Guest guest Posted May 20, 2007 Report Share Posted May 20, 2007 My son weighs 38 lbs. I got the 100mg capsules of both ALA and DMSA. Sometimes it's difficult to divide the doses equally. I hope that is not part of the problem. He takes pobiotics and yeast aid from kirkman, he takes sublingual mb12, codliver oil, milk thistle,superNuthera, kids digest, zinc sulfate cream, noni juice, niasine and vit C, he's also on GF/CF diet.This is his second ound of dmsa/ala. The fist round went well. He had had 3 ounds of dmsa alone before. I gave him 100mg three times a day, 3 days on, 4 days off. After 3 rounds, I added ALA . He did fine on the DMSA alone. His first round of DMSA/ALA, I divided the 100mg into 5 parts so he was 20mg of each and b/c it was becoming increasingly difficult to divide the 100mg equally into 5 parts, I thought I shld try dividing into 4 parts. I did that on the last day of his first round of DMSA/ALA and he was fine.I repeated that on the first day of his 2nd round and he was fine as well.Day 2 of his 2nd round I had to give a dose at 5am and the alarm didnot go off so I missed it but later read other posts where someone said they had continued even after missing a dose so I thought it would be a waste to loose 2 whole days so I decided to continue at 7am. I gave him that dose and he was fine. I gave him another dose at 11am and that went well as well. For the dose at 3pm, I gave him the same time as his niacin and Vit C and he immediately boke out in ash only on his toomy and chest. It was very itchy but not bumpy or red. One could not feel if you rub your hands aound you could only it was there by looking. He itched for about 5 mins and I applied some olive oil on it and he fell asleep. By the time he woke up, it was all gone and there was no more itching. I did some research online to find out if that was a virus as or an allergic rash and I thout It was an allegic reaction maybe b/c I gave it together with the niacin and vit c. So for the 7pm dose, I gave his DMSA/ALA alone and he was fine. AT 11pm, I gave it to him with yeast aid . I had done this b/4 and never had any problems. He had not been eating the whole day, maybe little snacks here and there. My son is a very picky eater that's why I juice vegetables and apples for him everyday. After I gave him his 11pm dose, it was not long b/4 he started acting wierd. I decided not to give him the rest of his doses and wait till next oud which is Friday. I would reduce his doe and give every 3hs. This is very difficult especially at night as one can easily miss a dose. May be I will just do as Dana did. It is better to start something one can stick to than to have all of these. Thank you all for your posts. I was even thinking maybe I should just stick to ALA alone. Thanks again. My son is fine now, and playing. I read in this goup someone wrote that they had experienced hallucination due to redistribution. I accept what Dana wrote. I think it is a re-binding effect or mecury moving or settling somewhere. No matter how we may try to avoid this, each time we stop a cycle, mercury that was been transferred the last time settles and binds somewhere untill the next round. It is just that most of our kids cannot eally explain to us what they feel. thanbks again Roseline lindajaytee <lindajaytee@...> wrote: I have not had hallucinations while chelating but I can tell you that side effects can feel very scary when a person is taking a dose of chelator that is too high for them. I would lower his dose to about 18 or 12.5 mg. How much does he weigh and how long has he been chelating? J > > Hi all, > I was wondering if any of you have had this experience. Yesterday, I gave my son 25mg of dmsa/ala every 4 hs.After the 11pm dose, he began acting funny. Clinging to his dad alot, expressing fear when he is usually hardly afraid or should I say fearless. > The least sound startled him and he was acting fearful of everything around him. He was even afraid of food, his favorite video tape, me amd his sister. He was acting as if running away from someone. He led out fearful screams and clung unto his dad. I think he was hallucinating he didnot have any fever. I forced him to eat something but he was afraid of food. I gave him his favorite saltless potatoe chip . He was afraid at first and moved away but he later came along and ate some of his chips and then seemed fine again. Maybe it was hunger I can't tell. Is this bad? Should I stop chelating or is this rather a good sign that something good is happening. > > Any input is appreciated. > Roseline > > > --------------------------------- Never miss an email again! Toolbar alerts you the instant new Mail arrives. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2007 Report Share Posted May 20, 2007 ----- Original Message ----- From: roseline sampson My son weighs 38 lbs. I got the 100mg capsules of both ALA and DMSA. Sometimes it's difficult to divide the doses equally. I hope that is not part of the problem. He takes pobiotics and yeast aid from kirkman, he takes sublingual mb12, codliver oil, milk thistle,superNuthera, kids digest, zinc sulfate cream, noni juice, niasine and vit C, he's also on GF/CF diet.This is his second ound of dmsa/ala. The fist round went well. He had had 3 ounds of dmsa alone before. I gave him 100mg three times a day, 3 days on, 4 days off. After 3 rounds, I added ALA . He did fine on the DMSA alone. His first round of DMSA/ALA, I divided the 100mg into 5 parts so he was 20mg of each and b/c it was becoming increasingly difficult to divide the 100mg equally into 5 parts, I thought I shld try dividing into 4 parts. I did that on the last day of his first round of DMSA/ALA and he was fine. ===>This is a little confusing to me but at the minimum it seems as if you are giving 20 mgs 5 times a day or divided by 24 hours would be approximately every 5 hours? This is not the protocol. Please don't continue with this. The protocol is 1/8-1/4 mg per lb which would be about 5-9 mgs every THREE hours. This is most likely what is the cause of the problem. I repeated that on the first day of his 2nd round and he was fine as well.Day 2 of his 2nd round I had to give a dose at 5am and the alarm didnot go off so I missed it but later read other posts where someone said they had continued even after missing a dose so I thought it would be a waste to loose 2 whole days so I decided to continue at 7am. I gave him that dose and he was fine. ===>Another clue. The people that were talking about doing this had/have chelated their kids for a long time. That is different than when you are first starting and the mercury burden is high. If you miss a dose by more than one hour, stop the round. Yes, there is a slight redistribution at the end of the round but that is not the same thing as missing a dose and then continuing. Please read the files on the list before you continue. I gave him another dose at 11am and that went well as well. For the dose at 3pm, I gave him the same time as his niacin and Vit C and he immediately boke out in ash only on his toomy and chest. It was very itchy but not bumpy or red. One could not feel if you rub your hands aound you could only it was there by looking. He itched for about 5 mins and I applied some olive oil on it and he fell asleep. By the time he woke up, it was all gone and there was no more itching. I did some research online to find out if that was a virus as or an allergic rash and I thout It was an allegic reaction maybe b/c I gave it together with the niacin and vit c. So for the 7pm dose, I gave his DMSA/ALA alone and he was fine. AT 11pm, I gave it to him with yeast aid . I had done this b/4 and never had any problems. He had not been eating the whole day, maybe little snacks here and there. My son is a very picky eater that's why I juice vegetables and apples for him everyday. After I gave him his 11pm dose, it was not long b/4 he started acting wierd. I decided not to give him the rest of his doses and wait till next oud which is Friday. I would reduce his doe and give every 3hs. This is very difficult especially at night as one can easily miss a dose. May be I will just do as Dana did. It is better to start something one can stick to than to have all of these. Thank you all for your posts. I was even thinking maybe I should just stick to ALA alone. Thanks again. My son is fine now, and playing. I read in this goup someone wrote that they had experienced hallucination due to redistribution. I accept what Dana wrote. I think it is a re-binding effect or mecury moving or settling somewhere. No matter how we may try to avoid this, each time we stop a cycle, mercury that was been transferred the last time settles and binds somewhere untill the next round. It is just that most of our kids cannot eally explain to us what they feel. thanbks again Roseline lindajaytee <lindajaytee@...> wrote: I have not had hallucinations while chelating but I can tell you that side effects can feel very scary when a person is taking a dose of chelator that is too high for them. I would lower his dose to about 18 or 12.5 mg. How much does he weigh and how long has he been chelating? J > > Hi all, > I was wondering if any of you have had this experience. Yesterday, I gave my son 25mg of dmsa/ala every 4 hs.After the 11pm dose, he began acting funny. Clinging to his dad alot, expressing fear when he is usually hardly afraid or should I say fearless. > The least sound startled him and he was acting fearful of everything around him. He was even afraid of food, his favorite video tape, me amd his sister. He was acting as if running away from someone. He led out fearful screams and clung unto his dad. I think he was hallucinating he didnot have any fever. I forced him to eat something but he was afraid of food. I gave him his favorite saltless potatoe chip . He was afraid at first and moved away but he later came along and ate some of his chips and then seemed fine again. Maybe it was hunger I can't tell. Is this bad? Should I stop chelating or is this rather a good sign that something good is happening. > > Any input is appreciated. > Roseline > > > --------------------------------- Never miss an email again! Toolbar alerts you the instant new Mail arrives. Check it out. 