet

[Guest guest]

What if Vit. 6??? Did you mean B6????

On Nov 26, 2008, at 9:28 AM, Sally Averkamp wrote:

> ,

>

> Lamictil is a dangerous med, I think. My daughter (15 yrs/seizures &

> ADD) has had seizures since she was 2 1/2 yrs and has been on various

> meds since she was 5. She was on Lamictil for a while but they have

> to screen for liver damage (which makes me nervous) and she had a

> rash so the WHISKED her off it (some danger, I guess). Now she has

> been on Carbamazepin (200 mg x twice daily) for many years and she

> can tell of no side affects. 's seizures were worse and more

> frequent than your daughter's.

>

> My goal is to get off the meds entirely. My son has Aspergers

> Syndrome and I believe he has lost his diagnosis with all the

> treatments (supplements, enzymes, HBOT, etc) that we have done and I

> believe that Les' seizures are part of her autism spectrum disorder.

> I read the book, Recovering Autistic Children by Edelson & Rimland

> (from autism.com) and many of those kids had seizures. They were

> treated with various supplements including DMG and Vit. 6/magnesium

> and many improved. I believe Les has mercury in her brain, and also

> her small intestine is not metabolizing food correctly to get the

> right nutrients to her brain. So this is the direction that we are

> working.

>

> sally

>

>

> >

> > Since you all have been such a help with other issues in my life

> I'm turning to you in hopes someone out there can help me with this

> issue. While my membership is pending with the child-epilepsy

> group I would like to ask you about the following: my step-DD is

> almost 9 yrs old. Other than this epilepsy issue that showed itself

> a little over a year ago she is a normal healthy child.

> >

> > Her seizures do not happen often and are not very severe. In fact

> she's only had 3 seizures during a 1 1/2 year period and when she

> does have a seizure she becomes unresponsive, talks out of order,

> blanks out, and body stiffens.

> >

> > The doc last year put her on something called Lamitsal (sp?). She

> was on the meds for 1 year and did not have a seizure while on the

> meds. However, 6 months off of the meds she just had a seizure

> again. The doc is advising to put her on the meds again and try

> > for another year...in hopes the meds will make it go away.

> >

> > He believes she has a mild case of childhood epilepsy that in most

> instances will go away has she ages. All the testing done shows that

> she is having seizures but, oh geez, can't remember...the test was

> over a year ago...so please excuse me...I think something about its

> there but not as bad. Sorry, I'll have to get back to you about the

> test results from last year.

> >

> > The problem I have is with the meds being used. I did research on

> this med and it is also used for bi-polar disorders. DD is different

> on the meds...her mood...she is seemingly depressed. When told of

> the news she must go back on the meds she began to cry and said

> they " made her feel different " and did not want to feel that way.

> >

> > Has anyone encountered this type of situation with epilepsy and

> their, otherwise " NT " child, and if so were there any other meds that

> worked better or a

> > homeopathic route? Please, it would be much appreciated if you

> could share your story and what did or didn't work for you or your

> child. I understand and respect your privacy and some information is

> sensitive, if it makes you feel more comfortable please, if you wish

> please email me privately.

> >

> > DD & our family TYIA (thank you in advance)!

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I think my son had some kind of seizures when he was dealing with PANDAS.  I

also think they are gone now.  What kind of seizures are involved in the autism

spectrum?  My son still has add symptoms, but more academic ones, like being a

seriously reluctant reader, and hardly any memory recall at all when dealing

with spelling and math.  He's 15.

________________________________

From: Arias <thinkingheads@...>

Sent: Thursday, November 27, 2008 5:43:34 PM

Subject: Re: Re: Help with natural " cure " for childhood Epilepsy...

What if Vit. 6??? Did you mean B6????

On Nov 26, 2008, at 9:28 AM, Sally Averkamp wrote:

> ,

>

> Lamictil is a dangerous med, I think. My daughter (15 yrs/seizures &

> ADD) has had seizures since she was 2 1/2 yrs and has been on various

> meds since she was 5. She was on Lamictil for a while but they have

> to screen for liver damage (which makes me nervous) and she had a

> rash so the WHISKED her off it (some danger, I guess). Now she has

> been on Carbamazepin (200 mg x twice daily) for many years and she

> can tell of no side affects. 's seizures were worse and more

> frequent than your daughter's.

>

> My goal is to get off the meds entirely. My son has Aspergers

> Syndrome and I believe he has lost his diagnosis with all the

> treatments (supplements, enzymes, HBOT, etc) that we have done and I

> believe that Les' seizures are part of her autism spectrum disorder.

> I read the book, Recovering Autistic Children by Edelson & Rimland

> (from autism.com) and many of those kids had seizures. They were

> treated with various supplements including DMG and Vit. 6/magnesium

> and many improved. I believe Les has mercury in her brain, and also

> her small intestine is not metabolizing food correctly to get the

> right nutrients to her brain. So this is the direction that we are

> working.

>

> sally

>

>

> >

> > Since you all have been such a help with other issues in my life

> I'm turning to you in hopes someone out there can help me with this

> issue. While my membership is pending with the child-epilepsy

> group I would like to ask you about the following: my step-DD is

> almost 9 yrs old. Other than this epilepsy issue that showed itself

> a little over a year ago she is a normal healthy child.

