Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 Suzanne - I wouldn't worry to much about the sleeping position once you get in the band. This will help round out the flat spot and keep from getting any worse. But you can rotate sleeping position, ends of crib and put favorite crib toys on the opposite side he likes to look at. Or even change the room around if need to. TV was also great or favorite toys for getting them to turn head. Please join torticolliskids if you haven't done so. Many have both tort and plagio. Recommend you try and plop up that head as much as possible in car seats, bouncy seats, etc. Work very hard on the home stretches and keep up with the weekly pt. ROM is the first thing you'll see and that tilt may haunt you till up and running. Tammy & 12/8/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 In a message dated 3/19/01 1:54:55 PM Pacific Standard Time, suzannemisciagna@... writes: He gets tense when I touch his neck and is starting to cry when we go for therapy. I think he is figuring it out! I have found several ways to distract him to help me get through the exercises though. I guess it is just hard to believe that the flat spot will ever go away. It is so pronounced that we worry about it every time we look at him. Suzanne Suzanne - Try doing the stretching while sleeping. Also try warm wash clothes. Also push that tummy time! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 Our son is four months old and has been diagnosed with severe plagio and torticollis. We are taking him for PT once a week and he will be wearing the Starband this week. One of our main problems has been trying to alter our son's sleeping position to prevent him from laying on the flat spot on the right side of his head. We have tried everything....receiving blankets rolled up near his head, the small boppy pillow around his neck, showing him toys on the left side where the flat spot is not present, etc. While we have noticed improvement from his PT exercises, his sleeping position, whether in the bouncy seat, car seat, or crib continues to be a problem. Last night we tried putting him to sleep on his side. It worked for a while but then he just cried and managed to roll onto his back again. Whatever we do to try and prevent him from sleeping on the flat side just seems to be pushed out of the way and then his head position reverts back to the flat side of his head. Any suggestions on how we can alter his sleeping position to keep him off the flat spot? I know the PT should help but from my understanding he helmet won't prevent him from sleeping in that position. On a more positive note, my husband and I are so grateful for this plagio group. Today I had the chance to explore the site in more detail. I looked up insurance help information and saw the adorable photos! We are thankful for the wealth of information available at our fingertips but also for the direct contact with other parents who have children with plagio. At least we know we are not alone. Suzanne ('s mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 Suzanne: Here are some tips for you... http://www.plagiocephaly.org/support/repositioning_techniques.htm Kendra in CanadaFor more plagio info, visitwww.plagiocephaly.org/support... ----- Original Message ----- From: suzannemisciagna@... Plagiocephaly Sent: Monday, March 19, 2001 10:17 AM Subject: sleeping position - any suggestions! Our son is four months old and has been diagnosed with severe plagio and torticollis. We are taking him for PT once a week and he will be wearing the Starband this week.One of our main problems has been trying to alter our son's sleeping position to prevent him from laying on the flat spot on the right side of his head. We have tried everything....receiving blankets rolled up near his head, the small boppy pillow around his neck, showing him toys on the left side where the flat spot is not present, etc. While we have noticed improvement from his PT exercises, his sleeping position, whether in the bouncy seat, car seat, or crib continues to be a problem. Last night we tried putting him to sleep on his side. It worked for a while but then he just cried and managed to roll onto his back again. Whatever we do to try and prevent him from sleeping on the flat side just seems to be pushed out of the way and then his head position reverts back to the flat side of his head.Any suggestions on how we can alter his sleeping position to keep him off the flat spot? I know the PT should help but from my understanding he helmet won't prevent him from sleeping in that position.On a more positive note, my husband and I are so grateful for this plagio group. Today I had the chance to explore the site in more detail. I looked up insurance help information and saw the adorable photos! We are thankful for the wealth of information available at our fingertips but also for the direct contact with other parents who have children with plagio. At least we know we are not alone.Suzanne ('s mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 Thanks for the tip about torticolliskids. We will join! -----Original Message-----From: bailykuhn@... [mailto:bailykuhn@...]Sent: Monday, March 19, 2001 3:22 PMPlagiocephaly Subject: Re: sleeping position - any suggestions!Suzanne - I wouldn't worry to much about the sleeping position once you get in the band. This will help round out the flat spot and keep from getting any worse. But you can rotate sleeping position, ends of crib and put favorite crib toys on the opposite side he likes to look at. Or even change the room around if need to. TV was also great or favorite toys for getting them to turn head. Please join torticolliskids if you haven't done so. Many have both tort and plagio. Recommend you try and plop up that head as much as possible in car seats, bouncy seats, etc. Work very hard on the home stretches and keep up with the weekly pt. ROM is the first thing you'll see and that tilt may haunt you till up and running. Tammy & 12/8/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 Thanks for your message. We wished we were told from the beginning about repositioning of th head. It probably could have prevented the severe flat spot our son has. I've shared our story with friends and family so they are aware. What worked best for your daughter? I do the PT exercises at home too. But, lateley it seems that he is aware of what is going on. He gets tense when I touch his neck and is starting to cry when we go for therapy. I think he is figuring it out! I have found several ways to distract him to help me get through the exercises though. I guess it is just hard to believe that the flat spot will ever go away. It is so pronounced that we worry about it every time we look at him. Suzanne -----Original Message----- From: marcisch@... [mailto:marcisch@...] Sent: Monday, March 19, 2001 3:07 PM Plagiocephaly Subject: Re: sleeping position - any suggestions! Suzanne, Welcome to the group - I'm glad you found us!! I think you will get some good suggestions for repositioning. That is something that we did not try because noone ever told us about it! We just never even thought about it! had tort and always slept with her head facing one way no matter how hard we tried to convince her otherwise. That has been resolved now and she sleeps ALL over her crib - on her side, back and tummy and in every square inch of the crib! LOL In the files section there is a file called " repositioning tricks " (I think that is what it is called) that might have some helpful suggestions. You can also go to the messages section and look at post numbers 14223 and14179. Those two posts reference two internet sites that sell items that are supposed to help with repositioning and back sleeping. Welcome to the group - I hope you will find it to be as big a source of support as I have. Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
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