Re: Digest Number 1023

[Guest guest]

In a message dated 2/14/00 3:55:17 AM Eastern Standard Time,

lyme-aidonelist writes:

<< Also my

LLMD, he is great, does not like to use Rocephin, he feels it causes the LD

to mutate to much and tooo quickly. JMOO. Good Luck, Pepi >>

Pepi,

Is your Dr. saying that Rocephin is bad for us and causes the infection

to mutate instead of dying off ?? This concerns me considering that I had two

mo. of IV Rocephin back in late summer, early fall of 99. Can you please

explain what your Dr meqant by this. Thank you.

Your Lyme Friend,

in VA

[Guest guest]

, I do not know exactly what he meant by this, since I have been

seeing him on each visit (5 so far every 4 weeks) I have a new 'bomb'

dropped on me and I usually leave in a state of shock, I am sur Ya'll know

how that feels! He had said though, that Rocephin does kill some LD but it

causes alot more LD to " hide now whether he meant cysts or what I do not

know for sure.Any way, I have a list of ?s to ask of him next visit, 3-1.

Now if I can just remember that list.........................Pepi

>

> << Also my

> LLMD, he is great, does not like to use Rocephin, he feels it causes the

LD

> to mutate to much and tooo quickly. JMOO. Good Luck, Pepi >>

>

> Pepi,

> Is your Dr. saying that Rocephin is bad for us and causes the

infection

> to mutate instead of dying off ?? This concerns me considering that I had

two

> mo. of IV Rocephin back in late summer, early fall of 99. Can you please

> explain what your Dr meqant by this. Thank you.

>

> Your Lyme Friend,

> in VA

>

>

[Guest guest]

Hi, Luke (or Ken),

>If you do start the TF or the whey, START SLOWLY! A quarter tsp of whey or

>one TF every three or four days to start. You sound pretty fragile, and

>both of these products can be a little

rocky

>at the start. Unless you have autoimmune problems, you should not

get

>damaged by either one, but DON'T follow the instructions on the bottle,

>listen to your body and don't be in a hurry.

Saw this post and wondered - do you mean that if you have autoimmune

problems the whey is not indicated? or the TF?

Jerry

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

> Hi, Luke (or Ken),

> >If you do start the TF or the whey, START SLOWLY! A quarter tsp

of

whey or

> >one TF every three or four days to start. You sound pretty

fragile, and

> >both of these products can be a little

> rocky

> >at the start. Unless you have autoimmune problems, you should not

> get

> >damaged by either one, but DON'T follow the instructions on the

bottle,

> >listen to your body and don't be in a hurry.

>

> Saw this post and wondered - do you mean that if you have

autoimmune

> problems the whey is not indicated? or the TF?

>

> Jerry

>

According to what I have read, TF is not generally recommended for

people with autoimmune problems.

From anecdotal reports by users, whey products MAY be a problem for

some people with autoimmune problems. This is speculation at this

point, based on a couple of people who had bad reactions to IP who

also had autoimmune difficulty. Autoimmunity is a broad category and

nobody knows (at least nobody I know of knows) why some people can't

tolerate whey. At this point it's just a guess that autoimmunity is

involved some of the time.

Luke

______________________________________________________________________

__

> Get Your Private, Free E-mail from MSN Hotmail at

http://www.hotmail.com

[Guest guest]

Luke, my doc recommended transfer factor for me even

though I have positive ANA antibodies indicating auto-

immune problems. Can you expand on why this would not

be recommended?

Thanks - Jennie F.

--- luke@... wrote:

>

> According to what I have read, TF is not generally

> recommended for

> people with autoimmune problems.

>

__________________________________________________

[Guest guest]

'oxyplus ' wrote:

====

-

- OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other

....'

> Take a look to the attachment.

[Guest guest]

Hello,

I hate to be a party pooper but I was on a large ship from the Celebrity Line

two years ago and I had trouble with balance when the ship was rolling just a

small bit.

Although I never fell, I was very tired at the end of the day and missed all

the late night activities because I was sleeping. I never got to any of the

midnight buffets and miss the really big one with the ice sculptures. And

that is not all all like me.

This is something some of us might want to consider before jumping aboard.

However, there were two people with scooters. They requested large

handicapped staterooms and they had a wonderful time.

