Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 We do not tolerate large doses of fish oil. We do best with the fish itself. My SI son loves cod but eats many. Try alternating with flax and possibly borage or even evening primrose oils. Ask your MD but we are doing a rotation diet to keep from having too much of any one thing while we're working on food intolerances too. foodallergy.com has an OK rotation diet, but we're learning about a new one called nowleap from our pediatric gastroenterologist's dietician that may have a better diet plan and more specific assessment of things like chemicals that may be having an effect. We are still reading about it. The best relief we have found for itching is apple cider vinegar baths for at least 20 minutes, preferably more like 40, then after towel, use lots of over the counter Eucerin cream to soothe. We also rotate the baths and do virgin coconut oil bath one day - feels great on the skin, followed by epsom salts and baking soda the next day and vinegar baths after that. If we have other issues, a lavender oil bath is very soothing, particularly with marjoram oil if it's time for sleep. We have complications from a parenting plan that are causing some inconsistency in this regimen but when he's on it, it is helping severe eczema. Hope this helps you! In a message dated 11/1/2007 6:50:20 A.M. Eastern Daylight Time, writes: 15. EPA-DHA from fish oil for Eczema but skin looking worse... Posted by: " toleo2007 " tomandleo@... toleo2007 Date: Wed Oct 31, 2007 7:28 pm ((PDT)) I took my dd to see a Holistic Chriropractor, whom put her on a high dose of EPA-DHA combination 6:1(500mg) a day to help with her food intolerances, significant gastroperasis and good gut health. he also said to put one to two capsules day on her ezcema, but her skin is getting quite dry and raw looking and she IS itching A LOT. Is any thing i could do to help her skin not to itch so much? The dr said is a good sign that her body is healing up. he also treated her for yeast overgrowth with a suplement called AC Formula. It has GES and i have read here that it has a phenol effect. maybe that is what's causing the problem? should i add the no phenol enzymes? . She is on the Lypo enzyme to help digestion of the oils, but we are just starting and she is on half a capsule day for now. Also, she gets a hypoallergenic formula via a feeding tube, due to her multiple food intolerances and food aversion. Thanks ahead ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 THANKS A LOT!!! We are doing Epsom salt baths and we use Aquafor (the same people who make Eucerin cream) and that seems to help. I will try the other things as well. I am not sure how to rotate things because my DD does not eat much by mouth. She has a feeding tube. I will look into the other oils; I have heard great things about the other oils you mentioned. I'll give it a try and hopefully she won't puke it. Can I buy the coconut oil at the groceries store or the health food store? Thanks again leo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 Hi Leo, You're welcome. I am sure that the feeding tube challenges are not easy. I do not know how it works to get wild caught fish in a tube version but we buy it from our grocer and cook and eat it. Perhaps lower doses of oil? I have read the Aquafor literature and shied away from it because it seemed to possibly have gluten in it, if I recall. We use plain Eucerin and had tried a newer calming cream with oats in it with bad results..redness worsened. Yes, I use Now Foods brand virgin organic coconut oil from most of our local health food stores and it's great. The more expensive brands are not necessary and don't add anything better, IMHO. Keep opened oil in fridge. I use a melon scooper to get out the hardened cold oil from the jar, a teaspoon or tablespoon at a time. It warms easily in your hands if you want to rub it right on her skin...test a small place to make sure she has no sensitivities to coconut first...I bet that you will love what it does for your hands! I enjoy bathing in it with drops of Rose Essential Oil in the water...it's heavenly! My son likes to eat the oil from its hardened state on a spoon. It is very tasty and completely edible...there are lots of web pages on the virtues of virgin coconut oil. Hope this helps! In a message dated 11/2/2007 7:15:52 A.M. Eastern Daylight Time, writes: 2b. Re: EPA-DHA from fish oil for Eczema but skin looking worse... Posted by: " Leonarda Gaige " tomandleo@... toleo2007 Date: Thu Nov 1, 2007 6:17 am ((PDT)) THANKS A LOT!!! We are doing Epsom salt baths and we use Aquafor (the same people who make Eucerin cream) and that seems to help. I will try the other things as well. I am not sure how to rotate things because my DD does not eat much by mouth. She has a feeding tube. I will look into the other oils; I have heard great things about the other oils you mentioned. I'll give it a try and hopefully she won't puke it. Can I buy the coconut oil at the groceries store or the health food store? Thanks again ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 