Guest guest Posted May 9, 2007 Report Share Posted May 9, 2007 Wyndie, I'm sorry this is still such a big problem. Are any of your daughter's test results for IgE reactions, or IgG only? In other words, are you dealing with true allergic reactions, or food intolerances? In any case, given those IgG results I would really try to focus on gut healing. If your daughter tolerates them (I know it's always an issue with herbs and food-sourced supplements), you might consider supplements that either help soothe or heal leaky gut like l-glutamine, DGL, slippery elm and n-acetylglucosamine (NAG). You could either try NAG alone or in Lectin Lock, which contains NAG and other simple sugars and binds dietary lectins that can cause or worsen leaky gut and trigger histamine release. We've had good results with it. best wishes Rene > > I have posted a few times before on my dd's food allergies. She is > one year old, is mercury poisoned (of course) and has rampant > allergies to almost all foods. Her IgG tests came back as her > being severely allergic to almost everything, so I think this is > both an immune problem and a true FA problem. (I had really hoped > it was just an immune problem so it would be a little less > complicated) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2007 Report Share Posted May 9, 2007 >>Is there any other supplement I can try to help stave > off her reactions while I wait for the NAET testing? Have you tried oral immune globulin? Can she tolerate any other Bs? Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2007 Report Share Posted May 10, 2007 Thanks for the suggestions along with the explanation of what the last one does. I will certainly give these things a try! WYndie > > > > I have posted a few times before on my dd's food allergies. She is > > one year old, is mercury poisoned (of course) and has rampant > > allergies to almost all foods. Her IgG tests came back as her > > being severely allergic to almost everything, so I think this is > > both an immune problem and a true FA problem. (I had really hoped > > it was just an immune problem so it would be a little less > > complicated) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2007 Report Share Posted May 10, 2007 The immune globulin you sent a link to before doesn't have a place to order it from. I was going to look for it anyway b/c it looks good but my chiro said he was concerned that if I gave her more IgE and IgG that it would worsen her situation. Dr. Shaw was supposed to be looking into it for me, but I never heard back. Do you know where I can order some? I may just try it myself and see. I don't understand the whole immunoglobulin thing so I'm willing to try something that has worked for someone else. I do not know if she tolerates B's. I haven't tried any others. Wyndie > >>Is there any other supplement I can try to help stave > > off her reactions while I wait for the NAET testing? > > > Have you tried oral immune globulin? > > Can she tolerate any other Bs? > > Dana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2007 Report Share Posted May 10, 2007 Wyndie, Supplements involved in reducing allergy responses are A, 1000IU per lb, E, 400 IU natural, as much C as you can give her without it causing diarrhea. In addition to the quercetin make sure you are giving grape seed extract or pycnogenol at significant enough amounts which would be up to 200 mgs per day. Pantothenic acid or pantethine is also useful and can be dosed as high as 500 mgs a day. The C, p. acid and gse would be best divided up at least 3-4 times a day. The A and E are fat soluble so fine to give just once a day. [ ] OT: more food allergy problems I have posted a few times before on my dd's food allergies. She is one year old, is mercury poisoned (of course) and has rampant allergies to almost all foods. I have tried everything I could think of. Quercetin at each meal, enzymes (she didn't tolerate these at all), I even broke down and used Gastrochrom. Nothing is working. She is continuing to react with facial rashes, GI discomfort and severe moodiness. The Gastrochrom caused constipation and swollen lymph nodes. She had moved up to seven foods, but is reacting again to something; most likely her most recent addition of cucumbers. I have chelated her thru several rounds AC protocol. I was hoping as we got rid of metals, her fa's would decrease to some degree. I have found a NAET practicioner who will trade her services for my cultured veggies, but we have not had a session yet and I am desperate. Is there any other supplement I can try to help stave off her reactions while I wait for the NAET testing? I know her immune system is extremely messed up and I am doing what I can for that, but her immediate need is the severe fa's. Starting tomorrow I will be rotating her six foods and she will eat one meat and veggie all day long and we will rotate that every three days. Hopefully this will help. Her IgG tests came back as her being severely allergic to almost everything, so I think this is both an immune problem and a true