Re: Re: Let me introduce ... and ask questions!!!!!

[Guest guest]

Colleen:

plastic surgeons at the the IWK Hospital provide helmet therapy.

Where is the IWK Hospital? Do you know anything about thier program? I like to keep track of all of these Canadian facilities for future members! Thanks!

Kendra in CanadaFor more plagio info, visitwww.plagiocephaly.org/support...

----- Original Message -----

From: apurcell@...

Plagiocephaly

Sent: Friday, March 23, 2001 10:40 AM

Subject: Re: Let me introduce ... and ask questions!!!!!

Hello Karyn - Welcome to the group!My name is Colleen Purcell and I live in Halifax, Nova Scotia. I was very exicited to see someone else from Nova Scotia posting on this site! My son Owen was diagnosed at two months with plagio and torticollis but a later consultation with a pediatrician indicated he had brachycephaly and not plagio. We have had a great deal of success with repositioning and physical therapy - after almost seven months! I can tell you though that our family doctor said plastic surgeons at the the IWK Hospital provide helmet therapy. I also know that treatment is available at the Sick Kids Hospital in Toronto-if you go to their internet site there is information available in their section on craniofacial treatments - specifically on plagiocephaly. They also provide information on what is needed to access treatment at the hospital. There is a couple from Newfoundland who are members on this site and who went to Sick Kids for treatment so they will probably be a great source of information for you. If you would like, you can send me an e-mail at apurcell@.... I would love to hear from you.Colleen Purcell (mom to Owen 08/07/00)> > Hello ... my family and I live in Nova Scotia, Canada and our nearly > 9 month old daughter, , has been wearing her helmet for a > month +. > > was born with a misshapen head due to being pressed against > my pelvic bone for 29 hours during delivery. She had IUGR > (intrauterine growth retardation) during the pregnancy and was small > for gestational age - but was born at a healthy 6 lbs. The IUGR > created some complications during labor that resulted in her head and > my hip both being "knocked out of whack." I am curious if there is > any correlation between the IUGR condition and instances of > plagiocephaly. Are there any other parents who have had a similar > experience?> > In hindsight we also think that Kat had a mild case of torticolis. > She and I were both treated by a chiropracter - me for my hip and her > for her neck - when she was 4 weeks old. We brought her to the > chiropractor because she was very fussy and we thought it was colic > (a friend recommended chiropractic treatment). The fussing reduced > considerably and she slept much better after her neck was worked on. > She had 3 visits. Now, knowing much more about plagiocephaly and > related conditions, we think that it was mild, undiagnosed > torticolis.> > 's head shape has been monitored by our family doctor since > birth and when she reached six months of age it was determined that > it wasn't going to correct on its own. We then started a frustrating > series of doctor visits here in Nova Scotia to learn that there is no > one who will treat plagiocephaly in the province. If the baby > doesn't require surgery then nothing is done.> > Since we are actually a US Navy family on an exchange here in Nova > Scotia, we had access to medical treatment in the US. is a > patient at the Dartmouth-Hitchcock Medical Center in Hanover, NH. It > requires us to travel on a regular basis, which is getting very > expensive. On the positive side, she showed improvement in the first > week of wearing her helmet and now at nearly 5 weeks her head is > becoming very round. We couldn't be more thrilled.> > I have a few questions that some of the other parents may be able to > help me with:> - are travel expenses tax deductible?> - do any airlines provide discount fares for medical treatment?> - are there any doctors in Quebec or Ontario who treat plagiocephaly? > We are being asked by people who have children or know of other > babies who probably should be wearing helmets too.> > I am so glad that this group is here.> > Thank you very, very much.> > Karyn &

[Guest guest]

Sue wrote:

>

>Hey thats who is going to see a Dr. Forest at

>Toronto Sick Kids I am so glad your having sucess. Gives me hope!

>Thanks

>Sue

Hi Sue,

I hope you (and others) will consider adding information about your physician at

http://www.plagiocephaly.org/recommend.htm.

Thanks,

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