> >

> > Her seizures do not happen often and are not very severe. In fact

> she's only had 3 seizures during a 1 1/2 year period and when she

> does have a seizure she becomes unresponsive, talks out of order,

> blanks out, and body stiffens.

> >

> > The doc last year put her on something called Lamitsal (sp?). She

> was on the meds for 1 year and did not have a seizure while on the

> meds. However, 6 months off of the meds she just had a seizure

> again. The doc is advising to put her on the meds again and try

> > for another year...in hopes the meds will make it go away.

> >

> > He believes she has a mild case of childhood epilepsy that in most

> instances will go away has she ages. All the testing done shows that

> she is having seizures but, oh geez, can't remember...the test was

> over a year ago...so please excuse me...I think something about its

> there but not as bad. Sorry, I'll have to get back to you about the

> test results from last year.

> >

> > The problem I have is with the meds being used. I did research on

> this med and it is also used for bi-polar disorders. DD is different

> on the meds...her mood...she is seemingly depressed. When told of

> the news she must go back on the meds she began to cry and said

> they " made her feel different " and did not want to feel that way.

> >

> > Has anyone encountered this type of situation with epilepsy and

> their, otherwise " NT " child, and if so were there any other meds that

> worked better or a

> > homeopathic route? Please, it would be much appreciated if you

> could share your story and what did or didn't work for you or your

> child. I understand and respect your privacy and some information is

> sensitive, if it makes you feel more comfortable please, if you wish

> please email me privately.

> >

> > DD & our family TYIA (thank you in advance)!

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

My dd has some kind of seizures spikes showing on EEG. They say most

of this happens during the night. In the day time... she can't

remember things, can't read... is just " not there " ... What has helped

the most is: Chelation, yeast control and Vit B thus far. Hope this

helps.

On Nov 27, 2008, at 9:18 PM, anna yori wrote:

> I think my son had some kind of seizures when he was dealing with

> PANDAS. I also think they are gone now. What kind of seizures are

> involved in the autism spectrum? My son still has add symptoms,

> but more academic ones, like being a seriously reluctant reader,

> and hardly any memory recall at all when dealing with spelling and

> math. He's 15.

>

>

>

> ________________________________

> From: Arias <thinkingheads@...>

>

> Sent: Thursday, November 27, 2008 5:43:34 PM

> Subject: Re: Re: Help with natural " cure " for childhood

> Epilepsy...

>

> What if Vit. 6??? Did you mean B6????

> On Nov 26, 2008, at 9:28 AM, Sally Averkamp wrote:

>

> > ,

> >

> > Lamictil is a dangerous med, I think. My daughter (15 yrs/seizures &

> > ADD) has had seizures since she was 2 1/2 yrs and has been on

> various

> > meds since she was 5. She was on Lamictil for a while but they have

> > to screen for liver damage (which makes me nervous) and she had a

> > rash so the WHISKED her off it (some danger, I guess). Now she has

> > been on Carbamazepin (200 mg x twice daily) for many years and she

> > can tell of no side affects. 's seizures were worse and more

> > frequent than your daughter's.

> >

> > My goal is to get off the meds entirely. My son has Aspergers

> > Syndrome and I believe he has lost his diagnosis with all the

> > treatments (supplements, enzymes, HBOT, etc) that we have done and I

> > believe that Les' seizures are part of her autism spectrum disorder.

> > I read the book, Recovering Autistic Children by Edelson & Rimland

> > (from autism.com) and many of those kids had seizures. They were

> > treated with various supplements including DMG and Vit. 6/magnesium

> > and many improved. I believe Les has mercury in her brain, and also

> > her small intestine is not metabolizing food correctly to get the

> > right nutrients to her brain. So this is the direction that we are

> > working.

> >

> > sally

> >

> >

> > >

> > > Since you all have been such a help with other issues in my life

> > I'm turning to you in hopes someone out there can help me with this

> > issue. While my membership is pending with the child-epilepsy

> > group I would like to ask you about the following: my step-DD is

> > almost 9 yrs old. Other than this epilepsy issue that showed itself

> > a little over a year ago she is a normal healthy child.

> > >

> > > Her seizures do not happen often and are not very severe. In fact

> > she's only had 3 seizures during a 1 1/2 year period and when she

> > does have a seizure she becomes unresponsive, talks out of order,

> > blanks out, and body stiffens.

> > >

> > > The doc last year put her on something called Lamitsal (sp?). She

> > was on the meds for 1 year and did not have a seizure while on the

> > meds. However, 6 months off of the meds she just had a seizure

> > again. The doc is advising to put her on the meds again and try

> > > for another year...in hopes the meds will make it go away.

> > >

> > > He believes she has a mild case of childhood epilepsy that in most

> > instances will go away has she ages. All the testing done shows that

> > she is having seizures but, oh geez, can't remember...the test was

> > over a year ago...so please excuse me...I think something about its

> > there but not as bad. Sorry, I'll have to get back to you about the

> > test results from last year.