FA problem. (I had really hoped it was just an immune problem so it would be a little less complicated) She is currently taking: Breakfast: 1 cap magnesium ¼ tsp nystatin ¼ tsp EFA oil blend ¼ tablet selenium 3 drops GSE 1 cap zinc ½ cap B5 Lunch: 1 cap magnesium ¼ tsp nystatin 3 drops GSE ½ cap CoQ10 w/ taurine 1 cap milk thistle Dinner: 1 cap magnesium 1 probiotic sprinkled on food ¼ tsp green powder 1/4 tsp EFA's Any suggestions are appreciated. I know I have brought this to the board before, I just can't seem to find a resolution. Wyndie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2007 Report Share Posted May 10, 2007 Wyndie So sorry for all this, poor thing!! There is a product that we have just started called IgG2000 DF. It is made by Xymogen so you could probably google and see what you find online. We found it at a compounding pharmacy. Or I think you can order it from www.holisticheal.com/store which is Amy Yasko's site. It is a powder so would be easy to dose for your little one. We just started it a few days ago so I cannot really comment on how effective it will be, but I know that is one of the main things that she uses in her practice for immunological issues. We haven't had any negative reactions to it and my dd is fairly sensitive to many supplements. I hope you find your answers soon. She does sound like a good candidate for NAET. Sheresa > > >>Is there any other supplement I can try to help stave > > > off her reactions while I wait for the NAET testing? > > > > > > Have you tried oral immune globulin? > > > > Can she tolerate any other Bs? > > > > Dana > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2007 Report Share Posted May 10, 2007 I think only practitioners can order this stuff unless something changed from about 9 months ago when I looked into this. They would let me with my phd psych licence which doesn't make a whole lot of sense to me but technically I am in the medical field and that should scare people. [ ] Re: OT: more food allergy problems Wyndie So sorry for all this, poor thing!! There is a product that we have just started called IgG2000 DF. It is made by Xymogen so you could probably google and see what you find online. We found it at a compounding pharmacy. Or I think you can order it from www.holisticheal.com/store which is Amy Yasko's site. It is a powder so would be easy to dose for your little one. We just started it a few days ago so I cannot really comment on how effective it will be, but I know that is one of the main things that she uses in her practice for immunological issues. We haven't had any negative reactions to it and my dd is fairly sensitive to many supplements. I hope you find your answers soon. She does sound like a good candidate for NAET. Sheresa > > >>Is there any other supplement I can try to help stave > > > off her reactions while I wait for the NAET testing? > > > > > > Have you tried oral immune globulin? > > > > Can she tolerate any other Bs? > > > > Dana > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2007 Report Share Posted May 10, 2007 I looked on the holisticheal site and did not find it there so you may be right. However, I purchased it at a compounding pharmacy and they did not ask me for a doctors note or anything like that. In fact it was on the shelf and not behind the counter. It was on the list of things that our doc had told us to start so I picked it up. Wyndie, if you are interested in trying it maybe the best thing would be to call around to different compounding pharmacies in your area and just see if anyone carries it. Sheresa > > > >>Is there any other supplement I can try to help stave > > > > off her reactions while I wait for the NAET testing? > > > > > > > > > Have you tried oral immune globulin? > > > > > > Can she tolerate any other Bs? > > > > > > Dana > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2007 Report Share Posted May 10, 2007 Thanks for your input ladies. As far as the Xymogen product, I was discussing it again today with my chiro and he is concerned that her immune system is already hyper-active and that giving her more immunoglobulin would cause even more hyper reactions in her immune system. Can anyone say if that's the case? Does the immunoglobulin have to be low to supplement? B/c she does have high IgE (of course) and we don't want to make her worse by any means; but really really want to try that product if it will not make her system more reactive. I am totally out of my element on immunoglobulins so don't understand the supplementation working. LOL I can get my doc to write an rx for it if I need to. I know no one can guarantee that it will work for us, I just want to be sure I don't exacerbate the problem. Thank you all SOOO much for your help. I am hopeful that one of these supplements will be the peice that works for her. Wyndie In , " sbarron6fun " <rsbarron@...