Alternatives to HBOT (Andy, your comments?)

[Guest guest]

I've been reading the posts about HBOT with interest and would like

to know how many other DANs or parents out there are using an

alternative therapy.

On the recommendation of my 6-yr old daughter's DAN doctor, my

daughter had an encephaloscan which revealed that one part of her

brain is very poorly oxygened (have others done an encephaloscan?).

The Dr prescribes encephaloscans for all her autistic patients and

she says that often results for severely autistic kids show that

several parts of the brain are very poorly oxygenated. She is very

pro-HBOT and thinks that oxygenation is key in helping kids with

poorly oxygened brains.

Since there is no HBOT available where we live, she has prescribed

alternative medication to augment oxygenation: one is Tanakan

(active ing. Gingko Biloba, which dilates blood vessels) and

Hydergine, which increases blood flow to the brain. Both drugs are

commonly used to treat dementia and other cognitive problems in the

aged but she regularly prescribes it for kids whose brains show poor

oxygenation.

The treatment is prescribed for 3 months (along with osteopathy to

help with circulation in neck arteries, which are problematic) after

which time I presume we'll do another encephaloscan to see about

improvements.

My daughter has been taking this medication for about 4 weeks now

with a few other supplements and we have noticed real improvements

in her moods, behaviour and ability to reason. She is still affected

by food intolerances and/or gut problems, which I haven't completely

figured out yet, but as I eliminate suspected foods, she sure has

days when she is on the ball. She hasn't started any enzymes yet

since Houstons products are on back order so enzymes are not

contributing to the positives for now.

I'm wondering if people can comment on the therapy. I read a

recent past discussion on it & it seems that its not very common at

least in the US (I'm in France). I read the concerns about HBOT

causing seizures in some kids and am wondering if this alternative

could also have the same side effect?

On a few French websites, I did read cautions that said that

prolonged treatments had to be well followed by a doctor. One site

also said that one should not stop the medication without a doctor's

approval so I'm wondering about long-term effects and other

negatives. I doesn't appear to be used much on kids and I'm uneasy

about my daughter being a guinea pig!

Any comments are welcome since the DAN is on holidays now til early

September.

Thanks,

[Guest guest]

,

Can you tell us what dosage of each your daughter is taking?? Does you doctor

believe that this 3 month treatment will cause permanent improvements?

Thanks,

[ ] Alternatives to HBOT (Andy, your comments?)

I've been reading the posts about HBOT with interest and would like

to know how many other DANs or parents out there are using an

alternative therapy.

On the recommendation of my 6-yr old daughter's DAN doctor, my

daughter had an encephaloscan which revealed that one part of her

brain is very poorly oxygened (have others done an encephaloscan?).

The Dr prescribes encephaloscans for all her autistic patients and

she says that often results for severely autistic kids show that

several parts of the brain are very poorly oxygenated. She is very

pro-HBOT and thinks that oxygenation is key in helping kids with

poorly oxygened brains.

Since there is no HBOT available where we live, she has prescribed

alternative medication to augment oxygenation: one is Tanakan

(active ing. Gingko Biloba, which dilates blood vessels) and

Hydergine, which increases blood flow to the brain. Both drugs are

commonly used to treat dementia and other cognitive problems in the

aged but she regularly prescribes it for kids whose brains show poor

oxygenation.

The treatment is prescribed for 3 months (along with osteopathy to

help with circulation in neck arteries, which are problematic) after

which time I presume we'll do another encephaloscan to see about

improvements.

My daughter has been taking this medication for about 4 weeks now

with a few other supplements and we have noticed real improvements

in her moods, behaviour and ability to reason. She is still affected

by food intolerances and/or gut problems, which I haven't completely

figured out yet, but as I eliminate suspected foods, she sure has

days when she is on the ball. She hasn't started any enzymes yet

since Houstons products are on back order so enzymes are not

contributing to the positives for now.

I'm wondering if people can comment on the therapy. I read a

recent past discussion on it & it seems that its not very common at

least in the US (I'm in France). I read the concerns about HBOT

causing seizures in some kids and am wondering if this alternative

could also have the same side effect?

On a few French websites, I did read cautions that said that

prolonged treatments had to be well followed by a doctor. One site

also said that one should not stop the medication without a doctor's

approval so I'm wondering about long-term effects and other

negatives. I doesn't appear to be used much on kids and I'm uneasy

about my daughter being a guinea pig!

Any comments are welcome since the DAN is on holidays now til early

September.

Thanks,

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[Guest guest]

Hi ,

The doses are:

Tanakan: 1 ml 3 times daily

Hydergine: 10 drops (0.5 ml) 3 times/day before meals

I give both together with other supplements mixed in a little juice

before meals. Come to think of it now, the prescription does not say

that both should be taken together but the doctor didn't specify to

take them separately.

She said this therapy is a substitute for HBOT and like HBOT

it " could " have permanent benefits. But from what I understood from

her, bottom line is that poor oxygenation is linked to the big toxic

picture and once we get rid of the metals, everything else will

improve. She wants to start chelating in October and I don't know if

she usually keeps this therapy going during chelation but I'll ask

around here to her other patients.

>

>

> ,

>

>

>

> Can you tell us what dosage of each your daughter is taking?? Does

you doctor believe that this 3 month treatment will cause permanent

improvements?

>

>

>

> Thanks,

>

>

>

>

[Guest guest]

Hi . How old is your daughter? Fernan

> >

> >

> > ,

> >

> >

> >

> > Can you tell us what dosage of each your daughter is taking??