> > >

> > > The problem I have is with the meds being used. I did research on

> > this med and it is also used for bi-polar disorders. DD is different

> > on the meds...her mood...she is seemingly depressed. When told of

> > the news she must go back on the meds she began to cry and said

> > they " made her feel different " and did not want to feel that way.

> > >

> > > Has anyone encountered this type of situation with epilepsy and

> > their, otherwise " NT " child, and if so were there any other meds

> that

> > worked better or a

> > > homeopathic route? Please, it would be much appreciated if you

> > could share your story and what did or didn't work for you or your

> > child. I understand and respect your privacy and some information is

> > sensitive, if it makes you feel more comfortable please, if you wish

> > please email me privately.

> > >

> > > DD & our family TYIA (thank you in advance)!

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Thank you .  My son's seizures were worse at night also, and lots of

hallucinations and sleepwalking.  We are chelating for copper, he tested

no-yeast, and he used to take Vit B-12, but our naturepath just told me he

doesn't need it anymore.  She also mentioned that during puberty (he's 15), the

male brain is bathed in testosterone, which helps it " mature " .  I have seen some

positive changes in regards to that.  He is willing to clean his room now (it

was a nightmare before).  I still don't know what to do about the reading and

memory recall.  The seizures are almost non-existant, but academically, he still

struggles.

________________________________

From: Arias <thinkingheads@...>

Sent: Friday, November 28, 2008 5:35:09 AM

Subject: Re: Re: Help with natural " cure " for childhood Epilepsy...

My dd has some kind of seizures spikes showing on EEG. They say most

of this happens during the night. In the day time... she can't

remember things, can't read... is just " not there " ... What has helped

the most is: Chelation, yeast control and Vit B thus far. Hope this

helps.

On Nov 27, 2008, at 9:18 PM, anna yori wrote:

> I think my son had some kind of seizures when he was dealing with

> PANDAS. I also think they are gone now. What kind of seizures are

> involved in the autism spectrum? My son still has add symptoms,

> but more academic ones, like being a seriously reluctant reader,

> and hardly any memory recall at all when dealing with spelling and

> math. He's 15.

>

>

>

> ____________ _________ _________ __

> From: Arias <thinkingheads@ sbcglobal. net>

>

> Sent: Thursday, November 27, 2008 5:43:34 PM

> Subject: Re: Re: Help with natural " cure " for childhood

> Epilepsy...

>

> What if Vit. 6??? Did you mean B6????

> On Nov 26, 2008, at 9:28 AM, Sally Averkamp wrote:

>

> > ,

> >

> > Lamictil is a dangerous med, I think. My daughter (15 yrs/seizures &

> > ADD) has had seizures since she was 2 1/2 yrs and has been on

> various

> > meds since she was 5. She was on Lamictil for a while but they have

> > to screen for liver damage (which makes me nervous) and she had a

> > rash so the WHISKED her off it (some danger, I guess). Now she has

> > been on Carbamazepin (200 mg x twice daily) for many years and she

> > can tell of no side affects. 's seizures were worse and more

> > frequent than your daughter's.

> >

> > My goal is to get off the meds entirely. My son has Aspergers

> > Syndrome and I believe he has lost his diagnosis with all the

> > treatments (supplements, enzymes, HBOT, etc) that we have done and I

> > believe that Les' seizures are part of her autism spectrum disorder.

> > I read the book, Recovering Autistic Children by Edelson & Rimland

> > (from autism.com) and many of those kids had seizures. They were

> > treated with various supplements including DMG and Vit. 6/magnesium

> > and many improved. I believe Les has mercury in her brain, and also

> > her small intestine is not metabolizing food correctly to get the

> > right nutrients to her brain. So this is the direction that we are

> > working.

> >

> > sally

> >

> >

> > >

> > > Since you all have been such a help with other issues in my life

> > I'm turning to you in hopes someone out there can help me with this

> > issue. While my membership is pending with the child-epilepsy

> > group I would like to ask you about the following: my step-DD is

> > almost 9 yrs old. Other than this epilepsy issue that showed itself

> > a little over a year ago she is a normal healthy child.

> > >

> > > Her seizures do not happen often and are not very severe. In fact

> > she's only had 3 seizures during a 1 1/2 year period and when she

> > does have a seizure she becomes unresponsive, talks out of order,

> > blanks out, and body stiffens.

> > >

> > > The doc last year put her on something called Lamitsal (sp?). She

> > was on the meds for 1 year and did not have a seizure while on the

> > meds. However, 6 months off of the meds she just had a seizure

> > again. The doc is advising to put her on the meds again and try

> > > for another year...in hopes the meds will make it go away.

> > >

> > > He believes she has a mild case of childhood epilepsy that in most

> > instances will go away has she ages. All the testing done shows that

> > she is having seizures but, oh geez, can't remember...the test was

> > over a year ago...so please excuse me...I think something about its

> > there but not as bad. Sorry, I'll have to get back to you about the

> > test results from last year.

> > >

> > > The problem I have is with the meds being used. I did research on

> > this med and it is also used for bi-polar disorders. DD is different

> > on the meds...her mood...she is seemingly depressed. When told of

> > the news she must go back on the meds she began to cry and said

> > they " made her feel different " and did not want to feel that way.

