How many kids are totally healed by chelation?

[Guest guest]

I was a bit disapointed in reading the files about how long some people

have had to chelate. I would love to hear about some success stories.

What results are you getting?

TIA

http://autismshare.com

[Guest guest]

I posted an update a few weeks back, it is really long. You may find

it interesting!

>

> I was a bit disapointed in reading the files about how long some

people

> have had to chelate. I would love to hear about some success

stories.

> What results are you getting?

> TIA

>

> http://autismshare.com

>

[Guest guest]

I would say ours has done very well. She lost her dx, is in a regular

kindergarten with no aide and doing beautifully academically and socially.

Ironically she was just picked to be a " peer modeler " for the special education

class. In other words she will be modeling NT behavior for ASD kids....who would

have ever thought it was possible?

[ ] Re: How many kids are totally healed by chelation?

I posted an update a few weeks back, it is really long. You may find

it interesting!

>

> I was a bit disapointed in reading the files about how long some

people

> have had to chelate. I would love to hear about some success

stories.

> What results are you getting?

> TIA

>

> http://autismshare.com

>

[Guest guest]

Look up the post " Positive Update " I posted it a few weeks back in

regards to my son's recovery. Kids do get better, but you have to

remember chelation takes at a minimum one year, usually three,

sometimes more. They did not get poisoned in one month, and it takes a

while because it has to be done slowly. But it does work!

[Guest guest]

>

> I was a bit disapointed in reading the files about how long some people

> have had to chelate.

For my kids, it took 2-1/4 years of chelating almost every weekend.

It was not the chelation, per se, that recovered my kids. It was the

supplements they tolerated AFTER chelation that caused the improvements.

>>I would love to hear about some success stories.

> What results are you getting?

Here is a page of recovery stories

http://www.danasview.net/recover.htm

Dana

[Guest guest]

My son is transformed. He chelated a year, and he turns 18 next month. He has

learned all kinds of independant living skills, he is conversational where he

used to be saying " need food " like a caveman and that was about his extent of

communication and he did that while staring at the computer screen. We get full

on eye contact deep conversations now.

It went from my husband and I thinking about caring for him into his adulthood,

to us worrying about him moving away from home because he doesn't have very much

experience with his newfound skills. He has a girlfriend he met online who

lives 12 hours away, they spend 8 hours a day on the phone! We are going to San

so they can meet next month. He bathes now. He is so much more normal

and functional. I don't think he is finished chelating yet, and he has a long

way to go, but for the last 2 months he was living at a friends house again and

didn't take the supplements I sent with him. Thing is, now he doesn't come home

for visits worse when he doesn't take his supplements. He doesn't regress. He

wants to continue his treatment with a " doctor " . Whatever! We are waiting

for his insurance to change so the chelation doctor will be covered.

[Guest guest]

Just want to clarify something. SOmeone correct me if you disagree.

Kids are NOT " totally healed by chelation " .

Rather, they are healed by chelation and a great deal of supplementation AND

therapy.

I would hate for readers (especailly new readers) to think that chelation by

itself can totally cure autism.

Axe <badaboom@...> wrote:

My son is transformed. He chelated a year, and he turns 18 next month.

He has learned all kinds of independant living skills, he is conversational

where he used to be saying " need food " like a caveman and that was about his

extent of communication and he did that while staring at the computer screen. We

get full on eye contact deep conversations now.

It went from my husband and I thinking about caring for him into his adulthood,

to us worrying about him moving away from home because he doesn't have very much

experience with his newfound skills. He has a girlfriend he met online who lives

12 hours away, they spend 8 hours a day on the phone! We are going to San

so they can meet next month. He bathes now. He is so much more normal

and functional. I don't think he is finished chelating yet, and he has a long

way to go, but for the last 2 months he was living at a friends house again and

didn't take the supplements I sent with him. Thing is, now he doesn't come home

for visits worse when he doesn't take his supplements. He doesn't regress. He

wants to continue his treatment with a " doctor " . Whatever! We are waiting for

his insurance to change so the chelation doctor will be covered.

[Guest guest]

--- In

MY son starts DMSA next week our DAN dr says if we not happy with

progress after 28 days he would consider SECRETIN i dont think this

sounds right what do you think.. He didnt explain that chelation

could take many many cycles.. He is giving B12 with the DMSA is this

ok.. THANKS AGAIN..

> My son is transformed. He chelated a year, and he turns

18 next month. He has learned all kinds of independant living

skills, he is conversational where he used to be saying " need food "

like a caveman and that was about his extent of communication and he

did that while staring at the computer screen. We get full on eye

contact deep conversations now.

