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Hello & Welcome,

You are in the right place for info and support. I am not in

California but i'm sure there are alot of members who are.

We were in the same boat as you but when I brought the info to my Ped.

he was grateful and right away got us rolling towards a helmet for

Bri. You could take your pedi some of the info. you can print off of

this site and ask him to look it over and also to tell you exactly why

he dosn't want to have will seen by a specialist to see if a helmet or

band is needed. Did he tell you he wanted you to try repositioning

treatment first?

If he still gives you problems I would get a new Dr. and insist on

seeing a specialist. You are the mommy and you know what is best for

your child just by instinct.

Hope this helped some,

April

Mommy to Bri and Mandy

> My son is 4 mos. old. and has just been diagnosed with plagio.

> However his Dr. is not concerned and states he will " outgow it " . I

am

> afraid that the condition will only worsen. The back of his head is

> flat, and his forehead is starting to bulge out. I live in Southern

> Calif. and would like a 2nd opinion, but I dont know were to find a

> specialist. I am afraid, and I dont know were to turn. Please

help.

>

> Thank you

> Wills Mom

> Wsull37449@ao

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Hi,

I live in San Diego. I don't know if you are in Los Angeles or

further south near me. We saw Kaweski, a Plastic Surgeon with

specialty training in craniofacial sugery. She is the one that wrote

us the scrip for the DOC band. Her number is 858-974-9876. We also

got an opinion from a pediatric neurosurgeon (from Children's

Hospital) named . He actually told us to wait 6 more

weeks and come back and see him. We didn't feel we had the luxury of

time, as got his DOC band when he was 8 months old. I have

also heard of Cohen and Ralph Holmes. Both of them are

Cranialfacial Surgeons. We had also gotten recommended to them by

one of my husband's colleagues (my husband is a physician), but at

that point, we had enough opinions and a scrip for the DOC band, so

we opted to just go for it already. Ironically, Cohen and Holmes

lease office space to Cranial Technologies (providers of the DOC

band) until CT gets their own offices. Their number is 877-336-

5900. It's great that you are pursuing things so early. Our

pediatrician told us at 4 and 6 months that everything would be

fine.......

Good luck :-)

Debbie

Mom to (DOC banded 2/23/01)

> My son is 4 mos. old. and has just been diagnosed with plagio.

> However his Dr. is not concerned and states he will " outgow it " . I

am

> afraid that the condition will only worsen. The back of his head

is

> flat, and his forehead is starting to bulge out. I live in

Southern

> Calif. and would like a 2nd opinion, but I dont know were to find a

> specialist. I am afraid, and I dont know were to turn. Please

help.

>

> Thank you

> Wills Mom

> Wsull37449@ao

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Check our Cranial Technologies web site. They produce the DOC band

and have offices in So Cal.

http://www.cranialtech.com/

Good luck!

Kimberley

> My son is 4 mos. old. and has just been diagnosed with plagio.

> However his Dr. is not concerned and states he will " outgow it " . I

am

> afraid that the condition will only worsen. The back of his head

is

> flat, and his forehead is starting to bulge out. I live in

Southern

> Calif. and would like a 2nd opinion, but I dont know were to find a

> specialist. I am afraid, and I dont know were to turn. Please

help.

>

> Thank you

> Wills Mom

> Wsull37449@ao

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Dori: We heard the same thing from our son's pediatrician at his 2

mo appt, but he did caution us that if it got worse, he would need a

helmet. However, he didn't tell us what to do. And due to

torticollis, the problem only got worse. Positioning didn't work

either. At his 4 mo appt, we got pushed onto the nurse practioner

[the ped was out]. SHE told us to get to a cranial-facial

specialist, and got us going in the right direction. Our son was

fitted with a helmet on 2/8/01--and the difference is amazing. There

are many types of helmets/bands out there, and from what our dr told

us, there isn't a big difference. Others might disagree. We've had

good luck with ours, called the OPI band.

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Welcome to the group!

> My son is 4 mos. old. and has just been diagnosed with plagio.

> However his Dr. is not concerned and states he will " outgow it " . I

am

> afraid that the condition will only worsen. The back of his head

is

> flat, and his forehead is starting to bulge out. I live in

Southern

> Calif. and would like a 2nd opinion, but I dont know were to find a

> specialist. I am afraid, and I dont know were to turn. Please

help.

>

> Thank you

> Wills Mom

> Wsull37449@ao

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  • 4 months later...
Guest guest

It definitely sounds to me like your child has phenol issues,

especially the sleep issues you describe. Here is my information on

that, including an " offending food " list.

http://home.pacbell.net/cscomp/phenol.htm

Enzymes do help some children with phenol issues, but not all. So you

would have to give it a try for your own son. My link above also

gives other ideas for you to consider.

The enzyme that I understand is most helpful for phenol issues is Zyme

Prime, here is a link on that one, as well as another one that helps

with gluten/casein issues.

http://www.houstonni.com/

> Hello everyone. My name is Toni and I have a 3yo son who has been

> diagnoised with sensory intergration dysfuction. He was not

> diagnoisd with autisim because he as decent social skills; but he

> still has major issues (not sleeping, not transitioning without a

> fight, won't poop in potty, irregular stools, etc.). He is high

risk

> ADHD. I have always felt like his behavior corolated to his food,

but

> the DR. said I was crazy. He has never had a typical allergic

> reaction, but gets really hyper, won't talk to people, has tantrums,

> etc. These have gotten better with age, but still keeps him from

> being " normal. " He gets OT and ST, but otherwise seems pretty

normal

> to the untrained eye.

>

> I am looking for some advice. I've read the folders, but they don't

> answer all my questions. I truly think artificial colorings affect

> his behavior, but I'm not convinced that milk or gulten bothers him.

> He won't drink milk, but loves cheese and yogurt. If he eats too

many

> chic. nuggets from Burger King I've also noticed a problem. And

don't

> get me started on Twix yogurt - it makes him crazy.

>

> Should I start him on enzymes? I hate to put him on a restrictive

> diet since he will barely eat anyway. He is a smart, sweet and

really

> cute kid. Everyone likes him, but he can be a real pain.

>

> Oh yeah. If I could change only one thing, it would be his sleeping

> patterns. He has been on melatonin with no results and Clonidine

> (which made him like a zombie the next day). It seems like he

> physically cannot sleep all night and has terrible nightmares.

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Guest guest

Toni, Your little guy sounds a lot like mine. Mine is 7 now. He has a lot of

sensory issues. He started school and did not succeed . A special ed teacher

gave me a book on special diets. I thought his biggest problem was ADHD so I

thought it was worth a shot. So I tried it. He had never had any reactions to

anything as far as I could tell. Well the difference is incredible. He can

actually sit still. But the thing that was like your little guy is this . My

son told me for years that he had a nightmare everynight. He was alwys

climbing in bed with me. I thought he was exagerating. Well shortly after he

started the gfcf diet he said " I don't have nightmares anymore " Totall

unpromted. We weren't discussing it and I didn't ask a question. So it might

be worth a shot to try that or the enzymes. We are just starting the enzymes

now to help with things I haven't figured out are a problem yet. Anyway good

luck. Donna C

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