> > >

> > > Has anyone encountered this type of situation with epilepsy and

> > their, otherwise " NT " child, and if so were there any other meds

> that

> > worked better or a

> > > homeopathic route? Please, it would be much appreciated if you

> > could share your story and what did or didn't work for you or your

> > child. I understand and respect your privacy and some information is

> > sensitive, if it makes you feel more comfortable please, if you wish

> > please email me privately.

> > >

> > > DD & our family TYIA (thank you in advance)!

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Not sure if I asked this... Have you tried Adrenal Cortex? It is

amazing stuff. And you say that he tested no-Yeast? Sometimes tests

are wrong.

On Nov 28, 2008, at 10:37 AM, anna yori wrote:

> Thank you . My son's seizures were worse at night also, and

> lots of hallucinations and sleepwalking. We are chelating for

> copper, he tested no-yeast, and he used to take Vit B-12, but our

> naturepath just told me he doesn't need it anymore. She also

> mentioned that during puberty (he's 15), the male brain is bathed

> in testosterone, which helps it " mature " . I have seen some

> positive changes in regards to that. He is willing to clean his

> room now (it was a nightmare before). I still don't know what to

> do about the reading and memory recall. The seizures are almost

> non-existant, but academically, he still struggles.

>

>

>

> ________________________________

> From: Arias <thinkingheads@...>

>

> Sent: Friday, November 28, 2008 5:35:09 AM

> Subject: Re: Re: Help with natural " cure " for childhood

> Epilepsy...

>

> My dd has some kind of seizures spikes showing on EEG. They say most

> of this happens during the night. In the day time... she can't

> remember things, can't read... is just " not there " ... What has helped

> the most is: Chelation, yeast control and Vit B thus far. Hope this

> helps.

> On Nov 27, 2008, at 9:18 PM, anna yori wrote:

>

> > I think my son had some kind of seizures when he was dealing with

> > PANDAS. I also think they are gone now. What kind of seizures are

> > involved in the autism spectrum? My son still has add symptoms,

> > but more academic ones, like being a seriously reluctant reader,

> > and hardly any memory recall at all when dealing with spelling and

> > math. He's 15.

> >

> >

> >

> > ____________ _________ _________ __

> > From: Arias <thinkingheads@ sbcglobal. net>

> >

> > Sent: Thursday, November 27, 2008 5:43:34 PM

> > Subject: Re: Re: Help with natural " cure " for childhood

> > Epilepsy...

> >

> > What if Vit. 6??? Did you mean B6????

> > On Nov 26, 2008, at 9:28 AM, Sally Averkamp wrote:

> >

> > > ,

> > >

> > > Lamictil is a dangerous med, I think. My daughter (15 yrs/

> seizures &

> > > ADD) has had seizures since she was 2 1/2 yrs and has been on

> > various

> > > meds since she was 5. She was on Lamictil for a while but they

> have

> > > to screen for liver damage (which makes me nervous) and she had a

> > > rash so the WHISKED her off it (some danger, I guess). Now she has

> > > been on Carbamazepin (200 mg x twice daily) for many years and she

> > > can tell of no side affects. 's seizures were worse and more

> > > frequent than your daughter's.

> > >

> > > My goal is to get off the meds entirely. My son has

> Aspergers

> > > Syndrome and I believe he has lost his diagnosis with all the

> > > treatments (supplements, enzymes, HBOT, etc) that we have done

> and I

> > > believe that Les' seizures are part of her autism spectrum

> disorder.

> > > I read the book, Recovering Autistic Children by Edelson & Rimland

> > > (from autism.com) and many of those kids had seizures. They were

> > > treated with various supplements including DMG and Vit. 6/

> magnesium

> > > and many improved. I believe Les has mercury in her brain, and

> also

> > > her small intestine is not metabolizing food correctly to get the

> > > right nutrients to her brain. So this is the direction that we are

> > > working.

> > >

> > > sally

> > >

> > >

> > > >

> > > > Since you all have been such a help with other issues in my life

> > > I'm turning to you in hopes someone out there can help me with

> this

> > > issue. While my membership is pending with the child-epilepsy

>

> > > group I would like to ask you about the following: my step-DD is

> > > almost 9 yrs old. Other than this epilepsy issue that showed

> itself

> > > a little over a year ago she is a normal healthy child.

> > > >

> > > > Her seizures do not happen often and are not very severe. In

> fact

> > > she's only had 3 seizures during a 1 1/2 year period and when she

> > > does have a seizure she becomes unresponsive, talks out of order,

> > > blanks out, and body stiffens.

> > > >

> > > > The doc last year put her on something called Lamitsal (sp?).

> She

> > > was on the meds for 1 year and did not have a seizure while on the

> > > meds. However, 6 months off of the meds she just had a seizure

> > > again. The doc is advising to put her on the meds again and try

> > > > for another year...in hopes the meds will make it go away.

> > > >

> > > > He believes she has a mild case of childhood epilepsy that in

> most

> > > instances will go away has she ages. All the testing done shows

> that

> > > she is having seizures but, oh geez, can't remember...the test was

> > > over a year ago...so please excuse me...I think something about

> its

> > > there but not as bad. Sorry, I'll have to get back to you about

> the

> > > test results from last year.