> wrote: > > I looked on the holisticheal site and did not find it there so you > may be right. However, I purchased it at a compounding pharmacy and > they did not ask me for a doctors note or anything like that. In > fact it was on the shelf and not behind the counter. It was on the > list of things that our doc had told us to start so I picked it up. > Wyndie, if you are interested in trying it maybe the best thing would > be to call around to different compounding pharmacies in your area > and just see if anyone carries it. > > Sheresa > > > > > > > > >>Is there any other supplement I can try to help stave > > > > > off her reactions while I wait for the NAET testing? > > > > > > > > > > > > Have you tried oral immune globulin? > > > > > > > > Can she tolerate any other Bs? > > > > > > > > Dana > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2007 Report Share Posted May 10, 2007 Thanks for your input ladies. As far as the Xymogen product, I was discussing it again today with my chiro and he is concerned that her immune system is already hyper-active and that giving her more immunoglobulin would cause even more hyper reactions in her immune system. Can anyone say if that's the case? Does the body burden of immunoglobulin have to be low to supplement? B/c she does have high IgE (of course) and we don't want to make her worse by any means; but really really want to try that product if it will not make her system more reactive. I am totally out of my element on immunoglobulins so don't understand the supplementation working. LOL I can get my doc to write an rx for it if I need to. I know no one can guarantee that it will work for us, I just want to be sure I don't exacerbate the problem. Thank you all SOOO much for your help. I am hopeful that one of these supplements will be the peice that works for her. Wyndie > > > > >>Is there any other supplement I can try to help stave > > > > > off her reactions while I wait for the NAET testing? > > > > > > > > > > > > Have you tried oral immune globulin? > > > > > > > > Can she tolerate any other Bs? > > > > > > > > Dana > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2007 Report Share Posted May 10, 2007 Wyndie I know so little about immunology I don't feel qualified to discuss it much, but I can tell you that my dd's IgG test results were low on everything except peanut butter. Despite this she does react to various different foods. Her SiGA was very low (10 with a ref range of 40-204). So based on these test results her doctor wanted us to start the IgG product. I'm sorry that probably doesn't help you much, but maybe someone else can give more information on how this is all related and if it might be something that would be beneficial for your daughter. Sheresa > > > > > >>Is there any other supplement I can try to help stave > > > > > > off her reactions while I wait for the NAET testing? > > > > > > > > > > > > > > > Have you tried oral immune globulin? > > > > > > > > > > Can she tolerate any other Bs? > > > > > > > > > > Dana > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2007 Report Share Posted May 10, 2007 Sheresa and Wyndie, both medium chain triglicerides and EpiCor are supposed to boost SIgA. If coconut products aren't tolerated, maybe MCT oil would be. EpiCor is also an immune modulator, not an immune booster so should be safe for people with overactive immune systems. http://ajpgi.physiology.org/cgi/content/abstract/286/6/G1081 " They also found significantly higher levels of total salivary secretory IgA in the EpiCor subjects. The IgA levels were surprisingly high—more than 300 mg per ml. This indicated that the EpiCor subjects had the equivalent of an immunological envelope protecting all the membranes in the eyes, nasal passages, and all the places where pathogenic organisms enter into the system. " http://tinyurl.com/2ealb2 Rene > > Her SiGA was very low (10 with a ref range > of 40-204). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2007 Report Share Posted May 10, 2007 Wyndie, also wanted to mention that I have read that you need equal amounts of bromelain given with the quercetin and lots of C for it to be digested. [ ] Re: OT: more food allergy problems Thanks for your input ladies. As far as the Xymogen product, I was discussing it again today with my chiro and he is concerned that her immune system is already hyper-active and that giving her more immunoglobulin would cause even more hyper reactions in her immune system. Can anyone say if that's the case? Does the body burden of immunoglobulin have to be low to supplement? B/c she does have high IgE (of course) and we don't want to make her worse by any means; but really really want to try that product if it will not make her system more reactive. I am totally out of my element on immunoglobulins so don't understand the supplementation working. LOL I can get my doc to write an rx for it if I need to. I know no one can guarantee that it will work for us, I just want to be sure I don't exacerbate the problem. Thank you all SOOO much for your help. I am hopeful that one of these supplements will be the peice that works for her. Wyndie > > > > >>Is there any other supplement I can try to help stave > > > > > off her reactions while I