Re: Two years in and feel like we're going round in circles.... Help!

[Guest guest]

>>Does/can chelation kick start

> enzymes again or do we just accept that the damage is done?

I can give you my family's experience.

My son tolerated no foods [or supplements]. I used HNI enzymes and

rotated foods to learn what he tolerated with the enzymes. There were

still foods he could not have [rice, corn, fats, anything orange or

green] but overall the enzymes worked well. He required enzymes every

time he ate or drank anything.

I chelated my kids with ALA. At about round 50, he started tolerating

supplements. I also learned that his body tolerated foods without

enzymes. The foods that the enzymes did not address, he still did not

tolerate, but he was fine eating the other foods, even without enzymes.

After approx 100 rounds, chelation was complete. The foods that he

still did not tolerate, had required several supplements before my son

tolerated them. So once chelation and certain supplements were

completed, he was able to eat anything.

Today, my son's gut is healed. He can eat anything, no longer has

yeast issues, etc.

Dana

[Guest guest]

>

> Our son is very high in lead, has absorption problems and we've been

> following biomedical for two years now.

>

> I know this sounds like a totally infantile question but now we know

> Tom isn't absorbing his food properly and against the back ground of

> his high lead and mercury on poryphirin etc etc etc - all roads seem

> to lead to metals. We stopped chelating months ago, end of last year

> other than zeolites which must have stopped in April or so. THe idea

> was to really work on the gut and then restart. Now I've started

> reading up on enzymes it says that metals inhibit enzymes. So - we

> know he's high in them but we can't move them without exacerbating his

> problems but we also are only treating and not curing his

> digestive/detox problems because he's high in metals and the gut can't

> properly heal with the metals in there.

>Does/can chelation kick start

> enzymes again or do we just accept that the damage is done?

Enzymes are constantly being made. Chelation will get more of them

working properly.

The only

> chelator we have never tried is DMSA - how hard is that one on the

> gut?

It is the metals that are hard on the gut. People chelating with DMPS

report fewer gut problems (but you probably want DMSA because of the

lead).

Improper chelation is hard on the gut because of the metals that are

redistributed. When you resume chelation be sure to use Andy's

protocol and use appropriate doses of chelators (start at 1/8 mg/lb

and lower the dose if there are significant side effects).

This is getting like a police enquiry - we're revisiting our

> initial witnesses. We saw good things early on, some terrible things

> mid way and now we're teetering on equilibrium, some very nice

> language gains, some good learning and some awful self harming

> and biting.

>We're in the midst of HBOT currently might that be a good

> time to try out chelation again,

It would be better not to mix treatments or you won't know which

treatment is doing what.

> would chelation upset the enzymes

> we've just introduced?

>

Lots of people who are chelating use digestive enzymes. They are

given in such large quantities that some escape the metals.

> This is getting like Groundhog Day but I'd welcome anyone elses

> clearer vision on it. !!??

Look at Andy's " Diet - how to pick the right one for your kid " in the

files section. Some are able to control gut problems with diet alone.

J

>

> Steph, Nottingham UK, mum of Tom 8, regressive ASD, regained language

> in the past twelve months but still miles and miles from the finish

line!

>

[Guest guest]

>

> Our son is very high in lead, has absorption problems and we've been

> following biomedical for two years now.

>

> I know this sounds like a totally infantile question but now we know

> Tom isn't absorbing his food properly and against the back ground of

> his high lead and mercury on poryphirin etc etc etc - all roads seem

> to lead to metals. We stopped chelating months ago, end of last year

> other than zeolites which must have stopped in April or so. THe idea

> was to really work on the gut and then restart. Now I've started

> reading up on enzymes it says that metals inhibit enzymes. So - we

> know he's high in them but we can't move them without exacerbating his

> problems but we also are only treating and not curing his

> digestive/detox problems because he's high in metals and the gut can't

> properly heal with the metals in there. Does/can chelation kick start

I am a chelating adult. I have had gut problems for a long time.

Digestive enzymes helped some. Now I am using betaine HCL (started

with small amounts) with better results. I have found slippery elm

and DGL very helpful for symptoms and for healing the gut. I have a

lot more chelating to do, but my gut seems to be feeling and working

better.

