Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 > > knowing how to rectify it will take care of the abnormal hormone > > levels in the kids? supporting the adrenals? > > Yup. Andy, Do you know whether saliva tests have appropriate ref ranges for kids, or is there some way to get good adrenal tests for them beyond the indications of a hair test? What I'm really wondering about is Cortef for kids, only because my own experience was that adrenal cortex was not helpful but Cortef has been like a miracle. What would the dosing look like? Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 nell, I have been taking Adrenal cortex ( Organic Glandular) for two weeks and I haven't noticed a thing. I have only just started to acquaint myself with adreanl issue so I am rather a newbie. All the adrenal insufficiency symptoms fit me to a tee so I would like to find some remedy that helps. I'll try Cortref once I have finished this bottle. julie :-)) [ ] Re: Cortef for kids?/ was: anyone seen LOW testosterone? > > knowing how to rectify it will take care of the abnormal hormone > > levels in the kids? supporting the adrenals? > > Yup. Andy, Do you know whether saliva tests have appropriate ref ranges for kids, or is there some way to get good adrenal tests for them beyond the indications of a hair test? What I'm really wondering about is Cortef for kids, only because my own experience was that adrenal cortex was not helpful but Cortef has been like a miracle. What would the dosing look like? Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 I wish I knew whether you could use Cortef for kids also. Despite all the ACE we have used for her in addition to the vast quantities of C and pantothenic acid (which really seem to work better than the ACE) I still think her adrenals are struggling, although much better on present hair tests. I look at other kids and she seems to have as much energy as they do, but neither have any to spare and many parents who have kids in her classroom report putting their kids to bed at 7:00 at night to allow for enough sleep for the day's activities. [ ] Re: Cortef for kids?/ was: anyone seen LOW testosterone? > > knowing how to rectify it will take care of the abnormal hormone > > levels in the kids? supporting the adrenals? > > Yup. Andy, Do you know whether saliva tests have appropriate ref ranges for kids, or is there some way to get good adrenal tests for them beyond the indications of a hair test? What I'm really wondering about is Cortef for kids, only because my own experience was that adrenal cortex was not helpful but Cortef has been like a miracle. What would the dosing look like? Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 If the dilated pupils, ( sign of insufficiency) are anything to go on, the high-dose vit A really had a major impact on my daughter. Since then, her pupils seem normalized although there are days when it comes back. I'd rather like to think that the Vit A reduced the inflammation caused by " x " ( maybe measles etc.) which meant that the adrenals could take a rest. Just a theory.... julie [ ] Re: Cortef for kids?/ was: anyone seen LOW testosterone? > > knowing how to rectify it will take care of the abnormal hormone > > levels in the kids? supporting the adrenals? > > Yup. Andy, Do you know whether saliva tests have appropriate ref ranges for kids, or is there some way to get good adrenal tests for them beyond the indications of a hair test? What I'm really wondering about is Cortef for kids, only because my own experience was that adrenal cortex was not helpful but Cortef has been like a miracle. What would the dosing look like? Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 > > nell, > > I have been taking Adrenal cortex ( Organic Glandular) for two weeks and I haven't noticed a thing. I have only just started to acquaint myself with adreanl issue so I am rather a newbie. All the adrenal insufficiency symptoms fit me to a tee so I would like to find some remedy that helps. , I have to keep ranting about adrenal insufficiency and Cortef because even though I read about both in " Amalgam Illness " years ago, it took me forever actually to get some. I had slowly stopped doing so many things because I couldn't handle the stress -- like swimming in the ocean, and other great stuff -- but weirdly I had this sense of resignation about it. It took a friend giving me a shake for me to realize something was really wrong. As I've said before, I can't imagine how terrible it would be to be a child and not be able to handle any stress, especially because children have so little control over their lives. No wonder these kids don't want to leave the house -- neither did I! Anyway, Cortef simply allows stress to be manageable again -- no more panic attacks, no more deep fatigue, no more hiding from the world. If you can't get a doc to give you a scrip, you can try Isocort, which has some other stuff in it but does have the crucial hydrocortisone. Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 I was thinking of Isocort, I don't think you can give Cortef to kids and I'm not sure about Isocort either. [ ] Re: Cortef for kids?/ was: anyone seen LOW testosterone? > > nell, > > I have been taking Adrenal cortex ( Organic Glandular) for two weeks and I haven't noticed a thing. I have only just started to acquaint myself with adreanl issue so I am rather a newbie. All the adrenal insufficiency symptoms fit me to a tee so I would like to find some remedy that helps. , I have to keep ranting about adrenal insufficiency and Cortef because even though I read about both in " Amalgam Illness " years ago, it took me forever actually to get some. I had slowly stopped doing so many things because I couldn't handle the stress -- like swimming in the ocean, and other great stuff -- but weirdly I had this sense of resignation about it. It took a friend giving me a shake for me to realize something was really wrong. As I've said before, I can't imagine how terrible it would be to be a child and not be able to handle any stress, especially because children have so little control over their lives. No wonder these kids don't want to leave the house -- neither did I! Anyway, Cortef simply allows stress to be manageable again -- no more panic attacks, no more deep fatigue, no more hiding from the world. If you can't get a doc to give you a scrip, you can try Isocort, which has some other stuff in it but does have the crucial hydrocortisone. Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 > > I was thinking of Isocort, I don't think you can give Cortef to kids and I'm not sure about Isocort either. Sorry if I wasn't clear, I meant for to try Isocort on herself, not a kid. I wouldn't try either of them on kids either without knowing how to test hormone levels and some guidance from Andy... Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 > > If the dilated pupils, ( sign of insufficiency) are anything to go on, the high-dose vit A really had a major impact on my daughter. Since then, her pupils seem normalized although there are days when it comes back. I'd rather like to think that the Vit A reduced the inflammation caused by " x " ( maybe measles etc.) which meant that the adrenals could take a rest. Just a theory.... This is very interesting . Thanks for posting it. My son has large pupils all the time and now we have confirmation of a very inflamed gut (and I feel quite convinced he would be one of the kids with measles in his gut). There is a paper that René posted at her lectins group that talks about the significance of A in helping to heal a leaky gut. My son also has adrenal problems. We have seen improvements with ACE in the last few weeks, but his pupils remain unchanged. They have been large since I started paying attention to them, which would have been just after his regression. Photo evidence shows them as normal before that--in any photo we have since his regression when he is actually looking at the camera he has red eye because his pupils won't contract like everyone elses. The more I read the more I believe we really have to be fixing everything at once, over and over, but NOT doing too many things at one time ARGHHGH! Anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 > Andy, > > Do you know whether saliva tests have appropriate ref ranges for kids, > or is there some way to get good adrenal tests for them beyond the > indications of a hair test? I'd like to hear Andy's answer but Diagnos-Techs claims kids and adults ranges are virtually the same. My reply from Dr. Mark at Diagnos-Tech re: my 9 year old daughter (FWIW): " DHEA is different, sort of. You get that extra line a couple of inches down that says " Low DHEA is a normal finding in children... " Cortisol is the same. Thyroid numbers are the same. Estradiol and testosterone are more or less the same. We would interpret them a little differently. Progesterone, on the other hand, would vary more by time of month for a cycling woman. Girls before puberty should register below 100. " > What I'm really wondering about is Cortef for kids, only because my > own experience was that adrenal cortex was not helpful but Cortef has > been like a miracle. What would the dosing look like? > > Nell An old message from Andy on dosing hydrocortisone in kids: /message/171011 Dosing for 7-keto DHEA and pregnenolone (with many CAUTIONS): http://onibasu.com/archives/am/69709.html?highlight=dhea%20andrewhallcutler Just for the record, my daughter (who is mercury, lead and copper toxic) showed borderline high testosterone on the Diagnos-Techs saliva test and all other hormones except cortisol were within the ranges explained by Dr. . W. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 Anita, When I first noticed the dilated pupils in my daughter I was shocked to see similar in so many of her contemporaries who were apparently NORMAL kids. Next time, you are out and about, have a look at the kids in the supermarket etc. I have quite a few digital pics in my database of kids standing next to parents ( so close that the light refraction should have been the same). Almost without exception, the parents have normal pupils and the majority of the kids have dilated pupils. [ ] Re: Cortef for kids?/ was: anyone seen LOW testosterone? > > If the dilated pupils, ( sign of insufficiency) are anything to go on, the high-dose vit A really had a major impact on my daughter. Since then, her pupils seem normalized although there are days when it comes back. I'd rather like to think that the Vit A reduced the inflammation caused by " x " ( maybe measles etc.) which meant that the adrenals could take a rest. Just a theory.... This is very interesting . Thanks for posting it. My son has large pupils all the time and now we have confirmation of a very inflamed gut (and I feel quite convinced he would be one of the kids with measles in his gut). There is a paper that René posted at her lectins group that talks about the significance of A in helping to heal a leaky gut. My son also has adrenal problems. We have seen improvements with ACE in the last few weeks, but his pupils remain unchanged. They have been large since I started paying attention to them, which would have been just after his regression. Photo evidence shows them as normal before that--in any photo we have since his regression when he is actually looking at the camera he has red eye because his pupils won't contract like everyone elses. The more I read the more I believe we really have to be fixing everything at once, over and over, but NOT doing too many things at one time ARGHHGH! Anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 > > An old message from Andy on dosing hydrocortisone in kids: > > /message/171011 Thanks for posting that, . It sounds like Andy is not too keen on the idea of HC for kids. Maybe for some reason adrenal cortex works better for them than for adults? It made n very cranky. Not sure how his adrenals are at this point, maybe I'll try a saliva test. Thanks again. Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 > > > > knowing how to rectify it will take care of the abnormal hormone > > > levels in the kids? supporting the adrenals? > > Hello, About one year ago, I discovered my then 6 year old daughter had elevated testosterone, and very elevated estrogen. I requested the testing because even after lots of chelation, she was having significant problems and was showing suspicious signs of possible early puberty (very fast growth, behavioral signs, coarse hair on legs etc.) Andy suggested that this was likely adrenal in origin and would likely respond to a small dose of hydrocortisone. Her doctor, who consults with Andy, prescribed a small daily dose. We did this for about 6 weeks. After about 2 weeks, my daughter became ill. She went on to catch every bug that went past her and spent weeks with in and out of bed with fever etc. We retested her hormones and found that her testosterone and estrogen were soaring. Her blood level of testosterone was 27ng/dL (ref 0-10), and estrogen was 270pg/ml (ref<40). Needless to say, I was pretty discouraged. We slowly weaned her off of Cortef (hydrocortisone). We very seriously considered Lupron. Instead, I decided to run a saliva test for hormones found on the NTH Adrenals list in order to get a better idea as to what was going on with her adrenals. This showed her to be in a stage referred to a Maladapted Phase I. It was suggested to me that the problem we encountered the first time may have been the Cortef dosing schedule, and that splitting the total dose of Cortef up and giving it at 4 hour intervals might work. This would mimic the daily cortisol rhythm. I decided to try again with an extremely small dose, and watch for symptoms. I kept a temperature graph to judge the effectiveness of the dose. She DID NOT become ill this time. Some of her other symptoms initially seemed worse, bu that faded over time. About 3 months later, we re-tested (blood tests). Her testosterone was now WITHIN THE NORMAL RANGE! He estrogen was still very elevated, but had fallen about 100 points.Last week we tested again, and her testosterone is still within normal limits, and her estrogen again fell about 90 more points. She is 40 points away from a normal result. She has remained well all winter. As a bonus, she is alot easier to get along with. We are really thrilled. My thanks to Andy and Dr . This single intervention saved my daughter and us a great deal of misery. I should also mention that we are also using calcium d-glucarate to bring down the estrogen. We took a long break in chelation, but will start soon again. Kathy T. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 Thanks for sharing your story, Kathy. [ ] Re: Cortef for kids?/ was: anyone seen LOW testosterone? > > > > knowing how to rectify it will take care of the abnormal hormone > > > levels in the kids? supporting the adrenals? > > Hello, About one year ago, I discovered my then 6 year old daughter had elevated testosterone, and very elevated estrogen. I requested the testing because even after lots of chelation, she was having significant problems and was showing suspicious signs of possible early puberty (very fast growth, behavioral signs, coarse hair on legs etc.) Andy suggested that this was likely adrenal in origin and would likely respond to a small dose of hydrocortisone. Her doctor, who consults with Andy, prescribed a small daily dose. We did this for about 6 weeks. After about 2 weeks, my daughter became ill. She went on to catch every bug that went past her and spent weeks with in and out of bed with fever etc. We retested her hormones and found that her testosterone and estrogen were soaring. Her blood level of testosterone was 27ng/dL (ref 0-10), and estrogen was 270pg/ml (ref<40). Needless to say, I was pretty discouraged. We slowly weaned her off of Cortef (hydrocortisone). We very seriously considered Lupron. Instead, I decided to run a saliva test for hormones found on the NTH Adrenals list in order to get a better idea as to what was going on with her adrenals. This showed her to be in a stage referred to a Maladapted Phase I. It was suggested to me that the problem we encountered the first time may have been the Cortef dosing schedule, and that splitting the total dose of Cortef up and giving it at 4 hour intervals might work. This would mimic the daily cortisol rhythm. I decided to try again with an extremely small dose, and watch for symptoms. I kept a temperature graph to judge the effectiveness of the dose. She DID NOT become ill this time. Some of her other symptoms initially seemed worse, bu that faded over time. About 3 months later, we re-tested (blood tests). Her testosterone was now WITHIN THE NORMAL RANGE! He estrogen was still very elevated, but had fallen about 100 points.Last week we tested again, and her testosterone is still within normal limits, and her estrogen again fell about 90 more points. She is 40 points away from a normal result. She has remained well all winter. As a bonus, she is alot easier to get along with. We are really thrilled. My thanks to Andy and Dr . This single intervention saved my daughter and us a great deal of misery. I should also mention that we are also using calcium d-glucarate to bring down the estrogen. We took a long break in chelation, but will start soon again. Kathy T. Quote Link to comment Share on other sites More sharing options...
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