Re: Treatment after 12 months?

[Guest guest]

and Soenke,

Welcome to the group - I am glad that you found us!! I am so happy to hear

that you will be able to get treatment even if it means looking out of the

country! What kind of device are you getting? A helmet or a band? My baby

started in her helmet when she was 9 months old and is now 14 months. We have

seen very good improvement. We have a lot of members who have started at 12

months and later have had good success. I am sure that some of them will

answer your post.

I wish you the best of luck and hope that you will keep us posted!!

Marci (Mom to )

Oklahoma

[Guest guest]

,

Hi, my name is Jill. My son Josh did not get

diagnosed with plagio until he was 18 months old!!

He started DOC Band treatment just after he turned

19 months. He wore it for 4 months and a week. We

got about 70% correction. He was moderate. His ear

placement improved by 1/2 an inch, originally they

were an inch off. So all in all I VERY satisfied with

the results, especially since we started way late. I

still notice it a little in the back, but it is such

an improvement over what it was.

He actually tolerated it very well! I am so proud

of him! He is the kind of kid that hates to have

anything on his head too. But it didn't seem to

bother him.

Hope our story gives you hope! It's not too late!

Jill (Mom to Josh-DOC grad & Jarred, Accord,NY)

--- Beyer <arlette@...>

wrote:

> Dear all,

>

> We are new UK members hoping to start treatment in

> the next month with a German doctor. Our son

> was born with torticollis and plagio, but as

> helmet/band therapy is unavailable in the UK, we

> have only just found out about it via the internet.

> is now 12 months and obviously rather late to

> be starting his treatment. We would be interested to

> hear from anyone who has had late treatment, how the

> child coped with it and the degree of improvement we

> can expect.

>

> We look forward to hearing from you

> and Soenke Beyer

>

__________________________________________________

[Guest guest]

Hi and Soenke,

My daughter Tatijana started her band treatment at 19 months. She is now

almost 21 months and we have seen great improvment. Of the flat spot that

we had there is only a small one left and the side that buldged is no longer

bulging. I am very happy with the improvement that we have had already.

Also more than just her head shape has improved. Her attitude, speech, and

comprehension have improved a lot as well. We saw quite a bit of

improvement within the first week because she had just hit a growth spurt as

she got the band. She did really well with adjusting to the band. I

thought we would have a lot of problems because she hated to wear hats and

she would be able to figure out how to get the band off. At first a few

times she tried to take it off but once we got her interested in something

she left it alone. She didn't have any problems with sleeping with it on

either. Now when I try to take it off her to clean and redecorate she gets

mad at me and wants it right back on.

Well I hope this helps. If you have any further questions I would be happy

to help if I can.

Johanna Tatijana's mom 06/26/99 DOC band since 01/29/01

>From: " Beyer " <arlette@...>

>Reply-Plagiocephaly

><Plagiocephaly >

>Subject: Treatment after 12 months?

>Date: Wed, 21 Mar 2001 20:29:12 -0000

>

>Dear all,

>

>We are new UK members hoping to start treatment in the next month with a

>German doctor. Our son was born with torticollis and plagio, but as

>helmet/band therapy is unavailable in the UK, we have only just found out

>about it via the internet. is now 12 months and obviously rather

>late to be starting his treatment. We would be interested to hear from

>anyone who has had late treatment, how the child coped with it and the

>degree of improvement we can expect.

>

>We look forward to hearing from you

> and Soenke Beyer

_________________________________________________________________

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[Guest guest]

Hi ! Welcome!

My daughter, , started her treatment at 12 month (exactly one week after

her first birthday). She has been in her DOC band for 7 weeks, and our Dr

and Ortho is very happy with the results. She will be in it for a few more

months. I can see a change in her forehead, and a little rounding in the

back. I would love to show you pictures, but unfortunately, we don't have a

scanner and the CD we got back from processing had a defect in it -- so I

can't load any pictures.

did so much better it the band than what I had expected. She hates

hats, so I thought it would be hard for her to get used to. She had no

problem at all as far as keeping it on and she even asks to have it back on

when it's time to clean it!

I hope I have helped!

(Mom to )