Guest guest Posted July 18, 2007 Report Share Posted July 18, 2007 If you are interested in seeing a DAN! doc you may have to travel. Or you could do phone consults. Many DAN! docs do those. Pamela " Courage is doing what you're afraid to do. There can be no courage unless you're scared. " Eddie Rickenbacker, top US fighter ace, WWI _____ From: [mailto: ] On Behalf Of shaddie_2 Sent: Wednesday, July 18, 2007 4:44 PM Subject: [ ] Blood test for mercury?? Hi again... I'm a bit puzzled as my sons nutrition doc (not DAN, none here) has sent him for a blood test to find out if he has any mercury in his system. We've already done a few months of ala/dmsa with some improvements but scary yeast battles but he says this is for a different type of mercury. I thought blood would only show a recent heavy exposure? We're presuming most of his has come from my teeth as he hasn't been exposed to anything else we know of, no vaccines etc. If the test comes back positive he wants to use cilantro and chlorella next. Any thoughts on this?? Sx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2007 Report Share Posted July 18, 2007 > > Hi again... > I'm a bit puzzled as my sons nutrition doc (not DAN, none here) has > sent him for a blood test to find out if he has any mercury in his > system. We've already done a few months of ala/dmsa with some > improvements If you are seeing improvements with ala/dmsa you already know he has a toxicity problem without any further testing. What protocol are you using for chelation? What doses and timing? but scary yeast battles but he says this is for a > different type of mercury. I thought blood would only show a recent > heavy exposure? We're presuming most of his has come from my teeth as > he hasn't been exposed to anything else we know of, no vaccines etc. >If > the test comes back positive he wants to use cilantro and chlorella > next. The test probably won't come back positive. The fact that he thinks about using cilantro and chlorella shows that this guy doesn't understand chelation. These will make your son worse. Check the FAQ and use onibasu.com to search the archives. J Any thoughts on this?? Sx > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2007 Report Share Posted July 20, 2007 Thanks for your replies. It's very disappointing- this guy is the closest we have found to a DAN doc in the country and I was hoping he'd help me figure it all out as my toxic brain really struggles even to remember to give D his supplements most days ( We'd have to go abroad to see a DAN doc and then how do I know he/she'll be good? He's a really nice and experienced doc who really listens and seems to care so I'm torn between taking all this stuff to discuss with him or just cutting and running now. Maybe if I get myself straight I'll be able to focus on the job in hand and make progress. I know he could be doing better. Thanks for listening. Sx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2007 Report Share Posted July 20, 2007 Thanks for your replies. It's very disappointing- this guy is the closest we have found to a DAN doc in the country and I was hoping he'd help me figure it all out as my toxic brain really struggles even to remember to give D his supplements most days ( We'd have to go abroad to see a DAN doc and then how do I know he/she'll be good? He's a really nice and experienced doc who really listens and seems to care so I'm torn between taking all this stuff to discuss with him or just cutting and running now. Maybe if I get myself straight I'll be able to focus on the job in hand and make progress. I know he could be doing better. Thanks for listening. Sx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2007 Report Share Posted July 20, 2007 > > Hi again... > I'm a bit puzzled as my sons nutrition doc (not DAN, none here) has > sent him for a blood test to find out if he has any mercury in his > system. We've already done a few months of ala/dmsa with some > improvements but scary yeast battles but he says this is for a > different type of mercury. I thought blood would only show a recent > heavy exposure? We're presuming most of his has come from my teeth as > he hasn't been exposed to anything else we know of, no vaccines etc. If > the test comes back positive he wants to use cilantro and chlorella > next. Any thoughts on this?? Sx > Dear Shaddie: I have heard of Chlorella and Cilantro, its from Dr. Klinghardt. Anyhow, he says use chlorella for a while like a month or more before using Cilantro. But that is all I know. Anyhow, my son's Dan Doctor and other Dan doctor's can treat your child totally over the phone. They use particular labs and can send you the kits that you can take to any lab to get the blood drawn or you can get the specimen yourself -- sometimes it is urine or feces -- and then mail it off. I know all this is very difficult to decide but just keep researching keywords on the web and reading forums and you will be able to learn of what decisions to make. And keep asking questions on these forums. I do have a question for you. You say your child never received vaccines. When did your son first have symptoms? Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2007 Report Share Posted July 21, 2007 Blood tests not reliable indicator of mercury body burden or mercury toxicity. Better tests are available. DAMS FS17. www.home.earthlink.net/~berniew1/damspr17.html Bernie, DAMS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2007 Report Share Posted July 21, 2007 >>Thanks for your replies. It's very disappointing- this guy is the closest we have found to a DAN doc in the country and I was hoping he'd help me figure it all out as my toxic brain really struggles even to remember to give D his supplements most days ( We'd have to go abroad to see a DAN doc and then how do I know he/she'll be good? My personal opinion: If you can't find a doctor who can do you any good, then you go it " alone " , doing the research and relying on lists like this one. If the doctors you go to are doing more harm than good, why spend the time, money and energy on them instead of on something you know works? The money (and time) spent on going abroad could be better