Re: Mom who wrote Perspective email...

March 15, 2001

Kass - I too would like to apologize if I came off sounding harsh - I have

had a bad " eye " week and I know exactly how you must feel. I am sure the

Eczema is frustrating especially when doctors and maybe friends and family

don't see it as a big deal. I am sorry that you have to deal with that.

(especially with the 2!!! Yikes!)

Anyway no need to delete a message - sometimes it does put things in

perspective for me anyway. I am thankful my boy is healthy and I know it is

probably cosmetic. It is ok that you reminded me. Glad that you joined and

so glad that your baby is getting treatment at such a young age!

Amy (Max's mom)

March 15, 2001

Thanks for the explanation Kass! I was totally confused - I'm glad I'm not

losing what's left of my mind - LOL

Thanks for your post about your post. :-) I really am glad that you are here

and you are right - I thank God everyday for my little blessing and just by

the fact that she made it into the world despite the bad odds she was given

makes me thankful everyday to have her! As I tell myself all the time - if

this is the worst thing we have to go through with I will be thankful -

at least we can actively do something to help her! Still, I do have my ups

and downs, but keeping it in perspective does help!

Thanks for the explanation - I am really glad you are here and totally NOT

offended by your first post!

Marci (Mom to )

Oklahoma

March 15, 2001

Amy...I'm so glad you responded, because I want to make sure that you

know that I completely understand your feelings. You know what I

think the biggest thing I've learned over the past couple of months

is?? It's ok to cry (and cry) about it. It's sooo therapeutic. I,

too, worry that my boys will be teased (about their skin - I'm hoping

's head rounds out ok) when their older. The one thing I do

remember growing up is that most kids get teased about

something...some feature about them that makes them different. I'm

know by then I'll be strong enough to help my children through it. I

know you love your child and that love will give them all the self-

esteem they need! Hang in there!

> Kass - I too would like to apologize if I came off sounding harsh -

I have

> had a bad " eye " week and I know exactly how you must feel. I am

sure the

> Eczema is frustrating especially when doctors and maybe friends and

family

> don't see it as a big deal. I am sorry that you have to deal with

that.

> (especially with the 2!!! Yikes!)

> Anyway no need to delete a message - sometimes it does put things

in

> perspective for me anyway. I am thankful my boy is healthy and I

know it is

> probably cosmetic. It is ok that you reminded me. Glad that you

joined and

> so glad that your baby is getting treatment at such a young age!

>

> Amy (Max's mom)

March 15, 2001

OK .... I am so curious now. LOL what was the perspective email ... I

missed it

Here is another eczema idea for you.... my daughter had eczema that

would not respond to hydrocortisone creams at all. However it did

respond to evening primrose oil. We weren't given the recommendation

until she was 5yo and by then had to have large parts of her arms and

legs bandaged as she would scratch until she bled (and then still

scratch). She took one capsule a day (she would bite them and suck out

the oil but for someone younger you would have to cut them and squeeze

the oil onto something. She went from no improvement in 5 years to not

scratching within a month and skin back to normal in less than 2 months.

-----Original Message-----

From: tenerelli1@... [mailto:tenerelli1@...]

Sent: Friday, 16 March 2001 1:27

Plagiocephaly

Subject: Mom who wrote " Perspective " email...

Hello All! I just wanted to explain what happened to

my " Perspective " email. After I read what I had written I was so

terribly worried that it came across condescending which was NOT my

intention at all - so I deleted it. I thought that some may think

that I'm saying that no plagiocephaly parents should complain at all

or be worried or be sad. That was sooooo not my intention. I'm a

new member and I didn't want to upset anyone with my thoughts and get

started on the wrong foot. I completely share in all of your worries

about the condition and I completely sympathize with people that have

to deal with the many frustrations that go along with it. I am very

lucky in that 's condition was diagnosed early (4 mos) by his

ped and so far the helmet is really doing the job.

All I know is that sometimes when I'm really down about their eczema,

my husband reminds me about how healthy they both really are and how

some people are dealing with things much worse and it really really

makes me feel lucky and blessed to have them generally healthy. That

was my intention - to just let you know that when you really get down

about the condition and allllll of it's frustrations, just look at

your child's face (and that killer smile with that helmet on!) and

know how blessed you are to have a healthy beautiful child.

I hope this posting better reflects my thoughts. Sorry for the

confusion.

Kass - Mom to (8/16/00, Starband on since 1/6/01)

March 15, 2001

Thank you Kass, and welcome!

Kendra in CanadaFor more plagio info, visitwww.plagiocephaly.org/support...

----- Original Message -----

From: tenerelli1@...

Plagiocephaly

Sent: Thursday, March 15, 2001 7:27 AM

Subject: Mom who wrote "Perspective" email...

Hello All! I just wanted to explain what happened to my "Perspective" email. After I read what I had written I was so terribly worried that it came across condescending which was NOT my intention at all - so I deleted it. I thought that some may think that I'm saying that no plagiocephaly parents should complain at all or be worried or be sad. That was sooooo not my intention. I'm a new member and I didn't want to upset anyone with my thoughts and get started on the wrong foot. I completely share in all of your worries about the condition and I completely sympathize with people that have to deal with the many frustrations that go along with it. I am very lucky in that 's condition was diagnosed early (4 mos) by his ped and so far the helmet is really doing the job. All I know is that sometimes when I'm really down about their eczema, my husband reminds me about how healthy they both really are and how some people are dealing with things much worse and it really really makes me feel lucky and blessed to have them generally healthy. That was my intention - to just let you know that when you really get down about the condition and allllll of it's frustrations, just look at your child's face (and that killer smile with that helmet on!) and know how blessed you are to have a healthy beautiful child.I hope this posting better reflects my thoughts. Sorry for the confusion.Kass - Mom to (8/16/00, Starband on since 1/6/01)

March 15, 2001

Hey, I should try that for myself. I have always had eczema behind my ears

and now it's crept up on my scalp. Gross. So these are sold in health

stores? And you suck the oil out from the capsule?

-----Original Message-----

From: Joanne Hibble [mailto:joanne@...]

Sent: Thursday, March 15, 2001 12:02 PM

Plagiocephaly

Subject: RE: Mom who wrote " Perspective " email...