Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Does Lyme have the MS 'Hug'?   Live simply, Love generously Care deeply ,Speak kindly, Leave the rest to God /Wspy -- [low dose naltrexone] LDN for Lyme say what? Hi Everyone,You may not know my whole story, but in short I had read where a few Neuro's in the U.S were having their MS patients retested via MRI's. I read on to find out that they were testing them for Lyme. Then I found out that Lyme looks identical to MS on a MRI, and it also has the exact same symptoms. A year later I was tested and found out that I indeed did have Lyme. Being in Canada I knew that my Neuros wouldn't be able to tell the difference, and I was right.During that time I started the LDN. I also was not received too well because when I went up to 4.5 I started getting this awful depression and mood swings. I asked about this, and was constantly told Oh its not the LDN, Ldn doesn't do that and so on. Then I looked into Dr. McCandless(sp?) autism sight because the children were suppose to have mood issues. Then I read where LDN can bring on latent viruses, such as herpes, and Lyme. Well guess what? I got Lyme or had it emerge. The mood swings I was having was due to the Lyme.Now I have since gone back on the LDN, because I always felt that it could help me in my fight against Lyme. Turns out I was right. I hope this journey will end soon because I am tired. I found out people don't like to be told they may have Lyme and I thought I was doing something good. I was the last person on earth who ever expected this. I mean I knew MS inside and out and now I have to learn about Lyme..... joking. I just hope and pray others can learn from this.Heres the article.<snip <snip Here is an excerpt from a book in which it mentions LDN in helping treat Lyme. I knew it!<snip In chapter 4, we discussed the fact that Lyme and the TBDs may cause the body's immune system to lose its ability to regulate itself, thereby increasing the chances of an "autoimmune-like" reaction. When this happens, the result is chronic inflammation caused by the immune system itself. The solution to this problem would include getting rid of the infection and improving the regulatory ability of the immune system. An often-effective approach for regulating the autoimmune dysfunction associated with Lyme and other TBDs is to increase your body's ability to produce endorphins. Endorphins are chemicals manufactured by your body that act as natural painkillers. Endorphins are also associated with improved mood and enhanced feelings of well-being. An additional function of endorphins is regulation of the immune system. In fact, many of the white blood cells of the body contain receptors on their surfaces for endorphins. Therapies, therefore, that help to improve and normalize endorphins are among the most promising and exciting of all immune regulation, inflammation management, and pain control modalities. Three of the most effective therapies in this category are acupuncture, bodywork and massage, and low dose naltrexone (LDN) therapy. I have already discussed the first two modalities. Now I would like to discuss LDN, which has excellent potential to help a dysfunctional immune system to learn to regulate itself again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Dearest , I am sorry if you felt your difficulties with LDN were not well received and little help came through for you from the chat site. I typically send out the "welcome e-mail" which spells out that one should double check for Lymes do to this very problem (mimicking MS). Also, when someone has problems and LDN does not seem to be helping them, I send out a "trouble shooting guide" which lists many possibilities including testing for lyme. I am sorry if I did not send you those as I try to get those to everyone that has problems. I am glad you found your way and that you are doing better It is good to have you back. Aletha [low dose naltrexone] LDN for Lyme say what? Hi Everyone,You may not know my whole story, but in short I had read where a few Neuro's in the U.S were having their MS patients retested via MRI's. I read on to find out that they were testing them for Lyme. Then I found out that Lyme looks identical to MS on a MRI, and it also has the exact same symptoms. A year later I was tested and found out that I indeed did have Lyme. Being in Canada I knew that my Neuros wouldn't be able to tell the difference, and I was right.During that time I started the LDN. I also was not received too well because when I went up to 4.5 I started getting this awful depression and mood swings. I asked about this, and was constantly told Oh its not the LDN, Ldn doesn't do that and so on. Then I looked into Dr. McCandless(sp?) autism sight because the children were suppose to have mood issues. Then I read where LDN can bring on latent viruses, such as herpes, and Lyme. Well guess what? I got Lyme or had it emerge. The mood swings I was having was due to the Lyme.Now I have since gone back on the LDN, because I always felt that it could help me in my fight against Lyme. Turns out I was right. I hope this journey will end soon because I am tired. I found out people don't like to be told they may have Lyme and I thought I was doing something good. I was the last person on earth who ever expected this. I mean I knew MS inside and out and now I have to learn about Lyme..... joking. I just hope and pray others can learn from this.Heres the article.