Re: Re: LDN and Rheumatoid Arthritis - the drugs I'm currently on...

[Guest guest]

Hi ,This site will give you an idea of what drugs to avoid when taking LDN:http://tinyurl.com/yv4a3kI believe, as a general rule, the fewer drugs you take with LDN the better.This site has some potentially helpful advice about treating your RA:http://tinyurl.com/2y3elqYou may need to adjust your thyroid medication once LDN begins to work for you.All the best,Dudley Delany

dudley_delanyFrom: Cassity

Sent: Monday, February 11, 2008 3:20 PM

low dose naltrexone

Subject: [low dose naltrexone] Re: LDN and Rheumatoid Arthritis - the drugs I'm currently on...

Hi:

I'm new here and have been researching LDN therapy for a couple of

months now. I currently take 15 mg of Methotrexate per week, one 50

mg Enbrel shot per week, .75 mg/.50 mg of Hydrocortisone (I'm

alternating and weaning down) as well as very low dosed (under 2 mg)

of Methimazole for my Grave's Disease. I'm looking for input as to

how other people have lowered down the drugs they were on as they got

on the LDN. When I start with LDN, I will be asking my Doc to see

about starting me on 1.5 mg Naltrexone before going up to 3 mg. I'm

hoping to be off of Hydrocortisone soon, as the next weaning down

will be alternating .50 mg with the .25 mg and then .25 mg to

whatever.

Any suggestions and ideas? I will be seeing my holistic MD/NMD Doc

soon after he has read all the info about the Naltrexone online from

the information I've given him. I have RA, Grave's Disease and

Adrenal Fatigue. I have been undiagnosed hypothyroid from the years

past, but never took any meds as I had mild, subclinical symptoms.

Thanks,

[Guest guest]

Hi ,

Would you like me to send you some earlier posts regarding Graves, and MS

My best

Aletha

[low dose naltrexone] Re: LDN and Rheumatoid Arthritis - the drugs I'm currently on...

Hi:I'm new here and have been researching LDN therapy for a couple of months now. I currently take 15 mg of Methotrexate per week, one 50 mg Enbrel shot per week, .75 mg/.50 mg of Hydrocortisone (I'm alternating and weaning down) as well as very low dosed (under 2 mg) of Methimazole for my Grave's Disease. I'm looking for input as to how other people have lowered down the drugs they were on as they got on the LDN. When I start with LDN, I will be asking my Doc to see about starting me on 1.5 mg Naltrexone before going up to 3 mg. I'm hoping to be off of Hydrocortisone soon, as the next weaning down will be alternating .50 mg with the .25 mg and then .25 mg to whatever.Any suggestions and ideas? I will be seeing my holistic MD/NMD Doc soon after he has read all the info about the Naltrexone online from the information I've given him. I have RA, Grave's Disease and Adrenal Fatigue. I have been undiagnosed hypothyroid from the years past, but never took any meds as I had mild, subclinical symptoms.Thanks,

[Guest guest]

Hi ,

I think I sent you "the welcome e-mail"

I save posts from the chat site in different categories (ailments etc.) and then I forward them to people that they may help. I have a number of chats saved from Graves disease. Would you like me to send you those?

Thanks

Aletha

[low dose naltrexone] Re: LDN and Rheumatoid Arthritis - the drugs I'm currently on...> > > Hi:> > I'm new here and have been researching LDN therapy for a couple of > months now. I currently take 15 mg of Methotrexate per week, one 50 > mg Enbrel shot per week, .75 mg/.50 mg of Hydrocortisone (I'm > alternating and weaning down) as well as very low dosed (under 2 mg) > of Methimazole for my Grave's Disease. I'm looking for input as to > how other people have lowered down the drugs they were on as they got > on the LDN. When I start with LDN, I will be asking my Doc to see > about starting me on 1.5 mg Naltrexone before going up to 3 mg. I'm > hoping to be off of Hydrocortisone soon, as the next weaning down > will be alternating .50 mg with the .25 mg and then .25 mg to > whatever.> > Any suggestions and ideas? I will be seeing my holistic MD/NMD Doc > soon after he has read all the info about the Naltrexone online from > the information I've given him. I have RA, Grave's Disease and > Adrenal Fatigue. I have been undiagnosed hypothyroid from the years > past, but never took any meds as I had mild, subclinical symptoms.> > Thanks,> >

