Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 > > Hi: > I have some thing to confirm if I'm correct or not, and I'll be > thankfull if someone of you help me with that. > Days ago a friend of mine quit using ldn and he gave me some 1.5mg > capsules. I was using 1 capsule of 3 mg at night so I began taking 2 > capsules of 1.5mg. Some days later I began to feel weak(like the > beginning of a flare) so I had to begin taking 20mgs of prednisone > daily to recover like I was before. > During the use of prednisone I quit LDN because 1 is immunosuppressor > and the other is immunoregulator. I did this until I tapered prednisone > so low that doesnt affect the effect of ldn. > > Is that action correct? > Does the double quantity of filler I was taking, provoke me the > weakness? > > I'll appreciate your answers. > > Guillermo > ============ Sounds to me like you got dud capsules from your friend. The LDN your friend gave wasn't any good, probably not mixed correctly by the pharmacy or could have expired in shelf-life. If your friend stopped taking LDN because it wasn't doing anything for them and then you took the capsules from your friend and you declined, then put 2 and 2 together and that says 1.5mg capsules were not any good. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 I guess it's possible. I'm assuming your taking LDN for MS? I'm thinking more the starting/stopping/starting again LDN then mixing in Prednisone. I think you have to decide what is going to be your main treatment for whatever ails you, then stick with it. LDN or Prednisone, but not both. Also, it's possible your friends LDN has a filler that's different from what you're normally used to? Sharing medications is not good practice, especially prescription grade meds. Art -- > > Hi: > I have some thing to confirm if I'm correct or not, and I'll be > thankfull if someone of you help me with that. > Days ago a friend of mine quit using ldn and he gave me some 1.5mg > capsules. I was using 1 capsule of 3 mg at night so I began taking 2 > capsules of 1.5mg. Some days later I began to feel weak(like the > beginning of a flare) so I had to begin taking 20mgs of prednisone > daily to recover like I was before. > During the use of prednisone I quit LDN because 1 is immunosuppressor > and the other is immunoregulator. I did this until I tapered prednisone > so low that doesnt affect the effect of ldn. > > Is that action correct? > Does the double quantity of filler I was taking, provoke me the > weakness? > > I'll appreciate your answers. > > Guillermo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Dear Guillermo Did your friend get his/her LDN from a different source than you? It kind of sounds like something was wrong with the LDN that your friend stopped taking it and you started to feel weakness. My best Aletha [low dose naltrexone] LDN and prednisone Hi:I have some thing to confirm if I'm correct or not, and I'll be thankfull if someone of you help me with that.Days ago a friend of mine quit using ldn and he gave me some 1.5mg capsules. I was using 1 capsule of 3 mg at night so I began taking 2 capsules of 1.5mg. Some days later I began to feel weak(like the beginning of a flare) so I had to begin taking 20mgs of prednisone daily to recover like I was before.During the use of prednisone I quit LDN because 1 is immunosuppressor and the other is immunoregulator. I did this until I tapered prednisone so low that doesnt affect the effect of ldn.Is that action correct?Does the double quantity of filler I was taking, provoke me the weakness?I'll appreciate your answers.Guillermo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 Hi Folks, It is a good idea to know for yourself what your own prescriptions interact adversely with. Here are 3 different sites that can help you decide if the drugs you are taking are safe to take together. Below I have linked to 4 different sites that can assist you in your search, check them out and see which one meets your needs. With Medscape you type in your Drugs name and it will pop up with the different types of that drug. You then add the right one to the box on right and it will tell you if there are interactions between your meds. http://www.medscape.com/druginfo/druginterchecker?src=google With Health discovery you do basically the same thing. Select your meds and then click check for interactions. This includes many OTC drugs (over the counter) http://health.discovery.com/webapps/drugchecker.do?jspLetter=A Gives specific Herbs and what they interact with, I am sure this is not a complete list but it is a beginning. http://www.med.umich.edu/1libr/aha/umherb01.htm Here is one more that will give you your prescriptions, OTC and herbal reactions. http://www.drugdigest.org/DD/Interaction/ChooseDrugs/1,4109,,00.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2008 Report Share Posted February 29, 2008 The steroids only give you a false sense of well-being. Read what Dr. Lawrence says about steroids. TinyURL for Dr. Lawrence's alternative steroid protocol in link below & #65279; Click on the link below, it will take you to the tinyURL website, then click Proceed to this site and it will take you directly to the post about this protocol on my LDN forum. Ignore the google ads at the top of my forum board. The URL for my board is too long to print in full on so a tinyURL was created to access the information more easily. The TinyURL is safe to click on and I do not get paid because people click on the TinyURL. What do I do if I need steroids, from Dr. Bob Lawrence/alternative supplement protocol to avoid steroid use with LDN. http://preview.tinyurl.com/yo4zhy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2008 Report Share Posted March 2, 2008 YES GUILLERMO - you are soooooo right!!! we are all different; and respond to medications differently! what's good for one, may not be good for the other; and vice versa!! these measures are not set in stone!! we all have the power of choice, and can change what's not working for us!! there is no set rule, IMHO!! marshirisDelicious ideas to please the pickiest eaters. Watch the video on AOL Living. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 Hello , As I have read on this forum before ... Prednisone must be 10mg or lower for LDN to be effective. I am so sorry to hear about your daughter. My daughter also went through some very serious events over the years. But we never gave up and that is my message here for you. It may take switching doctors (we did that several times) .... it can be very discouraging, but I have learned that doctors don't know everything and only through our careful study we ourselves can find solutions. That's what happened we us .. My daughter's gastro doctor never mentioned LDN even though he knew about it!  How old is your doctor and where do you live? I would recc. my daughter's doctor to you if you live near NYC ... He is very wonderful man who listens to you and really wants to help but I don't know where you live. Right now, after taking LDN for 6 months our daughter has improved greatly. She was very sick before but now Thank G-D, she no longer has pain, her BM are normal after 10 years!, she's gained back her weight, and her bloodwork is normal. I feel that the LDN was very very helpful in reestablishing her immune system, rather than suppressing her immune system as 6MP and prednisone, etc do.  If and when you try LDN I strongly suggest the transdermal creme because that is what worked for my daughter - she was unable to assimulate the "by mouth capsule" when her intestines were very ulcerative and inflamed. My daughter also takes digestive enzymes, no gluten, no soy, no egg whote, and no yeast .... We sent her stool away for dialysis that showed that her intestines could not handle these foods(above). I think that you should also consider this, the lab name is ENTEROLAB .... they specialize in Crohns. My daughter also takes Sulfazine 2xday.  I hope that i have helped you. I pray that your daughter feels better soon. and, If you'd like, you can email me privately. If there is any way that I can help you I will. Your daughter will remain in my prayers , a [low dose naltrexone] LDN and Prednisone My daughter is facing surgery if after coming off antibiotics(today) her diarrhea,loss of albumin,and wasting doesn't resolve. She's only on 60 mg of oral Prednisone and sulfasalazine 1000mg 3x's/day. Would like any info or feedback from others that have started LDN in conjunction with steroids. Research says that there is no interaction between LDN and steroids, but would like to hear from others. Also, we are going to try the Makers diet along with Total Parenteral Nutrition. She's not had anything by mouth since 4/15/08 and really looks forward to eating and trying LDN for her refractory Crohn's/UC. Plan your next roadtrip with MapQuest.com: America's #1 Mapping Site. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 > > My daughter is facing surgery if after coming off antibiotics(today) her > diarrhea,loss of albumin,and wasting doesn't resolve. She's only on > 60 mg of oral Prednisone and sulfasalazine 1000mg 3x's/day. Would > like any info or feedback from others that have started LDN in > conjunction with steroids. Research says that there is no interaction > between LDN and steroids, but would like to hear from others. Also, > we are going to try the Makers diet along with Total Parenteral > Nutrition. She's not had anything by mouth since 4/15/08 and really > looks forward to eating and trying LDN for her refractory Crohn's/UC. > > ============= Is she on any high potency probiotics, anti-fungals, anti-virals? During an acute attack one should eat ORGANIC baby foods, steamed organic vegetables, and well-cooked organic brown rice, millet and oatmeal. Steroids fuel yeast overgrowth. Candex is good for candida yeast. Vitamin K is vital. Deficiency is common in those with crohn's. Garlic(Kyolic), 3 capsules daily w/meals combat free radicals in crohn's diease and aids in healing. N-A-G(N-Acetylglucosamine), Duodenal Glandular, L-Glutamine 500mg twice daily, Vit C with bioflavonoids-1000mg 3 times daily prvents inflammation, use a buffered type, Omega 3 essntial fatty acids(Kyolic EPA from Wakunaga Intestamend from Health from the Sun flaxseed oil, primrose oil and salmon oil(needed for repair of the digestive tract, reduces inflammatory processes. Studies show essential fatty acids may reduce Crohn's symptoms and aid in maintaining remission, Liver Extract Injections plus vitamin B complex and B12 an folic acid injections(as prescribed by a physician(see an alternative medicine doctor, Info povided from Prescription for Nutritional Healing by Balch, M.D. and Phyllis Balch C.N.C. 3rd and 4th editions. I couldn't type all of it but I typed what I felt most important. Your daughter should get her LDN from Coastal Compounding in Savannah, GA in the transdermal formulation that Dr. McCandless uses for her autistic patients, This transdermal formula rub on was formulated for the very sensitive and for fast release. It bypasses the gut and goes directly into the bloodstream. If you are interested in using them contact me for a phone number at TwisterAlley2@.