Re: Sulfer problem?- Andy, please.

January 3, 2007

Not Andy here. How many mercury amalgam dental fillings does your son have?

You can NOT safely chelate anyone if they have ANY mercury amalgam dental

fillings. Did the TD-DMSA have glutathione in it? Some react very poorly to

glutathione. Consider oral ALA using Andy's protocol, providing your son has NO

mercury amalgam dental fillings. What supplements were you using? What was

your yeast protocol?

S S

I have two kids on the spectrum. A four year old girl and seven

year old boy. November '05 we did a round of TD-DMSA over a

weekend. By the following friday my son's speech became slurry, he

became very sick and weak, developed pneumonia and remained sick all

winter. At the end of December he developed big sore bumps on his

tongue and it hurt really badly for him to eat. This was a problem

on and off through February. Overall we lost a lot of ground. We

did every four hours, but I think the dosage was higher than what

you recommended. We haven't chelated either child since out of fear

of doing harm. My kids are high functioning as long as they remain

on an amino acids based elemental diet, but really sick- severe food

allergy and multiple food protein intolerance, reflux, slow

motility, fragile kids. We just had those porphyrin tests from

France ran and their toxicity showed extremely high. -The highest I

have seen and our DAN! doc agreed they were in the top 10% he'd seen

as well. Not sure if those tests are worth a darn, but our only

hope of getting our kids better seems to be to detoxify. We've

simply done everything else. We are repeating a packed red blood

cell analysis in 6 weeks and then want to start chelation again, but

are very confused with what method to use. We do suspect that my

son has a sulfer problem. Could you please explain to me what this

would mean for how to go about chelation?

We also know his neutrophils were low going into chelation so I am

trying some of the things mentioned in the files section here to

boost those as well.

Thanks,

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January 3, 2007

, Thanks for your response. My son has no amalgam fillings.

He had a couple of teeth filled his second year of life but that

white composite was used. The TD-DMSA did have glutathione. We

applied the glutathione first, I think, then the DMSA on top of it.

I love the idea of just using oral ALA but my concerns with it are

yeast and also moving mercury around. I have always heard it is

safer to use something else first. I am worried about

redistributing the mercury in the brain. Is this a concern?

Summer '05 my kids did Nystatin for about three months then Diflucan

the month of August. We then just did probiotics. We've always

rotated Culturelle, Klaire's and I think all last winter we used

that HLC Mindlinx. Should we be making sure to stay on prescription

anti-fungals when we chelate since yeast is such a problem? It

could just simply be that the dosage was too high. I think I should

just call the pharmacy and ask them what the dosage was so I know

for next time.

Thanks,

>

> I have two kids on the spectrum. A four year old

girl and seven

> year old boy. November '05 we did a round of TD-DMSA over a

> weekend. By the following friday my son's speech became slurry,

he

> became very sick and weak, developed pneumonia and remained sick

all

> winter. At the end of December he developed big sore bumps on his

> tongue and it hurt really badly for him to eat. This was a

problem

> on and off through February. Overall we lost a lot of ground. We

> did every four hours, but I think the dosage was higher than what

> you recommended. We haven't chelated either child since out of

fear

> of doing harm. My kids are high functioning as long as they

remain

> on an amino acids based elemental diet, but really sick- severe

food

> allergy and multiple food protein intolerance, reflux, slow

> motility, fragile kids. We just had those porphyrin tests from

> France ran and their toxicity showed extremely high. -The highest

I

> have seen and our DAN! doc agreed they were in the top 10% he'd

seen

> as well. Not sure if those tests are worth a darn, but our only

> hope of getting our kids better seems to be to detoxify. We've

> simply done everything else. We are repeating a packed red blood

> cell analysis in 6 weeks and then want to start chelation again,

but

> are very confused with what method to use. We do suspect that my

> son has a sulfer problem. Could you please explain to me what

this

> would mean for how to go about chelation?

> We also know his neutrophils were low going into chelation so I am

> trying some of the things mentioned in the files section here to

> boost those as well.

>

> Thanks,

>

>

> </div>

>

>

>

>

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January 3, 2007

,

I'm sorry I have no knowledge when it comes to possible sulfur

problems, but I do know that in general the most toxic people

require the most gentle approach. Very low doses to start with. It

is unlikely that a DAN would have prescribed a very low dose.

In my experience and in my reading, ALA doesn't cause worse yeast

than DMSA for most people. Andy only cautions against using ALA if

you've had recent mercury exposure, but it doesn't sound like your

kids fit that description.