> > > >

> > > > The problem I have is with the meds being used. I did

> research on

> > > this med and it is also used for bi-polar disorders. DD is

> different

> > > on the meds...her mood...she is seemingly depressed. When told of

> > > the news she must go back on the meds she began to cry and said

> > > they " made her feel different " and did not want to feel that way.

> > > >

> > > > Has anyone encountered this type of situation with epilepsy and

> > > their, otherwise " NT " child, and if so were there any other meds

> > that

> > > worked better or a

> > > > homeopathic route? Please, it would be much appreciated if you

> > > could share your story and what did or didn't work for you or your

> > > child. I understand and respect your privacy and some

> information is

> > > sensitive, if it makes you feel more comfortable please, if you

> wish

> > > please email me privately.

> > > >

> > > > DD & our family TYIA (thank you in advance)!

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Yes, he takes Adaptocrine for adrenal support.  I'll ask about the yeast again.

Thanks,

________________________________

From: Arias <thinkingheads@...>

Sent: Friday, November 28, 2008 9:39:11 AM

Subject: Re: Re: Help with natural " cure " for childhood Epilepsy...

Not sure if I asked this... Have you tried Adrenal Cortex? It is

amazing stuff. And you say that he tested no-Yeast? Sometimes tests

are wrong.

On Nov 28, 2008, at 10:37 AM, anna yori wrote:

> Thank you . My son's seizures were worse at night also, and

> lots of hallucinations and sleepwalking. We are chelating for

> copper, he tested no-yeast, and he used to take Vit B-12, but our

> naturepath just told me he doesn't need it anymore. She also

> mentioned that during puberty (he's 15), the male brain is bathed

> in testosterone, which helps it " mature " . I have seen some

> positive changes in regards to that. He is willing to clean his

> room now (it was a nightmare before). I still don't know what to

> do about the reading and memory recall. The seizures are almost

> non-existant, but academically, he still struggles.

>

>

>

> ____________ _________ _________ __

> From: Arias <thinkingheads@ sbcglobal. net>

>

> Sent: Friday, November 28, 2008 5:35:09 AM

> Subject: Re: Re: Help with natural " cure " for childhood

> Epilepsy...

>

> My dd has some kind of seizures spikes showing on EEG. They say most

> of this happens during the night. In the day time... she can't

> remember things, can't read... is just " not there " ... What has helped

> the most is: Chelation, yeast control and Vit B thus far. Hope this

> helps.

> On Nov 27, 2008, at 9:18 PM, anna yori wrote:

>

> > I think my son had some kind of seizures when he was dealing with

> > PANDAS. I also think they are gone now. What kind of seizures are

> > involved in the autism spectrum? My son still has add symptoms,

> > but more academic ones, like being a seriously reluctant reader,

> > and hardly any memory recall at all when dealing with spelling and

> > math. He's 15.

> >

> >

> >

> > ____________ _________ _________ __

> > From: Arias <thinkingheads@ sbcglobal. net>

> >

> > Sent: Thursday, November 27, 2008 5:43:34 PM

> > Subject: Re: Re: Help with natural " cure " for childhood

> > Epilepsy...

> >

> > What if Vit. 6??? Did you mean B6????

> > On Nov 26, 2008, at 9:28 AM, Sally Averkamp wrote:

> >

> > > ,

> > >

> > > Lamictil is a dangerous med, I think. My daughter (15 yrs/

> seizures &

> > > ADD) has had seizures since she was 2 1/2 yrs and has been on

> > various

> > > meds since she was 5. She was on Lamictil for a while but they

> have

> > > to screen for liver damage (which makes me nervous) and she had a

> > > rash so the WHISKED her off it (some danger, I guess). Now she has

> > > been on Carbamazepin (200 mg x twice daily) for many years and she

> > > can tell of no side affects. 's seizures were worse and more

> > > frequent than your daughter's.

> > >

> > > My goal is to get off the meds entirely. My son has

> Aspergers

> > > Syndrome and I believe he has lost his diagnosis with all the

> > > treatments (supplements, enzymes, HBOT, etc) that we have done

> and I

> > > believe that Les' seizures are part of her autism spectrum

> disorder.

> > > I read the book, Recovering Autistic Children by Edelson & Rimland

> > > (from autism.com) and many of those kids had seizures. They were

> > > treated with various supplements including DMG and Vit. 6/

> magnesium

> > > and many improved. I believe Les has mercury in her brain, and

> also

> > > her small intestine is not metabolizing food correctly to get the

> > > right nutrients to her brain. So this is the direction that we are

> > > working.

> > >

> > > sally

> > >

> > >

> > > >

> > > > Since you all have been such a help with other issues in my life

> > > I'm turning to you in hopes someone out there can help me with

> this

> > > issue. While my membership is pending with the child-epilepsy

>

> > > group I would like to ask you about the following: my step-DD is

> > > almost 9 yrs old. Other than this epilepsy issue that showed

> itself

> > > a little over a year ago she is a normal healthy child.

> > > >

> > > > Her seizures do not happen often and are not very severe. In

> fact

> > > she's only had 3 seizures during a 1 1/2 year period and when she

> > > does have a seizure she becomes unresponsive, talks out of order,

> > > blanks out, and body stiffens.