<snip <snip Here is an excerpt from a book in which it mentions LDN in helping treat Lyme. I knew it!<snip In chapter 4, we discussed the fact that Lyme and the TBDs may cause the body's immune system to lose its ability to regulate itself, thereby increasing the chances of an "autoimmune-like" reaction. When this happens, the result is chronic inflammation caused by the immune system itself. The solution to this problem would include getting rid of the infection and improving the regulatory ability of the immune system. An often-effective approach for regulating the autoimmune dysfunction associated with Lyme and other TBDs is to increase your body's ability to produce endorphins. Endorphins are chemicals manufactured by your body that act as natural painkillers. Endorphins are also associated with improved mood and enhanced feelings of well-being. An additional function of endorphins is regulation of the immune system. In fact, many of the white blood cells of the body contain receptors on their surfaces for endorphins. Therapies, therefore, that help to improve and normalize endorphins are among the most promising and exciting of all immune regulation, inflammation management, and pain control modalities. Three of the most effective therapies in this category are acupuncture, bodywork and massage, and low dose naltrexone (LDN) therapy. I have already discussed the first two modalities. Now I would like to discuss LDN, which has excellent potential to help a dysfunctional immune system to learn to regulate itself again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Lyme mimics MS in symptoms, including the girdling feeling around waist often called the MS hug. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Is there an article showing that?   Live simply, Love generously Care deeply ,Speak kindly, Leave the rest to God /Wspy -- [low dose naltrexone] Re: LDN for Lyme say what? Lyme mimics MS in symptoms, including the girdling feeling around waist often called the MS hug. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 , What is your source for this article / book ? I'm surprised that there is anything published about LDN as a therapy. --??-- This will be helpful for folks to show their doctors trying to learn about LDN. Thanks... Jann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 , There was one person from this forum that didn't give up on you and she helped to encourage you over and over to get tested for lyme by IGeneX. looked at every angle of why you were not responding well to LDN from candida yeast, gluten intolerance to lyme if I recall and had to press you hard to get you to get tested for lyme so you did get support from this group, just not from everyone. Doctor McCandless was just finding out that LDN could bring latent viruses to the forefront, so most of us on this forum were not aware of this but was aware because she was a member of Dr. McCandless's forum. Remember how much heckling would take on this forum for suggesting someone get tested for lyme disease, candida yeast and so on when LDN was not doing well for someone? Now with Dr. McCandless' completed clinical trial using LDN and through that doctor's work we see 's suggestions were not off the wall at all. Remember, some people, like me, read very little of what is on this board. If I see 's name (and a few other's), I'll take the time to read it. Marcie > > Hi Everyone, > > You may not know my whole story, but in short I had read where a few > Neuro's in the U.S were having their MS patients retested via MRI's. > I read on to find out that they were testing them for Lyme. Then I > found out that Lyme looks identical to MS on a MRI, and it also has > the exact same symptoms. A year later I was tested and found out > that I indeed did have Lyme. Being in Canada I knew that my Neuros > wouldn't be able to tell the difference, and I was right. > > During that time I started the LDN. I also was not received too well > because when I went up to 4.5 I started getting this awful depression > and mood swings. I asked about this, and was constantly told Oh its > not the LDN, Ldn doesn't do that and so on. Then I looked into Dr. > McCandless(sp?) autism sight because the children were suppose to > have mood issues. Then I read where LDN can bring on latent viruses, > such as herpes, and Lyme. Well guess what? I got Lyme or had it > emerge. The mood swings I was having was due to the Lyme. > > Now I have since gone back on the LDN, because I always felt that it > could help me in my fight against Lyme. Turns out I was right. I > hope this journey will end soon because I am tired. I found out > people don't like to be told they may have Lyme and I thought I was > doing something good. I was the last person on earth who ever > expected this. I mean I knew MS inside and out and now I have to > learn about Lyme..... joking. I just hope and pray others can learn > from this. > > Heres the article. > > <snip > > > <snip > Here is an excerpt from a book in which it mentions LDN in helping > treat Lyme. I knew it! > > <snip > > In chapter 