Chris and Deborah - Stanford bands

[Guest guest]

Hi Hi Deborah

It's great to know there are others around here who have been to the

same center. I looked at the photos of Tyler in his band. He is a

real sweetie! What fabulous blue eyes! Are there any photos of Noah?

The band seems quite a bit bigger than the DOC bands we have seen on

the web, but I guess if it does the job, that is what matters. It is

kind of surprising though, as I spoke to one of the orthotists at

ICRS the other day (Bill ) and he said it was almost

identical to the DOC band. I guess he meant how it works, rather than

how it looks. How long was Tyler in his band, and how old was he when

the treatment started? Did he have severe plagio? How often was it

adjusted? Bill said it would probably only be every month,

which seems much less frequent than is standard for the DOC bands.

Deborah - any ideas how long Noah will be in his band? Sorry for all

the questions!

Best of luck to you both,

Kimberley

> > History:

> > I think you have seen me post a few times, but I am new to the

group

> > and would like to introduce myself and my son Noah. I am a

single

> > mother living in San Francisco and Noah was born 10/6/00 3 weeks

> > early. He is now 5 1/2 months old. He has been really healthy,

but

> > I noticed an increasing flat spot on the right side of his head

and

> a

> > basically " weird " looking head (and no soft spots). My

pediatrician

> > at 2 months said to just move him around and at 4 months he said

to

> > wait and we could do surgery around 10-12 months if his head was

> > still misshaped. This didn't sound right to me, so I checked

around

> > and found a children's hospital an hour away that has a

> cranio-facial

> > clinic twice a month. I went there and they ruled out synotosis,

> but

> > referred me to a orthotist for a helmut...(and I am gettin a new

> > pediatrician!)

> >

> > First 36 hours:

> > Noah has adapted easily to his helmut and I didn't see any red

spots

> > during the first day. I decided to let him wear it last night

while

> > he slept (he sleeps through from 10-7)and everything seemed

normal.

> > BUT, when I went into his room this morning...the helmut was off

his

> > head! It doesn't seem loose, so I will see how it goes tonight.

If

> > it comes off again, then I will call the orthotist. But so far,

so

> > good.

> >

> > I hope to report back some progress (and probably more questions)

> > soon.

> >

> > I'm glad this group is here.

> > Deborah and Noah 10/6/00 STARband 3/20/01