Eczema, for us was caused by intolerances to foods AND supplements. We see a Bioset practitioner, who worked miracles for clearing those allergies and clearing up his skin....and curing him of autism. What a bargain! www.harryhong.com But...other practitioners will do Bioset-our's does it with homeopathy. www.bioset.org HTH K --- ReikiJoni@... wrote: > > Hi Leo, > > You're welcome. I am sure that the feeding tube > challenges are not easy. > I do not know how it works to get wild caught fish > in a tube version but we > buy it from our grocer and cook and eat it. Perhaps > lower doses of oil? > > I have read the Aquafor literature and shied away > from it because it seemed > to possibly have gluten in it, if I recall. We use > plain Eucerin and had > tried > a newer calming cream with oats in it with bad > results..redness worsened. > > Yes, I use Now Foods brand virgin organic coconut > oil from most of our > local health food stores and it's great. The more > expensive brands are not > necessary and don't add anything better, IMHO. Keep > opened oil in fridge. > I use a melon scooper to get out the hardened cold > oil from the jar, a > teaspoon > or tablespoon at a time. It warms easily in your > hands if you want to rub it > right on her skin...test a small place to make sure > she has no sensitivities > to > coconut first...I bet that you will love what it > does for your hands! > > I enjoy bathing in it with drops of Rose Essential > Oil in the water...it's > heavenly! > > My son likes to eat the oil from its hardened state > on a spoon. It is very > tasty > and completely edible...there are lots of web pages > on the virtues of virgin > coconut oil. > > Hope this helps! > > > In a message dated 11/2/2007 7:15:52 A.M. Eastern > Daylight Time, > writes: > > 2b. Re: EPA-DHA from fish oil for Eczema but skin > looking worse... > Posted by: " Leonarda Gaige " tomandleo@... > toleo2007 > Date: Thu Nov 1, 2007 6:17 am ((PDT)) > > THANKS A LOT!!! > > We are doing Epsom salt baths and we use Aquafor > (the same people who make > Eucerin cream) and that seems to help. I will try > the other things as well. > > I am not sure how to rotate things because my DD > does not eat much by > mouth. She has a feeding tube. I will look into > the other oils; I have > heard great things about the other oils you > mentioned. I'll give it a try > and hopefully she won't puke it. Can I buy the > coconut oil at the groceries > store or the health food store? > > Thanks again > > > > > > > ************************************** See what's > new at http://www.aol.com > > > [Non-text portions of this message have been > removed] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 K, Thanks for the info. We saw a Bioset Practitioner and it didn't work for us. We went for 3 weeks 3 times a week. Our Chiropractor thinks her eczema is caused by yeast overgrowth as Kendra has no eaten food in two months and her eczema problems continues. We are now seeing a Holistic Chiropractor and the supplements an dyeast killer seem to be helping a bit. I read in here that fatty acids are used for chelation (ALA gets broken down into smaller chain of EPA) and if you don't give the dose right, it can make things worse. I called our Dr and he said to give hear break for a few days and start again. I feel much better about that. Thanks again, leo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 I have a nt son with severe food allergies. Honestly, his skin is of no issues at all with a clean diet. With any issues, his skin is the first to show! Also I’m a huge van of Vanicrem. I see if more out on the shelves, even at Walmart. You used to have to ask. Pure, simply and often used to compound creams with. That being said, tube fed or mouth, something in there may be causing the reaction. I’m so blank right now on a name of a formula that is very hypo allergenic and very, very expensive. We almost had to go that route. Thankfully I had a fat breast fed, pumped milk child, before all this hit and getting fats into rice milk wasn’t hard and he gained fine. Let me look on internet and sleep on it and see if I can think of the formula name. Tammy RE: EPA-DHA from fish oil for Eczema but skin looking worse... K, Thanks for the info. We saw a Bioset Practitioner and it didn't work for us. We went for 3 weeks 3 times a week. Our Chiropractor thinks her eczema is caused by yeast overgrowth as Kendra has no eaten food in two months and her eczema problems continues. We are now seeing a Holistic Chiropractor and the supplements an dyeast killer seem to be helping a bit. I read in here that fatty acids are used for chelation (ALA gets broken down into smaller chain of EPA) and if you don't give the dose right, it can make things worse. I called our Dr and he said to give hear break for a few days and start again. I feel much better about that. Thanks again, leo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 Hi Leo, My son's skin was a wreck since birth and everything I tried made slight improvements, but nothing healed it from the inside out - till now. It just cleared up recently due to some interesting interventions. Perhaps we should trade pictures to see if it's the same thing? Here is a list of things for you to look into. Consider PST enzyme deficiency. My son's skin went from disastrous to beautiful within a couple of weeks after taking No-Fenol enzymes, 3x per day or more. In addition to a low phenol and low sulfur diet. Plus oral supplementation with magnesium, molybdenum, manganese, selenium and transdermal magnesium sulfate (epsom salts). Do you have a current urine lab result that indicates deficiencies in those essential elements? Don't supplement with manganese or selenium unless you know there is a deficiency. Doctors Data Urinary Essential Elements test, if you need to order one through your doctor. Epsom salts baths can be irritating and drying even though the sulfate is BADLY needed. Kirkman makes a transdermal magnesium sulfate cream that you can use on undamaged skin. There are some ingredients that I don't like, but tolerable for short term use. You can also get recipes on line to make it yourself. Once the skin starts to repair you can go back to the epsom salts baths - use a LOT of non toxic fat or oil based cream immediately afterwards. Skip petroleum products. Aquaphor = petroleum = toxic. Use unprocessed shea butter or calendula cream instead. Even olive oil. The less toxic the better. Carnitine is an amino acid based compound that escorts lipid molecules across mitochondrial cell wall membranes. If the body is deficient in carnitine (or the precursor amino acids lysine & methionine), then all the oils you put in will end up in the toilet - literally! I like DFH Carnitine Synergy. It has L-Carnitine and Acetyl-L-Carnitine together for optimal metabolism of fats. Consider SLS (Sodium Laurel Sulfate) sensitivity. http://www.solveeczema.com Just don't use the dove soap they suggest. I read recently that some Dove products have mercury. Pure olive oil castile soap is the best. Send me an e-mail if you want to exchange pictures or need more info on each thing I mentioned. - amateur biochemist and mother of recovered 4 year old son. Who now also has BEAUTIFULLY healed skin. > > I took my dd to see a Holistic Chriropractor, whom put her on a high > dose of EPA-DHA combination 6:1(500mg) a day to help with her food > intolerances, significant gastroperasis and good gut health. he also > said to put one to two capsules day on her ezcema, but her skin is > getting quite dry and raw looking and she IS itching A LOT. Is any > thing i could do to help her skin not to itch so much? The dr said is a > good sign that her body is healing up. he also treated her for yeast > overgrowth with a suplement called AC Formula. It has GES and i have > read here that it has a phenol effect. maybe that is what's causing the > problem? should i add the no phenol enzymes? . She is on the Lypo > enzyme to help digestion of the oils, but we are just starting and she > is on half a capsule day for now. Also, she gets a hypoallergenic > formula via a feeding tube, due to her multiple food intolerances and > food aversion. > Thanks ahead > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2007 Report Share Posted November 3, 2007 Tammy, I think you might be talking about Neoacate. Yes, she is on Neoacate 1 + since about 8 months old (now 15 months old). Yes, very expensive $86 per a box of 10 packages and we use 1 ½ to 2 a day. Thanks goodness WIC help us with some of the expenses as that her only source of nutrition. She looks pretty healthy 23 pounds and 30 inches tall, so the formula is definitely keeping her alive and growing. Her ezcema has been an issue since she was 3 weeks old and I am at my wit’s end and almost out of things to try. I willl look for the Vanicrem; I have heard of it before. Thanks a lot! leo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2007 Report Share Posted November 3, 2007 Wow, I like your input a lot. I do think Kendra has some phenol issues going on. What do you mean by PST deficiency? I just started Kendra on Lypo from Enzymedica and I will be getting the No-phenol one as well. I will be more than happy to trade pictures. Kendra's eczema has always been located behind her knees, on her feet joint between the foot and leg, her arms and fold at elbows, forehead, bottom tip of her ears, her tummy, her thigh. Sometimes diaper area. Before i switched to cloth diapers, she constantly had a diaper rash. These are from small to big patches. We cut her hair last Tuesday for a hair analysis and it will take 3-4 weeks before we get the results. Our Holistic chiropractor really things she has mineral and heavy metal issues. They sent the sample to Trace Element lab in Texas; I hope they are a good reputable lab. She has not had any urine test, but I believe the hair analysis test for the same problems? I will also look into the Calendula cream. I was going to try the cococut oil. Wal-Mart has a brand that I thought about getting it, but no sure how good it is. Yes, I also believe she has issues with fats and that's why we added the