>

> It went from my husband and I thinking about caring for him into

his adulthood, to us worrying about him moving away from home

because he doesn't have very much experience with his newfound

skills. He has a girlfriend he met online who lives 12 hours away,

they spend 8 hours a day on the phone! We are going to San

so they can meet next month. He bathes now. He is so much more

normal and functional. I don't think he is finished chelating yet,

and he has a long way to go, but for the last 2 months he was living

at a friends house again and didn't take the supplements I sent with

him. Thing is, now he doesn't come home for visits worse when he

doesn't take his supplements. He doesn't regress. He wants to

continue his treatment with a " doctor " . Whatever! We are waiting for

his insurance to change so the chelation doctor will be covered.

>

>

>

>

[Guest guest]

shelly...your post has encouraged me.. christos is 15.5 and I often wonder if I

do the chelation.. would it not be affective at this stage in his life... best

wishes.. Lia

Axe <badaboom@...> wrote: My son is transformed. He

chelated a year, and he turns 18 next month. He has learned all kinds of

independant living skills, he is conversational where he used to be saying " need

food " like a caveman and that was about his extent of communication and he did

that while staring at the computer screen. We get full on eye contact deep

conversations now.

It went from my husband and I thinking about caring for him into his adulthood,

to us worrying about him moving away from home because he doesn't have very much

experience with his newfound skills. He has a girlfriend he met online who lives

12 hours away, they spend 8 hours a day on the phone! We are going to San

so they can meet next month. He bathes now. He is so much more normal

and functional. I don't think he is finished chelating yet, and he has a long

way to go, but for the last 2 months he was living at a friends house again and

didn't take the supplements I sent with him. Thing is, now he doesn't come home

for visits worse when he doesn't take his supplements. He doesn't regress. He

wants to continue his treatment with a " doctor " . Whatever! We are waiting for

his insurance to change so the chelation doctor will be covered.

[Guest guest]

,

What type of chelating agents did you use? Thanks!

>

> My son is transformed. He chelated a year, and he turns 18 next

month. He has learned all kinds of independant living skills, he is

conversational where he used to be saying " need food " like a caveman

and that was about his extent of communication and he did that while

staring at the computer screen. We get full on eye contact deep

conversations now.

>

> It went from my husband and I thinking about caring for him into

his adulthood, to us worrying about him moving away from home because

he doesn't have very much experience with his newfound skills. He

has a girlfriend he met online who lives 12 hours away, they spend 8

hours a day on the phone! We are going to San so they can

meet next month. He bathes now. He is so much more normal and

functional. I don't think he is finished chelating yet, and he has a

long way to go, but for the last 2 months he was living at a friends

house again and didn't take the supplements I sent with him. Thing

is, now he doesn't come home for visits worse when he doesn't take

his supplements. He doesn't regress. He wants to continue his

treatment with a " doctor " . Whatever! We are waiting for his

insurance to change so the chelation doctor will be covered.

>

>

>

>

[Guest guest]

Yes, it was the supplements, and chelation, and as my cousin reminds us, quite a

bit of working our butts off bribing/motivating/and even threatening to get him

to learn basic life skills. Once he learned them though, now he performs the

life skills on his own and is learning new skills on his own. We struggled

teaching him basic skills like bathing himself, shaving, handwashing, leaving

the house, clipping his nails, cleaning under his nails, and combing his hair.

Now he bathes and does most of these things without being prompted. He taught

himself how to make a sandwich and put food in the microwave. So the skills

are building on each other now and he is learning how to do things on his own.

Just now, he said, mom, I need you to get me this, this and that from the store

because I am running low. He makes his own food. It used to be that we would

have to list off foods for a half an hour before he would find something he

could eat, and then we would have to bring it to him.

He was in another world though, without much eye contact or communication.

Chelation and supplements brought him out of that so that the work of teaching

him skills could even be possible.

[Guest guest]

Hi ,

You should not be disapointed that it is long. What is a couple of

years in a life time? It is so worth it.

My son has lost his diagnosis (severe autism). We chelated for almost 3

years, from age 2 to age 5, Andy's protocol, oral ALA and DMSA. We also

did lots of supplements, enzymes, diets, epsom salt bath, anti-virals...

He is in kindergarten, no aide, nothing, and he is doing great!

I just cannot imagine where he would be today if we had not spent the

time investigating and doing all the biomed we did!

Good luck!

>

> I was a bit disapointed in reading the files about how long some

people

> have had to chelate. I would love to hear about some success stories.

> What results are you getting?

