Guest guest Posted February 2, 2007 Report Share Posted February 2, 2007 Moria (with an o) is an adult who has had mercury poisoning but has no children on or off the spectrum. She has been extremely helpful on this list. Other comments interspersed. S S <p>First, I want to say I am very impressed that someone took Andy's <br> posts and put them into one place - who is ? An angel no doubt.<br> I also am amazed that someone as busy as Andy must be, takes the time <br> to answer peoples questions within this group.<br> <br> I have reviewed most of the posts of Andy's that was willing to <br> combine.<br> <br> I have a list of all the suppiments that my son will need to take <br> during the DSMA process. He takes almost all of them already.<br> <br> He is 6 years old and has been chelating for over two years, with PCA-<br> RX spray and recently with Natural Cellular Defense (Zeolite).We have <br> seen Some movement in metals. We recently had a Urine Porphyrin test <br> done and he still has unacceptable levels of mercury and lead. On <br> Wednesday Dr Usman suggested we kick it up a notch and use " the Andy <br> Cutler " protocal. *Good! I ordered his book yesterday. DR Usman suggests <br> 25mg (DMSA capsule) 3 days on 11 days off. <br> *How much does your son weigh? <br> My son acts almost typical now. He had social issues and some <br> stimming, has a aid a school, howver he is very smart and barely <br> needs an aid.<br> <br> I was not aware of the risks of regression due to redistribution of <br> the mercury, until I went to this group and did more research.<br> <br> Here is my difficult question - <br> <br> If a child looks mostly ADHD, should you risk regression by doing <br> this protocol. I know this is a difficult question. I just have to <br> ask it.<br> *The risk is with using non-Andy Cutler protocols like those used by most DAN! docs, and with challenge tests, or with leaving the mercury and lead in the person. Andy's protocol is the safest one. Or are the risks of not doing it too great.<br> <br> I want to feel as comfortable and prepared as possible before we <br> start.<br> <br> I did not ask enough questions and do enough research about vaccines <br> before we gave them to our son and look where that got us.<br> <br> *Good that you are asking questions now. Any comments, suggestions are welcome.<br> <br> Thanks in advance,<br> <br> C on<br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2007 Report Share Posted February 2, 2007 He weighs 51 pounds. Thank you, Con > > <p>First, I want to say I am very impressed that someone took Andy's <br> > posts and put them into one place - who is ? An angel no doubt.<br> > I also am amazed that someone as busy as Andy must be, takes the time <br> > to answer peoples questions within this group.<br> > <br> > I have reviewed most of the posts of Andy's that was willing to <br> > combine.<br> > <br> > I have a list of all the suppiments that my son will need to take <br> > during the DSMA process. He takes almost all of them already.<br> > <br> > He is 6 years old and has been chelating for over two years, with PCA-<br> > RX spray and recently with Natural Cellular Defense (Zeolite).We have <br> > seen Some movement in metals. We recently had a Urine Porphyrin test <br> > done and he still has unacceptable levels of mercury and lead. On <br> > Wednesday Dr Usman suggested we kick it up a notch and use " the Andy <br> > Cutler " protocal. > > *Good! > > I ordered his book yesterday. DR Usman suggests <br> > 25mg (DMSA capsule) 3 days on 11 days off. <br> > > *How much does your son weigh? > > <br> > My son acts almost typical now. He had social issues and some <br> > stimming, has a aid a school, howver he is very smart and barely <br> > needs an aid.<br> > <br> > I was not aware of the risks of regression due to redistribution of <br> > the mercury, until I went to this group and did more research.<br> > <br> > Here is my difficult question - <br> > <br> > If a child looks mostly ADHD, should you risk regression by doing <br> > this protocol. I know this is a difficult question. I just have to <br> > ask it.<br> > > *The risk is with using non-Andy Cutler protocols like those used by most DAN! docs, and with challenge tests, or with leaving the mercury and lead in the person. Andy's protocol is the safest one. > > Or are the risks of not doing it too great.<br> > <br> > I want to feel as comfortable and prepared as possible before we <br> > start.<br> > <br> > I did not ask enough questions and do enough research about vaccines <br> > before we gave them to our son and look where that got us.<br> > <br> > > *Good that you are asking questions now. > > Any comments, suggestions are welcome.<br> > <br> > Thanks in advance,<br> > <br> > C on<br> > > > _______________________________________________ > Join Excite! - http://www.excite.com > The most personalized portal on the Web! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2007 Report Share Posted February 2, 2007 Welcome to the list Carol, Yes, Moria is an angel :-) I think the biggest risk for our kids may be leaving the toxins in them. IMO, Andy's protocol is by far the safest I've ever read. For my son, I try to do longer rounds when possible, with my thinking being that longer rounds will in the end means fewer ends of rounds and fewer chances of redistribution. My son does very well on 5 or 6 day rounds and maybe you can plan some of those during school holidays, etc. Andy believes that ALA is really the workhorse of chelators. Certainly ALA has many other properties that make it great besides removing toxic metals from our kids (and their brains). Sometime in the future, you may want to consider ALA as a chelator, either as well, or perhaps instead of DMSA. I use DMSA and ALA with my son, as I think the DMSA is important for someone with lead toxicity, and he, unfortunately, is also lead toxic. The only thing is if you use ALA, you have to tighten up dosing time to three hours (although you can stretch to four at night). Be sure to start dosing at the low end of Andy's recommendations. You can always move up if things are going well :-) Best of luck, Anita > > First, I want to say I am very impressed that someone took Andy's > posts and put them into one place - who is ? An angel no doubt. > I also am amazed that someone as busy as Andy must be, takes the time > to answer peoples questions within this group. > > I have reviewed most of the posts of Andy's that was willing to > combine. > > I have a list of all the suppiments that my son will need to take > during the DSMA process. He takes almost all of them already. > > He is 6 years old and has been chelating for over two years, with PCA- > RX spray and recently with Natural Cellular Defense (Zeolite).We have > seen Some movement in metals. We recently had a Urine Porphyrin test > done and he still has unacceptable levels of mercury and lead. On > Wednesday Dr Usman suggested we kick it up a notch and use " the Andy > Cutler " protocal. I ordered his book yesterday. DR Usman suggests > 25mg (DMSA capsule) 3 days on 11 days off. > > My son acts almost typical now. He had social issues and some > stimming, has a aid a school, howver he is very smart and barely > needs an aid. > > I was not aware of the risks of regression due to redistribution of > the mercury, until I went to this group and did more research. > > Here is my difficult question - > > If a child looks mostly ADHD, should you risk regression by doing > this protocol. I know this is a difficult question. I just have to > ask it. > Or are the risks of not doing it too great. > > I want to feel as comfortable and prepared as possible before we > start. > > I did not ask enough questions and do enough research about vaccines > before we gave them to our son and look where that got us. > > Any comments, suggestions are welcome. > > Thanks in advance, > > C on > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2007 Report Share Posted February 3, 2007 It's ok to start with 25 mg (that's the high end of Andy's suggested dose) but if the rounds seem rough consider reducing it by half and gradually working up. S S <p>He weighs 51 pounds.<br> <br> Thank you,<br> <br> Con<br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2007 Report Share Posted February 3, 2007 > If a child looks mostly ADHD, should you risk regression by doing > this protocol. I know this is a difficult question. I just have to > ask it. > Or are the risks of not doing it too great. I used ALA, not DMSA. I have two kids who were mostly NT, with a few issues. I did not like the possibility of regression, but I thought the risks of NOT doing it were higher. I saw no regression on ALA, except for yeast, which I kept under control with GSE. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2007 Report Share Posted February 3, 2007 > > First, I want to say I am very impressed that someone took Andy's > posts and put them into one place - who is ? Moria. Note spelling. >An angel no doubt. More people should tell her that! > I also am amazed that someone as busy as Andy must be, takes the time > to answer peoples questions within this group. Well, somehow I don't have it in me to just let you all drown in the tidal wave of drivel, and do things like go to the conference I just trashed, hear made up stories and do things to your kids that may render them horribly permanently worse. > I have reviewed most of the posts of Andy's that was willing to > combine. > > I have a list of all the suppiments that my son will need to take > during the DSMA process. He takes almost all of them already. > > He is 6 years old and has been chelating for over two years, with PCA- > RX spray Actually he hasn't chelated yet then. > and recently with Natural Cellular Defense (Zeolite). Also not a chelator. > We have > seen Some movement in metals. We recently had a Urine Porphyrin test > done and he still has unacceptable levels of mercury and lead. Possibly because he hasn't taken any chelators yet. > On > Wednesday Dr Usman suggested we kick it up a notch and use " the Andy > Cutler " protocal. I ordered his book yesterday. DR Usman suggests > 25mg (DMSA capsule) 3 days on 11 days off. Every 4 hours, day and night - this is a crucial part of the protocol. I am curious as to whether that