> > > >

> > > > The doc last year put her on something called Lamitsal (sp?).

> She

> > > was on the meds for 1 year and did not have a seizure while on the

> > > meds. However, 6 months off of the meds she just had a seizure

> > > again. The doc is advising to put her on the meds again and try

> > > > for another year...in hopes the meds will make it go away.

> > > >

> > > > He believes she has a mild case of childhood epilepsy that in

> most

> > > instances will go away has she ages. All the testing done shows

> that

> > > she is having seizures but, oh geez, can't remember...the test was

> > > over a year ago...so please excuse me...I think something about

> its

> > > there but not as bad. Sorry, I'll have to get back to you about

> the

> > > test results from last year.

> > > >

> > > > The problem I have is with the meds being used. I did

> research on

> > > this med and it is also used for bi-polar disorders. DD is

> different

> > > on the meds...her mood...she is seemingly depressed. When told of

> > > the news she must go back on the meds she began to cry and said

> > > they " made her feel different " and did not want to feel that way.

> > > >

> > > > Has anyone encountered this type of situation with epilepsy and

> > > their, otherwise " NT " child, and if so were there any other meds

> > that

> > > worked better or a

> > > > homeopathic route? Please, it would be much appreciated if you

> > > could share your story and what did or didn't work for you or your

> > > child. I understand and respect your privacy and some

> information is

> > > sensitive, if it makes you feel more comfortable please, if you

> wish

> > > please email me privately.

> > > >

> > > > DD & our family TYIA (thank you in advance)!

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

would you consider trying something for yeast to see how he does?

On Nov 28, 2008, at 4:37 PM, anna yori wrote:

> Yes, he takes Adaptocrine for adrenal support. I'll ask about the

> yeast again.

>

> Thanks,

>

>

>

> ________________________________

> From: Arias <thinkingheads@...>

>

> Sent: Friday, November 28, 2008 9:39:11 AM

> Subject: Re: Re: Help with natural " cure " for childhood

> Epilepsy...

>

> Not sure if I asked this... Have you tried Adrenal Cortex? It is

> amazing stuff. And you say that he tested no-Yeast? Sometimes tests

> are wrong.

> On Nov 28, 2008, at 10:37 AM, anna yori wrote:

>

> > Thank you . My son's seizures were worse at night also, and

> > lots of hallucinations and sleepwalking. We are chelating for

> > copper, he tested no-yeast, and he used to take Vit B-12, but our

> > naturepath just told me he doesn't need it anymore. She also

> > mentioned that during puberty (he's 15), the male brain is bathed

> > in testosterone, which helps it " mature " . I have seen some

> > positive changes in regards to that. He is willing to clean his

> > room now (it was a nightmare before). I still don't know what to

> > do about the reading and memory recall. The seizures are almost

> > non-existant, but academically, he still struggles.

> >

> >

> >

> > ____________ _________ _________ __

> > From: Arias <thinkingheads@ sbcglobal. net>

> >

> > Sent: Friday, November 28, 2008 5:35:09 AM

> > Subject: Re: Re: Help with natural " cure " for childhood

> > Epilepsy...

> >

> > My dd has some kind of seizures spikes showing on EEG. They say most

> > of this happens during the night. In the day time... she can't

> > remember things, can't read... is just " not there " ... What has

> helped

> > the most is: Chelation, yeast control and Vit B thus far. Hope this

> > helps.

> > On Nov 27, 2008, at 9:18 PM, anna yori wrote:

> >

> > > I think my son had some kind of seizures when he was dealing with

> > > PANDAS. I also think they are gone now. What kind of seizures are

> > > involved in the autism spectrum? My son still has add symptoms,

> > > but more academic ones, like being a seriously reluctant reader,

> > > and hardly any memory recall at all when dealing with spelling and

> > > math. He's 15.

> > >

> > >

> > >

> > > ____________ _________ _________ __

> > > From: Arias <thinkingheads@ sbcglobal. net>

> > >

> > > Sent: Thursday, November 27, 2008 5:43:34 PM

> > > Subject: Re: Re: Help with natural " cure " for childhood

> > > Epilepsy...

> > >

> > > What if Vit. 6??? Did you mean B6????

> > > On Nov 26, 2008, at 9:28 AM, Sally Averkamp wrote:

> > >

> > > > ,

> > > >

> > > > Lamictil is a dangerous med, I think. My daughter (15 yrs/

> > seizures &

> > > > ADD) has had seizures since she was 2 1/2 yrs and has been on

> > > various

> > > > meds since she was 5. She was on Lamictil for a while but they

> > have

> > > > to screen for liver damage (which makes me nervous) and she

> had a

> > > > rash so the WHISKED her off it (some danger, I guess). Now

> she has

> > > > been on Carbamazepin (200 mg x twice daily) for many years

> and she

> > > > can tell of no side affects. 's seizures were worse and

> more

> > > > frequent than your daughter's.

> > > >

> > > > My goal is to get off the meds entirely. My son has

> > Aspergers

> > > > Syndrome and I believe he has lost his diagnosis with all the

> > > > treatments (supplements, enzymes, HBOT, etc) that we have done

> > and I

> > > > believe that Les' seizures are part of her autism spectrum

> > disorder.

