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RE: ANDY-Dosing Interval

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Hi ,

Sorry to jump in but --

By dosing every hour, you would be increasing the overall amount of chelator

OR

are you saying to lower the chelator dosage and chelate more frequently?

Cochran <Ladyshrink111@...> wrote:

Andy,

Is it appropriate to vary the dosing interval of the chelator, mostly given on 3

hours, but moved up occasionally to 2 hours or even 1 hour for dosing

convenience or not to interrupt things? This is not 2 hours consistently but 3,

then 2, then 3, etc.

It was my understanding that it didn't matter as long as the doses were not more

than three hours apart.

Thanks,

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No, not saying to lower the dose, same dose, given an hour or an hour an half

early for convenience purposes. Glad to hear anyone's take on this as we have

done it this way from the beginning.

Having trouble (me) making this clear, but not dosing every hour on the hour,

just occassionally giving the chelator early so that she can go play with her

friends or participate in her ballet class without interruption.

Re: [ ] ANDY-Dosing Interval

Hi ,

Sorry to jump in but --

By dosing every hour, you would be increasing the overall amount of chelator

OR

are you saying to lower the chelator dosage and chelate more frequently?

Cochran <Ladyshrink111@...> wrote:

Andy,

Is it appropriate to vary the dosing interval of the chelator, mostly given on

3 hours, but moved up occasionally to 2 hours or even 1 hour for dosing

convenience or not to interrupt things? This is not 2 hours consistently but 3,

then 2, then 3, etc.

It was my understanding that it didn't matter as long as the doses were not

more than three hours apart.

Thanks,

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My opinion is that if you are " averaging " close to the correct TOTAL

chelator for a 24 hour period AND you are not exceeding 4 hours between

doses (for ALA) you can probably get away with this.

My feeling is that the more you vary the timing, the more the amount of

chelator in the blood will fluctuate causing the person to " feel odd "

compared to a " normal " round.

Neil

_____

From: [mailto: ]

On Behalf Of Cochran

Sent: Tuesday, January 09, 2007 10:26 AM

Subject: Re: [ ] ANDY-Dosing Interval

No, not saying to lower the dose, same dose, given an hour or an hour an

half early for convenience purposes. Glad to hear anyone's take on this as

we have done it this way from the beginning.

Having trouble (me) making this clear, but not dosing every hour on the

hour, just occassionally giving the chelator early so that she can go play

with her friends or participate in her ballet class without interruption.

Re: [ ] ANDY-Dosing Interval

Hi ,

Sorry to jump in but --

By dosing every hour, you would be increasing the overall amount of chelator

OR

are you saying to lower the chelator dosage and chelate more frequently?

Cochran <Ladyshrink111@ <mailto:Ladyshrink111%40peoplepc.com>

peoplepc.com> wrote:

Andy,

Is it appropriate to vary the dosing interval of the chelator, mostly given

on 3 hours, but moved up occasionally to 2 hours or even 1 hour for dosing

convenience or not to interrupt things? This is not 2 hours consistently but

3, then 2, then 3, etc.

It was my understanding that it didn't matter as long as the doses were not

more than three hours apart.

Thanks,

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> Having trouble (me) making this clear, but not dosing every hour on

the hour, just occassionally giving the chelator early so that she can

go play with her friends or participate in her ballet class without

interruption.

Yes, exactly. I aim for every 2.5 hours but often something gets in

the way and I go to 2 hrs or 3 hrs. I haven't noticed any problems

doing it this way, but over on the adult list a while back people were

warning against it, so I've been wondering.

Nell

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Thanks for weighing in on this, Neil, she is fully verbal and has never

complained of feeling odd or acted in anyway as if it affected her one way or

another.

When we increased the Ala to full dose (just a 4 mg increase) she did complain

that her head felt funny but it was not a time when we were shortening the

times. So I know she would say something and we're pretty good at observing her

behavior aka " watching her like a hawk " during a round for any discernible

differences.

We do try to " split " the difference when we know that we are going to want to

give a dose at 5pm when we have just given a dose at 12pm, or a 5 hour interval

rather than a 6 hour, and give the next two doses at 2.5 hour intervals.

We NEVER exceed 3 hours for Ala, are compulsive about this, 4 hours at night. We

wouldn't shorten the time either if we thought there was any chance it was

unadvisable and maybe we were too literal with Andy's comment that the only

thing that mattered was not going longer than the 3 hour dosing.

Re: [ ] ANDY-Dosing Interval

Hi ,

Sorry to jump in but --

By dosing every hour, you would be increasing the overall amount of chelator

OR

are you saying to lower the chelator dosage and chelate more frequently?

Cochran <Ladyshrink111@ <mailto:Ladyshrink111%40peoplepc.com>

peoplepc.com> wrote:

Andy,

Is it appropriate to vary the dosing interval of the chelator, mostly given

on 3 hours, but moved up occasionally to 2 hours or even 1 hour for dosing

convenience or not to interrupt things? This is not 2 hours consistently but

3, then 2, then 3, etc.

It was my understanding that it didn't matter as long as the doses were not

more than three hours apart.

Thanks,

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We also try to split the difference to make consistent intervals

when we want to bump things up. It doesn't seem to present a

problem. We just make sure we never go more than 3 hours during the

day, 4 at night. At some level, some of this is academic. For

example, it seems to me that when the chelator is given on an empty

stomach, it will likely get into the blood stream faster than when

dosing coincides with meal time. So, what is perfect on paper will

vary under real life conditions.

Anne

> Andy,

>

> Is it appropriate to vary the dosing interval of the chelator,

mostly given

> on 3 hours, but moved up occasionally to 2 hours or even 1 hour

for dosing

> convenience or not to interrupt things? This is not 2 hours

consistently but

> 3, then 2, then 3, etc.

>

> It was my understanding that it didn't matter as long as the

doses were not

> more than three hours apart.

>

> Thanks,

>

>

>

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  • 4 weeks later...

>

> Andy,

>

> Is it appropriate to vary the dosing interval of the chelator, mostly given on

3 hours, but

moved up occasionally to 2 hours or even 1 hour for dosing convenience or not to

interrupt things? This is not 2 hours consistently but 3, then 2, then 3, etc.

>

> It was my understanding that it didn't matter as long as the doses were not

more than

three hours apart.

You are correct, this is fine.

>

> Thanks,

>

>

>

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