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 I have made this mistake also, but Garlic can be very very irritating to an inflammed gut so I would not suggest Garlic at all! Also, some probitics contain strains of yeast that are good for some individuals but dangerous for others ... so I have learned, after spending hundreds of dollars on very expensive PBs, so i would be extremely careful with the use of probiotics also.  My daughter takes NO PB now. Garlic(Kyolic), 3 capsules daily w/meals combat free radicals in crohn's diease and aids in healing. [low dose naltrexone] Re: LDN and Prednisone > > My daughter is facing surgery if after coming off antibiotics(today) her > diarrhea,loss of albumin,and wasting doesn't resolve. She's only on > 60 mg of oral Prednisone and sulfasalazine 1000mg 3x's/day. Would > like any info or feedback from others that have started LDN in > conjunction with steroids. Research says that there is no interaction > between LDN and steroids, but would like to hear from others. Also, > we are going to try the Makers diet along with Total Parenteral > Nutrition. She's not had anything by mouth since 4/15/08 and really > looks forward to eating and trying LDN for her refractory Crohn's/UC. > > ============= Is she on any high potency probiotics, anti-fungals, anti-virals? During an acute attack one should eat ORGANIC baby foods, steamed organic vegetables, and well-cooked organic brown rice, millet and oatmeal. Steroids fuel yeast overgrowth. Candex is good for candida yeast. Vitamin K is vital. Deficiency is common in those with crohn's. Garlic(Kyolic), 3 capsules daily w/meals combat free radicals in crohn's diease and aids in healing. N-A-G(N-Acetylglucosamine), Duodenal Glandular, L-Glutamine 500mg twice daily, Vit C with bioflavonoids-1000mg 3 times daily prvents inflammation, use a buffered type, Omega 3 essntial fatty acids(Kyolic EPA from Wakunaga Intestamend from Health from the Sun flaxseed oil, primrose oil and salmon oil(needed for repair of the digestive tract, reduces inflammatory processes. Studies show essential fatty acids may reduce Crohn's symptoms and aid in maintaining remission, Liver Extract Injections plus vitamin B complex and B12 an folic acid injections(as prescribed by a physician(see an alternative medicine doctor, Info povided from Prescription for Nutritional Healing by Balch, M.D. and Phyllis Balch C.N.C. 3rd and 4th editions. I couldn't type all of it but I typed what I felt most important. Your daughter should get her LDN from Coastal Compounding in Savannah, GA in the transdermal formulation that Dr. McCandless uses for her autistic patients, This transdermal formula rub on was formulated for the very sensitive and for fast release. It bypasses the gut and goes directly into the bloodstream. If you are interested in using them contact me for a phone number at TwisterAlley2webtv (DOT) net. Plan your next roadtrip with MapQuest.com: America's #1 Mapping Site. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 Check into Klaire products. Dr. McCandless uses them with her gut sensitive autistic patients. About Purchasing Klaire Products http://www.klaire.com/transition.asp Maybe once you get her gut in better health Kyolic Garlic can be added. Garlic and Alfalfa made a huge difference for my chronic diarrhea/cramps. Better to supplement with Vitamin K at this point instead of using Alfalfa. Antibiotics also fuel the yeast. I see she's on antibiotics along with a steroid. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 This is just terrific, a, I am so glad for your daughters improvements, I guess she's happy as well! a, egg whote......is that the white outside the yellow part of the egg,....? Ingrid [low dose naltrexone] LDN and Prednisone My daughter is facing surgery if after coming off antibiotics( today) herdiarrhea,loss of albumin,and wasting doesn't resolve. She's only on60 mg of oral Prednisone and sulfasalazine 1000mg 3x's/day. Wouldlike any info or feedback from others that have started LDN inconjunction with steroids. Research says that there is no interactionbetween LDN and steroids, but would like to hear from others. Also,we are going to try the Makers diet along with Total ParenteralNutrition. She's not had anything by mouth since 4/15/08 and reallylooks forward to eating and trying LDN for her refractory Crohn's/UC. Plan your next roadtrip with MapQuest.com: America's #1 Mapping Site. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 Thank you for being Happy For Us Ingrid .... it certainly means so much that others care. Sorry about the spelling - I meant egg white, my dgtr. is allergic to the white only - found this out from Enterolabs. Take Care Friend :-) and I hope that you are feeling well also! In a message dated 5/16/2008 6:39:00 P.M. Eastern Daylight Time, gunn.ingrid@... writes: This is just terrific, a, I am so glad for your daughters improvements, I guess she's happy as well! a, egg whote......is that the white outside the yellow part of the egg,....? Ingrid Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 You can take the two together without harm, but should try to come off Prednisone as soon as possible by tapering down. I would run this idea by your prescribing doctor first. He/she may give you a tapering down schedule. Art -- > > Can anyone tell me if you started taking the LDN before you completely > got off prednisone or while you were taking prednisone. Someone in > another group told me that you have to be off pred before you can start > LDN. THanks very much a > Quote Link to comment Share on other sites More sharing options...
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