Re: Could enzyme reaction be b/c gfcf still???

[Guest guest]

I guess you should tell us the dose/type of enzyme, chewable, capsule.

There is an adjustment period and you may have to drop your dose and go

slower.

Tammy

Could enzyme reaction be b/c gfcf still???

We are wondering if Callan is reacting so strongly still to the

peptizyde because we have been mostly still gfcf while we start the

enzymes? She seems so " over the top " with very sensitive reactions to

everything. There are some real positives too, but I don't know how

much longer we can handle the other stuff. It has been 3 weeks now

and we started with trienza and switched to just the peptizyde this

week. We are trying to keep the dose low and are dying to give up the

diet, but we are starting to lose hope. Would it be better if she ate

gluten and casein with the enzyme? Thanks for all your help. Without

this board, this process would be much harder.

Tammy

[Guest guest]

Hi Tammy,

Did you ask the person at Houston about the peptizyde and doing the PrimeZyme,

as well? DeFelice called the PrimeZyme the " happy child effect " because

it seemed to calm the children down and put an end to the hypersensitivity. We

started enzymes about the same time you did (we started 3/22) and just jumped in

giving (4 1/2, 28lbs) a full capsule of Enzymedica's Digest before each

feeding. We've adjusted it to 1/2 capsule mixed directly into his food. This

seems to have helped tremendously.

I guess I'm just saying that since we saw improvements - especially in language

- we didn't want to stop the enzymes even though was making everyone

around him miserable. AND he started vomiting again! (That's not unusual for

, though.) What about trying a different brand like Enzymedica or

Kirman's? Or ask Houston's about adding the PrimeZyme - or even doing PrimeZyme

by itself. From what I understand, sometimes the papain (sp?) and bromelain

(sp?) in Peptizide and Trienza can be difficult for some kids.

HTHs a little!

Dana C.

-------------- Original message --------------

From: " tamarabeideman " <tamarabeideman@...>

We are wondering if Callan is reacting so strongly still to the

peptizyde because we have been mostly still gfcf while we start the

enzymes? She seems so " over the top " with very sensitive reactions to

everything. There are some real positives too, but I don't know how

much longer we can handle the other stuff. It has been 3 weeks now

and we started with trienza and switched to just the peptizyde this

week. We are trying to keep the dose low and are dying to give up the

diet, but we are starting to lose hope. Would it be better if she ate

gluten and casein with the enzyme? Thanks for all your help. Without

this board, this process would be much harder.

Tammy

[Guest guest]

My son is GF/CF and we use the peptizyde AFP with no problem. Are you using thw

AFP form?

Re: Could enzyme reaction be b/c gfcf still???

Hi Tammy,

Did you ask the person at Houston about the peptizyde and doing the PrimeZyme,

as well? DeFelice called the PrimeZyme the " happy child effect " because it

seemed to calm the children down and put an end to the hypersensitivity. We

started enzymes about the same time you did (we started 3/22) and just jumped in

giving (4 1/2, 28lbs) a full capsule of Enzymedica's Digest before each

feeding. We've adjusted it to 1/2 capsule mixed directly into his food. This

seems to have helped tremendously.

I guess I'm just saying that since we saw improvements - especially in language

- we didn't want to stop the enzymes even though was making everyone

around him miserable. AND he started vomiting again! (That's not unusual for

, though.) What about trying a different brand like Enzymedica or

Kirman's? Or ask Houston's about adding the PrimeZyme - or even doing PrimeZyme

by itself. From what I understand, sometimes the papain (sp?) and bromelain

(sp?) in Peptizide and Trienza can be difficult for some kids.

HTHs a little!

Dana C.

------------ -- Original message ------------ --

From: " tamarabeideman " <tamarabeideman>

We are wondering if Callan is reacting so strongly still to the

peptizyde because we have been mostly still gfcf while we start the

enzymes? She seems so " over the top " with very sensitive reactions to

everything. There are some real positives too, but I don't know how

much longer we can handle the other stuff. It has been 3 weeks now

and we started with trienza and switched to just the peptizyde this

week. We are trying to keep the dose low and are dying to give up the

diet, but we are starting to lose hope. Would it be better if she ate

gluten and casein with the enzyme? Thanks for all your help. Without

this board, this process would be much harder.

Tammy

[Guest guest]

Yes we are using the afp form. Did it take your son a long time to

adjust to it?

>

> My son is GF/CF and we use the peptizyde AFP with no problem. Are

you using thw AFP form?

>

>

> Re: Could enzyme reaction be b/c gfcf still???

