Guest guest Posted April 11, 2007 Report Share Posted April 11, 2007 Hi Kristi, Welcome to the list. Comments interspersed. S S I'm a single mother of a 14 year old girl with autism. I've had almost no help with her at all from the very beginning...none at all from her fathers side and basically only some financial help from my side, but no help in caring for her, trying to help her, learn of her condition and treatments, etc. When she was only about 2 and not even yet diagnosed, I started having a lot of health problems that really interfeared with life. *Did she develop normally and then regress? I wonder if your health issues are related to mercury. Even after her diagnosis, at first I tried to concentrate on getting my own health together so that I could do my best to help her. When I made little to no progress with that from the medical community I decided to turn my attention to her and just get through it all with my health, the best I could. I decided to try ABA first. Finances were limited so I had to do most myself. She never did get the hours I know she needed but I did all I could and she really did make progress. I then did Auditory Integration Therapy. It took a long time to save for it and we only did one full round. She really needs another round. Next I pulled her from our public schools which had nothing to offer. When I finally decided they were doing more harm than good, I decided to homeschool. So here is my question and my delima......I feel HORRIBLE guilt because between my health and having no help I feel like my daughter has gotten her treatments at an alarmingly slow pace. But folks I'm also trying to make a living in the midst of homeschooling, my own health, etc. *Her autism and your health may both be related to mercury. How many mercury amalgam dental fillings do you have? Do the two of you get flu shots (they contain mercury)? Does she have any mercury amalgam dental fillings? Did she get all her vaccines? Did you have Rhogam? I really feel like I've done the best I could. And I'm still trying and looking for what I could do next. That's why I'm thinking about chelation. But I've been reading this list and I'm SOOOO overwhelmed. I don't know where to start? *Hair elements tests from DDI are on special this month or by mentioning this list. You can order them without a doc through DLS (Direct Lab Services). We can help apply the counting rules to the results. Worse yet I, I " ve been experimenting in trying to diagnos and get help for my own health issues for 12 years. I feel like I've made mistakes that put my own health in jeopardy more than once (primarily from dr's I trusted and shouldn't have). This seems like another journey in trying to be my own dr. again. I SOOOO worry about experimenting with my daughters health the way I have with mine. I mean what if I do something to make her worse or put her health at risk? *That's why using Andy's protocol is so important. I see how easily it can happen after my own personal experiences. I just long for someone to walk me through it. A person who has a protocol that is not an experimentation with her health. Someone to tell me step 1, 2 and then 3. I just don't know where to start or what to do? *1. DDI hair elements tests for yourself and your daughter. *2. Post results here for help interpreting them. *3. If either or both of you have ANY mercury amalgam dental fillings, you'll need to find a mercury-free dentist because you can't safely chelate with amalgam in place. Can anyone tell me of a dr. in Alabama who can help me? If not, can anyone tell me of a protocol that isn't an experimentation with my daughters health? *Andy's protocol, see the FAQs of this list. Yet if I don't chelate, have I done my daughter a horrible disservice and left things in her body that could and should have been removed? *The hair test results will help you determine what toxic metals she's dealing with. If she's got mercury issues they'll continue to cause problems until you get it out. (Alzheimer's, Parkinson's, etc) I guess the reason I'm freaking out is that I only joined this list a few days ago. One of the first threads I read was the woman who's son had pupils getting uneven when chelating him. * That is not usual with chelation. I've been on this list since just after it started and that's the first time I've heard of that. That seemed SO serious to me. When she removed the chelators, she said his pupil size returned to normal. I can't bear the thought of risking my daughters health by putting her through experimentations that I have put myself through. So what it all boils down to is this....I am wanting a pretty risk free and side effect free means of chelating and somebody to help walk me through this. I'm so freaking tired after 14 years of trying to do everything on my own and the horrible health experiences I've had myself. Am I expecting too much? Please someone help guide me with truth. Thank you for listing to a very tired single-mom but one who still hopes. Kristi in Alabama _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2007 Report Share Posted April 11, 2007 Hello Kristi, I think you're in the right place to get help. No medical intervention is without risk. That is for sure. But if you're interested in chelating, I think Andy's protocol is absolutely the safest you will find. Thousands of people use it safely. It is overwhelming learning about biomedical treatments for autism. Try not to think about doing everything at once, but prioritize for yourself. I have written a document for people new to biomedical treatments to autism that may help you. It sort of summarizes things and tries to save people time. It won't provide any quick answers, as there aren't any, but it may help. Please email me offlist if you would