Guest guest Posted February 3, 2000 Report Share Posted February 3, 2000 In a message dated 2/3/00 1:40:21 AM Eastern Standard Time, lyme-aidonelist writes: << Message: 1 Date: Wed, 2 Feb 2000 18:27:06 EST From: RMcmur3194@... Subject: LETTER TO THE EDITOR-LYME DISEASE Reid, that is a wonderfully stated letter. I really hope that the editor can be unbiased and print this, or further yet, I hope that it sparks his interest enough to do a follow up story. Thank you for writing it. Your Lyme Friend, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2000 Report Share Posted February 3, 2000 In a message dated 2/3/00 1:40:21 AM Eastern Standard Time, lyme-aidonelist writes: << My son is 7 years old and has been suffering from joint paint throughout his body. At first we thought it was JRA but now we know it's Lyme Disease. >> Ree, I am sorry to hear that your son has Lyme at such a young age. For him to be having arthritic symptoms means that he has had it for some time, so don't let them tell you 3 or 4 weeks of abx is enough to cure him. There are many people here that have children with Lyme and they are better equiped to help you with particulars about children and Lyme. I wish you the best and please keep us informed about how your son is doing and how his ya'll are doing, too. This illness can and does effect the whole family and it is especially hard when it involves our children.......makes your claws come out to protect them. Your Lyme Friend, P.S. Welcome to the family !!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2000 Report Share Posted February 3, 2000 thanks michele i seem to do my best work when they piss me off with stupid stuff lie that story....i ho[pe so too...watch the bastards try to sue me .......will have to dig in archives for the back up but it was all true..... Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2000 Report Share Posted June 22, 2000 Hi, all, >I recall reading somewhere...I believe it was in 's, _Osler's >Web_, that Dr. Byron Hyde said that there are only 4 other conditions >(besides CFIDS) that are characterized by a low sed rate. One was >hypergammaglobulinemia; I don't recall the others. You're right: the diseases listed are : ME = CFS sickle-cell anemia hypergammaglobulinemia (too much IgG) hyper-fibrogenemia (too much fibrinogen) hereditary sperocytosis (I think he means spherocytosis - round RBCs) All (except maybe CFS) have a higher than normal concentration of big proteins in the bloodstream - hemoglobin in sickle-cell and spherocytosis, caused by hemolysis of abnormally shaped RBCs. Jerry ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2001 Report Share Posted April 23, 2001 'oxyplus ' wrote: ==== - - OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other ....' > Take a look to the attachment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2001 Report Share Posted June 27, 2001 , you said it well the JRA road is tough but thanks to advances in the medical arena isn't it wondeful to see and know children are fairing better today than in the past. I know it does my heart good to see things looking up in the area of JA! Parents , there is hope so hang tough and remember we all understand and are here for you and the kiddos!!! Donna Fox, FACES Young Adult & Childrens Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2001 Report Share Posted June 29, 2001 >>> From: " leah leah " <okieleah@...> Subject: Re: recess time-mary s -mary what is on the list as being 1-4...sounds to me like that principal needs to be fired....<<< That topic makes me think back to when I was in school, and corporal punishment was still being done. ( not that I think we need to go back to that mind you... definalty not. ! ) ........ but it does bring it to mind. I don't view having recess taken away as so bad i guess when you can remember what principal actions used to be. I see it on the same lines as you can't have dessert if you don't eat your dinner. I guess I am a strict disciplinarian. all my kids had rules to follow. Sherry __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2001 Report Share Posted June 29, 2001 Sherry, I do not have any problem with taking recess away......if it changed the behavior. I, too, am a strict diciplinarian. One reason I homeschool my other son is that he would not behave for the teachers and they were not nearly strict enough. They let him get by with anything and everything. I don't. I know that it is not popular, but I have spanked my kids. It worked for us. Except with Matt. No matter what we do negatively, he does not respond by stopping the action. Never. Ever. So why would we continue doing something that doenst' work. It is time (After almost 11 long years) to admit that he needs something else. (And who are the " slow " people here????) Matt needs the social time. My arguement is " you dont' take Math away because someone misbehaves because Math is needed. Well, for Matt, socialization is desperately needed, much more than Math, so why should we take it away? " I " ll just get it written in the IEP this year. On Fri, 29 Jun 2001 07:27:20 -0700 (PDT) Sherry Edmonds <sherryedmonds@...