>

> Hi Tammy,

>

> Did you ask the person at Houston about the peptizyde and doing

the PrimeZyme, as well? DeFelice called the PrimeZyme

the " happy child effect " because it seemed to calm the children down

and put an end to the hypersensitivity. We started enzymes about the

same time you did (we started 3/22) and just jumped in giving

(4 1/2, 28lbs) a full capsule of Enzymedica's Digest before each

feeding. We've adjusted it to 1/2 capsule mixed directly into his

food. This seems to have helped tremendously.

>

> I guess I'm just saying that since we saw improvements -

especially in language - we didn't want to stop the enzymes even

though was making everyone around him miserable. AND he

started vomiting again! (That's not unusual for , though.)

What about trying a different brand like Enzymedica or Kirman's? Or

ask Houston's about adding the PrimeZyme - or even doing PrimeZyme

by itself. From what I understand, sometimes the papain (sp?) and

bromelain (sp?) in Peptizide and Trienza can be difficult for some

kids.

>

> HTHs a little!

>

> Dana C.

>

> ------------ -- Original message ------------ --

> From: " tamarabeideman " <tamarabeideman>

> We are wondering if Callan is reacting so strongly still to the

> peptizyde because we have been mostly still gfcf while we start

the

> enzymes? She seems so " over the top " with very sensitive reactions

to

> everything. There are some real positives too, but I don't know

how

> much longer we can handle the other stuff. It has been 3 weeks now

> and we started with trienza and switched to just the peptizyde

this

> week. We are trying to keep the dose low and are dying to give up

the

> diet, but we are starting to lose hope. Would it be better if she

ate

> gluten and casein with the enzyme? Thanks for all your help.

Without

> this board, this process would be much harder.

> Tammy

>

>

[Guest guest]

She is taking 1 chewable peptizyde with each meal now. For the

first 2 weeks, we were giving her 1/2 trienza at each meal and then

we switched to afp peptizyde so we could try to see if it was 1 of

the 3 in trienza that was giving her the problems. 1 chewable seems

to be equivalent to about 1/3 of the capsule. She has remained gfcf

with the exception of twice and we did give more enzymes for those

meals. Any advice? Thanks, Tammy

>

> I guess you should tell us the dose/type of enzyme, chewable,

capsule.

> There is an adjustment period and you may have to drop your dose

and go

> slower.

>

>

>

> Tammy

>

>

>

>

>

> Could enzyme reaction be b/c gfcf still???

>

>

>

> We are wondering if Callan is reacting so strongly still to the

> peptizyde because we have been mostly still gfcf while we start

the

> enzymes? She seems so " over the top " with very sensitive reactions

to

> everything. There are some real positives too, but I don't know

how

> much longer we can handle the other stuff. It has been 3 weeks now

> and we started with trienza and switched to just the peptizyde

this

> week. We are trying to keep the dose low and are dying to give up

the

> diet, but we are starting to lose hope. Would it be better if she

ate

> gluten and casein with the enzyme? Thanks for all your help.

Without

> this board, this process would be much harder.

> Tammy

>

>

>

>

>

>

[Guest guest]

Thanks Dana for the advice. We are taking afp peptizyde without the

papain, but we have some samples of the zyme prime and I have been

using 's book as my " Bible " through this so I will read up

again on this and try to give the zyme prime with it. I have been

giving Kid's Calm/magnesium with it to help calm her. I agree with

you that there have been definite improvements, plus we are looking

forward to her being able to eat more again. Maybe I will look into

other companies if this doesn't get better soon. I thought 3 weeks

was supposed to be the adjustment period. Thanks again, Tammy

In , preemiemom0703@... wrote:

>

> Hi Tammy,

>

> Did you ask the person at Houston about the peptizyde and doing

the PrimeZyme, as well? DeFelice called the PrimeZyme

the " happy child effect " because it seemed to calm the children down

and put an end to the hypersensitivity. We started enzymes about

the same time you did (we started 3/22) and just jumped in giving

(4 1/2, 28lbs) a full capsule of Enzymedica's Digest before

each feeding. We've adjusted it to 1/2 capsule mixed directly into

his food. This seems to have helped tremendously.

>

> I guess I'm just saying that since we saw improvements -

especially in language - we didn't want to stop the enzymes even

though was making everyone around him miserable. AND he

started vomiting again! (That's not unusual for , though.)

What about trying a different brand like Enzymedica or Kirman's? Or

ask Houston's about adding the PrimeZyme - or even doing PrimeZyme

by itself. From what I understand, sometimes the papain (sp?) and

bromelain (sp?) in Peptizide and Trienza can be difficult for some

kids.

>

> HTHs a little!

>

> Dana C.