Joan

[Guest guest]

Joan,

That's part of my reluctance. Many ships have only a few handicapped rooms

and larger rooms cost more. From what I have read most ships have many

areas that are not handicapped assessable. Then when you get to the

destination you are very limited in what you can do and where you can go. I

have considered taking a one night " cruise to nowhere " for the ship

experience, but feel that (from all I have heard) that a cruise would likely

not be a good experience for many of us. The main reason that Branson MO

came to mind is that it is more centrally located, has thousands of rooms,

is said to be very handicapped friendly, and has lots of various

entertainment and places to eat. Also it has good group rates. I have

never been there, but have talked with many that have. There are probably

many other places that would offer close to the same.

----- Original Message -----

From: jsheliko@...

Sent: Saturday, August 18, 2001 11:46 AM

Subject: Re: [] Digest Number 1023

Hello,

I hate to be a party pooper but I was on a large ship from the Celebrity

Line

two years ago and I had trouble with balance when the ship was rolling

just a

small bit.

Although I never fell, I was very tired at the end of the day and missed

all

the late night activities because I was sleeping. I never got to any of

the

midnight buffets and miss the really big one with the ice sculptures. And

that is not all all like me.

This is something some of us might want to consider before jumping aboard.

However, there were two people with scooters. They requested large

handicapped staterooms and they had a wonderful time.

Joan

[Guest guest]

At 04:08 AM 8/30/01 +0000, you wrote:

>Thanks so much. This is one of the first items I want to make. I'm not

>feeling so secure about soap. Maybe I'll do liquid soaps. lol

>

>Pamela

Pamela, liquid soaps are a LOT more complicated to make than " normal " cold

process soap.

Your source for superb Essential Oils, Aromatherapy

Accessories, Information, Books and more!

Visit us at: <http://www.naturesgift.com>

[Guest guest]

Please take my name off of this website!!

[Guest guest]

I have asked to be deleted from this group. If I need to do something else to get my name off of this list please let me know!!

Thanks!

[Guest guest]

your geneticist is correct. the autism gene has not been found. it is unlikely

to be found because autism is probably too complex to be the result of changes

to one gene.

implicated does not mean proven. it means strong evidence. the url below will

take you to

http://www.faseb.org/genetics/ashg99/f2675.htm

that is just one article among many. one of the complications is that

environmental influences can change genetic structure. i dont feel like writing

an essay, but vivisimo is a good search engine if you want to know more.

tooAutism_in_Girls wrote:

>Message: 1

>   Date: Fri, 27 Sep 2002 18:06:58 -0400

>   From: gprobertson@...

>Subject: RE: Digest Number 1022

>

>The last time I read on this topic, they had found 7 genes implicated in

autism.  As well as that there are specific genes implicated in related

conditions such as Frag X, Syndrome, Floating Harbor, Angelmans, Prader

Willi etc etc.  

>Other conditions such as cerebral palsy, deaf, blind, Down Syndrome can  also

be associated with autism, but not necessarily.

>Fragile X is inherited from the mother and is a very common cause of cognitive

delays.  Girls only have Fragile X if it is inherited from both parents, and

that is very rare.  The carrier can exhibit some characteristics, often

appearing as though they have Asperger Syndrome.

>

>Message: 12

>  Date: Fri, 27 Sep 2002 10:21:35 -0000

>  From: " autiemom4 " <autiemom4@...>

>Subject: Re: another child?

>

>Actually, they have not found the autism gene, the geneticist is

>speaking out of turn.  Having 4 children on the spectrum has lead us

>to being involved in many university and science studies to discover

>the cause of autism. I am in contact with them on a regular basis and

>they tell me they have not found any such information.  We are all

>still basically in the dark about all this.

>autiemom4

>Autism Family Circle

>

>

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[Guest guest]

Hi Anne,

My understanding of black soap is that it is made with oils from Africa, shea

butter

etc. Not sure if that's correct, but I read it on a list somewhere. I think when

people

say that the soap was made without lye it's been re-batched LOL. And you're

right.The other thing they say is " it doesn't contain lye " . No it doesn't, but

is was

certainly made with lye. I've done a few markets with some man who kept

insisting

his soap was made without lye. They were boxes and boxes of them, all perfect

(didn't appeal to me) but all the same shape, very bright colors, with very

strong

fragrant oils. And he claimed he made these himself - I don't think so. I live

in

Western Australia and these soaps have turned up all over Australia with

different

people claiming to hand-make them " without lye " . Well I think they're " lyers "

LOL.