> writes: > >>> > From: " leah leah " <okieleah@...> > Subject: Re: recess time-mary s > > -mary > what is on the list as being 1-4...sounds to me like > that principal > needs to > be fired....<<< > > > That topic makes me think back to when I was in > school, and corporal punishment was still being done. > ( not that I think we need to go back to that mind > you... definalty not. ! ) ........ but it does > bring it to mind. I don't view having recess taken > away as so bad i guess when you can remember what > principal actions used to be. I see it on the same > lines as you can't have dessert if you don't eat your > dinner. I guess I am a strict disciplinarian. all my > kids had rules to follow. > > Sherry > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 Hi Paolo and Becky, I was diagnosed with CMT back in 1976 at Mayo Clinic. Dr. Dyck did my nerve biopsy and the diagnosis was CMT Type 2 of Dyck and Lambert. I know he is one of the leading authorities on CMT and that since 1976 has added several new classifications. I have been to several Neurologists in my past and only found one to really confirm my symptoms and work with me. She retired and I gave up on finding a new one. I have gone with my children to their prospective new neurologist to find that things haven't change at all. One told my daughter that there was no pain with CMT. I contradicted him with the electrical shocks, the body aches compared to that of a high fever and the muscle cramping. He also gave her another EMG and tried to tell her she had Type 1. He had not seen the report from Mayo Clinic confirming Type 2. Two of my children have been put in the wrong type of AFO's. I am now working again to try and find a Doctor that will know something about CMT Type 2 and will at least be able to work in a compassionate way with the four of us. All of you have been such an encouragement to me. I know longer feel I carry this alone. Thanks for the information on the Cylert drug. of Indiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 -----Original Message----- From: flyingk@... <flyingk@...> < > Date: Thursday, August 02, 2001 8:04 AM Subject: Re: [] Digest Number 992 >>>>>Hi , yes its sad but true things haven't changed much regarding Dr's knowledge of CMT. BUT, its starting to change and as more is learned there seems to be more interest on CMT since its so diverse and has so many different genes causing the types to overlap or in some cases new mutations are being found so more interest is being shown. And of course we can now map genes better. Have you tried the MDA for treatment? I know some here on out list uses them, maybe they willl give you more information regarding MDA. How old are your children? What symptoms do you/they have? Oh wow, the wrong type of AFO! That can cause more problems then it could ever help! When calling about for another Dr. ask if they have any other patients with CMT, if the answer is no, don't make an appointment! When you find the answer yes, make that appointment, LOL at least you will know in advance the Dr. has seen at least one person with CMT! ~>Becky M. Hi Paolo and Becky, I was diagnosed with CMT back in 1976 at Mayo Clinic. Dr. Dyck did my nerve biopsy and the diagnosis was CMT Type 2 of Dyck and Lambert. I know he is one of the leading authorities on CMT and that since 1976 has added several new classifications. I have been to several Neurologists in my past and only found one to really confirm my symptoms and work with me. She retired and I gave up on finding a new one. I have gone with my children to their prospective new neurologist to find that things haven't change at all. One told my daughter that there was no pain with CMT. I contradicted him with the electrical shocks, the body aches compared to that of a high fever and the muscle cramping. He also gave her another EMG and tried to tell her she had Type 1. He had not seen the report from Mayo Clinic confirming Type 2. Two of my children have been put in the wrong type of AFO's. I am now working again to try and find a Doctor that will know something about CMT Type 2 and will at least be able to work in a compassionate way with the four of us. All of you have been such an encouragement to me. I know longer feel I carry this alone. Thanks for the information on the Cylert drug. of Indiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 barbara, i hope you're feeling a little better. joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2001 Report Share Posted September 11, 2001 Please give me an address... the Sam Gibbons, Federal Courthouse in Tampa has been declared a sick building. Some came from cross comtamination when we moved from the older building which was built in the 20's 4 years ago. I will send you information. GSA (General Services Administration) who manages most Govt buildings not doing anything substantial. A total of 5 courthouses in the Middle District of Florida have been found to have excessive amounts of molds and diesel fumes(Tampa) ... too long to explain on here. Tell me where to send. Alycia Waller Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2002 Report Share Posted August 27, 2002 charlene, not too be rude ,but I would do something about the litter box thing that's not even funny!Can you move it somewhere so he can not see that behavior anymore? That just goes too show kids do what they see! Maybe your daughter wets herself,but at least she does'nt think she's an animal! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2002 Report Share Posted August 27, 2002 I did get rid of the litter box and cats stay outside most of the time as long as I ride the kids on the subject. I am sort of happy I do not have to buy diapers anymore. The only thing now is to convert him to the toilet. I dont think he thinks there is a difference between humans and animals. My daughter had her weird behaviors too when she was 4 years old. I assume this is just something that will be outgrown as long as I make the cat box out of sight out of mind. We can not take these kids behavior as extreme as we would a normal child. I have an aquaintence that his daughter poopped on her aunts hood of the car. charlene -- Re: Digest Number 992 charlene, not too be rude ,but I would do something about the litter box thing that's not even funny!Can you move it somewhere so he can not see that behavior anymore? That just goes too show kids do what they see! Maybe your daughter wets herself,but at least she does'nt think she's an animal! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2002 Report Share Posted September 20, 2002 ABA and TEACH? It is said that " TEACCH " is the " kinder " therapy. I have colleagues who use this approach or who teach in schools where this is applied (the operative word) TEACH if I'm not mistaken the TEACCH approach is about organizing the physical environment, developing schedules and work systems, making expectations clear and explicit, and using visual materials have been effective ways of developing skills and allowing people with autism to use these skills independently of direct adult prompting and cueing ( as stated on the website). It is interesting that instructors that use TEACCH don't even realize that this is still Applied Behavior Analysis. We behavior analysts, instructors or teachers of children with Autism use schedules and use proactive manipulations of the environment as well. I have always felt that many " different " approaches are just called something different for it does not have the unfortunate negative connotation associate with ABA by the general public. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 How cool is that! I used to live in Qualicum! > Hi . I'm in Parksville, on Vancouver Island! > Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 --- Every summer we go to Denman Island. My parents have a summer place there. I love the island. In , " ekaraim <cadchick@h...> " <cadchick@h...> wrote: > How cool is that! I used to live in Qualicum! > > > > > > > Hi . I'm in Parksville, on Vancouver Island! > > Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2003 Report Share Posted January 16, 2003 , You're kidding!!! I went to high school in Qualicum, grad '91. When were you there? I also lived in Vancouver/Burnaby for 3 years, and just moved back to this area 2-1/2 years ago. Small world! Kim > > Hi . I'm in Parksville, on Vancouver Island! > > Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 First of all, i did have a flat mole around 2 mm round on the upper right side of my nose which i always " used " in my ID cards. Applying coconut oil on my face every night slowly erased it (it would take quite a while not overnight). As to heating the oil, scrape it and directly apply on your face at night. It would melt on your face as you smother it around. Applying oil during daytime will give you a tan when exposed to the sun. > Message 2 > From: " bladeblah22 " bladeblah22@... > Date: Sun May 7, 2006 2:32pm(PDT) > Subject: New member here with questions about mole > removal with coconut oil > > Hello everyone, > > I recently came across coconut oil via CureZone.com > and learned that > it's possible to remove moles, warts, acne, etc. > with this > incredible healing oil. I was very surprised to > discover this and > I'm eager to try it out. > > Here's my situation. I have about 20 or so small, > flat moles on my > face. There about the size of the end of a dull > pencil point. Not > big at all, just the amount of them is what bothers > me. My goal is > to cut down the amount of them to, at least, 12 or > so. I'd be happy > with that. If I could remove all of them, why not? > >> > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2006 Report Share Posted October 14, 2006 Hi Hannah, My name is Jasmine, i am nine years old, I have BPES, i am from mattawan, MI. I'll be your friend. Where are you from? What grade are you in? BPES makes me feel like I " m alone, stupid, and not pretty. How does it make you feel? I like cheese!!! Please write me back soon. - Jasmine _________________________________________________________________ The next generation of Search—say hello! http://imagine-windowslive.com/minisites/searchlaunch/?locale=en-us & FORM=WLMTAG Quote Link to comment Share on other sites More sharing options...
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