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Guest guest Posted May 20, 2007 Report Share Posted May 20, 2007 I mean I oly have 100mg capsule for both DMSAand ALA so I divided them into 5 parts which is 20mg each and I give them to him every 4 hrs not 5 hs or 5 tismes a day. Cochran <Ladyshrink111@...> wrote: ----- Original Message ----- From: roseline sampson My son weighs 38 lbs. I got the 100mg capsules of both ALA and DMSA. Sometimes it's difficult to divide the doses equally. I hope that is not part of the problem. He takes pobiotics and yeast aid from kirkman, he takes sublingual mb12, codliver oil, milk thistle,superNuthera, kids digest, zinc sulfate cream, noni juice, niasine and vit C, he's also on GF/CF diet.This is his second ound of dmsa/ala. The fist round went well. He had had 3 ounds of dmsa alone before. I gave him 100mg three times a day, 3 days on, 4 days off. After 3 rounds, I added ALA . He did fine on the DMSA alone. His first round of DMSA/ALA, I divided the 100mg into 5 parts so he was 20mg of each and b/c it was becoming increasingly difficult to divide the 100mg equally into 5 parts, I thought I shld try dividing into 4 parts. I did that on the last day of his first round of DMSA/ALA and he was fine. ===>This is a little confusing to me but at the minimum it seems as if you are giving 20 mgs 5 times a day or divided by 24 hours would be approximately every 5 hours? This is not the protocol. Please don't continue with this. The protocol is 1/8-1/4 mg per lb which would be about 5-9 mgs every THREE hours. This is most likely what is the cause of the problem. I repeated that on the first day of his 2nd round and he was fine as well.Day 2 of his 2nd round I had to give a dose at 5am and the alarm didnot go off so I missed it but later read other posts where someone said they had continued even after missing a dose so I thought it would be a waste to loose 2 whole days so I decided to continue at 7am. I gave him that dose and he was fine. ===>Another clue. The people that were talking about doing this had/have chelated their kids for a long time. That is different than when you are first starting and the mercury burden is high. If you miss a dose by more than one hour, stop the round. Yes, there is a slight redistribution at the end of the round but that is not the same thing as missing a dose and then continuing. Please read the files on the list before you continue. I gave him another dose at 11am and that went well as well. For the dose at 3pm, I gave him the same time as his niacin and Vit C and he immediately boke out in ash only on his toomy and chest. It was very itchy but not bumpy or red. One could not feel if you rub your hands aound you could only it was there by looking. He itched for about 5 mins and I applied some olive oil on it and he fell asleep. By the time he woke up, it was all gone and there was no more itching. I did some research online to find out if that was a virus as or an allergic rash and I thout It was an allegic reaction maybe b/c I gave it together with the niacin and vit c. So for the 7pm dose, I gave his DMSA/ALA alone and he was fine. AT 11pm, I gave it to him with yeast aid . I had done this b/4 and never had any problems. He had not been eating the whole day, maybe little snacks here and there. My son is a very picky eater that's why I juice vegetables and apples for him everyday. After I gave him his 11pm dose, it was not long b/4 he started acting wierd. I decided not to give him the rest of his doses and wait till next oud which is Friday. I would reduce his doe and give every 3hs. This is very difficult especially at night as one can easily miss a dose. May be I will just do as Dana did. It is better to start something one can stick to than to have all of these. Thank you all for your posts. I was even thinking maybe I should just stick to ALA alone. Thanks again. My son is fine now, and playing. I read in this goup someone wrote that they had experienced hallucination due to redistribution. I accept what Dana wrote. I think it is a re-binding effect or mecury moving or settling somewhere. No matter how we may try to avoid this, each time we stop a cycle, mercury that was been transferred the last time settles and binds somewhere untill the next round. It is just that most of our kids cannot eally explain to us what they feel. thanbks again Roseline lindajaytee <lindajaytee@...