Virginia

On 15 Jun 2003 at 9:14, wrote:

From: " Anne " <annemorg@...>

Not that I know of. I don't mean to sound as if I know everything

because I don't. But I have never heard of soap without lye being a

part of the formula.

[Guest guest]

In a message dated 4/17/04 3:35:58 AM Mountain Daylight Time,

SSRI medications writes:

> From: " Jim- Norman " <mofunnow@...>

> Subject: House supports preferred drug list for treating mental illness

>

> I wonder what SSRI's will be on this prefered drug list?

>

>

The ones whose company made the biggest politicial donations!

Blind Reason

a novel of espionage and pharmaceutical intrigue

Think your antidepressant is safe? Think again.

An army of sheep led by a lion would

defeat an army of lions led by a sheep.

- Oriental proverb

[Guest guest]

In a message dated 8/5/2005 8:19:16 AM Eastern Daylight Time, samters writes:

Today, I saw an allergist/immunologist near the University of South Florida, and he has given me hope!!! I am on new medication, will have allergy tests (even though I've had them 3 times), then most likely, on to aspirin desensitization. He says I'm a very complicated case and a good candidate for the desens. Reading the posts on this site has helped me get to this point. I read what others have to say and what is being done, and realized there's more out there than the endless cycle of infections, polyp removal, and polyp regrowth. My ENT is wonderful, and I love him to pieces, but I told him after my surgery in March, that I intended to be very aggressive about finding something to help me with this problem--and I have been. . I knew that this is a problem rooted in my immune system and started doing online research, which led me to this group and to the doctor I saw today. I am cautiously optimistic that this doctor will find something to help me.

Anyone else looking for a doctor, I'd suggest you look for an allergist/immunologist at a university/teaching hospital nearest you. They do the research and studies and are on the cutting edge of what's new. This is where I found this doctor.

Say a prayer and keep your fingers crossed!!

Diane (FL)

[Guest guest]

Thanks Diane. I’ve seen an

allergist who unfortunately wasn’t all that good so was referred to an

Immunologist and I’m sure he was worse.

The upshot was (now 9 weeks after surgery)

is that my GP last week put me back on very high doses of Prednisone. I’m

just about crawling the walls, not sleeping and anxiety attacks in every

direction. Not to mention the nose bleeds. I’m still optimistic

though, I return to the ENT in three weeks so hopefully he might have something

to suggest (besides putting me down

From:

samters [mailto:samters ] On Behalf Of yelware@...

Sent: Saturday, 6 August 2005 1:31

PM

samters

Subject: Re: Digest

Number 1023

In a message dated 8/5/2005 8:19:16 AM

Eastern Daylight Time, samters writes:

Today, I saw an allergist/immunologist

near the University

of South Florida, and he

has given me hope!!! I am on new medication, will have allergy

tests (even though I've had them 3 times), then most likely, on to aspirin

desensitization. He says I'm a very complicated case and a good candidate

for the desens. Reading the posts on this site has helped me get to this

point. I read what others have to say and what is being done, and

realized there's more out there than the endless cycle of infections, polyp

removal, and polyp regrowth. My ENT is wonderful, and I love him to

pieces, but I told him after my surgery in March, that I intended to be very

aggressive about finding something to help me with this problem--and I have

been. . I knew that this is a problem rooted in my

immune system and started doing online research, which led me to this group and

to the doctor I saw today. I am cautiously optimistic that this doctor

will find something to help me.

Anyone else looking for a doctor,

I'd suggest you look for an allergist/immunologist at

a university/teaching hospital nearest you. They do the research and

studies and are on the cutting edge of what's new. This is where I found

this doctor.

Say a prayer and keep your fingers

crossed!!

Diane (FL)

[Guest guest]

What medication are you on and is it working?

I'm completely swollen today. I know ya'll know what that's like.

Since I like to stretch out the intervals b/t steroid bursts as long

as possible (and my last dose was in June) anyone have a good interim

solution?

I am on ...

