Re: Woah: stinky DMSA urine!

[Guest guest]

Pam (or anyone who would like to answer),

I hope you get a nice pull on this test!! I'll cross my fingers for

you.

I'm curious, you said you bumped up to 25mg. Is there a point where

we should up the dose? We are doing about 8.5mg (he is 37 pounds)

now (every 4 hours) and have been for 5 rounds now.

Thanks and good luck! Let us know when you get your results.

Molly

>

> Hi all,

>

> I chelated my son with TD-DMSA for about 15 months. Nice gains, no

> miracles. After not seeing any significant metals dumped on 3

> separate DDI urine toxic metals tests, and hearing Andy call TD-

DMSA

> a " fad " time and time again, I made the switch to oral DMSA 6 weeks

> ago.

>

> I've noticed an odor to his urine on each round. Today I collected

> urine for the first random DDI urine toxic metals on oral DMSA.

> STINKY!!!! What a strong odor of DMSA/sulfur. It was impressive.

>

> I started him on 12.5 mgs but jumped him up to 25 mgs/dose this

> weekend since he did so well for 5 weeks on the lower dose.

>

> I'm wondering, did his TD-DMSA urine not smell at all because he

> wasn't absorbing much DMSA? At his high point, I was giving him

> nearly .5 ml every 3.5 hours (Lee Silsby: translates to 100 mgs

DMSA

> per TD application).

>

> Keep your fingers crossed that I'll finally see some metals in the

> urine. If the smell has anything to do with it... we're golden!

>

> Anyone else notice this change when they switched to oral?

>

> Pam

>

> p.s. I'm re-adding oral ALA (20 mgs) next round. That is where I

> saw the most improvement last time. He took it for 8 months at

that

> dose but I removed it temporarily when we made the DMSA switch.

>

[Guest guest]

I don't think you are supposed to increase the chelators by more than 50% at any

one time, would have made the uppermost range of dmsa, just 18-19 mgs. Hopefully

everything is going fine.

[ ] Woah: stinky DMSA urine!

Hi all,

I chelated my son with TD-DMSA for about 15 months. Nice gains, no

miracles. After not seeing any significant metals dumped on 3

separate DDI urine toxic metals tests, and hearing Andy call TD-DMSA

a " fad " time and time again, I made the switch to oral DMSA 6 weeks

ago.

I've noticed an odor to his urine on each round. Today I collected

urine for the first random DDI urine toxic metals on oral DMSA.

STINKY!!!! What a strong odor of DMSA/sulfur. It was impressive.

I started him on 12.5 mgs but jumped him up to 25 mgs/dose this

weekend since he did so well for 5 weeks on the lower dose.

I'm wondering, did his TD-DMSA urine not smell at all because he

wasn't absorbing much DMSA? At his high point, I was giving him

nearly .5 ml every 3.5 hours (Lee Silsby: translates to 100 mgs DMSA

per TD application).

Keep your fingers crossed that I'll finally see some metals in the

urine. If the smell has anything to do with it... we're golden!

Anyone else notice this change when they switched to oral?

Pam

p.s. I'm re-adding oral ALA (20 mgs) next round. That is where I

saw the most improvement last time. He took it for 8 months at that

dose but I removed it temporarily when we made the DMSA switch.

[Guest guest]

Well, I see I'm being cautioned about upping the dose so

drastically! I don't know if I did the right thing, but my son was

just fine this weekend on 25 mgs. I can see if I upped it over the

1/4-1/2 mg per lb recommendation... but I didn't. Also, we had been

on TD-DMSA for 15 months prior so I didn't think it would be a

problem.

So, you might not wish to follow my lead!

Personally, I would up the dose a little after 6 rounds if all was

well (especially since you are already at a low dose) and if my son

wasn't a sensitive kid. I'd prefer to be at the high end of the

dosing (1/2 mg per lb) if tolerated.

Increasing the dose to 10 mgs on round 7 sounds just great to me!

Pam

> >

> > Hi all,

> >

> > I chelated my son with TD-DMSA for about 15 months. Nice gains,

no

> > miracles. After not seeing any significant metals dumped on 3

> > separate DDI urine toxic metals tests, and hearing Andy call TD-

> DMSA

> > a " fad " time and time again, I made the switch to oral DMSA 6

weeks

> > ago.

> >

> > I've noticed an odor to his urine on each round. Today I

collected

> > urine for the first random DDI urine toxic metals on oral DMSA.

> > STINKY!!!! What a strong odor of DMSA/sulfur. It was impressive.

> >

> > I started him on 12.5 mgs but jumped him up to 25 mgs/dose this

> > weekend since he did so well for 5 weeks on the lower dose.

> >

> > I'm wondering, did his TD-DMSA urine not smell at all because he

> > wasn't absorbing much DMSA? At his high point, I was giving him

> > nearly .5 ml every 3.5 hours (Lee Silsby: translates to 100 mgs

> DMSA

> > per TD application).

> >

> > Keep your fingers crossed that I'll finally see some metals in

the

> > urine. If the smell has anything to do with it... we're golden!

> >

> > Anyone else notice this change when they switched to oral?

> >

> > Pam

> >

> > p.s. I'm re-adding oral ALA (20 mgs) next round. That is where

I

> > saw the most improvement last time. He took it for 8 months at

> that

> > dose but I removed it temporarily when we made the DMSA switch.