like me to send it to you as an attachment (just change the To: setting and I'll then get back to you that way). Often what helps people offer their help the best is when people talk about specific symptoms/behaviours their kids have, or when they ask specific questions about treatments. Otherwise it is hard to know what to recommend for a child. The document I have might help you make a list of what problems/areas you want to address with your daughter and then you can start prioritizing and asking questions. I think you may find that by helping your daughter you may also find some answers to your own health issues too. Many of us have found that by helping our ASD kids, we have also helped our NT kids, spouses, and selves. Best wishes, Anita > > I'm a single mother of a 14 year old girl with autism. I've had almost no > help with her at all from the very beginning...none at all from her fathers side > and basically only some financial help from my side, but no help in caring > for her, trying to help her, learn of her condition and treatments, etc. When > she was only about 2 and not even yet diagnosed, I started having a lot of > health problems that really interfeared with life. Even after her diagnosis, at > first I tried to concentrate on getting my own health together so that I could > do my best to help her. When I made little to no progress with that from the > medical community I decided to turn my attention to her and just get through > it all with my health, the best I could. I decided to try ABA first. Finances > were limited so I had to do most myself. She never did get the hours I know > she needed but I did all I could and she really did make progress. I then did > Auditory Integration Therapy. It took a long time to save for it and we only > did one full round. She really needs another round. Next I pulled her from > our public schools which had nothing to offer. When I finally decided they > were doing more harm than good, I decided to homeschool. So here is my > question and my delima......I feel HORRIBLE guilt because between my health and > having no help I feel like my daughter has gotten her treatments at an alarmingly > slow pace. But folks I'm also trying to make a living in the midst of > homeschooling, my own health, etc. I really feel like I've done the best I could. > And I'm still trying and looking for what I could do next. That's why I'm > thinking about chelation. But I've been reading this list and I'm SOOOO > overwhelmed. I don't know where to start? Worse yet I, I " ve been experimenting in > trying to diagnos and get help for my own health issues for 12 years. I feel like > I've made mistakes that put my own health in jeopardy more than once > (primarily from dr's I trusted and shouldn't have). This seems like another journey > in trying to be my own dr. again. I SOOOO worry about experimenting with my > daughters health the way I have with mine. I mean what if I do something to > make her worse or put her health at risk? I see how easily it can happen after > my own personal experiences. I just long for someone to walk me through it. A > person who has a protocol that is not an experimentation with her health. > Someone to tell me step 1, 2 and then 3. I just don't know where to start or > what to do? Can anyone tell me of a dr. in Alabama who can help me? If not, > can anyone tell me of a protocol that isn't an experimentation with my daughters > health? Yet if I don't chelate, have I done my daughter a horrible > disservice and left things in her body that could and should have been removed? I > guess the reason I'm freaking out is that I only joined this list a few days ago. > One of the first threads I read was the woman who's son had pupils getting > uneven when chelating him. That seemed SO serious to me. When she removed the > chelators, she said his pupil size returned to normal. I can't bear the > thought of risking my daughters health by putting her through experimentations that > I have put myself through. So what it all boils down to is this....I am > wanting a pretty risk free and side effect free means of chelating and somebody to > help walk me through this. I'm so freaking tired after 14 years of trying to > do everything on my own and the horrible health experiences I've had myself. > Am I expecting too much? Please someone help guide me with truth. Thank you > for listing to a very tired single-mom but one who still hopes. > > Kristi in Alabama > > > ************************************** > See what's free at > http://www.aol.com. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2007 Report Share Posted April 11, 2007 Kristi- Where in Alabama are you? I am in Huntsville. Are you anywhere near here? I have been using a DAN in Nashville because there is not one in Alabama. There are a few in Atlanta, depending on where in the state you are. Our DAN does take BCBS so that might help. We have been doing the diet and supplements since the beginning of the year, and it has definitely been helping. My son is younger than your daughter, but that doesn't matter. We do intend to chelate, as a matter of fact we will start next weekend. I too read these posts, but please keep in mind that you just started this journey and lots of others have been successful before us. Please feel free to email me off list if you like. If you are near Huntsville and would like to get together, I have a great support team, including ABA and other therapists, that you might want to meet. Betsy > > I'm a single mother of a 14 year old girl with autism. I've had almost no > help with her at all from the very beginning...none at all from her fathers side > and basically only some financial help from my side, but no help in caring > for her, trying to help her, learn of her condition