> TIA

>

> http://autismshare.com

>

[Guest guest]

It's really good to hear all these stories cause lately I feel like

all this recovery thing is not possible. My son is 3, we've been doing

biomedical for over a year and I can't say that a lot has changed. He

wasn't metal tested yet. We did the diet ( no big change, MB12 shots

-a little change, antyviral therapy - small changes but also some

regression. I feel very dissapointed especially that his doesn't speak

nor understand anything I say to him and is rather severe.

Thank you guys for that hope you give me.

> >

> > I was a bit disapointed in reading the files about how long some

> people

> > have had to chelate. I would love to hear about some success stories.

> > What results are you getting?

> > TIA

> >

> > http://autismshare.com

> >

>

[Guest guest]

Our son was very severe when we first got started on him Jan 06. Our

son couldn't speak at all and had lost almost all eye contact.

Today....he is 60% recovered. He just turned 3 Jan 2, 07. This is

the hardest road that I've ever had to personally walk down, but to

see our son now as compared to Jan 06...it's nothing short of a

miracle. Don't give up...you can do it just like we did and just

like other mothers and fathers have done. It's takes being very

consistant and persistant.

Anjellica, Ian's mom & advocate

> > >

> > > I was a bit disapointed in reading the files about how long

some

> > people

> > > have had to chelate. I would love to hear about some success

stories.

> > > What results are you getting?

> > > TIA

> > >

> > > http://autismshare.com

> > >

> >

>

[Guest guest]

Get a box of tissues and go to www.generationrescue.org

<http://www.generationrescue.org> and to to the testimonials pages.

Also see some amazing videos at

http://www.childrenscornerschool.com/recoveries.htm

<http://www.childrenscornerschool.com/recoveries.htm>

Whenever I need a boost of hope, I look at the amazing successes other

families have had.

Holly,

Mom of Quinn, age 4, recovering from autism

>

> I was a bit disapointed in reading the files about how long some

people

> have had to chelate. I would love to hear about some success stories.

> What results are you getting?

> TIA

>

> http://autismshare.com

>

[Guest guest]

Remember that this is a marathon, not a sprint! We didn't start my son on this

path until he was 20!!!!!

All of us have done a lot of trial and error to figure out which chelators,

supplements, etc. work for our kids. We did SIX YEARS of working at getting

arsenic down--it's finally there!!! I'm glad because left in the body it can

lead to cancer.

Now we're getting more mercury out as well as aluminum and lead.

Yes, we're tired, but we go on . . .

Barb

[ ] Re: How many kids are totally healed by chelation?

It's really good to hear all these stories cause lately I feel like

all this recovery thing is not possible. My son is 3, we've been doing

biomedical for over a year and I can't say that a lot has changed. He

wasn't metal tested yet. We did the diet ( no big change, MB12 shots

-a little change, antyviral therapy - small changes but also some

regression. I feel very dissapointed especially that his doesn't speak

nor understand anything I say to him and is rather severe.

Thank you guys for that hope you give me.

> >

> > I was a bit disapointed in reading the files about how long some

> people

> > have had to chelate. I would love to hear about some success stories.

> > What results are you getting?

> > TIA

> >

> > http://autismshare.com

> >

>

[Guest guest]

We used the Andy Cutler method of chelation, support from this group, and high

doses of zinc and cod liver oil and lots of other supplements.

Our chelators were DMSA, then after a couple of months we added in ALA. We

started supplements first for a month, then began chelation at 1/4 mg per lb of

body weight. At this point he is approx 150 lbs and using 100mg of Dmsa/ala

when he chelates. We were using a pfeiffer protocol amount of zinc on him for a

12 months at least. He continued to respond to high doses of zinc up until 2 mo

ago when he quit.

We did the antivirals on our youngest and the shedding made everyone else in the

house sick during the entire antiviral trial. Finally I got most of us on

antivirals ourselves so we would stop getting sick too. In the meantime, he

caught a sore throat and cough and choked on a pill and now we have to get over

that choking incident because he tends to get ocd fears when bad things

happen....ie almost drown=fear of water, choke on pill=fear of

pill....Chelation, cod liver oil and zinc had taken away his ocd fears

completely, but this pill fear is putting him in a catch 22.

[Guest guest]

DDI Hair element tests are discounted this month. You can order them yourself

w/o a doc through Direct Lab Services. By " the " diet I presume you mean GFCF?

How long did you try it?

www.danasview.net has info about what helped at least one of her kids with

speech. Are you working on sign or PECS while continuing to work on speech? I

would recommend doing so.