was included in the instructions. Also continuing the supplements and giving them several times a day is a necessary part of the protocol. > My son acts almost typical now. He had social issues and some > stimming, has a aid a school, howver he is very smart and barely > needs an aid. > > I was not aware of the risks of regression due to redistribution of > the mercury, until I went to this group and did more research. > > Here is my difficult question - > > If a child looks mostly ADHD, should you risk regression by doing > this protocol. Yes. And he is not " almost typical " if he still (even barely) needs an aid. > I know this is a difficult question. I just have to > ask it. > Or are the risks of not doing it too great. The risks of not doing it are no further progress, with dramatic permanent regression at adolescence or adulthood when all the interventions you are currently doing fall by the wayside. > I want to feel as comfortable and prepared as possible before we > start. > > I did not ask enough questions and do enough research about vaccines > before we gave them to our son and look where that got us. You are wise to have learned that lesson! You would be surprised how many parents go let some alternative doctor who pretends to know what they are doing (some doc's do, some don't) mess their kid up even worse. > Any comments, suggestions are welcome. Just trying a cycle does not commit you to doing it for years on end regardless of how it treats him. Just try it, have the sense to stop if it isn't going the way you expect and figure out what is wrong. > Thanks in advance, > > C on > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2007 Report Share Posted February 3, 2007 We are rank novices here and I just want to be sure since apparently there are risks if you do it wrong. Is it ok to chelate like I have been told beginning at the end of school day on Friday 4:00 p.m. and all the way through the weekend every 4 hrs ending on Monday morning before going back to school? That is not a full 3 days, is that close enough? I'm still nervous so if I wanted to do half of a 25mg. dose every 4 hours would that be ok? Next question must it all be oral or is it ok to do TD at night when child is sleeping? And we have not chelated at all since all we have used thus far is NCD (and that is not apparently not a chelator). I am also concerned about a low first morning urinary creatinine level of 520. Other boards have said this is terribly low and to be cautious because their might be a kidney issue?? Is 3 days on and 11 off a good time table for most children? Thanks Andy - it feels good to know there is someone out there that has answers I feel comfortable with. Chris [ ] Re: DMSA - risks > > First, I want to say I am very impressed that someone took Andy's > posts and put them into one place - who is ? Moria. Note spelling. >An angel no doubt. More people should tell her that! > I also am amazed that someone as busy as Andy must be, takes the time > to answer peoples questions within this group. Well, somehow I don't have it in me to just let you all drown in the tidal wave of drivel, and do things like go to the conference I just trashed, hear made up stories and do things to your kids that may render them horribly permanently worse. > I have reviewed most of the posts of Andy's that was willing to > combine. > > I have a list of all the suppiments that my son will need to take > during the DSMA process. He takes almost all of them already. > > He is 6 years old and has been chelating for over two years, with PCA- > RX spray Actually he hasn't chelated yet then. > and recently with Natural Cellular Defense (Zeolite). Also not a chelator. > We have > seen Some movement in metals. We recently had a Urine Porphyrin test > done and he still has unacceptable levels of mercury and lead. Possibly because he hasn't taken any chelators yet. > On > Wednesday Dr Usman suggested we kick it up a notch and use " the Andy > Cutler " protocal. I ordered his book yesterday. DR Usman suggests > 25mg (DMSA capsule) 3 days on 11 days off. Every 4 hours, day and night - this is a crucial part of the protocol. I am curious as to whether that was included in the instructions. Also continuing the supplements and giving them several times a day is a necessary part of the protocol. > My son acts almost typical now. He had social issues and some > stimming, has a aid a school, howver he is very smart and barely > needs an aid. > > I was not aware of the risks of regression due to redistribution of > the mercury, until I went to this group and did more research. > > Here is my difficult question - > > If a child looks mostly ADHD, should you risk regression by doing > this protocol. Yes. And he is not " almost typical " if he still (even barely) needs an aid. > I know this is a difficult question. I just have to > ask it. > Or are the risks of not doing it too great. The risks of not doing it are no further progress, with dramatic permanent regression at adolescence or adulthood when all the interventions you are currently doing fall by the wayside. > I want to feel as comfortable and prepared as possible