Some people never use the Rx antifungals and do just fine. This

decision would likely have to be made through trial and hopefully not

too much error. Yeast is very much a long term thing for many of our

kids and that is why some of us hesitate to rely too much on the

Rx's. Andy cautions against rotating the antifungals quickly,

regardless of which kind you choose.

If you want Andy to respond to a post, sometimes it helps to send him

the post number privately.

Best wishes,

Anita

> >

> > I have two kids on the spectrum. A four year old

> girl and seven

> > year old boy. November '05 we did a round of TD-DMSA over a

> > weekend. By the following friday my son's speech became slurry,

> he

> > became very sick and weak, developed pneumonia and remained sick

> all

> > winter. At the end of December he developed big sore bumps on

his

>

> > tongue and it hurt really badly for him to eat. This was a

> problem

> > on and off through February. Overall we lost a lot of ground.

We

>

> > did every four hours, but I think the dosage was higher than what

>

> > you recommended. We haven't chelated either child since out of

> fear

> > of doing harm. My kids are high functioning as long as they

> remain

> > on an amino acids based elemental diet, but really sick- severe

> food

> > allergy and multiple food protein intolerance, reflux, slow

> > motility, fragile kids. We just had those porphyrin tests from

>

> > France ran and their toxicity showed extremely high. -The

highest

> I

> > have seen and our DAN! doc agreed they were in the top 10% he'd

> seen

> > as well. Not sure if those tests are worth a darn, but our only

>

> > hope of getting our kids better seems to be to detoxify. We've

>

> > simply done everything else. We are repeating a packed red blood

>

> > cell analysis in 6 weeks and then want to start chelation again,

> but

> > are very confused with what method to use. We do suspect that my

>

> > son has a sulfer problem. Could you please explain to me what

> this

> > would mean for how to go about chelation?

> > We also know his neutrophils were low going into chelation so I

am

>

> > trying some of the things mentioned in the files section here to

>

> > boost those as well.

> >

> > Thanks,

> >

> >

> > </div>

> >

> >

> >

> >

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> >

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January 5, 2007

Comments interspersed.

S S

, Thanks for your response. My son has no amalgam

fillings.

He had a couple of teeth filled his second year of life but that

white composite was used. The TD-DMSA did have glutathione. We

applied the glutathione first, I think, then the DMSA on top of it.

*Consider trying it without the glutathione or just use oral DMSA.

I love the idea of just using oral ALA but my concerns with it are

yeast and also moving mercury around. I have always heard it is

safer to use something else first.

*Depends on when his most recent new exposure to mercury occurred. If it was in

the last 4 months, then you should wait to use ALA, if not, it's fine to start

with ALA now. Some people use only ALA.

I am worried about

redistributing the mercury in the brain. Is this a concern?

Only if you use improper dose and/or dosing schedule. If you use Andy's

protocol that's not a concern.

Summer '05 my kids did Nystatin for about three months then Diflucan

the month of August. We then just did probiotics. We've always

rotated Culturelle, Klaire's and I think all last winter we used

that HLC Mindlinx. Should we be making sure to stay on prescription

anti-fungals when we chelate since yeast is such a problem?

*What's his diet like? Is he eating lots of what feeds yeast?

It

could just simply be that the dosage was too high. I think I should

just call the pharmacy and ask them what the dosage was so I know

for next time.

*Good idea.

Thanks,

>

> I have two kids on the spectrum. A four year old

girl and seven

> year old boy. November '05 we did a round of TD-DMSA over a

> weekend. By the following friday my son's speech became slurry,

he

> became very sick and weak, developed pneumonia and remained sick

all

> winter. At the end of December he developed big sore bumps on his

> tongue and it hurt really badly for him to eat. This was a

problem

> on and off through February. Overall we lost a lot of ground. We

> did every four hours, but I think the dosage was higher than what

> you recommended. We haven't chelated either child since out of

fear

> of doing harm. My kids are high functioning as long as they

remain

> on an amino acids based elemental diet, but really sick- severe

food

> allergy and multiple food protein intolerance, reflux, slow

> motility, fragile kids. We just had those porphyrin tests from

> France ran and their toxicity showed extremely high. -The highest

I

> have seen and our DAN! doc agreed they were in the top 10% he'd

seen

> as well. Not sure if those tests are worth a darn, but our only

> hope of getting our kids better seems to be to detoxify. We've

> simply done everything else. We are repeating a packed red blood

> cell analysis in 6 weeks and then want to start chelation again,

but

> are very confused with what method to use. We do suspect that my

> son has a sulfer problem. Could you please explain to me what

this

> would mean for how to go about chelation?

> We also know his neutrophils were low going into chelation so I am

> trying some of the things mentioned in the files section here to

> boost those as well.

>

> Thanks,

>

_______________________________________________

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