and treatments, etc. When > she was only about 2 and not even yet diagnosed, I started having a lot of > health problems that really interfeared with life. Even after her diagnosis, at > first I tried to concentrate on getting my own health together so that I could > do my best to help her. When I made little to no progress with that from the > medical community I decided to turn my attention to her and just get through > it all with my health, the best I could. I decided to try ABA first. Finances > were limited so I had to do most myself. She never did get the hours I know > she needed but I did all I could and she really did make progress. I then did > Auditory Integration Therapy. It took a long time to save for it and we only > did one full round. She really needs another round. Next I pulled her from > our public schools which had nothing to offer. When I finally decided they > were doing more harm than good, I decided to homeschool. So here is my > question and my delima......I feel HORRIBLE guilt because between my health and > having no help I feel like my daughter has gotten her treatments at an alarmingly > slow pace. But folks I'm also trying to make a living in the midst of > homeschooling, my own health, etc. I really feel like I've done the best I could. > And I'm still trying and looking for what I could do next. That's why I'm > thinking about chelation. But I've been reading this list and I'm SOOOO > overwhelmed. I don't know where to start? Worse yet I, I " ve been experimenting in > trying to diagnos and get help for my own health issues for 12 years. I feel like > I've made mistakes that put my own health in jeopardy more than once > (primarily from dr's I trusted and shouldn't have). This seems like another journey > in trying to be my own dr. again. I SOOOO worry about experimenting with my > daughters health the way I have with mine. I mean what if I do something to > make her worse or put her health at risk? I see how easily it can happen after > my own personal experiences. I just long for someone to walk me through it. A > person who has a protocol that is not an experimentation with her health. > Someone to tell me step 1, 2 and then 3. I just don't know where to start or > what to do? Can anyone tell me of a dr. in Alabama who can help me? If not, > can anyone tell me of a protocol that isn't an experimentation with my daughters > health? Yet if I don't chelate, have I done my daughter a horrible > disservice and left things in her body that could and should have been removed? I > guess the reason I'm freaking out is that I only joined this list a few days ago. > One of the first threads I read was the woman who's son had pupils getting > uneven when chelating him. That seemed SO serious to me. When she removed the > chelators, she said his pupil size returned to normal. I can't bear the > thought of risking my daughters health by putting her through experimentations that > I have put myself through. So what it all boils down to is this....I am > wanting a pretty risk free and side effect free means of chelating and somebody to > help walk me through this. I'm so freaking tired after 14 years of trying to > do everything on my own and the horrible health experiences I've had myself. > Am I expecting too much? Please someone help guide me with truth. Thank you > for listing to a very tired single-mom but one who still hopes. > > Kristi in Alabama > > > ************************************** > See what's free at > http://www.aol.com. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2007 Report Share Posted April 12, 2007 >>She never did get the hours I know > she needed but I did all I could and she really did make progress. I homeschool all four of my kids. My #2 [with the dx] did not get " all the hours usually recommended " , but he did make progress at home. He is now no longer autistic, even tho he has a Kanner's autism dx. >>Next I pulled her from > our public schools which had nothing to offer. When I finally decided they > were doing more harm than good, I decided to homeschool. Good for you! > And I'm still trying and looking for what I could do next. That's why I'm > thinking about chelation. But I've been reading this list and I'm SOOOO > overwhelmed. I don't know where to start? Here is my site section on chelation http://www.danasview.net/parent3.htm#chelation >>I just long for someone to walk me through it. A > person who has a protocol that is not an experimentation with her health. Based on my experience with my family, it is all an experimentation, even if you use a doctor, because no one really knows just exactly how a specific person will react to a specific intervention. But if you do your research, ask questions, decide what you want to try, and then start at low dose, you can watch for reactions and stop if things don't work out. >>When she removed the > chelators, she said his pupil size returned to normal. Based on what I observed with my son, this would mean that metals were being pulled out of the eyes or brain, causing the change in pupil size. It can probably also mean intolerance of the chelator. >>I am > wanting a pretty risk free and side effect free means of chelating No medical procedure is entirely risk free, but based on my own research, I chose ALA for chelation as being the safest and most effective. I started with low dose on a conservative protocol, and kept constant watch for problems. The only problem I saw in my kids was yeast overgrowth, which I was able to keep under control. I am chelating myself now with ALA, and I have had yeast overgrowth and mineral deficiency, which I have been able to control. Dana Quote Link to comment Share on other sites More sharing options...
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