before we > start. > > I did not ask enough questions and do enough research about vaccines > before we gave them to our son and look where that got us. You are wise to have learned that lesson! You would be surprised how many parents go let some alternative doctor who pretends to know what they are doing (some doc's do, some don't) mess their kid up even worse. > Any comments, suggestions are welcome. Just trying a cycle does not commit you to doing it for years on end regardless of how it treats him. Just try it, have the sense to stop if it isn't going the way you expect and figure out what is wrong. > Thanks in advance, > > C on > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 Comments interspersed. S S <p>We are rank novices here and I just want to be sure since apparently there are risks if you do it wrong. <br> <br> Is it ok to chelate like I have been told beginning at the end of school day on Friday 4:00 p.m. and all the way through the weekend every 4 hrs ending on Monday morning before going back to school? That is not a full 3 days, is that close enough? <br> *Yes, and it's good that you are asking questions. <br> I'm still nervous so if I wanted to do half of a 25mg. dose every 4 hours would that be ok? *Depends on how much the individual weighs. Next question must it all be oral or is it ok to do TD at night when child is sleeping? And we have not chelated at all since all we have used thus far is NCD (and that is not apparently not a chelator). I am also concerned about a low first morning urinary creatinine level of 520. Other boards have said this is terribly low and to be cautious because their might be a kidney issue??<br> <br> Is 3 days on and 11 off a good time table for most children? <br> *That's fine, or 3 on/4 off is also common among those on this list. <br> Thanks Andy - it feels good to know there is someone out there that has answers I feel comfortable with. <br> <br> Chris<br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 Yes, it must all be oral or all be td, don't mix them. Re: [ ] Re: DMSA - risks Comments interspersed. S S <p>We are rank novices here and I just want to be sure since apparently there are risks if you do it wrong. <br> <br> Is it ok to chelate like I have been told beginning at the end of school day on Friday 4:00 p.m. and all the way through the weekend every 4 hrs ending on Monday morning before going back to school? That is not a full 3 days, is that close enough? <br> *Yes, and it's good that you are asking questions. <br> I'm still nervous so if I wanted to do half of a 25mg. dose every 4 hours would that be ok? *Depends on how much the individual weighs. Next question must it all be oral or is it ok to do TD at night when child is sleeping? And we have not chelated at all since all we have used thus far is NCD (and that is not apparently not a chelator). I am also concerned about a low first morning urinary creatinine level of 520. Other boards have said this is terribly low and to be cautious because their might be a kidney issue??<br> <br> Is 3 days on and 11 off a good time table for most children? <br> *That's fine, or 3 on/4 off is also common among those on this list. <br> Thanks Andy - it feels good to know there is someone out there that has answers I feel comfortable with. <br> <br> Chris<br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 Is DMSA a prescription only or where can I order it? Also do a lot of you add ALA or is that " down the road a piece for us? " Chris Re: [ ] Re: DMSA - risks Comments interspersed. S S <p>We are rank novices here and I just want to be sure since apparently there are risks if you do it wrong. <br> <br> Is it ok to chelate like I have been told beginning at the end of school day on Friday 4:00 p.m. and all the way through the weekend every 4 hrs ending on Monday morning before going back to school? That is not a full 3 days, is that close enough? <br> *Yes, and it's good that you are asking questions. <br> I'm still nervous so if I wanted to do half of a 25mg. dose every 4 hours would that be ok? *Depends on how much the individual weighs. Next question must it all be oral or is it ok to do TD at night when child is sleeping? And we have not chelated at all since all we have used thus far is NCD (and that is not apparently not a chelator). I am also concerned about a low first morning urinary creatinine level of 520. Other boards have said this is terribly low and to be cautious because their might be a kidney issue??<br> <br> Is 3 days on and 11 off a good time table for most children? <br> *That's fine, or 3 on/4 off is also common among those on this list. <br> Thanks Andy - it feels good to know there is someone out there that has answers I feel comfortable with. <br> <br> Chris<br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 http://www.vrp.com/det/8112.asp?c=1170600593546 & f=55 & k=/vrpsearch.asp & m=/include\ s/vrp.css & p=no & s=0 www.vrp.com search dmsa if the link is broken. --- Farley <chris_farley@...