[Guest guest]

For people with RA, when you say you feel better with LDN--are there large reductions in joint swelling, pain, activitiy levels? Thanks, Carolie (RA person)

[low dose naltrexone] Re: LDN and Rheumatoid Arthritis - the drugs I'm currently on...

I was on Celebrex and Plaquenil before I started LDN. I had to getoff the Celebrex because it was giving me inflammation in my stomach,so I did that a while before starting LDN. I took Tylenol asnecessary. I started weaning off the Plaquenil (2x200mgs daily)when Ibegan LDN and finally got off it altogether. Now I just take LDN(it's been 10 weeks or so) and feel better than I did with those otherdrugs. Hardly ever take Tylenol either. I do take supplements and think those help a lot, too.Judy>> Hi:> > I'm new here and have been researching LDN therapy for a couple of > months now. I currently take 15 mg of Methotrexate per week, one 50 > mg Enbrel shot per week, .75 mg/.50 mg of Hydrocortisone (I'm > alternating and weaning down) as well as very low dosed (under 2 mg) > of Methimazole for my Grave's Disease. I'm looking for input as to > how other people have lowered down the drugs they were on as they got > on the LDN. When I start with LDN, I will be asking my Doc to see > about starting me on 1.5 mg Naltrexone before going up to 3 mg. I'm > hoping to be off of Hydrocortisone soon, as the next weaning down > will be alternating .50 mg with the .25 mg and then .25 mg to > whatever.> > Any suggestions and ideas? I will be seeing my holistic MD/NMD Doc > soon after he has read all the info about the Naltrexone online from > the information I've given him. I have RA, Grave's Disease and > Adrenal Fatigue. I have been undiagnosed hypothyroid from the years > past, but never took any meds as I had mild, subclinical symptoms.> > Thanks,> >

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[Guest guest]

Hi Sara,There's more to treating RA than just taking LDN. To learn more, visithttp://tinyurl.com/2y3elqBest regards,Dudley Delany

dudley_delanyFrom: Sara Petsch

Sent: Wednesday, February 13, 2008 1:16 PM

low dose naltrexone

Subject: [low dose naltrexone] Re: LDN and Rheumatoid Arthritis - the drugs I'm currently on...

Hello,

I really hesitated to even send this, because I really

don't want to rain on anyone's parade or cause anyone

to lose hope, but I do think it's important that I

point out that I have RA and LDN has not helped me at

all. I just want people to know that it doesn't work

in 100% of cases, maybe so they don't get their hopes

up TOO high, because I really did get my hopes up

pretty high. I almost done with my 4th month of LDN,

4.5 a night, and I'm not quite ready to give up yet,

but I have started down other paths to hopefully help

me, like a diet plan and also I have started taking

MMS, so I am at least starting to think I may stop

taking it sometime in the next couple of months. I

just don't want to take ANY drug, even one as safe as

LDN, if it's not doing me any good.

So that's my 2cents, but I do sincerely hope that LDN

helps others with their RA.

Sara

Sara Petsch

I would rather have a mind opened by wonder than one

closed by belief.

-- Gerry Spence

__________________________________________________________

Never miss a thing. Make your home page.

http://www./r/hs

[Guest guest]

LDN can take more then 4 months to work and do its job. I have been on LDN for almost 2 and a half years for SPMS and TM and January last year I had an MRI done in Maine which showed 10 lesions on my brain then in April I moved to Georgia and they sent me for another brain MRI for my new Neuro and all lesions were gone.

The Main Purpose Of LDN Is To Stop The Progression and Not Everyone is going to get the Extra Benefits like some of us do but as long as it Stops your Progression is Important!!

