A little dissappointed, not sure what to do (long)

March 22, 2001

Hi All,

It's been a while since I last posted. I've been caught up in some

big cut backs at work and have subsequently been laid off. In a way

this is a good thing. I've been on a personal leave since Drew was

born and was debating whether or not to go back to work, so now my

decision has been made for me! Still, it's been hectic trying to tie

up loose ends and get my benefits in order.

The last time I posted things were going well, we were told Drew had

6 more weeks in the band. But, over the last few weeks, we've been

noticing that it appears like Drew's head is growing sideways (where

the gap in the DOC band is). He had some bossing on the side of his

head from the start, and it just happens to be where the gap in the

band is. I don't know why they put the gap on the side that needed

to be flattened. Anyway, I brought it up with CT again today and

they recommended I see the neurosurgeon ASAP just to make sure it's

okay. They gave me Drew's mold to take with me. Well, here's where

I got dissappointed. I really don't see much if any difference

between the mold and Drew's head today. I thought we were seeing

improvement, maybe I imagined it, but the change really isn't that

much. Granted, his head was mild/moderate to begin with. I guess I

just expected to really see a difference.

So now, I'm just not sure whether or not to keep the band on. Drew

has a big red spot on his forehead (the original reason we went to CT

today). We've only got three weeks left. We see the neurosurgeon

next week. I don't know if we'll see any more improvement and I'm

worried about the bossing on the side of his head getting worse. Any

thoughts?

Thanks as always.

I'm just bummed.

Lily

Drew banded 1/19/01

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