Re: on behavior getting worse

November 4, 2007

Several years ago when my daughter was about 12, a reputable

institution did NOT like the tegretol that she was on to control

seizures. It was not working well and their take was that depakote was

a much better med for children. For her, the switch was a disaster.

Depakote actually seemed to provoke seizures. They began occurring

very regularly approx 1-1.5 hours after dosing. The med also changed

her seizure pattern for the worse. Instead of the 'out to lunch',

wandering, hand wringing, chewing pattern that had been 'seizure',

depakote added a turning blue, hard to find perpheral pulses, total

loss of consciousness aspect to each seizure. When she was 16, we

trialed gfcfsf. The gluten, casein, and soy are seizure triggers for

her. The seizures are a delayed response-8-12 after she eats an

offending item[they occur despite any med she is on!]. Other foods

[peanut, cocoa, cola and some others] give her what I call 'pre-

seizure behavior' - nasty, irritable and diificult to reason with! She

gets a wild eyed glassy look with hugely dilated pupils. Going gfcfsf

was the best thing we did for seizure control. It was very scary as

the first few days of it looked like dts with MANY seizures. The

seizures tapered by day 4 and were gone by day 5. Once we got pure on

the diet, it was easy to see the connection. That too was a BIG hassle

as even her seizure medicine had a milk component.

>

> my 14 year old son is going thourgh a meds change when we starting

> cutting back on seizure meds,that he had been taking for 6 months,to

> put him on a new meds is behavior got worse than it has every been

is

> any child have seizures,and autism to. if so are they on depakota if

so

> how does it work for them.

>

November 5, 2007

Two of my three sons have seizures. Noah, ASD, has been on several seizure meds,

including depakote. We took him off after several months due to rapid weight

gain. Depakote has been shown to improve symptoms of autism. My other son,

diagnosed with autistic like tendencies, was on depakote as well. We had to take

him off because he became very emotional and suffered from paranoia (he thought

everyone was being nice to him just to trick him--scary!). He's now on Zarontin

and is making great progress. Noah is starting Zarontin once we wean him off

Lamictal.

HTH,

Robyn

becky_for_you <becky_for_you@...> wrote:

my 14 year old son is going thourgh a meds change when we starting

cutting back on seizure meds,that he had been taking for 6 months,to

put him on a new meds is behavior got worse than it has every been is

any child have seizures,and autism to. if so are they on depakota if so

how does it work for them.

November 6, 2007

My son use to have severe seizures. He was on both Lamictal and

Topamax... and was still have absent type seizures constantly ...with

several grand mal type seizures as well.... However, he is being

weaned from the Topamax right now. We had to place him on a strict

strict diet ... He also takes several supplements that are targeted

at helping control his seizures. Things like histidine, taurine,

methionine ... all have helped him become seizure free. He can't

have gluten/casein, corn or soy at all, not even with enzymes ...

But the good news is he is totally and completely seizure free now

for well over a year. He use to have upward to 30 or more a day...

and we have been able to cut his seizure medication in half ... and

are working toward the goal of ending them entirely ... So far so

good ... I have been really slow on the withdrawl of the

medication .. watching for the return of the seizures ... but so far

none has happened. He is happier and healthier than anytime in his

15 years of life.

Melinda

> my 14 year old son is going thourgh a meds change when we

starting

> cutting back on seizure meds,that he had been taking for 6

months,to

> put him on a new meds is behavior got worse than it has every been

is

> any child have seizures,and autism to. if so are they on depakota

if so

> how does it work for them.

>

November 6, 2007

Since our son has been on magnesium he has not had any grand mals. We

only give 2-3 times a week. Jennie<><

>

> my 14 year old son is going thourgh a meds change when we starting

> cutting back on seizure meds,that he had been taking for 6 months,to

> put him on a new meds is behavior got worse than it has every been is

> any child have seizures,and autism to. if so are they on depakota if

so

> how does it work for them.

>

November 6, 2007

does any of them come in a pill or is all powered?my son has been having a

seizure every 4 to 5 weeks,the last one he had last 24 to 27 min i had call his

dr 3 times to get in touch with him another dr that night and he raise his

depakote up to 4 twice a day till the new meds work i know that it has help he

behavior alot still get a little upset but not like before.thanks for listen and

helping. rebecca

livninfaith <gmalleyne@...> wrote: My son use to have severe

seizures. He was on both Lamictal and