>

> -------------- Original message --------------

> From: " tamarabeideman " <tamarabeideman@...>

> We are wondering if Callan is reacting so strongly still to the

> peptizyde because we have been mostly still gfcf while we start

the

> enzymes? She seems so " over the top " with very sensitive reactions

to

> everything. There are some real positives too, but I don't know

how

> much longer we can handle the other stuff. It has been 3 weeks now

> and we started with trienza and switched to just the peptizyde

this

> week. We are trying to keep the dose low and are dying to give up

the

> diet, but we are starting to lose hope. Would it be better if she

ate

> gluten and casein with the enzyme? Thanks for all your help.

Without

> this board, this process would be much harder.

> Tammy

>

>

>

>

>

[Guest guest]

Tammy,

ROFL, 's book has become my bible, too. I take it in the car, keep it

within reach during tube feedings and have marked it up relentlessly! I'm still

hoping all of this will turn out as well for us as it did for her.

Dana C.

-------------- Original message --------------

From: " tamarabeideman " <tamarabeideman@...>

Thanks Dana for the advice. We are taking afp peptizyde without the

papain, but we have some samples of the zyme prime and I have been

using 's book as my " Bible " through this so I will read up

again on this and try to give the zyme prime with it. I have been

giving Kid's Calm/magnesium with it to help calm her. I agree with

you that there have been definite improvements, plus we are looking

forward to her being able to eat more again. Maybe I will look into

other companies if this doesn't get better soon. I thought 3 weeks

was supposed to be the adjustment period. Thanks again, Tammy

In , preemiemom0703@... wrote:

>

> Hi Tammy,

>

> Did you ask the person at Houston about the peptizyde and doing

the PrimeZyme, as well? DeFelice called the PrimeZyme

the " happy child effect " because it seemed to calm the children down

and put an end to the hypersensitivity. We started enzymes about

the same time you did (we started 3/22) and just jumped in giving

(4 1/2, 28lbs) a full capsule of Enzymedica's Digest before

each feeding. We've adjusted it to 1/2 capsule mixed directly into

his food. This seems to have helped tremendously.

>

> I guess I'm just saying that since we saw improvements -

especially in language - we didn't want to stop the enzymes even

though was making everyone around him miserable. AND he

started vomiting again! (That's not unusual for , though.)

What about trying a different brand like Enzymedica or Kirman's? Or

ask Houston's about adding the PrimeZyme - or even doing PrimeZyme

by itself. From what I understand, sometimes the papain (sp?) and

bromelain (sp?) in Peptizide and Trienza can be difficult for some

kids.

>

> HTHs a little!

>

> Dana C.

>

> -------------- Original message --------------

> From: " tamarabeideman " <tamarabeideman@...>

> We are wondering if Callan is reacting so strongly still to the

> peptizyde because we have been mostly still gfcf while we start

the

> enzymes? She seems so " over the top " with very sensitive reactions

to

> everything. There are some real positives too, but I don't know

how

> much longer we can handle the other stuff. It has been 3 weeks now

> and we started with trienza and switched to just the peptizyde

this

> week. We are trying to keep the dose low and are dying to give up

the

> diet, but we are starting to lose hope. Would it be better if she

ate

> gluten and casein with the enzyme? Thanks for all your help.

Without

> this board, this process would be much harder.

> Tammy

>

>

>

>

>

[Guest guest]

Hi Tammy

I work for Enzymedica's education department. Digest is the product

Dana was recommending. If you would like I can snd you samples of

Digest & information and we can go from there. Feel free to ask me

any questions.

Alessandra

>

> We are wondering if Callan is reacting so strongly still to the

> peptizyde because we have been mostly still gfcf while we start the

> enzymes? She seems so " over the top " with very sensitive reactions

to

> everything. There are some real positives too, but I don't know

how

> much longer we can handle the other stuff. It has been 3 weeks now

> and we started with trienza and switched to just the peptizyde this

> week. We are trying to keep the dose low and are dying to give up

the

> diet, but we are starting to lose hope. Would it be better if she

ate

> gluten and casein with the enzyme? Thanks for all your help.

Without

> this board, this process would be much harder.

> Tammy

>

[Guest guest]

Hi Alessandra, Can you explain what digest is? Is it a high

protease enzyme for gluten and casein? Thanks, Tammy

> >

> > We are wondering if Callan is reacting so strongly still to the

> > peptizyde because we have been mostly still gfcf while we start

the

> > enzymes? She seems so " over the top " with very sensitive

reactions

> to

> > everything. There are some real positives too, but I don't know

> how

> > much longer we can handle the other stuff. It has been 3 weeks

now

> > and we started with trienza and switched to just the peptizyde

this

> > week. We are trying to keep the dose low and are dying to give

up

> the

> > diet, but we are starting to lose hope. Would it be better if

she

> ate

> > gluten and casein with the enzyme? Thanks for all your help.

> Without

> > this board, this process would be much harder.

> > Tammy

> >

>