As I have said before -

A lot of people think that LDN is going to take all their symptoms away and some think that LDN will take them back before they were diagnosed with MS or any other autoimmune disorder and cancer they have. Yes LDN stops or slows your progression but it’s not a cure and LDN affects everyone different as like anything else does.

I was rereading through Anne Boyle Bradley’s book “Up the Creek with a Paddle” which I suggest you buy and read if you haven’t and in one section where was talking to Dr. Bihari about her husband’s MS, Dr Bihari insisted to that LDN is NOT A CURE for MS and he stated that LDN would Remove The Last 3 Months Worth Of Damage if Noel (’s husband) was lucky, but it seemed to be universal in Stopping Disease Progression.

goes on to say that she tells Dr. Bihari about her uncle that has Parkinson’s disease. Dr Bihari told that although Parkinson’s was medically documented with unknown etiology, he believed that Parkinson’s was also an autoimmune disease. Dr. Bihari told that because of his success with HIV, Aids and MS, he started branching out in diseases. Dr. Bihari explained that he was very thankful for the internet because it made it possible for him to reach so many more people than ever before. Dr. Bihari was excited and told at that time he had 3 Parkinson’s patients on LDN for over a year and that although it was too early then for him to say for sure that it worked, he assured that it was too early then for him to say for sure that it worked and assured that it looked very promising. If nothing else, Dr.

Bihari insisted LDN was worth a try for Parkinson’s based on the fact that there are No Side Effects and It Is A Very Inexpensive Therapy.

Dr. Bihari explains that ANY Doctor could prescribe LDN for their patients and told that he was delighted to share his information with her and wished her well. Dr. Bihari just asked that the LDN be compounded as described on the LDN Website (www.ldninfo.org). Dr. Bihari assured that it was an easy thing to do and that any compounding pharmacy could do it IF instructed PROPERLY but it was important that it was compounded correctly for LDN to work!!!

This is taken from Anne Boyle Bradley’s book “Up the Creek with a Paddle” (http://www.marybradleybooks.com/LDN%20Book..htm).

I just don’t want people to get false hopes and think LDN is a quick fix because its not and it takes time for LDN to get into your system and work and the main purpose of LDN is to Stop the Progression and if you get any of the other Benefits from it then that is a Big Bonus…….Just my 2 cents…..

Hugs & Blessings,

Crystal

LDN_Users Group Owner

Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 2 years & 5 months on LDN with Skip's Pharmacy.....

Crystal's MS,TM & LDN Website

Crystal's LDN Gift Shop

Crystal's LDN Support Group

Skip's Compounding Pharmacy

LDN Website

[low dose naltrexone] Re: LDN and Rheumatoid Arthritis - the drugs I'm currently on...

Hello,I really hesitated to even send this, because I reallydon't want to rain on anyone's parade or cause anyoneto lose hope, but I do think it's important that Ipoint out that I have RA and LDN has not helped me atall. I just want people to know that it doesn't workin 100% of cases, maybe so they don't get their hopesup TOO high, because I really did get my hopes uppretty high. I almost done with my 4th month of LDN,4.5 a night, and I'm not quite ready to give up yet,but I have started down other paths to hopefully helpme, like a diet plan and also I have started takingMMS, so I am at least starting to think I may stoptaking it sometime in the next couple of months. Ijust don't want to take ANY drug, even one as safe asLDN, if it's not doing me any good. So that's my 2cents, but I do sincerely hope that LDNhelps others with their RA.SaraSara PetschI

would rather have a mind opened by wonder than oneclosed by belief.-- Gerry Spence____________ _________ _________ _________ _________ _________ _Never miss a thing. Make your home page. http://www.. com/r/hs

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

They diagnosed me with RA, got so bad I could not move my arms and legs.almost

crippled. Found out I had lyme. treated for lyme and all make to normal. I ski,

and run,no restriction or pain,except finger joint and so ankle ,some times.