wait for the NAET testing? > > > > > > > > > > > > Have you tried oral immune globulin? > > > > > > > > Can she tolerate any other Bs? > > > > > > > > Dana > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2007 Report Share Posted May 10, 2007 > > Sheresa and Wyndie, both medium chain triglicerides and EpiCor are > supposed to boost SIgA. Rene, Thanks for pointing this out to me again. I think I knew this at one point last year and my dd took the Epicor Jr. for 6-8 months but then I dropped it in January or so thinking that it wasn't really doing anything. Her SIgA test was run at the beginning of April, so I guess I either wasn't giving her enough or the results didn't last after I stopped giving it to her. I may consider starting this one back up again. Sheresa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2007 Report Share Posted May 10, 2007 > my dd took the Epicor Jr. for 6-8 months but then I > dropped it in January or so thinking that it wasn't really doing > anything. Her SIgA test was run at the beginning of April, so I > >guess > I either wasn't giving her enough or the results didn't last after I > stopped giving it to her. I may consider starting this one back up > again. Hi Sheresa We haven't done any testing so I don't know how this applies to us, but I've been giving my son the full strength capsule with no problems (even used 2/day at one point), so maybe you could go higher. take care Rene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2007 Report Share Posted May 11, 2007 Wyndie, Another add: Bock mentioned in his new book that he uses Transfer Factor for allergies and autoimmunity as well as frequent infections. His claim is that TF can rebalance the immune system. [ ] Re: OT: more food allergy problems Thanks for your input ladies. As far as the Xymogen product, I was discussing it again today with my chiro and he is concerned that her immune system is already hyper-active and that giving her more immunoglobulin would cause even more hyper reactions in her immune system. Can anyone say if that's the case? Does the immunoglobulin have to be low to supplement? B/c she does have high IgE (of course) and we don't want to make her worse by any means; but really really want to try that product if it will not make her system more reactive. I am totally out of my element on immunoglobulins so don't understand the supplementation working. LOL I can get my doc to write an rx for it if I need to. I know no one can guarantee that it will work for us, I just want to be sure I don't exacerbate the problem. Thank you all SOOO much for your help. I am hopeful that one of these supplements will be the peice that works for her. Wyndie In , " sbarron6fun " <rsbarron@...> wrote: > > I looked on the holisticheal site and did not find it there so you > may be right. However, I purchased it at a compounding pharmacy and > they did not ask me for a doctors note or anything like that. In > fact it was on the shelf and not behind the counter. It was on the > list of things that our doc had told us to start so I picked it up. > Wyndie, if you are interested in trying it maybe the best thing would > be to call around to different compounding pharmacies in your area > and just see if anyone carries it. > > Sheresa > > > > > > > > >>Is there any other supplement I can try to help stave > > > > > off her reactions while I wait for the NAET testing? > > > > > > > > > > > > Have you tried oral immune globulin? > > > > > > > > Can she tolerate any other Bs? > > > > > > > > Dana > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2007 Report Share Posted May 11, 2007 > > I have posted a few times before on my dd's food allergies. Wyndie, I was just reminded by comments on another list that global food intolerances can commonly be due to insufficient HCL in the the stomach. I don't think there's a good way of getting betaine HCL into someone if they can't swallow capsules, but supplementing ascorbic acid, lemon juice or maybe apple cider vinegar with meals might help lower the stomach pH enough to do some good. best wishes Rene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2007 Report Share Posted May 11, 2007 > Wyndie, I was just reminded by comments on another list that global > food intolerances can commonly be due to insufficient HCL in the the > stomach. I don't think there's a good way of getting betaine HCL into > someone if they can't swallow capsules, but supplementing ascorbic > acid, lemon juice or maybe apple cider vinegar with meals might help > lower the stomach pH enough to do some good. I just re-read Mastering Autism's section on HCL and it is very helpful. Wyndie, if you don't have the latest copy of this document and are interested in investigating the HCL angle, let me know and I can forward it to you. best Rene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2007 Report Share Posted May 12, 2007 Hi, Digestive bitters can also stimulate acid production in the stomach. Plus you can use home-made sauerkraut (Donna Gates style). na > > > > I have posted a few