> wrote: > Is DMSA a prescription only or where can I order it? > Also do a lot of you add ALA or is that " down the > road a piece for us? " > > Chris > > > Re: [ ] Re: DMSA - risks > > Comments interspersed. > S S > > > > <p>We are rank novices here and I just want to be > sure since apparently there are risks if you do it > wrong. <br> > <br> > Is it ok to chelate like I have been told > beginning at the end of school day on Friday 4:00 > p.m. and all the way through the weekend every 4 hrs > ending on Monday morning before going back to > school? That is not a full 3 days, is that close > enough? <br> > > *Yes, and it's good that you are asking questions. > > <br> > I'm still nervous so if I wanted to do half of a > 25mg. dose every 4 hours would that be ok? > > *Depends on how much the individual weighs. > > Next question must it all be oral or is it ok to > do TD at night when child is sleeping? And we have > not chelated at all since all we have used thus far > is NCD (and that is not apparently not a chelator). > I am also concerned about a low first morning > urinary creatinine level of 520. Other boards have > said this is terribly low and to be cautious because > their might be a kidney issue??<br> > <br> > Is 3 days on and 11 off a good time table for most > children? <br> > > *That's fine, or 3 on/4 off is also common among > those on this list. > > <br> > Thanks Andy - it feels good to know there is > someone out there that has answers I feel > comfortable with. <br> > <br> > Chris<br> > > _______________________________________________ > Join Excite! - http://www.excite.com > The most personalized portal on the Web! > > [Non-text portions of this message have been > removed] > > > > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Never Miss an Email Stay connected with on your mobile. Get started! http://mobile./services?promote=mail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 I've seen the biggest gains when using DMSA and ALA together. I haven't used just ALA yet. I added oral ALA after 9 months on TD- DMSA. I wish I had done it much, much sooner. The only reason not to start with ALA right away is if your child has recent mercury exposure from things like vaccines or amalgam removal. If so, wait 3 months. According to Andy, ALA is the critical chelator since it removes Hg from the brain. You can successfully chelate with ALA alone... and it is non-prescription. You can get it from any supplement store or health food store in doses as low as 25 mgs (Kirkman Labs). I've used tablets and capsules with my son. The taste is NOT GOOD. It irritates my throat immensely as well as my son's throat. I now use Kirkman's flavored ALA capsules which seems OK. If you don't want to go that route, tablet form seems to be better for us (kid doesn't swallow caps). I buy tabs and split them with a knife. Vrp.com for DMSA without a prescription. I've never done it, so I don't know how they do it. Pam > > <p>We are rank novices here and I just want to be sure since apparently there are risks if you do it wrong. <br> > <br> > Is it ok to chelate like I have been told beginning at the end of school day on Friday 4:00 p.m. and all the way through the weekend every 4 hrs ending on Monday morning before going back to school? That is not a full 3 days, is that close enough? <br> > > *Yes, and it's good that you are asking questions. > <br> > I'm still nervous so if I wanted to do half of a 25mg. dose every 4 hours would that be ok? > > *Depends on how much the individual weighs. > > Next question must it all be oral or is it ok to do TD at night when child is sleeping? And we have not chelated at all since all we have used thus far is NCD (and that is not apparently not a chelator). I am also concerned about a low first morning urinary creatinine level of 520. Other boards have said this is terribly low and to be cautious because their might be a kidney issue??<br> > <br> > Is 3 days on and 11 off a good time table for most children? <br> > > *That's fine, or 3 on/4 off is also common among those on this list. > > <br> > Thanks Andy - it feels good to know there is someone out there that has answers I feel comfortable with. <br> > <br> > Chris<br> > > _______________________________________________ > Join Excite! - http://www.excite.com > The most personalized portal on the Web! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 I buy my DMSA from www.vrp.com (Vitamin Research Products). Depends on what metals you're trying to chelate and when most recent exposure occurred. I'm mainly dealing with arsenic (down from off-the-charts-high to low yellow) and residual mercury (no longer meet counting rules) so I chelate most of the time with just ALA but every once in a while I order a bottle of DMSA since my lead is in the high green range and my cadmium is low yellow on the last hair test. (I'm chelating myself, not a child). As someone else mentioned, ALA chelates mercury (from body and brain) and arsenic. DMSA chelates mercury (from body but not brain) and lead. S S <p>Is DMSA a prescription only or where can I order it? Also do a lot of you add ALA or is that " down the road a piece for us? " <br> <br> Chris<br> _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
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