1 aspirin / day

Advair (highest does)

Rhinocort

Pulmicort respules delivered via grossan water pick (which is usually

very effective but not lately)

Amph anti fungal wash (amphotericin

Citrical (b/c of all the steroids)

>

> In a message dated 8/5/2005 8:19:16 AM Eastern Daylight Time,

> samters writes:

>

> Today, I saw an allergist/immunologist near the University of South

Florida,

> and he has given me hope!!! I am on new medication, will have

allergy tests

> (even though I've had them 3 times), then most likely, on to

aspirin

> desensitization. He says I'm a very complicated case and a good

candidate for the

> desens. Reading the posts on this site has helped me get to this

point. I read

> what others have to say and what is being done, and realized

there's more out

> there than the endless cycle of infections, polyp removal, and

polyp regrowth.

> My ENT is wonderful, and I love him to pieces, but I told him after

my

> surgery in March, that I intended to be very aggressive about

finding something to

> help me with this problem--and I have been. . I knew that this is

a problem

> rooted in my immune system and started doing online research, which

led me to

> this group and to the doctor I saw today. I am cautiously

optimistic that this

> doctor will find something to help me.

>

> Anyone else looking for a doctor, I'd suggest you look for an

> allergist/immunologist at a university/teaching hospital nearest

you. They do the research

> and studies and are on the cutting edge of what's new. This is

where I found

> this doctor.

>

> Say a prayer and keep your fingers crossed!!

> Diane (FL)

[Guest guest]

Why are you on one aspirin a day and how many milligrams is it? I

don't think that one aspirin will do any good. I think the minimum

dose you would need to be on is 650 milligrams to see benefit (which

is at minimum two aspirins depending on the milligrams in the tablets,

some are only 81 milligrams) and some people need 1300 milligrams a

day (the dose I was on that I found helpful).

I leukotriene modifier such as Singulair would probably be helpful,

too.

Lori

[Guest guest]

I took singulair for awhile but I did not find the singulair helpful.

I also don't want to fry my stomach on aspirin, which I've done in

the past. They say one baby aspirin per day is enough for colon

polyps so ...

I have found two peculiar (and isn't everything with this so

peculiar?) therpaies that somewhat alleviate the runny nose and

recurring sneezes.

I use the Grossan nasal wash with ICE water (I put ice in it).

Someone had once suggested warm water (body temp) which I used for

awhile. It was soothing but I found it unhelpful. The ice water

really stimulates the cilia in the sinuses and feels like ocean water

up the nose. And if ice is good for swollen bruises why not swollen

sinuses? Who knows ...

I also find that i'm less runny/sneezy/congested when I use the anti-

fungal wash Amphoterecin B.

But this is all so peculiar and unscientific. does anyone know

anyting about the timing mechanism of the sinuses? how they switch

sides throughout the day? it's something i read once on body

chronography but I don't remember anything about it. maybe there's

something there ... ???

> Why are you on one aspirin a day and how many milligrams is it? I

> don't think that one aspirin will do any good. I think the minimum

> dose you would need to be on is 650 milligrams to see benefit

(which

> is at minimum two aspirins depending on the milligrams in the

tablets,

> some are only 81 milligrams) and some people need 1300 milligrams a

> day (the dose I was on that I found helpful).

>

> I leukotriene modifier such as Singulair would probably be helpful,

> too.

>

> Lori

[Guest guest]

In terms of the aspirin dose, all I can say is one baby aspirin a day

is NOT going to help you in terms of the Samters and I'm no scientist

but I would even guess it might make everything worse because you are

not completely desensitized, therefore every time you take it you're

just giving yourself the one thing your body doesn't want.

The lowest effective dose that Dr. son found in his studies was

650 milligrams a day, which is two regular strengh aspirin. Some

people needed 1300. No one took less than 650 milligrams a day and

found Samters symptoms reduced that I know of (someone jump in and

correct this if you know otherwise) and definitely no one took a baby

aspirin a day which is only like, what, 81 milligrams or something?

I understand not wanting to fry your stomach, but then I would just

discontinue the aspirin all together, unless you are on it for heart

reasons, in which case I still think a higher dose is going to be

needed unless you want to make your Samters symptoms worse.

I'd be very interested to hear what others have to say about this,

but they did study dose in the aspirin desensitization studies, and

people needed 650 milligrams daily to see symptom relief at minimum.

Lori

[Guest guest]

Also you could try Enteric Coated Aspirin. I have been on 1300 mg a day since Feb 05 and have not so much as had an upset stomach.

Marcus

[Guest guest]

In a message dated 8/18/2005 8:30:13 AM US Mountain Standard Time,

writes:

Don't forget to read my

article on .com about folks just like you (and me) who

branched out from AT.

Hi Anya and Every Perfume Lover Here

(http://www.smileycentral.com/?partner=ZSzeb001_ZNxdm414YYUS) ,

I think I spend an hour on your beautiful website everyday! You are one

classy girl and the site is so informing! We are giving our website a face

lift

and making it more user friendly.

I'm also very interested in beauty products and that is how I started my own

line of face creams and body lotions! Have meet many fine people in that

profession to!

Take Care and Have a Scent Filled Day!

Dianna ) _www.innersanctuary.com_ (http://www.innersanctuary.com)

[Guest guest]

In a message dated 8/18/2005 8:30:13 AM US Mountain Standard Time,

writes:

Full Moon Friday

Oh, the blossoms, the fruit, the rich, verdant grass -- this is the height

of the fertile, sexy, fun growth season for much of the area of the world

north of the equator. Friday's full moon in Aquarius, spotlighted by the

bright light show Mars is putting on this month, will provide a spectacular

sky illumination.

Dear Anya,

I was totally WOWED when I read this beautiful poem from you, if you

wrote this I must say you should be publishing!! I find the longer I know you

the more I find that you are so multi talented! I printed it to share with

other and to put on beautiful paper and paste to my aromatherapy picture cards

that I send to friends! Hoping you do not mind!! Wonderful...Thank You so

much for this delight!

Dianna....www.innersanctuary.com

[Guest guest]

At 01:37 AM 8/24/2005, you wrote:

>Hi Anya and Every Perfume Lover Here

>(http://www.smileycentral.com/?partner=ZSzeb001_ZNxdm414YYUS) ,

Hi Dianna

This site sure wants to set a lot of cookies -- I didn't let them. I hope

they are legit, and that downloading them won't put something on your

harddrive you don't want!

>I think I spend an hour on your beautiful website everyday! You are one

>classy girl and the site is so informing! We are giving our website a

>face lift

>and making it more user friendly.

Your website always was user-friendly to me, with lots of great

information. Thanks for the sweet talk about np.com, we're still working on

it, and this summer is sllllllooooowwwww work, so the magazine might not

launch on time. I'll concentrate on the newsletter for now, and adding

articles, including Perfume Reviews by our own Ayala, coming soon!

>I'm also very interested in beauty products and that is how I started my own

>line of face creams and body lotions! Have meet many fine people in that

>profession to!

There are a lot of great for the body care lines, too, I have

some I can recommend it you like (that is, if you're not already subbed to

a bunch already, lol.)

>Take Care and Have a Scent Filled Day!

>Dianna ) _www.innersanctuary.com_

Anya

http://.com

The premier site on the Web to discover the beauty of Natural Perfume

" The Age of the Foodie is passé. It is now the Age of the Scentie. "

[Guest guest]

At 01:52 AM 8/24/2005, you wrote:

>Full Moon Friday

>

>Oh, the blossoms, the fruit, the rich, verdant grass -- this is the height

>of the fertile, sexy, fun growth season for much of the area of the world

>north of the equator. Friday's full moon in Aquarius, spotlighted by the

>bright light show Mars is putting on this month, will provide a spectacular

>sky illumination.

>Dear Anya,

>

> I was totally WOWED when I read this beautiful poem from you, if you

>wrote this I must say you should be publishing!! I find the longer I know

>you

>the more I find that you are so multi talented! I printed it to share with

>other and to put on beautiful paper and paste to my aromatherapy picture

>cards

>that I send to friends! Hoping you do not mind!! Wonderful...Thank You so

>much for this delight!

>

>Dianna....www.innersanctuary.com

Thanks for the compliments, Dianna, I just try to tune into the cosmic

forces for my gardening, perfuming, and other creative endeavors. There

truly is a time to sow and a time to reap, and right now I'm into weeding

and destruction of nonfruitful stuff, so not too much poetry or kind words

to be written there, lol. Well, actually, entropy and destruction have a

place in the world, even perfumery, and when the forces are barren and it

is time to " prune back " it helps to be in tune with those vibes. Hmmmm... I

think I may write about that, too -- no need to always be the la-la Libran!

Anya

http://.com

The premier site on the Web to discover the beauty of Natural Perfume

" The Age of the Foodie is passé. It is now the Age of the Scentie. "