times before on my dd's food allergies. > > Wyndie, I was just reminded by comments on another list that global > food intolerances can commonly be due to insufficient HCL in the the > stomach. I don't think there's a good way of getting betaine HCL into > someone if they can't swallow capsules, but supplementing ascorbic > acid, lemon juice or maybe apple cider vinegar with meals might help > lower the stomach pH enough to do some good. > > best wishes > Rene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2007 Report Share Posted May 12, 2007 Rene does this paper mention using ascorbic acid to raise HCL levels? I have a copy of the new version but my computer really resisted printing all of it out. It was my remembrance that it did not say to use ascorbic acid but that was a big help here as when we went to buffered C it drove all her essential elements down to unacceptable levels. [ ] Re: OT: more food allergy problems > Wyndie, I was just reminded by comments on another list that global > food intolerances can commonly be due to insufficient HCL in the the > stomach. I don't think there's a good way of getting betaine HCL into > someone if they can't swallow capsules, but supplementing ascorbic > acid, lemon juice or maybe apple cider vinegar with meals might help > lower the stomach pH enough to do some good. I just re-read Mastering Autism's section on HCL and it is very helpful. Wyndie, if you don't have the latest copy of this document and are interested in investigating the HCL angle, let me know and I can forward it to you. best Rene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2007 Report Share Posted May 12, 2007 > > The immune globulin you sent a link to before doesn't have a place to > order it from. I can obtain it thru my buying group. Send me a private email and I will connect you with the group. The next order opens in July. > I do not know if she tolerates B's. I haven't tried any others. For my son, B vitamins, especially in my opinion B6, was required to heal his gut. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2007 Report Share Posted May 12, 2007 >>In addition to the quercetin make sure you are giving grape seed extract or pycnogenol at significant enough amounts which would be up to 200 mgs per day. > > The C, p. acid and gse would be best divided up at least 3-4 times a day. You might want to clarify if you meant grape seed extract or grapefruit seed extract. The letters " GSE " appear on the bottle of grapefruit seed extract. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2007 Report Share Posted May 12, 2007 Thanks Rene. I do give her apple cider vinegar in her water often throughout the day to keep her ph on track. Thanks for the reminder though. Some days I'm slack about it so this reminder will help me get back on target with that. Wyndie > > > > I have posted a few times before on my dd's food allergies. > > Wyndie, I was just reminded by comments on another list that global > food intolerances can commonly be due to insufficient HCL in the the > stomach. I don't think there's a good way of getting betaine HCL into > someone if they can't swallow capsules, but supplementing ascorbic > acid, lemon juice or maybe apple cider vinegar with meals might help > lower the stomach pH enough to do some good. > > best wishes > Rene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2007 Report Share Posted May 12, 2007 I'd be happy to read it Thanks! Wyndie > > Wyndie, I was just reminded by comments on another list that global > > food intolerances can commonly be due to insufficient HCL in the the > > stomach. I don't think there's a good way of getting betaine HCL > into > > someone if they can't swallow capsules, but supplementing ascorbic > > acid, lemon juice or maybe apple cider vinegar with meals might help > > lower the stomach pH enough to do some good. > > > I just re-read Mastering Autism's section on HCL and it is very > helpful. Wyndie, if you don't have the latest copy of this document > and are interested in investigating the HCL angle, let me know and I > can forward it to you. > > best > Rene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2007 Report Share Posted May 12, 2007 I do make cultured veggies for her siblings, but she is severely allergic to cabbage, even fermented and broken down. What's digestive bitters? And can it be taken by someone who can't swallow pills? Thanks, Wyndie > > > > > > I have posted a few times before on my dd's food allergies. > > > > Wyndie, I was just reminded by comments on another list that global > > food intolerances can commonly be due to insufficient HCL in the the > > stomach. I don't think there's a good way of getting betaine HCL > into > > someone if they can't swallow capsules, but supplementing ascorbic > > acid, lemon juice or maybe apple cider vinegar with meals might help > > lower the stomach pH enough to do some good. > > > > best wishes > > Rene > > > Quote Link to comment Share on other sites More sharing options...
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