4, we discussed the fact that Lyme and the TBDs may cause > the body's immune system to lose its ability to regulate itself, > thereby increasing the chances of an " autoimmune-like " reaction. When > this happens, the result is chronic inflammation caused by the immune > system itself. The solution to this problem would include getting rid > of the infection and improving the regulatory ability of the immune > system. > > An often-effective approach for regulating the autoimmune dysfunction > associated with Lyme and other TBDs is to increase your body's > ability to produce endorphins. Endorphins are chemicals manufactured > by your body that act as natural painkillers. Endorphins are also > associated with improved mood and enhanced feelings of well-being. An > additional function of endorphins is regulation of the immune system. > In fact, many of the white blood cells of the body contain receptors > on their surfaces for endorphins. > > Therapies, therefore, that help to improve and normalize endorphins > are among the most promising and exciting of all immune regulation, > inflammation management, and pain control modalities. Three of the > most effective therapies in this category are acupuncture, bodywork > and massage, and low dose naltrexone (LDN) therapy. I have already > discussed the first two modalities. Now I would like to discuss LDN, > which has excellent potential to help a dysfunctional immune system > to learn to regulate itself again. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 It can. It has given me 2 bouts of ON, neuropathy pain, numbness, depression, cognitive problems, ataxic gait, ataxic like speech, burning, tingling etc... > > > Does Lyme have the MS 'Hug'? >   > > Live simply, Love generously > Care deeply ,Speak kindly, > Leave the rest to God > > /Wspy > > -- [low dose naltrexone] LDN for Lyme say what? > > Hi Everyone, > > You may not know my whole story, but in short I had read where a few > Neuro's in the U.S were having their MS patients retested via MRI's. > I read on to find out that they were testing them for Lyme. Then I > found out that Lyme looks identical to MS on a MRI, and it also has > the exact same symptoms. A year later I was tested and found out > that I indeed did have Lyme. Being in Canada I knew that my Neuros > wouldn't be able to tell the difference, and I was right. > > During that time I started the LDN. I also was not received too well > because when I went up to 4.5 I started getting this awful depression > and mood swings. I asked about this, and was constantly told Oh its > not the LDN, Ldn doesn't do that and so on. Then I looked into Dr. > McCandless(sp?) autism sight because the children were suppose to > have mood issues. Then I read where LDN can bring on latent viruses, > such as herpes, and Lyme. Well guess what? I got Lyme or had it > emerge. The mood swings I was having was due to the Lyme. > > Now I have since gone back on the LDN, because I always felt that it > could help me in my fight against Lyme. Turns out I was right. I > hope this journey will end soon because I am tired. I found out > people don't like to be told they may have Lyme and I thought I was > doing something good. I was the last person on earth who ever > expected this. I mean I knew MS inside and out and now I have to > learn about Lyme..... joking. I just hope and pray others can learn > from this. > > Heres the article. > > <snip > > <snip > Here is an excerpt from a book in which it mentions LDN in helping > treat Lyme. I knew it! > > <snip > > In chapter 4, we discussed the fact that Lyme and the TBDs may cause > the body's immune system to lose its ability to regulate itself, > thereby increasing the chances of an " autoimmune-like " reaction. When > this happens, the result is chronic inflammation caused by the immune > system itself. The solution to this problem would include getting rid > of the infection and improving the regulatory ability of the immune > system. > > An often-effective approach for regulating the autoimmune dysfunction > associated with Lyme and other TBDs is to increase your body's > ability to produce endorphins. Endorphins are chemicals manufactured > by your body that act as natural painkillers. Endorphins are also > associated with improved mood and enhanced feelings of well-being. An > additional function of endorphins is regulation of the immune system. > In fact, many of the white blood cells of the body contain receptors > on their surfaces for endorphins. > > Therapies, therefore, that help to improve and normalize endorphins > are among the most promising and exciting of all immune regulation, > inflammation management, and pain control modalities. Three of the > most effective therapies in this category are acupuncture, bodywork > and massage, and low dose naltrexone (LDN) therapy. I have already > discussed the first two modalities. Now I would like to discuss LDN, > which has excellent potential to help a dysfunctional immune system > to learn to regulate itself again. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 It can. It has given me 2 bouts of ON, neuropathy pain, numbness, depression, cognitive problems, ataxic gait, ataxic like speech, burning, tingling etc... > > > Does Lyme have the MS 'Hug'? >   > > Live simply, Love generously > Care deeply ,Speak kindly, > Leave the rest to God > > /Wspy > > -- [low dose naltrexone] LDN for Lyme say what? > > Hi Everyone, > > You may not know my whole story, but in short I had read where a few > Neuro's in the U.S were having their MS patients retested via MRI's. > I read on to find out that they were testing them for Lyme. Then I > found out that Lyme looks identical to MS on a MRI, and it also has > the exact same symptoms. A year later I was tested and found out > that I indeed did have Lyme. Being in Canada I knew that my Neuros > wouldn't be able to tell the difference, and I was right. > > During that time I started the LDN. I also was not received too well > because when I went up to 4.5 I started getting this awful depression > and mood swings. I asked about this, and was constantly told Oh its > not the LDN, Ldn doesn't do that and so on. Then I looked into Dr. > McCandless(sp?) autism sight because the children were suppose to > have mood issues. Then I read where LDN can bring on latent viruses, > such as herpes, and Lyme. Well guess what? I got Lyme or had it > emerge. The mood swings I was having was due to the Lyme. > > Now I have since gone back on the LDN, because I always felt that it > could help me in my fight against Lyme. Turns out I was right. I > hope this journey will end soon because I am tired. I found out > people don't like to be told they may have Lyme and I thought I was > doing something good. I was the last person on earth who ever > expected this. I mean I knew MS inside and out and now I have to > learn about Lyme..... joking. I just hope and pray others can learn > from this. > > Heres the article. > > <snip > > <snip > Here is an excerpt from a book in which it mentions LDN in helping > treat Lyme. I knew it! > > <snip > > In chapter 4, we discussed the fact that Lyme and the TBDs may cause > the body's immune system to lose its ability to regulate itself, > thereby increasing the chances of an " autoimmune-like " reaction. When > this happens, the result is chronic inflammation caused by the immune > system itself. The solution to this problem would include getting rid > of the infection and improving the regulatory ability of the immune > system. > > An often-effective approach for regulating the autoimmune dysfunction > associated with Lyme and other TBDs is to increase your body's > ability to produce endorphins. Endorphins are chemicals manufactured > by your body that act as natural painkillers. Endorphins are also > associated with improved mood and enhanced feelings of well-being. An > additional function of endorphins is regulation of the immune system. > In fact, many of the white blood cells of the body contain receptors > on their surfaces for endorphins. > > Therapies, therefore, that help to improve and normalize endorphins > are among the most promising and exciting of all immune regulation, > inflammation management, and pain control modalities. Three of the > most effective therapies in this category are acupuncture, bodywork > and massage, and low dose naltrexone (LDN) therapy. I have already > discussed the first two modalities. Now I would like to discuss LDN, > which has excellent potential to help a dysfunctional immune system > to learn to regulate itself again. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 Hi Jann, The article was out of a book which can be found here http://www.lymebook.com:80/lyme-disease-solution I was very suprssed to read it also. I figured in my mind the LDN would help me to win this fight with the help of my own resources. I had asked Dr. Glick but he said it wouldn't treat Lyme. Hopefully he is reading this. Take Care : > > , > > What is your source for this article / book ? I'm surprised that > there is anything published about LDN as a therapy. --??-- This will > be helpful for folks to show their doctors trying to learn about LDN. > > Thanks... > Jann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 Hi Marcie, Yes I am very aware of 's help, and I thanked her, and she was suppose to use my story at one of conventions. I remember saying to her she may have to tweak it re: spelling and grammer. I was talking in general of the reception I got when I initually said I was having depression and mood swings. Many said that was not possible. I'm not saying this with malice in fact far from it I set out to learn what was causing my symptoms and why. I did that so that others could benefit. I've always liked to help people Take Care > > , > > There was one person from this forum that didn't give up on you and > she helped to encourage you over and over to get tested for lyme by > IGeneX. looked at every angle of why you were not responding > well to LDN from candida yeast, gluten intolerance to lyme if I > recall and had to press you hard to get you to get tested for > lyme so you did get support from this group, just not from > everyone. Doctor McCandless was just finding out that LDN could > bring latent viruses to the forefront, so most of us on this forum > were not aware of this but was aware because she was a member > of Dr. McCandless's forum. Remember how much heckling would > take on this forum for suggesting someone get tested for lyme > disease, candida