LDN, will not cure lyme,might help but not cure it

________________________________

From: low dose naltrexone on behalf of sarapetsch

Sent: Wed 2/13/2008 1:44 PM

low dose naltrexone

Subject: [low dose naltrexone] Re: LDN and Rheumatoid Arthritis - the drugs I'm

currently on...

Yeah, I know that LDN will maybe only just stop the progression. If

that's what it had done for me I would be VERY VERY happy with it.

But no, the disease continued to progress very rapidly throughout the

four months. But like I said I'm not ready to give up yet. I am also

very proactive in trying other natural oriented and diet type

treatments, in case you didn't get that idea from my e-mail, and I

will also continue to do that. I usually don't take any drugs at all,

and live a very holistic, natural oriented life, as far as the food I

eat and my activities, so I would be the last person to think that

something like LDN would be a magic bullet or that I wouldn't need to

make other lifestyle changes to help myself. I just wanted to make

clear to others that it is POSSIBLE that LDN may not even stop the

progression of their RA, as it has not even come close to doing that

for me. But really, I am very happy that it does help some folks, and

I do think it's worth a try, and I will give it a little more time.

Sara

[Guest guest]

Thanks, That is what I was wondering about. How many people with RA have gotten better in terms of less inflammation and joint swelling and less pain. Carolie

[low dose naltrexone] Re: LDN and Rheumatoid Arthritis - the drugs I'm currently on...

Hello,I really hesitated to even send this, because I reallydon't want to rain on anyone's parade or cause anyoneto lose hope, but I do think it's important that Ipoint out that I have RA and LDN has not helped me atall. I just want people to know that it doesn't workin 100% of cases, maybe so they don't get their hopesup TOO high, because I really did get my hopes uppretty high. I almost done with my 4th month of LDN,4.5 a night, and I'm not quite ready to give up yet,but I have started down other paths to hopefully helpme, like a diet plan and also I have started takingMMS, so I am at least starting to think I may stoptaking it sometime in the next couple of months. Ijust don't want to take ANY drug, even one as safe asLDN, if it's not doing me any good. So that's my 2cents, but I do sincerely hope that LDNhelps others with their RA.SaraSara PetschI would rather have a mind opened by wonder than oneclosed by belief.-- Gerry Spence__________________________________________________________Never miss a thing. Make your home page. http://www./r/hs

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.20.4/1276 - Release Date: 2/13/2008 9:41 AM

[Guest guest]

Sara,

I'm glad in a way that you said this because much and all as I'm a

strong proponent of LDN I believe it is absolutely essential that above

all there is honesty on this forum and that people feel free to post

both the good and the not so good about it. That's the only way people

can get a balanced picture about what may (or may not as in your case)

happen.

Nothing works for 100% of people 100% of the time and it is essential

that people go to their doctors and ask for LDN not feeling that it will

DEFINITELY help them, but that HOPEFULLY it will. That said, given its

inexpensiveness and safety the general belief is that you should give it

at least 9 months to start working, plus try to help it along by

attention to diet and other things as well as you have now begun.

Hopefully things will pick up for you soon.

Sara Petsch wrote:

> Hello,

>

> I really hesitated to even send this, because I really

> don't want to rain on anyone's parade or cause anyone

> to lose hope, but I do think it's important that I

> point out that I have RA and LDN has not helped me at

> all. I just want people to know that it doesn't work

> in 100% of cases, maybe so they don't get their hopes

> up TOO high, because I really did get my hopes up

> pretty high. I almost done with my 4th month of LDN,

> 4.5 a night, and I'm not quite ready to give up yet,

> but I have started down other paths to hopefully help

> me, like a diet plan and also I have started taking

> MMS, so I am at least starting to think I may stop

> taking it sometime in the next couple of months. I

> just don't want to take ANY drug, even one as safe as

> LDN, if it's not doing me any good.

>

> So that's my 2cents, but I do sincerely hope that LDN

> helps others with their RA.

>

> Sara