Please keep us in your prayers!

March 14, 2001

Kim I know we have talked before but if I missed something I must say this.

The head grows with Craniosynostosis it just doesn't grow towards the fused suture, so in the case of metopic it will grow more out the back or up. What I have seen in the past is metopic suture fused, flat back of the head which make the head look high?

I will pray, if you need me let me know.

Pitchke

March 14, 2001

Good luck - you are in my prayers!

Amy

March 14, 2001

I strongly believe in the power of prayer, and would appreciate it if

you would please keep in your prayers. Tomorrow we visit the

neurosurgeon once again (every 2 months) to discuss possible surgery.

's metopic suture is closed as well as his soft spots. The

neurosurgeon says that it is still possible for his head to grow (so

we have been treating it as plagio), but if he drops off his head

growth curve - then he needs surgery to open everything back up to

allow growth so his brain will not get squished (not the correct

technical term, of course). We visit the neuro every two months to

get an accurate picture of his head growth - one month he may drop

down, but the next he may catch back up. He has developed some new

funky ridges over the past few weeks that have us very concerned.

Also, we have not seen much progress with our helmet therapy probably

due to these early closures.

Please keep him in your prayers. I will update you tomorrow evening

when we get home.

Thanks,

Kim and , Raleigh, NC

March 14, 2001

Kim and

Our prayers are with you as well as with all who are going through

this same problem. Some problems are or seem worse than others, but

my Reverend assures me that God will only give us what we can

handle. Sometimes I yell to God and tell Him that He thinks I can

handle more than I really can! Rev. has also has told me that for

every problem we have in life we are blessed with 10 good things. I

think he was just saying all of this to make me feel better at the

time, but I know that God will be with our little ones and protect

them the best that he can. I firmly believe that we are all put on

this earth for a specific purpose and even though I am still trying

to find my purpose, I believe my son as well as the rest of our

children were born to give us the joy of their laughter, smiles and

the look of their peaceful faces while they sleep.

God Bless you and good luck to you

Stasia

March 14, 2001

Kim,

We will be thinking of you tomorrow. My daughter had CVR for cranio

back in Jan. Hope all goes well.

Kathy

> I strongly believe in the power of prayer, and would appreciate it

if

> you would please keep in your prayers. Tomorrow we visit the

> neurosurgeon once again (every 2 months) to discuss possible

surgery.

>

> 's metopic suture is closed as well as his soft spots. The

> neurosurgeon says that it is still possible for his head to grow (so

> we have been treating it as plagio), but if he drops off his head

> growth curve - then he needs surgery to open everything back up to

> allow growth so his brain will not get squished (not the correct

> technical term, of course). We visit the neuro every two months to

> get an accurate picture of his head growth - one month he may drop

> down, but the next he may catch back up. He has developed some new

> funky ridges over the past few weeks that have us very concerned.

> Also, we have not seen much progress with our helmet therapy

probably

> due to these early closures.

>

> Please keep him in your prayers. I will update you tomorrow evening

> when we get home.

>

> Thanks,

> Kim and , Raleigh, NC

March 14, 2001

I will definitely be thinking of you, Kim & !

Please let us know how it goes.

Kendra in CanadaFor more plagio info, visitwww.plagiocephaly.org/support...

----- Original Message -----

From: justbryandkim@...

Plagiocephaly

Sent: Wednesday, March 14, 2001 11:48 AM

Subject: Please keep us in your prayers!

I strongly believe in the power of prayer, and would appreciate it if you would please keep in your prayers. Tomorrow we visit the neurosurgeon once again (every 2 months) to discuss possible surgery.'s metopic suture is closed as well as his soft spots. The neurosurgeon says that it is still possible for his head to grow (so we have been treating it as plagio), but if he drops off his head growth curve - then he needs surgery to open everything back up to allow growth so his brain will not get squished (not the correct technical term, of course). We visit the neuro every two months to get an accurate picture of his head growth - one month he may drop down, but the next he may catch back up. He has developed some new funky ridges over the past few weeks that have us very concerned. Also, we have not seen much progress with our helmet therapy probably due to these early closures. Please keep him in your prayers. I will update you tomorrow evening when we get home.Thanks, Kim and , Raleigh, NC

March 15, 2001

Good luck Kim and ! We'll be thinking about you.

& (9-20-00)

-----Original Message-----

From: justbryandkim@... [mailto:justbryandkim@...]

Sent: Wednesday, March 14, 2001 11:49 AM