Re: anyone from PA/DE Area? - tenerelli1

[Guest guest]

We've seen a neurosurgeon at AI DuPont and we've seen a neurologist

at an office in Wilmington, DE. The neurosurgeon is the one that

gave us the script for the band and the neurologist is the one who is

ordering the brain scan. The neurologist thinks that the band won't

work and my son will have to have reconstructive surgery, but the

neurosurgeon never said anything about that.

I'm so confused!!! Lol

Stasia (mom to 4 months)

> Hi! We live in south Jersey (10 minutes over the bridge from PA)

and

> my son sees Dr. Bartlett (plastic surgeon) at Children's Hosp

> in Philadelphia. He's the one that sent us to Total Care Rehab in

> Havertown, PA for the Starband. Does everyone take their children

to

> a plastic surgeon, though?? 's neurologist (was monitoring

the

> torticollis) said to go to Dr. Bartlett, but a friend of mine who

is

> having her baby's plagiocephaly checked out was sent to a

> neurosurgeon, not a plastic surgeon. I guess there's a couple

> schools of thought. Hope this helps!

>

> Kass and - 8/16/00 - Starband since 1/6/01

[Guest guest]

> We've seen a neurosurgeon at AI DuPont and we've seen a neurologist

> at an office in Wilmington, DE. The neurosurgeon is the one that

> gave us the script for the band and the neurologist is the one who

is

> ordering the brain scan. The neurologist thinks that the band

won't

> work and my son will have to have reconstructive surgery, but the

> neurosurgeon never said anything about that.

Stasia,

Wow! It seems like you're already in the market for 2nd--and

3rd--opinions. From what I've read, when babies started showing up

with plagiocephaly in greater numbers, doctors at first thought they

all needed surgery because the only babies with plagio they'd seen

before all had craniosynostosis. Has craniosynostosis been ruled out?

I can't imagine your neurosurgeon would neglect doing that before

writing the prescription for the band. What does the neurosurgeon say

about the neurologist's fears?

Good luck--someone else recommended Dr. Bartlett at CHOP, and I'll

just add that I was glad we sought a second opinion from him.

, Conor's mom