Lypo enzyme. She had a blood work done a while ago and it was on the low range for Cranatine, but our Dr was not concerned about it. When I looked on line what low cartinine could mean it says that it means your kidneys are working well. So I didn't worry much. THE ONLY SOAP WE USE IS DOVE SOAP. I can't believe it could be contaminated with mercury!!!, where do I get Pure olive oil castile soap? The SLS (Sodium Laurel Sulfate) sensitivity i heard of it before, but we use Sportwash detergent, by Astko and Natural occasionally to do our laundry because these leave no residue. So I think these detergents are ok. I have some shopping to do!!! THANKS SO MUCH!! I will try to take same pics and send to you. Leo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2007 Report Share Posted November 3, 2007 The reason I joined this group was to get access to a great paper on PST in the archives. I was deep into PST research and was looking for a layman guide that I could share with people when they said " HUH? " I stayed because I liked the additional info about enzymes (which my son has been on for 18+ months anyway). The paper is in Files/Related Topics and Supplements/Sulfur and PST. Read it and it will answer your questions about phenols without being too overwhelming. Hair and urine tests for toxic metals show what you are actually excreting. Not what you can't, and as a result is building up in your cells. The best way to measure systemic mercury and lead is the urinary porphyins test from LabBio in Paris. Metametrix in the USA recently jumped on that bandwagon, but I don't know how they compare. Doctors Data does a quicker job with urinary and hair toxic metals tests. I get them back in 4 or 6 business days. Perhaps the lab you are using in texas does a better job than Doc Data? I do the urine toxic metals tests on a regular basis now because my son is excreting toxins at a very rapid rate. He's close to being cleared of all the damaging gunk. I like Weleda Calendula Baby Cream (orange tube, not the white tube zinc diaper cream). Very soothing, but can get expensive if you are using it all over the whole body. I also like Lavera Neutral Intensiv-lotion (not Kerplotion) because of the nice greasy shea butter. If you find shea butter to be beneficial, let me know because I have a huge brick of the unprocessed stuff from africa that I don't really need anymore. Makes a nice natural sunscreen though! Even if you don't have a true SLS sensitivity, the molecules of detergents are very different than soap. Sharp and spiky as opposed to fat and round. If you are interested in microscopic pictures, you can see some of my (slightly blurry) images in a testimonial I did for Country Rose Soap in Canada. I'm not affiliated with them, but they do kindly give me a discount for buying in bulk. I go through a gallon of the liquid per month! http://www.countryrosesoap.com/eczema.htm For more information on the difference between detergent and REAL soap, check out www.solveeczema.com. Everything I did to the outside of his skin was just palliative care. Detergent free, chemical free, everything free made a great difference. But the second he was out of the controlled environment of the home it flared up again. It was Multiple Chemical Sensitivity gone wild. It had to be healed from the INSIDE. All the other stuff certainly helped ease the burden while I found the true cause and addressed it. Even now his skin problem are finally fixed, I won't be going back to chemical detergents, petroleum creams and other nasty stuff. I have no idea how much capacity he has to tolerate toxins, so I'll keep it as low as possible at home. > > Wow, > > I like your input a lot. I do think Kendra has some phenol issues going on. > What do you mean by PST deficiency? > > I just started Kendra on Lypo from Enzymedica and I will be getting the > No-phenol one as well. I will be more than happy to trade pictures. > Kendra's eczema has always been located behind her knees, on her feet joint > between the foot and leg, her arms and fold at elbows, forehead, bottom tip > of her ears, her tummy, her thigh. Sometimes diaper area. Before i switched > to cloth diapers, she constantly had a diaper rash. These are from small to > big patches. We cut her hair last Tuesday for a hair analysis and it will > take 3-4 weeks before we get the results. Our Holistic chiropractor really > things she has mineral and heavy metal issues. They sent the sample to Trace > Element lab in Texas; I hope they are a good reputable lab. She has not had > any urine test, but I believe the hair analysis test for the same problems? > > I will also look into the Calendula cream. I was going to try the cococut > oil. Wal-Mart has a brand that I thought about getting it, but no sure how > good it is. > > Yes, I also believe she has issues with fats and that's why we added the > Lypo enzyme. She had a blood work done a while ago and it was on the low > range for Cranatine, but our Dr was not concerned about it. When I looked on > line what low cartinine could mean it says that it means your kidneys