Update on my craniosynostosis paranoia

March 27, 2001

Judy,

I think it would be a good idea to get the final say from the specialist. I

can understand about not wanting to put total trust in a ped that didn't pick

up the ball and run from the very start!!!

Marci (Mom to )

Oklahoma

March 27, 2001

Good idea. That's exactly what I did.

Good luck.

Amy (Max's mom)

March 27, 2001

Thanks to everyone who responded to me via posts and email.

I took Genna in to see her ped again today and asked him if he was

100% certain she didn't have fused sutures and he said yes, he is.

He said one of two things would happen if that were the case: either

her head would not follow the growth chart properly, or if it did

follow the growth chart in circumference, it would be much more

distorted than it is.

I thought this would put my mind at ease but it really didn't!

Mainly because I don't totally trust this ped anymore since he

dropped the ball to begin with. I think maybe I will make another

appointment with the pediatric neurosurgeon and if he tells me he is

100% certain then I'll get on with life.

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