Guest guest Posted April 17, 2007 Report Share Posted April 17, 2007 Amen Micci, What a diservice to the child whose parents are just accepting this. I still flip out if I eat wheat/apple, get worse on dairy. But now I know why, and which wnzyme or contributing factors. I'm going down the genetic road w/Yasko camp, because alot of the fixes we all know, ie. EFA's, taurine, I have trouble with, cause of CBS/and certain SNP's. My ADD is WAY better with chelating. I had 12 years of pysch meds, 13 years talk therapy, but chelating TD DMPS @ 8 hours, is what improved alot including low self-esteem. I worry about those kids when they're older and parents aren't around. My mom is helping me financially to do this. Need more money, but hope to get stronger and better and make more than the little I do now. It's a marathon. Giving it all to God, and knowing He is leading me to these answers has been invaluable. Alison F. 4 years ago, I couldn't concentrate enough to post a question here. WAY better. Love this list. 9b. Re: Gifted Digest Number 11274 Posted by: " Micci_Rog " micci_rog@... Micci_Rog Date: Tue Apr 17, 2007 5:58 am ((PDT)) Thanks Alison, for your encouraging post. My husband has ADD and has an appointment set to remove his mercury fillings. Most people do not realize my husband struggles with this because he is very successful in his career. My mother descended into mental illness in her 30's, and when she was on meds she was very autistic acting in her behaviors- when she was off, she was completely in her own world. They called this schizophrenia. I am not sure what put her into that state. I know she is Rh-, so maybe rhogam. We also lived in an area where there were alot of pesticides from crops and such. I believe that area is having an autism explosion these days. If my mom was still alive today, I would be bombarding her with biomed info. I was reading a blog last night (and I responded to it) where a parent of an autistic boy wrote about why he accepts his son for who he is..etc. Pretty much, anti-biomed. And he said his son is fine the way he is, that those who do not just accept that their kids are autistic for life are complainers..etc. I just can not wrap my mind around this mindset. We did take a few years off from trying to cure my dd, and it is mostly because we thought the game was over- she was over age 5 (8 years old actually)- and figured she was one of the " lifers " . I still never thought autism was a normal or a neurodiverse condition. There is nothing normal or right about a child being in ear peircing pain because her little sister is hummming " twinkle twinkle " under her breath. There is nothing normal about wanting to lie in the dark, crying for hours. There is nothing normal about not being able to sit still and focus. There is nothing normal about having muscles that won't grow and remain weak. There is nothing normal about having to run sideways or almost backwards because she is compelled to look out of the corner of her eyes. I no longer believe that autism is a developmental disability, akin to Down's syndrome. I believe it is an toxin induced weakness that occurs in genetically suseptible individuals. > > You guys are great!!!! > > I am gifted, and was not understood, or was thought of as " crazy " was the comment I always got. I got straight u's in 8th grade, and chose to go to boarding school instead of going back a grade. > I'm way better now that I'm chelating. And my little son, won't have the tortured school experience I had. He is on his second round of TD DMPS. Teacher noticed after first round an overall improvement. > I excelled in art school, (Syracuse University, Parsons School of Design, DIPA summer program in London/Decorative Arts/Museology) but had to admit to Art History Prof at SU I wouldn't pass cause I couldn't read the material. > She said if you take an english class I'll pass you. > > It was in 1995, after getting on ADD med. Wellbutrin, that I finally retained my first one page magazine article. I remember where I was to this day. I had wonder FOR YEARS, why I was retaining anything. Wasn't dyslexic, etc. > Now I read PhD. peer reviewed literature on bio-med for breakfast. > > Chelating, removing amalgams, full set of vaccines '98, 4 Rogham, etc. Off all pysh meds 2.5 years. > > My body may give out soon, but I have recovered MUCH of my brain function, and will TELL ALL somehow. > > I'm glad my mother is alive to see this. This would be my adopted mom. My biological mom died a few years ago, neglected, unable to care for herself in many ways, and her sister ended up in a wheel chair. > I have met many siblings, and bio-relatives. I have figured out our families issues, and have two sibs, my son, and two neices in bio-chem recoverey. > > Soooo..... ahh heemm.... adjusting my monacle.... your children are in there, just continue to pry them out, and they too will be reborn. > > AND FOR THE BLEEPIN' RECORD imho AUTISM IS NOT A DEVELOPMENTAL DISORDER, IT'S JUST THAT THAT'S WHEN MOST PEOPLE GET THEIR BIGGEST LOAD OF MERCURY FROM THE VACCINES!!! There are adults that go on the spectrum AFTER getting vaccinated. > I was slowly poisoned, from my birth mom fillings, my fillings, lot's of other stuff. But I went way down, way worse after Rhogam/and vaccines. > > And of course not having a protective BBB is why the babies get hit so hard. But my point in love is > adults suffer as well, and not many talk about them, or their healing. > > This is not meant to take away anything from anyone's children but to illustrated, we come to this from many different roads, and bottom line never give up on healing. > > God is with US. > > Alison F. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2007 Report Share Posted April 17, 2007 Alison, I agree. My opinion is that if someone's brain is wired in a way that makes it impossible or near impossible to function, then that is not a difference in neuro function/ability, it is something gone very wrong. This is the blog I visited last night. http://bigwhitehat.com/?p=277 I believe my comments are going to be removed, though the blog owner felt compelled to leave his answer to me on the site. Oh well, that's life. I don't think that the blogger is a bad parent or bad person, I just feel bad sometimes that some children are given up on, in the sense of having a chance at a normal life. I often think, if I was miserable with anxiety and headaches, what kind of hell is my daughter trapped in. I also know that after awhile, " hell " can seem normal if that is all a person experiences. BTW, this was my post to the blog: Hi White Hat, I'm what you would call a " curbie " . I find it very interesting how lines get drawn in the sand. 6 months ago, you would not have called me a " curbie " . My daughter is 10. My husband and I are both considered to be mildly on the spectrum. My dh, ADHD and me mild dylexia and anxiety issues- among other things. I don't find anything extraordinary or marvelous about dyslexia, anxiety, hyperactivity and inabilty to focus. Neither does my husband. My husband happens to be quite successful, but he longs to not always fight his ADHD issues. My dd has all that I just mentioned that my husband and I have and more. Yes, she is amazing, intelligent, creative, unique. I accept her for who she is and where she is at in life, but I am not going to leave her in a pit of hyperactivity, inability to focus, physical pain in the presence of normal sounds..etc. My dd is not going to be 10 forever. One day she will be an adult, and one day my husband and I will no longer be living. I have worked in group homes for developmentally disabled adults and I have worked in nursing homes. I would never want to relegate anyone to a life of being at the mercy of low paid and overworked staff- many of whom do not give a crap. I am going to do everything I can to pull my daughter out of this so called " autism " . Through diet modification I have overcome anxiety and chronic headaches. Through diet modifications, my daughter no longer spends her afternoons screaming and crying constantly. She still has a ways to go, but one thought drives me on, it is this, " perhaps my daughter would like to feel better then she does now. " If she gets to a point where she is no longer " autistic " and she liked being autistic better, then she is welcome to figure out a way to replace her toxic load, go off the diet, whatever and go back to being autistic. At least she gets a choice. In fact, she did get a choice. Before we started the diet, I sat down with her and I explained that we were going to try it so she could do better in school. It is her that will ask now if something hs milk or wheat in it. She LIKES feeling better. She is making the choice on her own, amazing isn't it. You know what my biggest fear was (besides my dd living life at the mercy of strangers) is that she will read some of the recovery stories of ASD children and wonder why I did not do the same for her. Acceptance is just a candy coated version of " do nothing " , I won't be that person anymore- I can't be that person anymore, I love my daughter too much. > > Amen Micci, > > What a diservice to the child whose parents are just accepting this. > > I still flip out if I eat wheat/apple, get worse on dairy. But now I know why, and which wnzyme or contributing factors. > > I'm going down the genetic road w/Yasko camp, because alot of the fixes we all know, ie. EFA's, taurine, I have trouble with, > cause of CBS/and certain SNP's. > > My ADD is WAY better with chelating. I had 12 years of pysch meds, 13 years talk therapy, but chelating TD DMPS @ 8 hours, is what improved alot including low self-esteem. > I worry about those kids when they're older and parents aren't around. My mom is helping me financially to do this. Need more money, but hope to get stronger and better and make > more than the little I do now. It's a marathon. > > Giving it all to God, and knowing He is leading me to these answers has been invaluable. > > Alison F. > > 4 years ago, I couldn't concentrate enough to post a question here. WAY better. > > Love this list. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2007 Report Share Posted April 17, 2007 -YOU GO GIRL! That post was awesome. I truly have a hard time watching other parents who just accept that their child is " whatever label " and do nothing either. I think modern medicine makes them feel that they have no power and don't know what is best for their own child. I too would fight to the death to help my child. As an adult with mercury poisoning..there is NO WAY I would want anyone to feel like I have. To go through that constant emotional torment that mercury does to your mind. Not to mention the physical ails. It makes you antisocial, and not fit in. I always felt like an outsider, like I did not belong, and it was very lonely. Very painful, I had lots of emotional problems for years. It wasn't until I had my fillings all removed that this terrible feelings of isolation and being different finally left me. Not to mention the terrible feelings no one talks about...like crying all the time or having the sudden urge to hurl yourself down the stairs and die. For no reason, thoughts just pop in your head. It's no