What supps, if any are you currently using/have you tried in the past besides

the MB12? You know that B12 requires folic/folinic acid in order to work

properly? Please describe what antiviral protocol you tried. Did you child

develop typically and then regress or appear to have challenges from the

beginning?

S S

It's really good to hear all these stories cause lately I feel like

all this recovery thing is not possible. My son is 3, we've been doing

biomedical for over a year and I can't say that a lot has changed. He

wasn't metal tested yet. We did the diet ( no big change, MB12 shots

-a little change, antyviral therapy - small changes but also some

regression. I feel very dissapointed especially that his doesn't speak

nor understand anything I say to him and is rather severe.

Thank you guys for that hope you give me.

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

I presume your son has NO mercury amalgam dental fillings...What dose and dosing

schedule is our DAN recommending? Many DAN docs prescribe inappropriately high

and infrequent dosing which causes redistribution of mercury into the brain.

Have you done a hair test and applied counting rules? What did that show? BTW,

you'll eventually need ALA to chelate mercury out of the brain but it's ok to

start with DMSA providing he has NO mercury amalgam fillings. Does the DMSA

he's prescribing contain glutathione (it causes problems for many people)? Yes,

it can take many rounds.

S S

--- In

MY son starts DMSA next week our DAN dr says if we not happy with

progress after 28 days he would consider SECRETIN i dont think this

sounds right what do you think.. He didnt explain that chelation

could take many many cycles.. He is giving B12 with the DMSA is this

ok.. THANKS AGAIN..

>

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

[Guest guest]

Thank you . OK. Kacper had a little, not noticable signs from the

beggining but he was developing fine (he even had 80 words vocabulary,

he was social etc. and then at 18 months he regressed rapidly after

antibiotic Omnicef. He lost all words in about half a year period.

He started casein free diet in March 2006 and it helped a little. A

month later he started gluten, soy, corn, nuts, dyes, preservatives

diet and it didnt make any difference so I took him of it in November

2006 - no change. I still keep him casein free. We began MB12 shots

in March 2006 , it was not working until I added folic acid. After

that I saw little changes, but I'm sure he is different from it. My

son receives a lot of therapies, among them speech but it doesn't help

at all. Lately ( a week ago) I started giving him carnitine + EPA, EFA

and he babbles a little now. We tried PESC, sign language - it doesnt

work at all. We also use multivitamin Our Kids, enzymes, calcium,

colostrum, probiotics, and he is on antiviral protocol which includes

OLE 1000 mg, vit C 800 mg, vit A palmitate 10000 IU, candidase+

virastop 3 X day. ( He is 41 lb) For a couple of months he was on

diflucan, GSE, we saw no progress.TD glutathine for over a year - no

change. Now I'm changing DAn doctor, I'm looking forward to do it. I

really hope he has some metal issues otherwise I don't know what to do

next. His communication is on 6 m.o. child level according to latest

test, cognitive at 12 mo., social 15m.o., adaptive at 18 m.o and

phisical at 24 m.o. child level and my son is 3.3 years old. Uff...

..--- , " Shepard Salzer "

<_Shepard@...> wrote:

>

>

> DDI Hair element tests are discounted this month. You can order

them yourself w/o a doc through Direct Lab Services. By " the " diet I

presume you mean GFCF? How long did you try it?

>

> www.danasview.net has info about what helped at least one of her

kids with speech. Are you working on sign or PECS while continuing to

work on speech? I would recommend doing so.

>

> What supps, if any are you currently using/have you tried in the

past besides the MB12? You know that B12 requires folic/folinic acid

in order to work properly? Please describe what antiviral protocol

you tried. Did you child develop typically and then regress or appear

to have challenges from the beginning?

> S S

>

>

>

>

>

>

>

> It's really good to hear all these stories cause lately

I feel like

> all this recovery thing is not possible. My son is 3, we've been doing

> biomedical for over a year and I can't say that a lot has changed. He

> wasn't metal tested yet. We did the diet ( no big change, MB12 shots

> -a little change, antyviral therapy - small changes but also some

> regression. I feel very dissapointed especially that his doesn't speak

> nor understand anything I say to him and is rather severe.

> Thank you guys for that hope you give me.

>

>

>

> _______________________________________________

> Join Excite! - http://www.excite.com

> The most personalized portal on the Web!

>

[Guest guest]

> >

> > I was a bit disapointed in reading the files about how long some

> people

> > have had to chelate. I would love to hear about some success

stories.

> > What results are you getting?

> > TIA

> >

> > http://autismshare.com

> >

>

>

>

>

>

[Guest guest]

> >

> > I was a bit disapointed in reading the files about how long some

> people

> > have had to chelate. I would love to hear about some success

stories.

> > What results are you getting?

> > TIA

> >

> > http://autismshare.com

> >

>

>

>

>

>

[Guest guest]

I lived on this list from late 2000 thru late 2002. We began

chelating our son just before his 3rd birthday in June 2001. His

chelation lasted 8 months when the doc decided we should give him a

little break. After a few months, a fecal test showed that his body

continued to reduce the heavy metal load without chelation, so we

stopped. During his 8 months of chelation, he showed marked

improvement each week. Sometimes cognitive, sometimes speech,

sometimes fine motor, etc. He was receiving Discrete trial training

throughout. We opted to move him to a typical pre-school with a

shadow when he was 4. By the time he reached kindergarten, he had

officially graduated from DTT training; the first graduate they ever

had! Within a month of kindergarten, his speech therapist said he had

nothing to give my son that he did not already have. For the first

time since his diagnosis, he required no therapies. My wife and I

went to the kindergarten playground each day to help teach him the

fine art of playground behavior (initiating play, asking to join in,

etc.) as he did not get this during what would have been normal social

development. That lasted a few months. He is now a few months away

from his 9th birthday and has been considered cured since that time,

though we dared not speak it until he first entered 1st grade. He now

has many friends, acts very appropriately for a 9 year old and will be

testing for entry into the GATE program (an accelerated class for

gifted children).

Hope I've been able to shed some hope and encouragement to all on the

list. I come here from time to time and always find somone asking the

question looking for hope. That's why I come back.

Kindest regards,

Jim

> > >

> > > I was a bit disapointed in reading the files about how long some

> > people

> > > have had to chelate. I would love to hear about some success

> stories.

> > > What results are you getting?

> > > TIA

> > >

> > > http://autismshare.com

> > >

> >

> >

> >

> >

> >

[Guest guest]

Hi,

What chelater did you use? What tests did you use to determine that the

chelation was effective? We used TD-DMPS for a year and it wasn't effective. We

have recently switched to ALA.

Thanks for the info!

[ ] Re: How many kids are totally healed by chelation?

I lived on this list from late 2000 thru late 2002. We began

chelating our son just before his 3rd birthday in June 2001. His

chelation lasted 8 months when the doc decided we should give him a

little break. After a few months, a fecal test showed that his body

continued to reduce the heavy metal load without chelation, so we

stopped. During his 8 months of chelation, he showed marked

improvement each week. Sometimes cognitive, sometimes speech,

sometimes fine motor, etc. He was receiving Discrete trial training

throughout. We opted to move him to a typical pre-school with a

shadow when he was 4. By the time he reached kindergarten, he had

officially graduated from DTT training; the first graduate they ever

had! Within a month of kindergarten, his speech therapist said he had

nothing to give my son that he did not already have. For the first

time since his diagnosis, he required no therapies. My wife and I

went to the kindergarten playground each day to help teach him the

fine art of playground behavior (initiating play, asking to join in,

etc.) as he did not get this during what would have been normal social

development. That lasted a few months. He is now a few months away

from his 9th birthday and has been considered cured since that time,

though we dared not speak it until he first entered 1st grade. He now

has many friends, acts very appropriately for a 9 year old and will be

testing for entry into the GATE program (an accelerated class for

gifted children).

Hope I've been able to shed some hope and encouragement to all on the

list. I come here from time to time and always find somone asking the

question looking for hope. That's why I come back.

Kindest regards,

Jim

> > >

> > > I was a bit disapointed in reading the files about how long some

> > people

> > > have had to chelate. I would love to hear about some success

> stories.

> > > What results are you getting?

> > > TIA

> > >

> > > http://autismshare. com

> > >

> >

> >

> >

> >

> >

[Guest guest]

In a message dated 25/04/2007 19:33:13 GMT Standard Time,

jrowley@... writes:

My facts may be a little foggy, but I believe it was Dr. Amy Holmes I

heard describing chelation with her son and finding no additional

mercury excreted in the urine when ALA was added. When his feces was

tested, there was a significant increase. At any rate, we were

dealing with 18 different heavy metals, all showing significant

excretion via feces.

>>>We saw nothing much in the urine after we added ALA but great puls in

fecal, after two times doingthis we dropped the urine altogether. Also always

saw more in fecal when using the TD DMPS which Andy said should not be s but it

was

Mandi in UK who got to mention Counting Rules and low frequent dosing

protocol at DAN presetnation last weekend and show a fecal metals with huge

dumps

and point out the dose was only 25mg DMSA and 25mg ALA (wink!)