Update on Abigail

[Guest guest]

Hi everyone!!! Sorry I haven't been able to post to much lately I

have been so crazy busy. I finally got Abigail's Band paid for by the

insurance company this week.It only took over two months since it had

been approved by them. Everytime the claim was sent in it got

denied,even though it was preapproved. I have spent a lot of time on

the phone trying to get them to pay it!!

We also got Abigail's Ped to listen to the fact that Abigail still

can not turn her head to the left as well as to the right.

We went for a PT evaluation two weeks ago, finally got approved by

our insurance to start PT this Friday.!!! I can't wait! If our ped

had listened when Abigail was 1-2 months old she may have never

needed a band.

We also have been on Chickenpox alert since we were at a Baby Shower

with a boy who got the Chickenpox the next day.(The boy had taken a

liking to Abigail and was around her a lot. Abigail is only 7 months

so she has not had the vaccine and the boy's parents did not get him

the vaccine either!!!! so today we were out of the woods NO

chickenpox!!! Yeah!!!

Glad to see everyone is playing nicely now on this board. Hope it can

stay that way.

Amy & Abigail

NJ

[Guest guest]

Hi Amy,

Hope that Abigail is doing well and that you can soon understand why she may be flattening the opposite side. Does she have tort? That is the only thing I could think of that may cause this, not regression, but opposite flattening. I can't understand why that (flattening) would happen, especially if time on her head is limited now that she is older! Good luck and hang in there, your daughter is unique, and one day you can tell her how very special her beginnings were! (and how trying! )

Take Care,

' Mom

[Guest guest]

Amy:

I'm sorry to hear Abigail's ped can see she re-flattened a bit, I was

hoping you were just imagining things .

It's a good thing to have a CT scan done to rule anything out. I'm

hoping it's nothing.

As for her shaking her head, do you shake your head at her a lot

while saying No? Just curious, Abby shakes her head while she

says " no no no no no no " (I say no no a billion times a day!). Like

your ped said too, it could just be a phase she's going thru, babies

do things a million times when they first discover they are able to,

then they forget about it & move on to something new.

Good luck with the CT - please let us know how all goes.

Debbie Abby's mom DOCgrad 6/22/01

MI

> Hi everyone I just wanted to update you all on our Ped appointment

> last Friday. Just to remind you all I am worried becauseAbigail's

> head seems a bit flat again. She has been graduated since May 2001.

> The ped agreed that some flatness has returned and the opposite

side

> seems to be " sticking out " more! The first thing we will get is a

CT

> of her head. Next we will return to the Cranial-Facial Dr to see

what

> he has to say.

> There was also one other aspect that I did not mention in prior

> postings. Just in the last few weeks we have noticed her shaking

her

> head back and forth. It seems like when she is concentrating on

> something she will shake her head. It seems involuntary. The ped

said

> it is probably just something she has picked up somewhere and it

will

> go away. He feels she is completely fine. Actually told me he

thinks

> she is smart due to her constant vocalization! Just so I can feel

> better we will go to see a ped neurologist. The CT will also rule

out

> nothing growing in her brain that should not be there!

>

> So at this point we will wait for all of our referrals!I will keep

> you informed what happens!

>

> One thing I forgot to mention was I contacted her StarBand

Orthotist

> and she sent me her before and after pics!!! She told me that she

has

> never had a child's head going back after Band therapy!!! My

daughter

> always has to be the Different one!!!

> Thanks for listening!!!

>

> Amy & Abigail

> NJ