yeast and so on when LDN was not doing well for > someone? Now with Dr. McCandless' completed clinical trial using > LDN and through that doctor's work we see 's suggestions were > not off the wall at all. > > Remember, some people, like me, read very little of what is on this > board. If I see 's name (and a few other's), I'll take the > time to read it. > > Marcie > > > > > > Hi Everyone, > > > > You may not know my whole story, but in short I had read where a > few > > Neuro's in the U.S were having their MS patients retested via > MRI's. > > I read on to find out that they were testing them for Lyme. Then > I > > found out that Lyme looks identical to MS on a MRI, and it also > has > > the exact same symptoms. A year later I was tested and found out > > that I indeed did have Lyme. Being in Canada I knew that my > Neuros > > wouldn't be able to tell the difference, and I was right. > > > > During that time I started the LDN. I also was not received too > well > > because when I went up to 4.5 I started getting this awful > depression > > and mood swings. I asked about this, and was constantly told Oh > its > > not the LDN, Ldn doesn't do that and so on. Then I looked into > Dr. > > McCandless(sp?) autism sight because the children were suppose to > > have mood issues. Then I read where LDN can bring on latent > viruses, > > such as herpes, and Lyme. Well guess what? I got Lyme or had it > > emerge. The mood swings I was having was due to the Lyme. > > > > Now I have since gone back on the LDN, because I always felt that > it > > could help me in my fight against Lyme. Turns out I was right. I > > hope this journey will end soon because I am tired. I found out > > people don't like to be told they may have Lyme and I thought I > was > > doing something good. I was the last person on earth who ever > > expected this. I mean I knew MS inside and out and now I have to > > learn about Lyme..... joking. I just hope and pray others can > learn > > from this. > > > > Heres the article. > > > > <snip > > > > > > <snip > > Here is an excerpt from a book in which it mentions LDN in helping > > treat Lyme. I knew it! > > > > <snip > > > > In chapter 4, we discussed the fact that Lyme and the TBDs may > cause > > the body's immune system to lose its ability to regulate itself, > > thereby increasing the chances of an " autoimmune-like " reaction. > When > > this happens, the result is chronic inflammation caused by the > immune > > system itself. The solution to this problem would include getting > rid > > of the infection and improving the regulatory ability of the > immune > > system. > > > > An often-effective approach for regulating the autoimmune > dysfunction > > associated with Lyme and other TBDs is to increase your body's > > ability to produce endorphins. Endorphins are chemicals > manufactured > > by your body that act as natural painkillers. Endorphins are also > > associated with improved mood and enhanced feelings of well- being. > An > > additional function of endorphins is regulation of the immune > system. > > In fact, many of the white blood cells of the body contain > receptors > > on their surfaces for endorphins. > > > > Therapies, therefore, that help to improve and normalize > endorphins > > are among the most promising and exciting of all immune > regulation, > > inflammation management, and pain control modalities. Three of the > > most effective therapies in this category are acupuncture, > bodywork > > and massage, and low dose naltrexone (LDN) therapy. I have already > > discussed the first two modalities. Now I would like to discuss > LDN, > > which has excellent potential to help a dysfunctional immune > system > > to learn to regulate itself again. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 Hi Benda, I have found out that Cat scratch and Bartonella are the same. Just different modes of infection. One is by a tick bite and the other a cat scratch. Theres even talk now that dogs can pass it on. This is the coinfection I got a 2years ago that I was questioning you about. Did you go on antibiotics right away? If not you should get tested again for Lyme and the coinfections namely Bartonella (cat scartch) Your MS may not be MS. Take Care > > > Lyme mimics MS in > symptoms, including the > girdling feeling around > waist often called the > MS hug. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 I was originally dx with probable MS, but my neurologist could not back up his dx with any tests. I joined the LDN group and that is when a few people suggested I look at Lyme Disease. It took three tests and about 5 months of treatment for LD to finally have a positive test from Igenex. I would love to hear more about treatment of LD with LDN. I went on line and ordered the book The Lyme Disease Solution by Singleton. If you know of any more information or you are using LDN as part of your Lyme protocol I would love to hear from you. I will talk to my Lyme Literate Medical Doctor at my next appointment about LDN. Kind regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 Yes , I did use your story as well as someone else diagnosed MS but they actually had lyme. I'll say that Dr. McCandless really opened our eyes with her trial of LDN and taught us a few things that have