> >

>

[Guest guest]

Well, so far so good. I hope I did the right thing. The only reason

I'm not too upset over your post is that we are still at 1/2 mg per

lb... not excessive.

I'll keep an eye on it. I have a script for a CBC and Metabolic

panel in my wallet. I'll have some blood drawn after 3 rounds on 25

mgs to make sure his liver and kidneys are OK (they always were on TD-

DMSA).

Thanks for the word of caution.

Pam

>

> I don't think you are supposed to increase the chelators by more

than 50% at any one time, would have made the uppermost range of

dmsa, just 18-19 mgs. Hopefully everything is going fine.

>

>

>

> [ ] Woah: stinky DMSA urine!

>

>

> Hi all,

>

> I chelated my son with TD-DMSA for about 15 months. Nice gains,

no

> miracles. After not seeing any significant metals dumped on 3

> separate DDI urine toxic metals tests, and hearing Andy call TD-

DMSA

> a " fad " time and time again, I made the switch to oral DMSA 6

weeks

> ago.

>

> I've noticed an odor to his urine on each round. Today I

collected

> urine for the first random DDI urine toxic metals on oral DMSA.

> STINKY!!!! What a strong odor of DMSA/sulfur. It was impressive.

>

> I started him on 12.5 mgs but jumped him up to 25 mgs/dose this

> weekend since he did so well for 5 weeks on the lower dose.

>

> I'm wondering, did his TD-DMSA urine not smell at all because he

> wasn't absorbing much DMSA? At his high point, I was giving him

> nearly .5 ml every 3.5 hours (Lee Silsby: translates to 100 mgs

DMSA

> per TD application).

>

> Keep your fingers crossed that I'll finally see some metals in

the

> urine. If the smell has anything to do with it... we're golden!

>

> Anyone else notice this change when they switched to oral?

>

> Pam

>

> p.s. I'm re-adding oral ALA (20 mgs) next round. That is where I

> saw the most improvement last time. He took it for 8 months at

that

> dose but I removed it temporarily when we made the DMSA switch.

>

>

>

>

>

>

[Guest guest]

Pam to answer your question about the sulfur smell to the urine, I have never

smelled this when on chelation rounds, however I have heard others remark on

this so don't think it's any particular sign of detox that I know of, just a

function of how some people metabolize it.

[ ] Woah: stinky DMSA urine!

Hi all,

I chelated my son with TD-DMSA for about 15 months. Nice gains, no

miracles. After not seeing any significant metals dumped on 3

separate DDI urine toxic metals tests, and hearing Andy call TD-DMSA

a " fad " time and time again, I made the switch to oral DMSA 6 weeks

ago.

I've noticed an odor to his urine on each round. Today I collected

urine for the first random DDI urine toxic metals on oral DMSA.

STINKY!!!! What a strong odor of DMSA/sulfur. It was impressive.

I started him on 12.5 mgs but jumped him up to 25 mgs/dose this

weekend since he did so well for 5 weeks on the lower dose.

I'm wondering, did his TD-DMSA urine not smell at all because he

wasn't absorbing much DMSA? At his high point, I was giving him

nearly .5 ml every 3.5 hours (Lee Silsby: translates to 100 mgs DMSA

per TD application).

Keep your fingers crossed that I'll finally see some metals in the

urine. If the smell has anything to do with it... we're golden!

Anyone else notice this change when they switched to oral?

Pam

p.s. I'm re-adding oral ALA (20 mgs) next round. That is where I

saw the most improvement last time. He took it for 8 months at that

dose but I removed it temporarily when we made the DMSA switch.

[Guest guest]

we get that sulphury urine odor too.

>

> Pam to answer your question about the sulfur smell to the urine, I

have never smelled this when on chelation rounds, however I have

heard others remark on this so don't think it's any particular sign

of detox that I know of, just a function of how some people

metabolize it.

>

>

> [ ] Woah: stinky DMSA urine!

>

>

> Hi all,

>

> I chelated my son with TD-DMSA for about 15 months. Nice gains,

no

> miracles. After not seeing any significant metals dumped on 3

> separate DDI urine toxic metals tests, and hearing Andy call TD-

DMSA

> a " fad " time and time again, I made the switch to oral DMSA 6

weeks

> ago.

>

> I've noticed an odor to his urine on each round. Today I

collected

> urine for the first random DDI urine toxic metals on oral DMSA.

> STINKY!!!! What a strong odor of DMSA/sulfur. It was impressive.

>

> I started him on 12.5 mgs but jumped him up to 25 mgs/dose this

> weekend since he did so well for 5 weeks on the lower dose.

>

> I'm wondering, did his TD-DMSA urine not smell at all because he

> wasn't absorbing much DMSA? At his high point, I was giving him

> nearly .5 ml every 3.5 hours (Lee Silsby: translates to 100 mgs

DMSA

> per TD application).

>

> Keep your fingers crossed that I'll finally see some metals in

the

> urine. If the smell has anything to do with it... we're golden!

>

> Anyone else notice this change when they switched to oral?

>

> Pam

>

> p.s. I'm re-adding oral ALA (20 mgs) next round. That is where I

> saw the most improvement last time. He took it for 8 months at

that

> dose but I removed it temporarily when we made the DMSA switch.

>

>

>

>

>

>