Re: Ridged nonsynostotic sutures

[Guest guest]

Now I am assuming that you had xrays or CT scans done on all the children to rule out Craniosynostosis??

Pitchke

[Guest guest]

My 3 year old son has the same head shape of your older....He has width

behind the ears but a narrow forhead as well as non-synostotic ridging in

the metopic suture. He also has re-accuring nose bleeds and his head is

kind of egg shaped.

When we took my daughter in to the neurosurgeon to rule out craniosynostosis

he checked my sons head and said that his ridging is normal and does occur

in many adults. They told us not to worry. I keep praying that I don't

need to worry...

Now...I also noticed my husband has the SAME ridging! I am really starting

to wonder if its genetic.

Anyways, straying from my point...I just wanted to say thank you for posting

about your kids....I was starting to worry that my son was one of the few

who had this problem. Good luck with everything and the helmet is great!

It has helped my scaphocephalic daughter tremendously! She is no longer

really long toward the back but getting more of an egg shape I guess I

should say. We are still working on the forhead area and at this time don't

see any ridging with her! Best wishes!!!

Domi

----- Original Message -----

From: " Joanne Hibble " <joanne@...>

<Plagiocephaly >

Sent: Wednesday, March 21, 2001 7:35 AM

Subject: Ridged nonsynostotic sutures

> Does anybody know what causes ridging over nonsynostotic (that is not

> fused) sutures?

>

> My three children all developed some degree of scaphocephalic type

> deformational plagiocephaly and they each had a wedge shaped ridge over

> the metopic suture (wide at the fontanelle and going to a point in the

> upper forehead). They also had/have some ridging over the coronal

> sutures and bifrontal bossing. My daughter's head rounded out to an

> oval. My older son,4.5yo, has a narrow forehead and wide biparietal

> diameter (width behind ears). My younger son,5.5 months old, has been

> cast for a helmet and it is being made at the moment. I am very

> reluctant to use a helmet, but already the ridging is increasing and all

> growth is in length, and recently some width behind the ears only.

>

> My older son has recurrent nose bleeds and I don't know if this is

> linked to his narrow face (10cm forehead, 14cm biparietal, 15cm length -

> very approximate measures). My younger son approximately measures 10cm

> forehead, almost 11cm biparietal and about 15cm length.

>

> As there is no significant assymmetry I really don't know what to do.

> Helmets are pretty new here. What do you all think?

>

> I have also considered seeing an osteopath. Anyone have any info on

> them?

>

>

>

>

[Guest guest]

I am interested to hear that your son also has recurring nose bleeds.

Anyway your neurosurgeon is correct in a yes/no type of way. This type

of ridging is normal in that it isn't associated with craniosynostosis

and doesn't require his medical intervention. But it is not normal in

the same way that flat spots and bossing with deformational

plagiocephaly aren't 'normal'. It is normal in that it happens alot and

it is medically not a problem.

In one way I do believe that it is genetic. Not necessarily that they

were born to have egg shaped heads, but that there was some genetic

factor that allowed it. Seeing that they all had a type of plagiocephaly

that you would expect with a premmie baby (even though they were all

overdue), I wonder if there is some factor that makes their heads more

malleable and prone to deformation.

Joanne

(actually I made a mistake writing his measurements 10cm forehead, 14cm

biparietal, 21cm length with 6cm rear to biparietal and 15cm then to

forehead)

-----Original Message-----

From: Dominika White [mailto:domi.nika@...]

Sent: Thursday, 22 March 2001 1:35

Plagiocephaly

Subject: Re: Ridged nonsynostotic sutures

My 3 year old son has the same head shape of your older....He has width

behind the ears but a narrow forhead as well as non-synostotic ridging

in

the metopic suture. He also has re-accuring nose bleeds and his head is

kind of egg shaped.

When we took my daughter in to the neurosurgeon to rule out

craniosynostosis

he checked my sons head and said that his ridging is normal and does

occur

in many adults. They told us not to worry. I keep praying that I don't

need to worry...

Now...I also noticed my husband has the SAME ridging! I am really

starting

to wonder if its genetic.

Anyways, straying from my point...I just wanted to say thank you for

posting

about your kids....I was starting to worry that my son was one of the

few

who had this problem. Good luck with everything and the helmet is

great!

It has helped my scaphocephalic daughter tremendously! She is no longer

really long toward the back but getting more of an egg shape I guess I

should say. We are still working on the forhead area and at this time

don't

see any ridging with her! Best wishes!!!

Domi

----- Original Message -----

From: " Joanne Hibble " <joanne@...>

<Plagiocephaly >

Sent: Wednesday, March 21, 2001 7:35 AM

Subject: Ridged nonsynostotic sutures

> Does anybody know what causes ridging over nonsynostotic (that is not

> fused) sutures?

>

> My three children all developed some degree of scaphocephalic type

> deformational plagiocephaly and they each had a wedge shaped ridge

over

> the metopic suture (wide at the fontanelle and going to a point in the

> upper forehead). They also had/have some ridging over the coronal

> sutures and bifrontal bossing. My daughter's head rounded out to an

> oval. My older son,4.5yo, has a narrow forehead and wide biparietal

> diameter (width behind ears). My younger son,5.5 months old, has been

> cast for a helmet and it is being made at the moment. I am very

> reluctant to use a helmet, but already the ridging is increasing and

all

> growth is in length, and recently some width behind the ears only.

>

> My older son has recurrent nose bleeds and I don't know if this is

> linked to his narrow face (10cm forehead, 14cm biparietal, 15cm length

-

> very approximate measures). My younger son approximately measures 10cm

> forehead, almost 11cm biparietal and about 15cm length.

>

> As there is no significant assymmetry I really don't know what to do.

> Helmets are pretty new here. What do you all think?

>

> I have also considered seeing an osteopath. Anyone have any info on

> them?

>

>

>

>