> > > > I read the book, Recovering Autistic Children by Edelson &

> Rimland

> > > > (from autism.com) and many of those kids had seizures. They were

> > > > treated with various supplements including DMG and Vit. 6/

> > magnesium

> > > > and many improved. I believe Les has mercury in her brain, and

> > also

> > > > her small intestine is not metabolizing food correctly to get

> the

> > > > right nutrients to her brain. So this is the direction that

> we are

> > > > working.

> > > >

> > > > sally

> > > >

> > > >

> > > > >

> > > > > Since you all have been such a help with other issues in my

> life

> > > > I'm turning to you in hopes someone out there can help me with

> > this

> > > > issue. While my membership is pending with the child-epilepsy

> >

> > > > group I would like to ask you about the following: my step-DD is

> > > > almost 9 yrs old. Other than this epilepsy issue that showed

> > itself

> > > > a little over a year ago she is a normal healthy child.

> > > > >

> > > > > Her seizures do not happen often and are not very severe. In

> > fact

> > > > she's only had 3 seizures during a 1 1/2 year period and when

> she

> > > > does have a seizure she becomes unresponsive, talks out of

> order,

> > > > blanks out, and body stiffens.

> > > > >

> > > > > The doc last year put her on something called Lamitsal (sp?).

> > She

> > > > was on the meds for 1 year and did not have a seizure while

> on the

> > > > meds. However, 6 months off of the meds she just had a seizure

> > > > again. The doc is advising to put her on the meds again and try

> > > > > for another year...in hopes the meds will make it go away.

> > > > >

> > > > > He believes she has a mild case of childhood epilepsy that in

> > most

> > > > instances will go away has she ages. All the testing done shows

> > that

> > > > she is having seizures but, oh geez, can't remember...the

> test was

> > > > over a year ago...so please excuse me...I think something about

> > its

> > > > there but not as bad. Sorry, I'll have to get back to you about

> > the

> > > > test results from last year.

> > > > >

> > > > > The problem I have is with the meds being used. I did

> > research on

> > > > this med and it is also used for bi-polar disorders. DD is

> > different

> > > > on the meds...her mood...she is seemingly depressed. When

> told of

> > > > the news she must go back on the meds she began to cry and said

> > > > they " made her feel different " and did not want to feel that

> way.

> > > > >

> > > > > Has anyone encountered this type of situation with epilepsy

> and

> > > > their, otherwise " NT " child, and if so were there any other meds

> > > that

> > > > worked better or a

> > > > > homeopathic route? Please, it would be much appreciated if you

> > > > could share your story and what did or didn't work for you or

> your

> > > > child. I understand and respect your privacy and some

> > information is

> > > > sensitive, if it makes you feel more comfortable please, if you

> > wish

> > > > please email me privately.

> > > > >

> > > > > DD & our family TYIA (thank you in advance)!

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

Yes!  My daughter is taking Ultra Plora Plus DF caps and Proboulardi for her

yeast.  I'm open to suggestions for my son.  We get everything muscle-tested

though.

________________________________

From: Arias <thinkingheads@...>

Sent: Friday, November 28, 2008 6:30:40 PM

Subject: Re: Re: Help with natural " cure " for childhood Epilepsy...

would you consider trying something for yeast to see how he does?

On Nov 28, 2008, at 4:37 PM, anna yori wrote:

> Yes, he takes Adaptocrine for adrenal support. I'll ask about the

> yeast again.

>

> Thanks,

>

>

>

> ____________ _________ _________ __

> From: Arias <thinkingheads@ sbcglobal. net>

>

> Sent: Friday, November 28, 2008 9:39:11 AM

> Subject: Re: Re: Help with natural " cure " for childhood

> Epilepsy...

>

> Not sure if I asked this... Have you tried Adrenal Cortex? It is

> amazing stuff. And you say that he tested no-Yeast? Sometimes tests

> are wrong.

> On Nov 28, 2008, at 10:37 AM, anna yori wrote:

>

> > Thank you . My son's seizures were worse at night also, and

> > lots of hallucinations and sleepwalking. We are chelating for

> > copper, he tested no-yeast, and he used to take Vit B-12, but our

> > naturepath just told me he doesn't need it anymore. She also

> > mentioned that during puberty (he's 15), the male brain is bathed

> > in testosterone, which helps it " mature " . I have seen some

> > positive changes in regards to that. He is willing to clean his

> > room now (it was a nightmare before). I still don't know what to

> > do about the reading and memory recall. The seizures are almost

> > non-existant, but academically, he still struggles.

> >

> >

> >

> > ____________ _________ _________ __

> > From: Arias <thinkingheads@ sbcglobal. net>

> >

> > Sent: Friday, November 28, 2008 5:35:09 AM

> > Subject: Re: Re: Help with natural " cure " for childhood

> > Epilepsy...

> >

> > My dd has some kind of seizures spikes showing on EEG. They say most

> > of this happens during the night. In the day time... she can't

> > remember things, can't read... is just " not there " ... What has

> helped

> > the most is: Chelation, yeast control and Vit B thus far. Hope this

> > helps.