spent on detoxing yourself so you can focus better and do a better job for your child. I understand why a lot of people want a doctor to back them up -- and if you can find a good doctor who is useful to you, great! But it bothers me to see how so many people fear making their own decisions in spite of clear evidence that what they are doing is working and what the doctor is offering will be trouble. As for cilantro, I chelated with cilantro. I didn't know it was a chelator when I began consuming it regularly. I only knew I felt better when I ate at a particular restaurant for lunch. Eventually, I had to stop eating there -- I have had several teeth removed that had large fillings in them but I have never had the fillings in remaining teeth replaced. At some point, eating cilantro began to leach metals from the dental work in my mouth and make me sick. So I know cilantro is a chelator but I have not seen good info on how to use it safely and effectively. As far as I know, it is a bit of a gamble to use. I actually have a discussion board which I own (which I haven't even visited myself in many weeks) and have considered supporting discussion of cilantro chelation there because of my experiences with it and because the topic comes up on this forum so regularly. However, I would not feel comfortable encouraging someone to experiment on their child. I was taking it myself and trying to figure out WHY it was helping me when I was coincidentally referred to this list for completely unrelated reasons -- I mean, it is not like I asked around about the food I was eating and was told directly " oh, join this list ... " Anyway, just kind of rambling. In short, I am probably the most positive voice on this list for cilantro and I would not encourage its use on a child under the supervision of a doctor who seems to not know what he is doing. Peace -- Michele talithamichele@... http://www.atraceofme.com If the base leaves, everybody loses: http://www.solanorail.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2007 Report Share Posted July 22, 2007 Hi, Heidi- my son has fragile X syndrome as well as all this so I'm kind of presuming the issues are not linked and aiming to 'treat' his 'autistic symptoms'. It makes it kind of hard to pinpoint a time it started though but I'd say soon after he started on solids. He was breastfed exclusively for 26weeks then gradually introduced solids and things went downhill from there. He had slept 8 hours a night until then and suddenly it was all out the window and he was distraught at night. I can look back and say it was soon after he had his first dairy (only organic yoghurt and a tiny bit of milk in cooking, he never had a bottle) With regard to milestones he was late in a lot of things but these are probably more the fragile x which I have no delusions of thinking I can 'cure' him of but I will certainly do all I can to help him. Someone suggested getting Andys book and not to be afraid of taking responsibility myself for all this if the doc isn't working out- well I've been doing it for the last 2 and a half years now since starting gfcfsf and I have the book but find it really hard to read because my concentration is so poor. It's much easier to process the small bursts of information on these sites. I'm doing my best here but freely admit that I am fumbling along and if I can find a doc that will help me get my son better faster then yes please!! Thanks for your replies, Sx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2007 Report Share Posted July 22, 2007 > > Hi, > Heidi- my son has fragile X syndrome as well as all this so I'm kind > of presuming the issues are not linked and aiming to 'treat' > his 'autistic symptoms'. It makes it kind of hard to pinpoint a time > it started though but I'd say soon after he started on solids. He was > breastfed exclusively for 26weeks then gradually introduced solids > and things went downhill from there. He had slept 8 hours a night > until then and suddenly it was all out the window and he was > distraught at night. I can look back and say it was soon after he had > his first dairy (only organic yoghurt and a tiny bit of milk in > cooking, he never had a bottle) With regard to milestones he was late > in a lot of things but these are probably more the fragile x which I > have no delusions of thinking I can 'cure' him of but I will > certainly do all I can to help him. > > Someone suggested getting Andys book and not to be afraid of taking > responsibility myself for all this if the doc isn't working out- well > I've been doing it for the last 2 and a half years now since starting > gfcfsf and I have the book but find it really hard to read because my > concentration is so poor. It's much easier to process the small > bursts of information on these sites. I'm doing my best here but > freely admit that I am fumbling along and if I can find a doc that > will help me get my son better faster then yes please!! > Thanks for your replies, Sx > Dear Shaddie: Even though your son has a genetic contribution to his symptoms, I think he can be helped. He may need nutritional supplements or diet restrictions his entire life, but they may make a big difference in his symptoms. I did some reading and there is a wide variance of symptoms pertaining to individuals with fragile X, meaning that other things than just the genetic component are involved in creating the symptoms. I recommend trying to get a doctor, like a homeopath, naturopath, or Dan Doctor who can research fragile X effects to assist you if you can afford it. Some take payments, and some offer financial assistance, and many treat your child over the phone. In the mean time, try nutritional supplements, amino acids, digestive enzymes, and antioxidants. Of course research them well and ask forum members what they recommend. You say his symptoms started with solid food, well that's a good start. Most of our children have difficulty with dairy and wheat. You can read up on GF/CF diets. If you believe, you will make the effort, and then you can achieve. Heidi Quote Link to comment Share on other sites More sharing options...
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