allowed me and others here to help people better than before. So few people had reported severe moodswings upon starting LDN when you started it , that it took some major digging to find a possible explanation and I'm glad you are now on the right track. Yep Marcie, if I had not been reading the LDN/Autism forum and conversing with Dr. McC. I would have been brushing 's complaints off as not a problem too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 well, I've heard actually more the opposite, the overdiagnosis of lyme in people with other disorders, specially through testing from "specialized" labs that have been investigated by different health department agencies. Hope this forum, doesn't become a let's convince everybody has lyme forum which apparently has become the new scientology. Please, keep the rules of the forum on LDN in terms of treatment (sure including lyme) but no about all the possible diagnosis and trying to convince people one way or the other.Bren <b63powell@...> wrote: Yes , I did use your story as well as someone else diagnosed MS but they actually had lyme. I'll say that Dr. McCandless really opened our eyes with her trial of LDN and taught us a few things that have allowed me and others here to help people better than before. So few people had reported severe moodswings upon starting LDN when you started it , that it took some major digging to find a possible explanation and I'm glad you are now on the right track. Yep Marcie, if I had not been reading the LDN/Autism forum and conversing with Dr. McC. I would have been brushing 's complaints off as not a problem too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 > > Hi Benda, > > I have found out that Cat scratch and Bartonella are the same. Just > different modes of infection. One is by a tick bite and the other a > cat scratch. Theres even talk now that dogs can pass it on. This is > the coinfection I got a 2years ago that I was questioning you about. > Did you go on antibiotics right away? If not you should get tested > again for Lyme and the coinfections namely Bartonella (cat scartch) > Your MS may not be MS. > > Take Care > ============= I keep getting re-tested to see if that cat scratch caused my already immune problems to accelerate. I've had immune system problems since birth. I do know that things got worse after I had the cat scratch fever in 1982 but it got much worse shortly after having an amalgam/mercury dental filling put in in spring of 1989, I was diagnosed chronic progressive MS Dec. 1989. I am also looking back since I was born spastic from head to toe with projectile vomiting caused by spasticity of the esophagus if my dad being bitten by a rabid dog as a child and the shots he took for that could be the reason I was born with immune system problems, his bodily pain complaints and immune system malfunctions are similar to mine and neither of us absorbs potassium or magnesium properly. The cards have been stacked against me from day one of my life but LDN has halted that steady disease progression that's been with me from birth and halted it dead in its tracks for 4 1/2 years now. With taking LDN, it's like a switch to a power source has been turned off, I can actually feel this physically, LDN turned the power switch off to my MS progression and it is a strange feeling and it's quite noticeable. I am also very electrically charged, I have to ground myself at gas stations to keep from igniting an electrical spark or I'm apt to blow the service stations up. When I go grocery shopping blue fire shoots between me and metal, I don't actual have to touch the metal, just getting close to it ignites fire. The joke around my family is that I tend to attract tornadoes, it is quite eerie how they manage to pop up wherever I am and sometimes just out of nowhere, it can be a gorgeous day and all of a sudden turn wicked directly over my head. I feel like the Peanuts cartoon character who walks around with a cloud over his head all the time. Everywhere I have lived over the past 35 years had an increase in tornadoes while I lived there and decreased after I moved away, even my mom teases me about this. I must carry a truck load of negative ions, LOL. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 That is so interesting that you mentioned that, I am also electrically charged. I have also noticed that wristwatches stop working on me all the time, I wonder if that's related? > > I am also very electrically charged, I have to ground myself at gas > stations to keep from igniting an electrical spark or I'm apt to blow > the service stations up. When I go grocery shopping blue fire shoots > between me and metal, I don't actual have to touch the metal, just > getting close to it ignites fire. The joke around my family is that I > tend to attract tornadoes, it is quite eerie how they manage to pop up > wherever I am and sometimes just out of nowhere, it can be a gorgeous > day and all of a sudden turn wicked directly over my head. I feel > like the Peanuts cartoon character who walks around with a cloud over > his head all the time. Everywhere I have lived over the past 35 years > had an increase in tornadoes while I lived there and decreased after I > moved away, even my mom teases me about this. I must carry a truck > load of negative ions, LOL. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 Check Melanocyte stimulating Hormone and VIP (Vasoactive intestinal polyppeptide)- Low levels Cause a build up in electrical static. I have a slide from Ritchie Shoemaker I use as a hand out. Give fax # and i will send it to you. LYMEGYN [low dose naltrexone] Re: LDN for Lyme say what? That is so interesting that you mentioned that, I am also electrically charged. I have also noticed that wristwatches stop working on me all the time, I wonder if that's related?>> I am also very electrically charged, I have to ground myself at gas > stations to keep from igniting an electrical spark or I'm apt to blow > the service stations up. When I go grocery shopping blue fire shoots > between me and metal, I don't actual have to touch the metal, just > getting close to it ignites fire. The joke around my family is that I > tend to attract tornadoes, it is quite eerie how they manage to pop up > wherever I am and sometimes just out of nowhere, it can be a gorgeous > day and all of a sudden turn wicked directly over my head. I feel > like the Peanuts cartoon character who walks around with a cloud over > his head all the time. Everywhere I have lived over the past 35 years > had an increase in tornadoes while I lived there and decreased after I > moved away, even my mom teases me about this. I must carry a truck > load of negative ions, LOL.> > > Internal Virus Database is out-of-date.Checked by AVG Free Edition. Version: 7.5.476 / Virus Database: 269.11.19/956 - Release Date: 8/16/2007 9:48 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 , Were you bitten by a tick --- is that what caused your Lyme's infection ? ...or is there another way to get Lyme's --??-- Jann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 --- Your iron count may be to high.Large amounts of Iron in your body can make you electrical..(everything you touch shocks you.) Have your iron checked. You can wear rubber soled shoes to help. The rubber must be real rubber not a look a like. Skechers soles arent real rubber. Make sure all the shoes you own have good soles, meaning no holes and not torn. In low dose naltrexone , " marlaprendergast " <kws11@...> wrote: > > That is so interesting that you mentioned that, I am also > electrically charged. I have also noticed that wristwatches stop > working on me all the time, I wonder if that's related? > > > > > > I am also very electrically charged, I have to ground myself at > gas > > stations to keep from igniting an electrical spark or I'm apt to > blow > > the service stations up. When I go grocery shopping blue fire > shoots > > between me and metal, I don't actual have to touch the metal, just > > getting close to it ignites fire. The joke around my family is > that I > > tend to attract tornadoes, it is quite eerie how they manage to > pop up > > wherever I am and sometimes just out of nowhere, it can be a > gorgeous > > day and all of a sudden turn wicked directly over my head. I feel > > like the Peanuts cartoon character who walks around with a cloud > over > > his head all the time. Everywhere I have lived over the past 35 > years > > had an increase in tornadoes while I lived there and decreased > after I > > moved away, even my mom teases me about this. I must carry a > truck > > load of negative ions, LOL. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 Well I am anemic so that is not the cause! > > > > > > I am also very electrically charged, I have to ground myself at > > gas > > > stations to keep from igniting an electrical spark or I'm apt to > > blow > > > the service stations up. When I go grocery shopping blue fire > > shoots > > > between me and metal, I don't actual have to touch the metal, > just > > > getting close to it ignites fire. The joke around my family is > > that I > > > tend to attract tornadoes, it is quite eerie how they manage to > > pop up > > > wherever I am and sometimes just out of nowhere, it can be a > > gorgeous > > > day and all of a sudden turn wicked directly over my head. I > feel > > > like the Peanuts cartoon character who walks around with a cloud > > over > > > his head all the time. Everywhere I have lived over the past 35 > > years > > > had an increase in tornadoes while I lived there and decreased > > after I > > > moved away, even my mom teases me about this. I must carry a > > truck > > > load of negative ions, LOL. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 I'm very glad you dug . Thanks again. > Yes , I did use your story as well as someone else diagnosed MS > but they actually had lyme. > > I'll say that Dr. McCandless really opened our eyes with her trial of > LDN and taught us a few things that have allowed me and others here to > help people better than before. So few people had reported severe > moodswings upon starting LDN when you started it , that it took > some major digging to find a possible explanation and I'm glad you are > now on the right track. > > Yep Marcie, if I had not been reading the LDN/Autism forum and > conversing with Dr. McC. > I would have been brushing 's complaints off as not a problem > too. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 Hi Jan, Although I don't remember being bitten, and I didn't have a bullseye rash my LLMD feels I was bitten. Under 30% don't have a bulls eye rash or remember they are bitten. Ticks are the size of a period at the end of a sentence. Plus they inject this numbing stuff before they bite. Its also very hard to find in the blood hence these specialized labs, and even then it doesn't show up. You can also get Lyme passed down by the placenta and some say it can be passed sexually. But I'm not a 100% sure on that one. Biting flys and fleas can also pass it on Take Care > , > > Were you bitten by a tick --- is that what caused your Lyme's > infection ? ...or is there another way to get Lyme's --??-- > > Jann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 Hi , Yes I remember the awful thing you went through! I got an irrequivical Bartonella Canadian test, and thats hard to do in Canada. I think its called irrequivical? Not positive but not negative, it means you have been exposed. Did you know that cat scratch can be chronic? It can cause alot of problems. I'm glad the LDN is working for you! How long did it take for your immune system to get regulated? > I keep getting re-tested to see if that cat scratch caused my already > immune problems to accelerate. I've had immune system problems since > birth. I do know that things got worse after I had the cat scratch > fever in 1982 but it got much worse shortly after having an > amalgam/mercury dental filling put in in spring of 1989, I was > diagnosed chronic progressive MS Dec. 1989. I am also looking back > since I was born spastic from head to toe with projectile vomiting > caused by spasticity of the esophagus if my dad being bitten by a > rabid dog as a child and the shots he took for that could be the > reason I was born with immune system problems, his bodily pain > complaints and immune system malfunctions are similar to mine and > neither of us absorbs potassium or magnesium properly. The cards have > been stacked against me from day one of my life but LDN has halted > that steady disease progression that's been with me from birth and > halted it dead in its tracks for 4 1/2 years now. With taking LDN, > it's like a switch to a power source has been turned off, I can > actually feel this physically, LDN turned the power switch off to my > MS progression and it is a strange feeling and it's quite noticeable. > I am also very electrically charged, I have to ground myself at gas > stations to keep from igniting an electrical spark or I'm apt to blow > the service stations up. When I go grocery shopping blue fire shoots > between me and metal, I don't actual have to touch the metal, just > getting close to it ignites fire. The joke around my family is that I > tend to attract tornadoes, it is quite eerie how they manage to pop up > wherever I am and sometimes just out of nowhere, it can be a gorgeous > day and all of a sudden turn wicked directly over my head. I feel > like the Peanuts cartoon character who walks around with a cloud over > his head all the time. Everywhere I have lived over the past 35 years > had an increase in tornadoes while I lived there and decreased after I > moved away, even my mom teases me about this. I must carry a truck > load of negative ions, LOL. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 You can believe whatever you want. All I know is I am getting better while on antibiotics. These labs have passed inspection numerous times. I'm not trying to convince anybody of anything. Just stating the facts. What they want to do with it is up to them. I just hate to see lives wasted that didn't have to be. Its weird that you can use my story for people experiencing problems with LDN, and probably use this one in its good for Lyme, but we can't discuss it? This is how people learn to say forget it, and stop taking it when they could have benefitted by it. > well, I've heard actually more the opposite, the overdiagnosis of lyme in people with other disorders, specially through testing from " specialized " labs that have been investigated by different health department agencies. Hope this forum, doesn't become a let's convince everybody has lyme forum which apparently has become the new scientology. Please, keep the rules of the forum on LDN in terms of treatment (sure including lyme) but no about all the possible diagnosis and trying to convince people one way or the other. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 Hi , I was going to say I would post anymore info I got here but..... > I was originally dx with probable MS, but my neurologist could not back up > his dx with any tests. I joined the LDN group and that is when a few people > suggested I look at Lyme Disease. It took three tests and about 5 months of > treatment for LD to finally have a positive test from Igenex. I would love > to hear more about treatment of LD with LDN. I went on line and ordered the > book The Lyme Disease Solution by Singleton. If you know of any more > information or you are using LDN as part of your Lyme protocol I would love > to hear from you. I will talk to my Lyme Literate Medical Doctor at my next > appointment about LDN. > > > > Kind regards, > > > > > Quote Link to comment Share on other sites More sharing options...
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