> wrote: I have not had hallucinations while chelating but I can tell you that side effects can feel very scary when a person is taking a dose of chelator that is too high for them. I would lower his dose to about 18 or 12.5 mg. How much does he weigh and how long has he been chelating? J > > Hi all, > I was wondering if any of you have had this experience. Yesterday, I gave my son 25mg of dmsa/ala every 4 hs.After the 11pm dose, he began acting funny. Clinging to his dad alot, expressing fear when he is usually hardly afraid or should I say fearless. > The least sound startled him and he was acting fearful of everything around him. He was even afraid of food, his favorite video tape, me amd his sister. He was acting as if running away from someone. He led out fearful screams and clung unto his dad. I think he was hallucinating he didnot have any fever. I forced him to eat something but he was afraid of food. I gave him his favorite saltless potatoe chip . He was afraid at first and moved away but he later came along and ate some of his chips and then seemed fine again. Maybe it was hunger I can't tell. Is this bad? Should I stop chelating or is this rather a good sign that something good is happening. > > Any input is appreciated. > Roseline > > > --------------------------------- Never miss an email again! Toolbar alerts you the instant new Mail arrives. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2007 Report Share Posted May 20, 2007 Thank you so much Jan. Where can I get 25mg of both DMSA and ALA? Jan <paxlforme@...> wrote: You can purchase 25 mg capsules which are easier to divide. My son is 42 pounds and takes 12.5 mg of dmsa and 12.5 mg of ala. You do three hours during the day, but you can four at night. So midnight and 4am, and then 8am and then back onto three hours. The side effects of a higher dosing or missed dose are not always apparent at first. If you choose to do the ala three times a day, Dont use dmsa like this. I won't use ala like this either, since just touching the stuff gives me headaches. 25 mg is a lot for 38 pounds though, and this is probably the main reason, along with the three rounds done at 100mg three times a day. Using the lower dose next week and dosing 3 hrs in the day and 4 at night will probably get rid of a lot of the problems. If he did fine on dmsa alone, you may have to wait on the ala until he has more rounds down. I could not use ala for my daughter right away either. My son tolerated both. It depends on the person. I would also check the supplement list from Andy. He needs some more things, which SuperNuThera would not have high enough amounts of. I have my kid on Spectrum complete, but we still have to give extra A,E, C, Calcium, Mag, Zinc, B com, Chromium in addition. Also as I am reading that you changed his dose mid round because it was hard to divide the powder. This too can cause problems not always evident immediately. We all understand how hard and frusturating this is. It is hard to get up at night and to divide it all up. It will help to get the smaller capsules of 25mg, you just divide them in half. Do you have a spouse that can do a midnight dose? You do the 4am? It takes getting used to for sure. I am still not looking forward to losing sleep for another two years. But...what choice do I have? Did your child have any Lead on hair testing? If so, you would need to use the dmsa too at some point. Many kids do better on dmsa/ala than ala alone anyway. Try to regroup, check the doses of supplements against what Andy recomends for chelation. This will help keep side effects down. Begin the next round with 12.5mg of each, or less. Go every 3 hours until he goes to bed, the 4 hours until he wakes. 3 days on and 4 days off. Please note that Dana is the only person whose children did well on a 3 dose a day schedule. This may not work for your child anyway. we are all here to help you! Hang in there. This can work. > > > > Hi all, > > I was wondering if any of you have had this experience. Yesterday, > I gave my son 25mg of dmsa/ala every 4 hs.After the 11pm dose, he > began acting funny. Clinging to his dad alot, expressing fear when he > is usually hardly afraid or should I say fearless. > > The least sound startled him and he was acting fearful of everything > around him. He was even afraid of food, his favorite video tape, me > amd his sister. He was acting as if running away from someone. He led > out fearful screams and clung unto his dad. I think he was > hallucinating he didnot have any fever. I forced him to eat something > but he was afraid of food. I gave him his favorite saltless potatoe > chip . He was afraid at first and moved away but he later came along > and ate some of his chips and then seemed fine again. Maybe it was > hunger I can't tell. Is this bad? Should I stop chelating or is this > rather a good sign that something good is happening. > > > > Any input is appreciated. > > Roseline > > > > > > > > > > > > > --------------------------------- > Never miss an email again! > Toolbar alerts you the instant new Mail arrives. Check it out. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2007 Report Share Posted May 20, 2007 Roseline, Ala must be dose every three (3) hours during the day. You can try four hours at night due to slower metabolism. Re: [ ] Re: DMSA/ALA CAUSE HALLUCINATION? I mean I oly have 100mg capsule for both DMSAand ALA so I divided them into 5 parts which is 20mg each and I give them to him every 4 hrs not 5 hs or 5 tismes a day. Cochran <Ladyshrink111@...> wrote: ----- Original Message ----- From: roseline sampson My son weighs 38 lbs. I got the 100mg capsules of both ALA and DMSA. Sometimes it's difficult to divide the doses equally. I hope that is not part of the problem. He takes pobiotics and yeast aid from kirkman, he takes sublingual mb12, codliver oil, milk thistle,superNuthera, kids digest, zinc sulfate cream, noni juice, niasine and vit C, he's also on GF/CF diet.This is his second ound of dmsa/ala. The fist round went well. He had had 3 ounds of dmsa alone before. I gave him 100mg three times a day, 3 days on, 4 days off. After 3 rounds, I added ALA . He did fine on the DMSA alone. His first round of DMSA/ALA, I divided the 100mg into 5 parts so he was 20mg of each and b/c it was becoming increasingly difficult to divide the 100mg equally into 5 parts, I thought I shld try dividing into 4 parts. I did that on the last day of his first round of DMSA/ALA and he was fine. ===>This is a little confusing to me but at the minimum it seems as if you are giving 20 mgs 5 times a day or divided by 24 hours would be approximately every 5 hours? This is not the protocol. Please don't continue with this. The protocol is 1/8-1/4 mg per lb which would be about 5-9 mgs every THREE hours. This is most likely what is the cause of the problem. I repeated that on the first day of his 2nd round and he was fine as well.Day 2 of his 2nd round I had to give a dose at 5am and the alarm didnot go off so I missed it but later read other posts where someone said they had continued even after missing a dose so I thought it would be a waste to loose 2 whole days so I decided to continue at 7am. I gave him that dose and he was fine. ===>Another clue. The people that were talking about doing this had/have chelated their kids for a long time. That is different than when you are first starting and the mercury burden is high. If you miss a dose by more than one hour, stop the round. Yes, there is a slight redistribution at the end of the round but that is not the same thing as missing a dose and then continuing. Please read the files on the list before you continue. I gave him another dose at 11am and that went well as well. For the dose at 3pm, I gave him the same time as his niacin and Vit C and he immediately boke out in ash only on his toomy and chest. It was very itchy but not bumpy or red. One could not feel if you rub your hands aound you could only it was there by looking. He itched for about 5 mins and I applied some olive oil on it and he fell asleep. By the time he woke up, it was all gone and there was no more itching. I did some research online to find out if that was a virus as or an allergic rash and I thout It was an allegic reaction maybe b/c I gave it together with the niacin and vit c. So for the 7pm dose, I gave his DMSA/ALA alone and he was fine. AT 11pm, I gave it to him with yeast aid . I had done this b/4 and never had any problems. He had not been eating the whole day, maybe little snacks here and there. My son is a very picky eater that's why I juice vegetables and apples for him everyday. After I gave him his 11pm dose, it was not long b/4 he started acting wierd. I decided not to give him the rest of his doses and wait till next oud which is Friday. I would reduce his doe and give every 3hs. This is very difficult especially at night as one can easily miss a dose. May be I will just do as Dana did. It is better to start something one can stick to than to have all of these. Thank you all for your posts. I was even thinking maybe I should just stick to ALA alone. Thanks again. My son is fine now, and playing. I read in this goup someone wrote that they had experienced hallucination due to redistribution. I accept what Dana wrote. I think it is a re-binding effect or mecury moving or settling somewhere. No matter how we may try to avoid this, each time we stop a cycle, mercury that was been transferred the last time settles and binds somewhere untill the next round. It is just that most of our kids cannot eally explain to us what they feel. thanbks again Roseline lindajaytee <lindajaytee@...