> > On Nov 27, 2008, at 9:18 PM, anna yori wrote:

> >

> > > I think my son had some kind of seizures when he was dealing with

> > > PANDAS. I also think they are gone now. What kind of seizures are

> > > involved in the autism spectrum? My son still has add symptoms,

> > > but more academic ones, like being a seriously reluctant reader,

> > > and hardly any memory recall at all when dealing with spelling and

> > > math. He's 15.

> > >

> > >

> > >

> > > ____________ _________ _________ __

> > > From: Arias <thinkingheads@ sbcglobal. net>

> > >

> > > Sent: Thursday, November 27, 2008 5:43:34 PM

> > > Subject: Re: Re: Help with natural " cure " for childhood

> > > Epilepsy...

> > >

> > > What if Vit. 6??? Did you mean B6????

> > > On Nov 26, 2008, at 9:28 AM, Sally Averkamp wrote:

> > >

> > > > ,

> > > >

> > > > Lamictil is a dangerous med, I think. My daughter (15 yrs/

> > seizures &

> > > > ADD) has had seizures since she was 2 1/2 yrs and has been on

> > > various

> > > > meds since she was 5. She was on Lamictil for a while but they

> > have

> > > > to screen for liver damage (which makes me nervous) and she

> had a

> > > > rash so the WHISKED her off it (some danger, I guess). Now

> she has

> > > > been on Carbamazepin (200 mg x twice daily) for many years

> and she

> > > > can tell of no side affects. 's seizures were worse and

> more

> > > > frequent than your daughter's.

> > > >

> > > > My goal is to get off the meds entirely. My son has

> > Aspergers

> > > > Syndrome and I believe he has lost his diagnosis with all the

> > > > treatments (supplements, enzymes, HBOT, etc) that we have done

> > and I

> > > > believe that Les' seizures are part of her autism spectrum

> > disorder.

> > > > I read the book, Recovering Autistic Children by Edelson &

> Rimland

> > > > (from autism.com) and many of those kids had seizures. They were

> > > > treated with various supplements including DMG and Vit. 6/

> > magnesium

> > > > and many improved. I believe Les has mercury in her brain, and

> > also

> > > > her small intestine is not metabolizing food correctly to get

> the

> > > > right nutrients to her brain. So this is the direction that

> we are

> > > > working.

> > > >

> > > > sally

> > > >

> > > >

> > > > >

> > > > > Since you all have been such a help with other issues in my

> life

> > > > I'm turning to you in hopes someone out there can help me with

> > this

> > > > issue. While my membership is pending with the child-epilepsy

> >

> > > > group I would like to ask you about the following: my step-DD is

> > > > almost 9 yrs old. Other than this epilepsy issue that showed

> > itself

> > > > a little over a year ago she is a normal healthy child.

> > > > >

> > > > > Her seizures do not happen often and are not very severe. In

> > fact

> > > > she's only had 3 seizures during a 1 1/2 year period and when

> she

> > > > does have a seizure she becomes unresponsive, talks out of

> order,

> > > > blanks out, and body stiffens.

> > > > >

> > > > > The doc last year put her on something called Lamitsal (sp?).

> > She

> > > > was on the meds for 1 year and did not have a seizure while

> on the

> > > > meds. However, 6 months off of the meds she just had a seizure

> > > > again. The doc is advising to put her on the meds again and try

> > > > > for another year...in hopes the meds will make it go away.

> > > > >

> > > > > He believes she has a mild case of childhood epilepsy that in

> > most

> > > > instances will go away has she ages. All the testing done shows

> > that

> > > > she is having seizures but, oh geez, can't remember...the

> test was

> > > > over a year ago...so please excuse me...I think something about

> > its

> > > > there but not as bad. Sorry, I'll have to get back to you about

> > the

> > > > test results from last year.

> > > > >

> > > > > The problem I have is with the meds being used. I did

> > research on

> > > > this med and it is also used for bi-polar disorders. DD is

> > different

> > > > on the meds...her mood...she is seemingly depressed. When

> told of

> > > > the news she must go back on the meds she began to cry and said

> > > > they " made her feel different " and did not want to feel that

> way.

> > > > >

> > > > > Has anyone encountered this type of situation with epilepsy

> and

> > > > their, otherwise " NT " child, and if so were there any other meds

> > > that

> > > > worked better or a

> > > > > homeopathic route? Please, it would be much appreciated if you

> > > > could share your story and what did or didn't work for you or

> your

> > > > child. I understand and respect your privacy and some

> > information is

> > > > sensitive, if it makes you feel more comfortable please, if you

> > wish

> > > > please email me privately.

> > > > >

> > > > > DD & our family TYIA (thank you in advance)!

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

Really???  Where can I find more info on this???

________________________________

From: " bailcthrn@... " <bailcthrn@...>

Sent: Monday, December 1, 2008 7:44:08 AM

Subject: Re: Help with natural " cure " for childhood Epilepsy...

Epilepsy is related to food allergies. What kind of testing have you done?

IgG? Stress Assessments? You need to find out if she's allergic to gluten.

Epilepsy/celiac are related.

let me know. cath