way to live. And to sit by and watch it happen to my kids...NEVER. Even at first when I didn't know what was wrong with them, or me. Or why they had the problems..I still had the drive to find out, no matter what doctors were telling me. I was driven, and spend countless hours searching the web under every term I could think of. " developmental issues, mercury, fillings, add, delays etc.... " Until I came across mercury and science proving it caused these problems..and that was the tree I barked up. I ended up on this group because I had done some questionaires that said my son fit the profile for PDD. When I got here and started reading...OMG...and then I posted about my son and his behaviors...and from there...here we are! A hair test and some chelation we are doing well. But I could not lay back and accept that my son had damage that I caused by my fillings and vaccinating him. It was my fault! It would be inexcusable to sit back and leave him to live that way without first exploring every possible treatment that might help him. This led to helping myself and my mercury toxic other child. And now my other mission of helping others in our situation! NEVER say Die is my motto! In other words..never say uncle! Never EVER give up on your own child! That is a sin...I feel terrible for all the kids who are stuck in that mess because there parents do not have the knowledge, or courage or whatever it is that drives us here to do what we do to help our kids. It's a shame. I have a child born with a genetic neuromuscular disorder, of which there is no treatment. And ya know what. I didn't lay down on that one either. Even though I was told..not much can be done. Well, hell and damnation! I did tons of research and found that diet and certain minerals can indeed help make life easier. There is always something that can help in some way. So my hats off to all of you here who are in the trenches fighting the good fight everyday in the name of your children! God is with Us! -- In , " Micci_Rog " <micci_rog@...> wrote: > > Alison, > > I agree. My opinion is that if someone's brain is wired in a way > that makes it impossible or near impossible to function, then that > is not a difference in neuro function/ability, it is something gone > very wrong. This is the blog I visited last night. > http://bigwhitehat.com/?p=277 I believe my comments are going to be > removed, though the blog owner felt compelled to leave his answer to > me on the site. Oh well, that's life. I don't think that the > blogger is a bad parent or bad person, I just feel bad sometimes > that some children are given up on, in the sense of having a chance > at a normal life. I often think, if I was miserable with anxiety > and headaches, what kind of hell is my daughter trapped in. I also > know that after awhile, " hell " can seem normal if that is all a > person experiences. > > BTW, this was my post to the blog: > > Hi White Hat, I'm what you would call a " curbie " . I find it very > interesting how lines get drawn in the sand. 6 months ago, you would > not have called me a " curbie " . My daughter is 10. My husband and I > are both considered to be mildly on the spectrum. My dh, ADHD and me > mild dylexia and anxiety issues- among other things. I don't find > anything extraordinary or marvelous about dyslexia, anxiety, > hyperactivity and inabilty to focus. Neither does my husband. My > husband happens to be quite successful, but he longs to not always > fight his ADHD issues. My dd has all that I just mentioned that my > husband and I have and more. Yes, she is amazing, intelligent, > creative, unique. I accept her for who she is and where she is at in > life, but I am not going to leave her in a pit of hyperactivity, > inability to focus, physical pain in the presence of normal > sounds..etc. My dd is not going to be 10 forever. One day she will > be an adult, and one day my husband and I will no longer be living. > I have worked in group homes for developmentally disabled adults and > I have worked in nursing homes. I would never want to relegate > anyone to a life of being at the mercy of low paid and overworked > staff- many of whom do not give a crap. I am going to do everything > I can to pull my daughter out of this so called " autism " . Through > diet modification I have overcome anxiety and chronic headaches. > Through diet modifications, my daughter no longer spends her > afternoons screaming and crying constantly. She still has a ways to > go, but one thought drives me on, it is this, " perhaps my daughter > would like to feel better then she does now. " If she gets to a point > where she is no longer " autistic " and she liked being autistic > better, then she is welcome to figure out a way to replace her toxic > load, go off the diet, whatever and go back to being autistic. At > least she gets a choice. In fact, she did get a choice. Before we > started the diet, I sat down with her and I explained that we were > going to try it so she could do better in school. It is her that > will ask now if something hs milk or wheat in it. She LIKES feeling > better. She is making the choice on her own, amazing isn't it. You > know what my biggest fear was (besides my dd living life at the > mercy of strangers) is that she will read some of the recovery > stories of ASD children and wonder why I did not do the same for > her. Acceptance is just a candy coated version of " do nothing " , I > won't be that person anymore- I can't be that person anymore, I love > my daughter too much. > > > > > > > > > Amen Micci, > > > > What a diservice to the child whose parents are just accepting > this. > > > > I still flip out if I eat wheat/apple, get worse on dairy. But now > I know why, and which wnzyme or contributing factors. > > > > I'm going down the genetic road w/Yasko camp, because alot of the > fixes we all know, ie. EFA's, taurine, I have trouble with, > > cause of CBS/and certain SNP's. > > > > My ADD is WAY better with chelating. I had 12 years of pysch meds, > 13 years talk therapy, but chelating TD DMPS @ 8 hours, is what > improved alot including low self-esteem. > > I worry about those kids when they're older and parents aren't > around. My mom is helping me financially to do this. Need more > money, but hope to get stronger and better and make > > more than the little I do now. It's a marathon. > > > > Giving it all to God, and knowing He is leading me to these > answers has been invaluable. > > > > Alison F. > > > > 4 years ago, I couldn't concentrate enough to post a question > here. WAY better. > > > > Love this list. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 Thanks Jan! My comments on the blog was removed. I think the blog owner is only in favor of neurodiversity/no-cure just acceptance comments being posted. I've been very frustrated with alot of the prominent neurodiversity blogs out there recently. It seems like all they can think about is slamming bio-med. I probably wouldn't notice them, except when I do google searches on " biomed and autism " those keep popping up first. I just really don't undestand why ASD adults wouldn't want improvment or cure. It seems like the HFA ASD adult community are similar to the deaf and little people communities, in that they frown on people who try to improve or erradicate their conditions- and only applaud living with or living around said conditions. I don't know anyone who has asthma, ADHD, MS, cerebral palsy, diabetes, schizophrenia..ect, who wouldn't embrace a cure for their condition. I can't see why autism is any different. If my dd had cancer- which often a product of environment interacting with genetic weakness- nobody would question me for hooking her up to an IV filled with poison (chemotherapy) to save her life and putting her on a restrictive diet to bring her body to halth. But if I try to do the same for my daughter with toxin induced nerological and physical issues, I am evil for " subjecting " my dd to an IV and sticking her on a diet..etc. *grumble* > > -YOU GO GIRL! > That post was awesome. I truly have a hard time watching other > parents who just accept that their child is " whatever label " and do > nothing either. I think modern medicine makes them feel that they > have no power and don't know what is best for their own child. I too > would fight to the death to help my child. As an adult with mercury > poisoning..there is NO WAY I would want anyone to feel like I have. > To go through that constant emotional torment that mercury does to > your mind. Not to mention the physical ails. It makes you > antisocial, and not fit in. I always felt like an outsider, like I > did not belong, and it was very lonely. Very painful, I had lots of > emotional problems for years. It wasn't until I had my fillings all > removed that this terrible feelings of isolation and being different > finally left me. Not to mention the terrible feelings no one talks > about...like crying all the time or having the sudden urge to hurl > yourself down the stairs and die. For no reason, thoughts just pop > in your head. It's no way to live. And to sit by and watch it happen > to my kids...NEVER. Even at first when I didn't know what was wrong > with them, or me. Or why they had the problems..I still had the > drive to find out, no matter what doctors were telling me. I was > driven, and spend countless hours searching the web under every term > I could think of. " developmental issues, mercury, fillings, add, > delays etc.... " Until I came across mercury and science proving it > caused these problems..and that was the tree I barked up. I ended up > on this group because I had done some questionaires that said my son > fit the profile for PDD. When I got here and started > reading...OMG...and then I posted about my son and his > behaviors...and from there...here we are! A hair test and some > chelation we are doing well. But I could not lay back and accept > that my son had damage that I caused by my fillings and vaccinating > him. It was my fault! It would be inexcusable to sit back and leave > him to live that way without first exploring every possible > treatment that might help him. This led to helping myself and my > mercury toxic other child. And now my other mission of helping > others in our situation! NEVER say Die is my motto! In other > words..never say uncle! Never EVER give up on your own child! That > is a sin...I feel terrible for all the kids who are stuck in that > mess because there parents do not have the knowledge, or courage or > whatever it is that drives us here to do what we do to help our > kids. It's a shame. > I have a child born with a genetic neuromuscular disorder, of which > there is no treatment. And ya know what. I didn't lay down on that > one either. Even though I was told..not much can be done. Well, hell > and damnation! I did tons of research and found that diet and > certain minerals can indeed help make life easier. There is always > something that can help in some way. So my hats off to all of you > here who are in the trenches fighting the good fight everyday in the > name of your children! > God is with Us! Quote Link to comment Share on other sites More sharing options...
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