are > working well. So I didn't worry much. > > THE ONLY SOAP WE USE IS DOVE SOAP. I can't believe it could be contaminated > with mercury!!!, where do I get Pure olive oil castile soap? > > > > The SLS (Sodium Laurel Sulfate) sensitivity i heard of it before, but we use > Sportwash detergent, by Astko and Natural occasionally to do our > laundry because these leave no residue. So I think these detergents are ok. > > I have some shopping to do!!! > > THANKS SO MUCH!! I will try to take same pics and send to you. > > > > > > Leo > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 I am wondering if you had considered dermatitis hepaforias...prolly spelling it wrong tonite....what you are describing sounds like the issues my daughter had when she was little. What helped her was going gf/cf, coconut oil and zinc rubbed all over her skin. Wilderness family traditions have expeller pressed coconut oil that is good and not as expensive....as health food stores. We buy it by the gallon....We use it for anything and everything. Also the other things that helped was yeast control. It was amazing as to see how much these things helped. just my 2 cents Ronni > > Wow, > > I like your input a lot. I do think Kendra has some phenol issues going on. > What do you mean by PST deficiency? > > I just started Kendra on Lypo from Enzymedica and I will be getting the > No-phenol one as well. I will be more than happy to trade pictures. > Kendra's eczema has always been located behind her knees, on her feet joint > between the foot and leg, her arms and fold at elbows, forehead, bottom tip > of her ears, her tummy, her thigh. Sometimes diaper area. Before i switched > to cloth diapers, she constantly had a diaper rash. These are from small to > big patches. We cut her hair last Tuesday for a hair analysis and it will > take 3-4 weeks before we get the results. Our Holistic chiropractor really > things she has mineral and heavy metal issues. They sent the sample to Trace > Element lab in Texas; I hope they are a good reputable lab. She has not had > any urine test, but I believe the hair analysis test for the same problems? > > I will also look into the Calendula cream. I was going to try the cococut > oil. Wal-Mart has a brand that I thought about getting it, but no sure how > good it is. > > Yes, I also believe she has issues with fats and that's why we added the > Lypo enzyme. She had a blood work done a while ago and it was on the low > range for Cranatine, but our Dr was not concerned about it. When I looked on > line what low cartinine could mean it says that it means your kidneys are > working well. So I didn't worry much. > > THE ONLY SOAP WE USE IS DOVE SOAP. I can't believe it could be contaminated > with mercury!!!, where do I get Pure olive oil castile soap? > > > > The SLS (Sodium Laurel Sulfate) sensitivity i heard of it before, but we use > Sportwash detergent, by Astko and Natural occasionally to do our > laundry because these leave no residue. So I think these detergents are ok. > > I have some shopping to do!!! > > THANKS SO MUCH!! I will try to take same pics and send to you. > > > > > > Leo > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 Hi there, Thank you for your input. Kendra is 100% G-tube fed a hypoallergenic formula as she hasn't been able to tolerate almost all foods. We are doing Epsom salts baths and fish/olive oil rubbed on her skin. Where do you get your Zinc? Our ND didn't want to give us any zinc supplements until he gets her hair analysis report back. He said that minerals have to be balanced carefully as they compete with each other. We are on a yeast treatment right now. I think is helping as she has not gotten the red cheeks and ears in a couple of days. Thanks again. leo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2007 Report Share Posted November 5, 2007 _www.kirkmanlabs.com_ (http://www.kirkmanlabs.com) makes a zinc-sulphate cream and also a magnesium-sulphate cream. Yes, they have to be balanced, but hair tests are ambiguous. In other words, low zinc or magnesium in the hair, can also mean that it is being used up to quick to fight pathogens or not being absorbed into the cells, or high levels may mean it is not being absorbed for efficient use or environmental contamination. I say experience is the best medicine, and also note that giving zinc long-term will most likely result in an inbalance eventually, so look for that and adjust as necessary. Zinc is used to fight viruses, magnesium is used up by bad bacteria and copper is used for bad bacteria. These three are almost always out-of-wack in sick people. Heidi N ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2007 Report Share Posted November 12, 2007 Thanks for the thoughts, Heidi, Do you recommend the zinc sulfate cream? I am already doing Epsom salt baths and made the cream as well. What do you recommend for supplementing for copper? What brand and how much for my 15 months old, 23.5 pounds. Thanks Leo Quote Link to comment Share on other sites More sharing options...
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