Re: New here, with questions.....

[Guest guest]

>

Hi and Welcome!

My son also has torticollis and has been in his DOC band

for three weeks. adjusted to his band very well. He did

sweat alot the first few days but then it got better. Also, we

already see improvement in his head. It makes everything so

worthwhile. I hope everything goes well for you and Isabelle.

& banded 2/23/00

Hi everyone,

>

> My dd Isabelle was diagnosed with Torticollis at 7.0 months. She

has

> mild-moderate plagiocephaly on the left side of her head. The

> difference in measurement is 9 mm which our neurosurgeon felt was

> borderline for a helmet and he left the decision up to us. My dh

and

> I decided to try it as we didn't want to have any outstanding

> questions a year from now on whether it would have made

> improvements. She will be getting it this Thursday. I'm worried

> about adjustment. Can you all let me know how well your children

> adjusted? Did they have problems sleeping? She also tends to have

> very sensitive skin (eczema) and I'm worried about her sweating and

> developing rashes. The helmet she is getting is not a doc band (we

> live in MA and they don't offer them here) but it is open on the

> top. I'm hoping that will help. Thanks in advance for your advice!

[Guest guest]

Matt is wearing a DOC band. He has been for 2 full weeks now and the

PT is impressed with his improvement. They originally said 2-3

months and now it doesn't look like he'll be in it that long!

Granted, he's only 5½ months old, so he'll still be growing fast.

Results will be best seen during or after a growth spurt. Don't get

discouraged if you don't see results as fast as we have. My son was

7 lbs. 15 oz. at birth. Normal, right? He was 16-2 at his 4½ month

checkup and he's near 19 now. We were lucky to catch him in a growth

spurt so we can get these results.

Matt is still sweating a lot (he's much like his Dad), but not as

much as the first couple days. Matt had some chafing behind one ear,

but that was solved with some shaving and softening of the helmet in

that area. He's never had a problem sleeping in it. The biggest

problem we've seen was at his hariline in the back. He was getting

some sort of rash where the band ended. We believe it was merely a

heat rash. It isn't as bad as it was and isn't causing him any

problems anyway!

Keep true to the course and you'll get where you need to be!

Chris

Matt's Dad

[Guest guest]

Hi! My 7 mos old identical twin boys both have moderate-to-severe

eczema. It started when they were 2 mos old. Problem areas for both

are their faces (among a few other areas). (baby boy A) was

diagnosed with torticollis at 4 mos. and plagiocephaly at 5 mos. He

got his STARband on 01/06/01. I, too, was EXTREMELY worried about

what his helmet would do to his eczema. Before his helmet, his scalp

was a real problem. He had bad sebborheic dermatitis (bad cradle cap

that didn't go away) since he was 2 mos old and the spots on his

scalp would weep and weep and weep on a daily basis :-( I thought

for sure that the helmet would exacerbate the situation. I was

THRILLED, however, to see the results. After 1 week in his helmet

(he's had it now over 9 weeks), his scalp cleared up completely! His

twin still has scalp problems, but he doesn't! The only thing we can

figure is that with the helmet, he's not able to scratch his head

(which makes it worse). His scalp has stayed clear ever since.

(We're actually a bit nervous to see what his scalp does when he's

done with the helmet). The helmet, however, has not really affected

the other eczema areas either way - not any worse and not any better -

than before the helmet. He still has rashes on his face and a few

trouble spots on his body.

We were very lucky in that has adjusted soooo well to the

helmet. He actually wigs out a little when you take it off and gets

excited when you bring it to him to put it back on. Sleeps and eats

great with it on. He doesn't seem to sweat too much in it.

Hopefully, you'll have the same luck we did. Good luck!!

Kass and (8/16/00 - STARband 01/06/01)

> Hi everyone,

>

> My dd Isabelle was diagnosed with Torticollis at 7.0 months. She

has

> mild-moderate plagiocephaly on the left side of her head. The

> difference in measurement is 9 mm which our neurosurgeon felt was

> borderline for a helmet and he left the decision up to us. My dh

and

> I decided to try it as we didn't want to have any outstanding

> questions a year from now on whether it would have made

> improvements. She will be getting it this Thursday. I'm worried

> about adjustment. Can you all let me know how well your children

> adjusted? Did they have problems sleeping? She also tends to have

> very sensitive skin (eczema) and I'm worried about her sweating and

> developing rashes. The helmet she is getting is not a doc band (we

> live in MA and they don't offer them here) but it is open on the

> top. I'm hoping that will help. Thanks in advance for your advice!