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Re: How long? Any cures?

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Hello all -

This post made me finally brave enough to ask - Has anyone here

actually had a child cured - really cured - by removing metals and

accompanying treatments?

My 10 year old was normal until just past 5. I am convinced it was

mostly caused by mercury. We started chelating around 5 1/2 months

ago and had nice progress, but I am afraid to hope for her to return

to her former self. Does that actually happen ever, really, or just

improvements?

Patty

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Well, for us it's hard to say " return to normal " because my son is

four and we are not sure what his " normal " would have been without

metal poisoning. But what I can say..is that he has done 18 rounds and

with each round we have seen improvements. Some huge, and some tiny.

Before I began biomed and chelation...we thought and the doc thought

he had PPD-NOS. He definitely didn't act like a normal kid. Now he is

normal. Far better than anything we hoped for. We are planning to do

his follow up hair test this spring..but I am pleased with how he is

now. We actually for the first time ever were able to go to a movie.

And we can now go to stores and restaurants without fear of how he

will act up, or flip out, etc.

In my book..I would say he is cured. No signs of PDD now says the doc.

>

> Hello all -

>

> This post made me finally brave enough to ask - Has anyone here

> actually had a child cured - really cured - by removing metals and

> accompanying treatments?

>

> My 10 year old was normal until just past 5. I am convinced it was

> mostly caused by mercury. We started chelating around 5 1/2 months

> ago and had nice progress, but I am afraid to hope for her to return

> to her former self. Does that actually happen ever, really, or just

> improvements?

>

> Patty

>

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>

> Hello all -

>

> This post made me finally brave enough to ask - Has anyone here

> actually had a child cured - really cured - by removing metals and

> accompanying treatments?

>

> My 10 year old was normal until just past 5. I am convinced it was

> mostly caused by mercury. We started chelating around 5 1/2 months

> ago and had nice progress, but I am afraid to hope for her to

return

> to her former self. Does that actually happen ever, really, or

just

> improvements?

>

> Patty

>

http://www.latitudes.org/articles/lenny_story.pdf

Charlie

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> This post made me finally brave enough to ask - Has anyone here

> actually had a child cured - really cured - by removing metals and

> accompanying treatments?

I feel like I should do some kind of superstitious hex-dance before

saying this, but I think my son is just about there. I wish I had a

clearer sense of what normal looks like, because at this point I'll be

wondering whether something is a biomed issue and it keeps turning out

to be a regular 8 yo boy issue.

Nell

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Patty,

You may already be familiar with this site, but I thought I'd share it

anyway.

http://www.autism-recoveredchildren.org/

In my opinion, even if a child makes a full recovery, I'm not sure

they'll ever return to their former self. The path to recovery is

often long, often difficult. Parents change. Other siblings change.

I'm sure that the path to recovery changes the child too.

I don't believe this to be a bad thing--in fact, if a child does make a

full recovery it may be a very good thing--but I don't think any of us

will ever go back to exactly what we were before.

I'm happy to hear that your seeing improvements in your daughter :-)

Anita

>

> Hello all -

>

> This post made me finally brave enough to ask - Has anyone here

> actually had a child cured - really cured - by removing metals and

> accompanying treatments?

>

> My 10 year old was normal until just past 5. I am convinced it was

> mostly caused by mercury. We started chelating around 5 1/2 months

> ago and had nice progress, but I am afraid to hope for her to return

> to her former self. Does that actually happen ever, really, or just

> improvements?

>

> Patty

>

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I feel I should do the superstition dance as well. My son is not seen

as cured by the school (he just turned 6 and in kindergarten) but we

really think of him as almost there. He shares a para with another

child, but is learning all of the material presented and can read and

write and understands what he reads. Recently, we had this

conversation - wait, I would like to preface it by saying he never

called me mom until he was almost 4, was essentially nonverbal until

4, a headbanger, perseverated, self stimulatory, but he could have

relationships(which are his hardest thing now, with other kids, they

scare him) and decent attention span - if interested. Anyway, in

school that very day they learned about fractions (kindergarten!) and

we had this exchange:

Him: Can I have another peice of pizza?

Me: Your brother wants one too and there is one left..what should we do?

Him: Split it!

Me: And then...

Him: He would have on and I would have one.

Me: And it would be called....

Him: A HALF!

He has had biomed for 2 years, GFCF for close to two years, 20 rounds

of ALA chelation and NCD. We still have issues, stimmy (yeast) but

they are truly minor at this point.

I credit mostly biomedical intervention and chelation and I completely

expect full recovery.

Liz

>

> Hello all -

>

> This post made me finally brave enough to ask - Has anyone here

> actually had a child cured - really cured - by removing metals and

> accompanying treatments?

>

> My 10 year old was normal until just past 5. I am convinced it was

> mostly caused by mercury. We started chelating around 5 1/2 months

> ago and had nice progress, but I am afraid to hope for her to return

> to her former self. Does that actually happen ever, really, or just

> improvements?

>

> Patty

>

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>

> How long did you do biomed before your child progressed so much?

I started biomed (Feingold diet and Houston enzymes) when he was 4.5.

Chelation when he was 5. I saw terrific improvements with both of

those, but it was kind of like glimpses of what could be. The

improvements didn't stick at all and it was a dramatic roller coaster

of days of nearly being OK to regression all the way back.

> And how affected was he before you started.

He was dx'd with Asperger's and PDD. He was very verbal so that was a

big hurdle we didn't have to get over. His main behavioral issues were

rage, social impairment (not much eye contact, generally hated people

and refused to talk to anyone outside the family, no friends), fine

motor delay, couldn't play with toys, no pretend play, pretty dramatic

clumsiness and balance problems, suicidal ideation, violence and

aggression, sometims hyper and sometimes lethargic. At least that's

off the top of my head.

> A lot of people have children that are only mildly affected to begin

with and improvements show up so much more easily.

Generally speaking, but not always, a less-affected kid improves more

quickly. Generally speaking, but not always, a younger kid improves

more quickly. There are plenty of exceptions, and a lot depends on how

the particular kid is affected biochemically, and some depends on what

the parents are willing/able to do (i.e. nighttime doses, diets,

school options).

> I am just curious how much a moderately affected child somewhat

verbal child could make from age 7 for one year if we did the

chelation with the DMSA.

In n's case, it took longterm diet (Feingold, plus some other

more temporary exclusions) and enzymes, plus Andy's chelation, plus

many different antiviral treatments, plus a fair mount of supplement

tinkering. Three years plus and still doing them, but hope to be done

this summer. There are some kids who need more interventions, and some

who've recovered with much less. The trial-and-error aspect of

treating your kid can't be overemphasized -- you have to watch for

other kids who have issues similar to yours, and try what works for

them. At least that was my m.o.

Nell

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> This post made me finally brave enough to ask - Has anyone here

> actually had a child cured - really cured - by removing metals and

> accompanying treatments?

My son is almost finished with biomedical. He is still not

age-appropriate tho, because he was severe, low functioning when I

started. He has a lot of ground to catch up.

> My 10 year old was normal until just past 5. I am convinced it was

> mostly caused by mercury. We started chelating around 5 1/2 months

> ago and had nice progress, but I am afraid to hope for her to return

> to her former self. Does that actually happen ever, really, or just

> improvements?

I don't want my son to " return to his former self " , because he is not

a regressive child. He was autistic from birth. He is no longer

autistic, just not yet age appropriate.

For my son, chelation was one of the first steps. After chelation was

finished, he needed a lot of other biomedical interventions to correct

the problems that were caused by the mercury.

Dana

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