> wrote: I have not had hallucinations while chelating but I can tell you that side effects can feel very scary when a person is taking a dose of chelator that is too high for them. I would lower his dose to about 18 or 12.5 mg. How much does he weigh and how long has he been chelating? J > > Hi all, > I was wondering if any of you have had this experience. Yesterday, I gave my son 25mg of dmsa/ala every 4 hs.After the 11pm dose, he began acting funny. Clinging to his dad alot, expressing fear when he is usually hardly afraid or should I say fearless. > The least sound startled him and he was acting fearful of everything around him. He was even afraid of food, his favorite video tape, me amd his sister. He was acting as if running away from someone. He led out fearful screams and clung unto his dad. I think he was hallucinating he didnot have any fever. I forced him to eat something but he was afraid of food. I gave him his favorite saltless potatoe chip . He was afraid at first and moved away but he later came along and ate some of his chips and then seemed fine again. Maybe it was hunger I can't tell. Is this bad? Should I stop chelating or is this rather a good sign that something good is happening. > > Any input is appreciated. > Roseline > > > --------------------------------- Never miss an email again! Toolbar alerts you the instant new Mail arrives. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2007 Report Share Posted May 20, 2007 www.vrp.com S S Thank you so much Jan. Where can I get 25mg of both DMSA and ALA? _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2007 Report Share Posted May 20, 2007 Comments interspersed. S S From: roseline sampson My son weighs 38 lbs. I got the 100mg capsules of both ALA and DMSA. Sometimes it's difficult to divide the doses equally. I hope that is not part of the problem. He takes pobiotics and yeast aid from kirkman, he takes sublingual mb12, codliver oil, milk thistle,superNuthera, kids digest, zinc sulfate cream, noni juice, niasine and vit C, he's also on GF/CF diet.This is his second ound of dmsa/ala. The fist round went well. He had had 3 ounds of dmsa alone before. I gave him 100mg three times a day, 3 days on, 4 days off. *This is a dangerously high dose for a child. I'm an adults weighing about 125# and I only take 50 mg each. Also you need to dose ALA every 3 hours during the day and every 4 at night. I presume he has NO mercury amalgam dental fillings and no recent (past 3 months) new mercury exposure?! After 3 rounds, I added ALA . He did fine on the DMSA alone. His first round of DMSA/ALA, I divided the 100mg into 5 parts so he was 20mg of each and b/c it was becoming increasingly difficult to divide the 100mg equally into 5 parts, I thought I shld try dividing into 4 parts. I did that on the last day of his first round of DMSA/ALA and he was fine. _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2007 Report Share Posted May 20, 2007 Please read the FAQs of this list before trying chelationa again in order to avoid doing more harm than good. Comments interpersed. S S I have not had hallucinations while chelating but I can tell you that side effects can feel very scary when a person is taking a dose of chelator that is too high for them. I would lower his dose to about 18 or 12.5 mg. How much does he weigh and how long has he been chelating? J > > Hi all, > I was wondering if any of you have had this experience. Yesterday, I gave my son 25mg of dmsa/ala every 4 hs.After the 11pm dose, he began acting funny. Clinging to his dad alot, expressing fear when he is usually hardly afraid or should I say fearless. > The least sound startled him and he was acting fearful of everything around him. He was even afraid of food, his favorite video tape, me amd his sister. He was acting as if running away from someone. He led out fearful screams and clung unto his dad. I think he was hallucinating he didnot have any fever. I forced him to eat something but he was afraid of food. I gave him his favorite saltless potatoe chip . He was afraid at first and moved away but he later came along and ate some of his chips and then seemed fine again. Maybe it was hunger I can't tell. Is this bad? Should I stop chelating or is this rather a good sign that something good is happening. > > Any input is appreciated. > Roseline > > > --------------------------------- Never miss an email again! Toolbar alerts you the instant new Mail arrives. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 That's correct as I have known some kids to recover on dmsa every 8 hours so the correct timing is not always necessary. But the more frequent dosing is safer as practically noone disagrees and to me, safer is what it is all about when not as safe means risking damage to the child. Particularly when you are talking about inducing hallucinations. I've heard yeast blamed for a lot of things. They even blame yeast when IV chelation is used and the child can no longer speak, but trust me yeast does not cause hallucinations. Incorrect/infrequent dosing which causes redistribution of the metals to the brain is a much more likely cause. And this may be the best reason of all not to recommend any less safe dosing schedule. ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 ----- Original Message ----- From: danasview Life is full of risks, some more than others. <<<It may come down to this statement. I'm not trying to be contentious and I don't want to belabor this but I do want to make one last point. I guess a good analogy would be driving. There is an inherent risk in driving anywhere. I can reduce the risk; obey the speed limit, put the child in a seat belt; follow the traffic laws, etc. An accident is still possible but I would feel/think soooo differently if the accident were caused by; my speeding or not wearing safety belts or something else that I could specifically have done to prevent the accident. If I get to my destination by driving haphazardly I wouldn't assume that it was the best way to drive or recommend to others that they drive this way. This is the end justifying the means. This may just be a function of my particular personality and I can agree to disagree about this. Thanks for the discussion. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2007 Report Share Posted May 21, 2007 O.k, Lets put a close to the topic. There are many different chelation protocol. Andy's potocol cannot be compared to traffic signe b/c it is not THE potocol. It is not a law. We 're all trying the best for our children and no one means harm. Sometimes we do things b/c of so much confusion or too many infors out there. But we as parents try different things. If something doesnot wok we try something else and that's why we look to those who have gone b/4 us hopefully what they did would be just what we need. Thank you all for you inputs but let's remember we're all in this together. There's no golden chelation rule. Ya Andy's potocol is considered safer mainly b/c of smaller and fequent dosing. On the other hand the draw back is the frequent dosing as sometimes some parents cannot keep up with that and since Andy says when a dose is missed, the whole cycle should be stopped. That is very strict and many parents cannot handle this. Some parents work and for me, consistency is very important as well. It is more dangerous starting something that one cannot keep up with so when you hear someone else did it more conveniently and was successful, we one to try that. Dana's childen cannot be the only ones in the world to be able to handle that. We try what we can handle and we monitor the child. If that doesnot go well, we adjust untill something works. Other than having to miss doses and wasting time sometimes one can try another dosing schedule and monitor the child if that goes well then it is better b/c all of these are for the long run so we must find something we can stick to. No one is quite sure what happened to my son. It might be b/c I missed a dose, it might be yeast, it might be he was hungry and the chelation was taking a toll on his GI. Let's just remember we're all trying to do our best for the children and there's no golden cure witten somewhere . It is all a mystery to us so we keep trying ,sometimes there's just no explanation. Thank you all for your concerns.I'll decide what may be better for my child. One thing is I have to make some adjustments and frequent dosing may work for me during the day but I don't want to miss a dose at night. I'm still trying to decide on what I can stick to longterm and I'll monitor his reactions. I think the problem came about when we missed a dose.I'll lower the dose. I'll keep you'll posted. Roseline Cochran <Ladyshrink111@...> wrote: ----- Original Message ----- From: danasview Life is full of risks, some more than others. <<<It may come down to this statement. I'm not trying to be contentious and I don't want to belabor this but I do want to make one last point. I guess a good analogy would be driving. There is an inherent risk in driving anywhere. I can reduce the risk; obey the speed limit, put the child in a seat belt; follow the traffic laws, etc. An accident is still possible but I would feel/think soooo differently if the accident were caused by; my speeding or not wearing safety belts or something else that I could specifically have done to prevent the accident. If I get to my destination by driving haphazardly I wouldn't assume that it was the best way to drive or recommend to others that they drive this way. This is the end justifying the means. This may just be a function of my particular personality and I can agree to disagree about this. Thanks for the discussion. Dana Quote Link to comment Share on other sites More sharing options...
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