> enzymes again or do we just accept that the damage is done? The only

> chelator we have never tried is DMSA - how hard is that one on the

I have used both DMSA and DMPS, along with ALA. DMSA has been a

bit harder on my gut at times, but taking enough probiotics and

eliminating sugar, fruit, and certain other foods helps a lot.

> gut? This is getting like a police enquiry - we're revisiting our

> initial witnesses. We saw good things early on, some terrible things

> mid way and now we're teetering on equilibrium, some very nice

> language gains, some good learning and some awful self harming

> and biting. We're in the midst of HBOT currently might that be a good

> time to try out chelation again, would chelation upset the enzymes

> we've just introduced?

I can't see any reason why chelation would mess up the benefits of

enzymes.

I am pretty sure HBOT is not a good idea along with chelation, since

it can increase oxidative stress (I can't recall details, check the

archives for Andy's comments on HBOT vs chelation).

-- (in California)

> This is getting like Groundhog Day but I'd welcome anyone elses

> clearer vision on it. !!??

> Steph, Nottingham UK, mum of Tom 8, regressive ASD, regained language

> in the past twelve months but still miles and miles from the finish

line!

>

[Guest guest]

Dana, thanks for your reply

Were your kids high in all metals or predominantly mercury? I know

Tom is very high in lead - but mainly because it comes out under

chelation. His poryphirin test showed him as high in mercury also but

I'm not sure how trusted those tests are. We know that thimerosal

went into him in his jabs. HIs hair tests always show very high

antimony and the pattern of his hair tests has hardly changed in two

years - with the exception of a peak for antimony after 18 months of

chelation on and off. Like most of them, he has never shown any

significant mercury in hair test or even, two years ago, challenge

test (not something I'd repeat now!)

Does ALA work for lead too? Tom had a couple of courses of ALA at the

very beginning of chelation (we had a less than uptospeed DAN, I think

he was reading up on the internet and prescribing from that actually)

and it coincided with some very wild behaviour from TOm, so we assumed

the two might be linked.

> >>Does/can chelation kick start

> > enzymes again or do we just accept that the damage is done?

>

>

> I can give you my family's experience.

>

> My son tolerated no foods [or supplements]. I used HNI enzymes and

> rotated foods to learn what he tolerated with the enzymes. There were

> still foods he could not have [rice, corn, fats, anything orange or

> green] but overall the enzymes worked well. He required enzymes every

> time he ate or drank anything.

>

> I chelated my kids with ALA. At about round 50, he started tolerating

> supplements. I also learned that his body tolerated foods without

> enzymes. The foods that the enzymes did not address, he still did not

> tolerate, but he was fine eating the other foods, even without enzymes.

>

> After approx 100 rounds, chelation was complete. The foods that he

> still did not tolerate, had required several supplements before my son

> tolerated them. So once chelation and certain supplements were

> completed, he was able to eat anything.

>

> Today, my son's gut is healed. He can eat anything, no longer has

> yeast issues, etc.

>

> Dana

>

[Guest guest]

> Dana, thanks for your reply

> Were your kids high in all metals or predominantly mercury?

I don't know, I never tested them. I just gave them ALA.

>>HIs hair tests always show very high

> antimony and the pattern of his hair tests has hardly changed in two

> years - with the exception of a peak for antimony after 18 months of

> chelation on and off.

Have you removed sources of current exposure? Antimony is very

prevalent almost everywhere, but you can remove most of the major

sources. Furniture, carpeting, mattresses, pajamas, etc.

http://www.danasview.net/issues.htm

> Does ALA work for lead too?

Based on several messages here, and several private emails I have

received from people who have done testing, it does appear to pull

lead, altho not as efficiently as DMSA or other chelators.

> he was reading up on the internet and prescribing from that actually)

Well, I never took my kids to a DAN. I recovered them myself. And I

learned everything I needed to know on the internet. So maybe he is

not as " bad " as you think LOL

> and it coincided with some very wild behaviour from TOm, so we assumed

> the two might be linked.

Well, you do need to watch the child's reactions. Many times,

something that really set my son off and made him wild, after

chelation it actually helped him. So he needed it, his body just did

not tolerate it until after chelation.

Dana