Does

> you doctor believe that this 3 month treatment will cause

permanent

> improvements?

> >

> >

> >

> > Thanks,

> >

> >

> >

> >

>

[Guest guest]

She's 6 and weighs 18 kg. I've asked around here but have no answers

yet as to whether this dosage is appropriate for an 18 kg child. But

as I said before, we've noted many improvements so far and the only

negatives are, I believe, attributed to food reactions. I got my

Houstons enzymes today, so will note her progress over the next week.

I was hoping Andy would have a view on this since no one seems to have

any information about the effects of this drug on children.

I'll post here if I find out more.

> > >

> > >

> > > ,

> > >

> > >

> > >

> > > Can you tell us what dosage of each your daughter is taking??

> Does

> > you doctor believe that this 3 month treatment will cause

> permanent

> > improvements?

> > >

> > >

> > >

> > > Thanks,

> > >

> > >

> > >

> > >

> >

>

[Guest guest]

That is really interesting. Just wondering why couldn't you just

use a quality OTC ginko supplement instead of the Tanakan or is

Ginko not OTC in France?

Tankan Composition: standardised and titrated Ginkgo biloba tree

leaves extract

>

> I've been reading the posts about HBOT with interest and would

like

> to know how many other DANs or parents out there are using an

> alternative therapy.

>

> On the recommendation of my 6-yr old daughter's DAN doctor, my

> daughter had an encephaloscan which revealed that one part of her

> brain is very poorly oxygened (have others done an

encephaloscan?).

> The Dr prescribes encephaloscans for all her autistic patients and

> she says that often results for severely autistic kids show that

> several parts of the brain are very poorly oxygenated. She is very

> pro-HBOT and thinks that oxygenation is key in helping kids with

> poorly oxygened brains.

>

> Since there is no HBOT available where we live, she has prescribed

> alternative medication to augment oxygenation: one is Tanakan

> (active ing. Gingko Biloba, which dilates blood vessels) and

> Hydergine, which increases blood flow to the brain. Both drugs are

> commonly used to treat dementia and other cognitive problems in

the

> aged but she regularly prescribes it for kids whose brains show

poor

> oxygenation.

>

> The treatment is prescribed for 3 months (along with osteopathy to

> help with circulation in neck arteries, which are problematic)

after

> which time I presume we'll do another encephaloscan to see about

> improvements.

>

> My daughter has been taking this medication for about 4 weeks now

> with a few other supplements and we have noticed real improvements

> in her moods, behaviour and ability to reason. She is still

affected

> by food intolerances and/or gut problems, which I haven't

completely

> figured out yet, but as I eliminate suspected foods, she sure has

> days when she is on the ball. She hasn't started any enzymes yet

> since Houstons products are on back order so enzymes are not

> contributing to the positives for now.

>

> I'm wondering if people can comment on the therapy. I read a

> recent past discussion on it & it seems that its not very common

at

> least in the US (I'm in France). I read the concerns about HBOT

> causing seizures in some kids and am wondering if this alternative

> could also have the same side effect?

>

> On a few French websites, I did read cautions that said that

> prolonged treatments had to be well followed by a doctor. One site

> also said that one should not stop the medication without a

doctor's

> approval so I'm wondering about long-term effects and other

> negatives. I doesn't appear to be used much on kids and I'm uneasy

> about my daughter being a guinea pig!

>

> Any comments are welcome since the DAN is on holidays now til

early

> September.

>

> Thanks,

>

>

[Guest guest]

Tanakan is not OTC here. I got a 3-month supply through

state-reimbursed medical prescription, which is great given that its

benefits with Hydergine are comparable to HBOT.

On top of Tanakan, my daughter is also taking Neuroplus once/day, which

contains 80 mg of gingko bilboa. I found info on the web that said the

standard preparation of gingko bilboa is called EGb 761, which is

indicated on the Tanakan ingredient list. But on Neuroplus, the

ingredient listed is just gingko bilboa, 80 mg - I think these two

ingredients are the same, since both refer a composition of " 24

percent ginkgo flavonoid glycosides, 6 percent terpene lactones "

(actually, Neuroplus has 7% terpene). I don't know if there is a

difference between the two types of gingko. Do they act the same way?

Tanakan also contains orange and lemon essential oils and alcohol,

which I don't believe is in EGb 761 so maybe this influences its

absorption? I wish I'd studied pharmacology or medicine & could better

understand this stuff!

I heard from another parent here who is giving her 33 kg son 20 drops

/ 3 times daily. She is also noting positive results.

My daughter's progress continues with no adverse effects. I'll keep

you posted about any other news but in meantime would still appreciate

more input about risks & benefits or others' experiences with this

treatment.

>

> That is really interesting. Just wondering why couldn't you just

> use a quality OTC ginko supplement instead of the Tanakan or is

> Ginko not OTC in France?

>

> Tankan Composition: standardised and titrated Ginkgo biloba tree

> leaves extract

[Guest guest]

It would be nice to know if there was a study done on this to

determine if the ginko and hydrgine activate dormant neurons like

HBOT supposedly does and what type of results would kids get if they

took the ginko\hydregine along with HBOT?

> >

> > That is really interesting. Just wondering why couldn't you

just

> > use a quality OTC ginko supplement instead of the Tanakan or is

> > Ginko not OTC in France?

> >

> > Tankan Composition: standardised and titrated Ginkgo biloba tree

> > leaves extract

>