Re: New here, with questions.....

[Guest guest]

Hi - Boy did you come to the right place for answers - this group is

wonderful. My name is Amy and my son Max is in the STARband since 2/19. You

didn't say how old your daughter is now...7 months? How is the torticollis?

Max doesn't mind his band and has just now stopped pulling it off(well, he

didn't pull it off today but tomorrow is another day) He has always slept

fine with it...never a problem. The sweating stopped a few days after he was

in the band for 23 hours per day. He did get a mild rash on the side of his

face and head and I put Hydracortisone on it and it was gone in an hour. Max

is 11 months old (today). I have not seen any results yet, but I am

anxiously waiting for them. There are so many people here that have had such

wonderful results. You will definately find that the rewards of the

band/helmet, will far outweigh your worries...I am certain that Isabella will

adjust beautifully!

Good luck and great to have you here.

Amy (Max's mom)

[Guest guest]

Hello and welcome!! I'm sorry I didn't catch your name in your post. I'm glad

you found us! Are you getting the STARband or is it a locally made band? It

kind of sounds like it might be the STARband. I will say that never

really had any trouble adjusting to the helmet and it did not disrupt her

sleep patterns (which weren't very good to start with!) However, she does

great sleeping now - no trouble at all! There are some people here whose

children do take a little longer to adjust, but in that case you just take it

slow and build up your time in the band slowly, but surely. As far as the

eczema, we have several moms dealing with that problem and they will be able

to give you some good input in that area.

I am glad that you have joined us and I hope you will find this group to be a

AWESOME source of support. I know they have helped me more than I can say!!

Marci (Mom to )

Oklahoma

[Guest guest]

My daughter was 19 months old when we starte with the DOC band. She didn't

have much problem adjusting to wearing it. A few times she would try to

take it off but we distracted her and she has left it alone for the most

part. She gets mad now when it is off. Hope this helps a little.

Johanna Tatijana's mom 06/26/99 banded 01/29/01

>From: dmellor1@...

>Reply-Plagiocephaly

>Plagiocephaly

>Subject: New here, with questions.....

>Date: Mon, 19 Mar 2001 01:01:02 -0000

>

>Hi everyone,

>

>My dd Isabelle was diagnosed with Torticollis at 7.0 months. She has

>mild-moderate plagiocephaly on the left side of her head. The

>difference in measurement is 9 mm which our neurosurgeon felt was

>borderline for a helmet and he left the decision up to us. My dh and

>I decided to try it as we didn't want to have any outstanding

>questions a year from now on whether it would have made

>improvements. She will be getting it this Thursday. I'm worried

>about adjustment. Can you all let me know how well your children

>adjusted? Did they have problems sleeping? She also tends to have

>very sensitive skin (eczema) and I'm worried about her sweating and

>developing rashes. The helmet she is getting is not a doc band (we

>live in MA and they don't offer them here) but it is open on the

>top. I'm hoping that will help. Thanks in advance for your advice!

>

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