/was: Re: amalgams while breastfeeding

[Guest guest]

, have you ever tried glutamine for his stomach? And I have to say that I

would be tempted if this didn't work to try NCD as it seems to help some kid's

bad guts. Don't anyone pass out, not as a chelator but I think it has value for

the kids who started out with really, really bad stomachs even though they

seemed to improve. If his stomach improves enough you could retry giving a

really low dose of chelator.

Also thinking it's a good idea with a highly reactive kid to get the Yasko

report so as not to have to try a lot of things that you are going to have to

pull him out of. At least there is a starting point. I do know of kids who

according to Yasko aren't supposed to be able to use sulfur chelators who are

using them and doing fine. And I have to say with the ammonia problems we had

ours would certainly be a CBS kid but she responded beautifully to dmsa/ala. The

difference being her stomach was always pretty good.

I feel bad you've had such a rough time and I hope you find your answer.

[ ] Re: amalgams while breastfeeding

Thanks Josie. My son is on all the standard supps except the ones he

doesn't tolerate (like B vitamins), and a massive yeast protocol for

his neverending horrible yeast. I am also on the usual supps,

including selenium. Ds doesn't tolerate enzymes, but I do take them

sometimes. Yeah I definitely don't get my teeth cleaned anymore.

Worried about cavities and plaque and such, but what can ya do. I do

my best to take care of them.

We tried two rounds of low-frequent-dose oral DMSA and my kiddo

exploded. We had to do a ton of stuff to bring him back and calm his

gut. We have done HBOT, Valtrex, mB12 shots, lots of gut bug stuff,

GFCF + SCD - allergies diet (he can eat only 9 foods), currently doing

subcutaneous immunoglobulin infusions (yay, a TON more yeast), and

many other things. My son is basically a non-responder, unless you

count responding BADLY. We also have him in many hours of several

different therapies each week for the past year, but no response to

any of that either. Anytime they actually manage to teach him

something new, he just loses something else, it basically gets

replaced. I guess he's too toxic to possess more than one skill at a

time!!

We have considered Yasko and are awaiting our genetic results. I

can't say I totally buy into it, and I'm scared of the amount of

time/money/supps it seems to require. But I'm also desperate, and

feel that it's unlikely to make my son much worse so it's worth a try.

>

> Hi Guys:

>

>

>

> Look in the scheme of things 4 amalgams isn't all that much. The

studies

> linking amalgams in mom and ASD kids is with moms who have more than

8!!!!

> I am not saying its great just keep it in perspective. Have you

considered

> supplementing selenium to mop up the extra mercury? Do you have

your own

> gut protocol in place? Have you considered taking enzymes either

for you or

> for her or both? The children got much more mercury from you in utero

> across the placenta than they are getting in your breast milk. And

there

> are many other good things they are likely getting from your breast

milk.

>

>

>

> I would not go near a dentist while breastfeeding. Not even to get them

> cleaned (which stirs it up).

>

>

>

> You didnt say what treatment plan you had tried so far w/the severe

> child...just that first round DMSA hadn't worked so well. There are

so many

> nutritional supports you can still do while nursing.

>

>

>

> In addition, I know the name Amy Yasko isn't always a welcome name

on this

> board but I want to at least throw out there that running the

genetic panel

> on a severely affected child would be a top priority if it were me.

Its an

> unwieldy program and the info is difficult to wrap ones brain around

but she

> has pieces of this puzzle that really no one esle has put together

so well.

> I firmly believe that.

>

>

>

> Best of luck

>

>

>

> Josie

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

I have not yet tried glutamine though I can't remember why

right now... seems I read some possible contraindications for using it

with my son, but can't find it in my notes now, hmm. I will have to

give it another look.

I actually tried NCD with him several months ago. We gave it a pretty

good run 2 or 3 months I think, started low and slow and worked up to

a very high dose actually. Never saw anything. No positives, no

negatives, nothing. Oh well!

Yeah we are waiting on Yasko results, should be interesting. Given

how he reacts to anything even remotely sulfur-related, I'd be shocked

if he wasn't CBS upreg.

Thanks!

> >

> > Hi Guys:

> >

> >

> >

> > Look in the scheme of things 4 amalgams isn't all that much. The

> studies

> > linking amalgams in mom and ASD kids is with moms who have more than

> 8!!!!

> > I am not saying its great just keep it in perspective. Have you

> considered

> > supplementing selenium to mop up the extra mercury? Do you have

> your own

> > gut protocol in place? Have you considered taking enzymes either

> for you or

> > for her or both? The children got much more mercury from you in

utero

> > across the placenta than they are getting in your breast milk. And

> there

> > are many other good things they are likely getting from your breast

> milk.

> >

> >

> >

> > I would not go near a dentist while breastfeeding. Not even to

get them

> > cleaned (which stirs it up).

> >

> >

> >

> > You didnt say what treatment plan you had tried so far w/the severe

> > child...just that first round DMSA hadn't worked so well. There are

> so many

> > nutritional supports you can still do while nursing.

> >

> >

> >

> > In addition, I know the name Amy Yasko isn't always a welcome name

> on this

> > board but I want to at least throw out there that running the

> genetic panel

> > on a severely affected child would be a top priority if it were me.

> Its an

> > unwieldy program and the info is difficult to wrap ones brain around

> but she

> > has pieces of this puzzle that really no one esle has put together

> so well.

> > I firmly believe that.

> >

> >

> >

> > Best of luck

> >

> >

> >

> > Josie

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Sue

NCD is activated liquid zeolite that helps remove heavy metals and toxins from

the body. A person can have a urine test to see the mercury being excreted, it

also safe to take if you have amalgams the mercury is safely removed via urine

and is NOT redistrubutied. I have just came back from a conference in Florida

and met a woman that has great success using the NCD with autism. My mom had

mild dementia and now is doing fine.

Gloria

sue_lwsn <sue@...> wrote:

What is CBS and NCD please? Is there any Yasko information on the

internet? I was put off by the controversy over fees and charges for

meds on the lists a while back.

Sue

> > >

> > > Hi Guys:

> > >

> > >

> > >

> > > Look in the scheme of things 4 amalgams isn't all that much.

The

> > studies

> > > linking amalgams in mom and ASD kids is with moms who have

more than

> > 8!!!!

> > > I am not saying its great just keep it in perspective. Have

you

> > considered

> > > supplementing selenium to mop up the extra mercury? Do you

have

> > your own

> > > gut protocol in place? Have you considered taking enzymes

either

> > for you or

> > > for her or both? The children got much more mercury from you

in

> utero

> > > across the placenta than they are getting in your breast

milk. And

> > there

> > > are many other good things they are likely getting from your

breast

> > milk.

> > >

> > >

> > >

> > > I would not go near a dentist while breastfeeding. Not even

to

> get them

> > > cleaned (which stirs it up).

> > >

> > >

> > >

> > > You didnt say what treatment plan you had tried so far w/the

severe

> > > child...just that first round DMSA hadn't worked so well.

There are

> > so many

> > > nutritional supports you can still do while nursing.

> > >

> > >

> > >

> > > In addition, I know the name Amy Yasko isn't always a

welcome name

> > on this

> > > board but I want to at least throw out there that running the

> > genetic panel

> > > on a severely affected child would be a top priority if it

were me.

> > Its an

> > > unwieldy program and the info is difficult to wrap ones

brain around

> > but she

> > > has pieces of this puzzle that really no one esle has put

together

> > so well.

> > > I firmly believe that.

> > >

> > >

> > >

> > > Best of luck

> > >

> > >

> > >

> > > Josie

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >