Anita/ was Re: Lack of progress, ANDY your comments please?

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>

> I am VERY glad to hear this Sheresa :-) Such excellent news. Do

you

> see signs of viral activity (rashes, fevers, etc) or just steady

> progress?

**She has not had what I would consider a regular illness since we

first started OLE back in April. At that time she had a high fever

and vomitting which lasted about 1 day. Then a little rash point

(sort of looked like a single little scratch) appeared on her chest.

It looked very similar to the pictures that Dana has posted of her

son's viral rash. Since starting the anti-virals again in September

she has had one or two of those single scratch places, but no fevers

or illness. Lots of sneezing here and there. I'm not sure what to

make of this - if it means we are just stirring around the viruses

and not eliminating them or what. But the change in her when we

started back was VERY noticable, so we keep going ever so slowly,

fighting hard to keep the yeast at a maneagable level.

I am very unwilling to put my son through the difficulties

> that came with our last viral protocol. You and I spoke about this

> slower approach on another board. I am most certainly leaning

toward this way of doing things.

**I envy the ones who have good success with a 2-3 month high dose

run. But, you may remember last summer when we started ramping up

the VS too fast and she just cried all the time. It was

heartbreaking and I knew that we weren't going to be able to keep

going like that. I also went back and reviewed the viral section

in Dr. M's book. The young girl whose story she spoke of was on

anti-virals for 18 months or so. I decided that a long term

approach might work better for us, and so far it has.

Do you have any idea of your daughter's

> methylation cycle? Are you addressing it at all?

**Still a little confusing for me to figure out if she is over or

under or neither. She doesn't fit neatly into either group. She

does well with 25 mg P5P and has been on this for over a year now.

Trials of low amounts of MB12 have been non-productive to this point

as have trials of higher folinic acid. She gets 200 mcg in her

multi and does fine with that. However, one of the things that has

improved greatly for her over the last several months is her ability

to respond appropriately and timely to a vast array of different

questions/requests, etc. She is also able to finally put together a

complete sentence now and again. I guess this might indicate that we

are making some progress in the area of methylation. I plan to do

another trial of additional folinic in the near future to see if it

will bring about further improvements in language processing.

I ask because I

> think it may be one of the missing keys to my son's problems and

one

> of the reasons he couldn't keep his gains for the viral protocol

>

>

** I think that the low slow approach could defnitely be something

for you to consider. It seems that some of our kids just need a lot

more viral support and cleanup than can be accomplished in just a few

short months. The theory makes sense because it would take a lot

longer than that to bring healing to a broken down immune system.

It would be nice if the path were a little bit more clear for us,

wouldn't it. I'm hoping for some wonderful things to happen this new

year for all of our children. Take care, Anita.

Sheresa