Re: Kristi/12 yr. medical mystery

[Guest guest]

I want to thank you all so much for giving me directions to persue in trying

to clear up my medical problems of the past 12 years. I have made a list of

all of your suggestions and made an appointment with a naturopath for this

Wednesday to discuss them. I've also had some questions posted to me (thanks

Alison) and I want to answer them now as it may help clarify some of the pieces

to

the puzzle. I appreciate the time and thought you guys are willing to give

to my troubles!!!! It is so hard for me to tend to myself first. I tried that

when my ovaries first failed and my health started deteriorating, but I

couldn't figure out my problem. Then I decided Eleanor couldn't wait any

further

for my attention so I spent a few years focusing on her. But now my health

demands my attention again so that I can get back to her. What a frustrating

cycle. Again MANY THANKS!!!

Comments intersperced.

> QUESTION: Do you also react badly to some fragrances, fumes? MCS multiple

> chemical sensitivites. That indicates CBS problems.

ANSWER: I don't wear fragrances so that's sort of an unknown. I have

noticed I don't like to be around strong fumes but who does? Sorry, I know that

answer doesn't help much.

QUESTION: > Slow clearance could be hypercoagulation, or mitochodria

> dysfunction. The cells that make energy get hurt by any inflammation.

ANSWER: I THINK I've already been checked for hypercoagulation. I took a

test where they actually cut you and then see how long it takes to clot and the

result was normal. I do think I've suffered with a lot of inflammation though

as I've had fibromyalgia off and on the past 12 years.

QUESTION: > Do you have adverse reactions to meds sometimes? If so and you

> have CBS issues, then you must stay away from sulfur supplements, foods,

soaps,

> etc.

> Like do you have trouble eating onions?

ANSWER: No problem with onions but I do have problems taking meds. A prime

example is this hormone replacement problem. Also, I took thyroid suppliments

once for a while and had similiar side effects as when taking HRT and that is

breathing problems upon exhersion to the point of interfearing with life.

When I finally thought it might be the meds I went off and my breathing returned

to normal. But breathing problems returned even off the meds after 2 months.

I've found I often have breathing problems in relation to hormonal balance.

(at least that is my guess....odd, I know). They used to test my heart for

these problems. I didn't let them do anything invasive but the non-invasive

ones turned out fine. Was also check for pulmonary hypertension but it too was

negative.

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