Re: Check out NEUROSURGERY://ON-CALL Patient Resources

[Guest guest]

From the referenced article:

" The first question one might ask is, what is the purpose of treating

these children - in other words, what are the consequences of having

this disorder? In virtually every case, OP is simply a cosmetic

disorder - there is no evidence that OP functionally restricts brain

growth, nor that it causes brain damage, intellectual impairment, or

developmental delays. Once the child is able to sit and stand, the

molding forces are removed and the deformity begins to improve.

Although it may not resolve completely, the remaining occipital

flattening is usually minor and is not visible because it is covered

with hair as the child grows. The frontal differences are minimal and

tend to resolve completely with time. "

This article is what the insurance companies are saying - that it's

cosmetic!

Sue

Phoenix, AZ (Riley - 2nd DOC 2/28/01)

[Guest guest]

This is the part that bugged me!!

"...using head bands in selected children reported that, on average, the children improved by about 45% - not very different than the results obtained after just changing the children's position! "

Hmmmm, seems to me that I've heard QUITE A LOT of 85% (us!) to 95%, 100%?? correction!!!!! Even 50% correction in 2 yr olds! I think it's time these people did a "bit" more studying!!

Kendra in CanadaFor more plagio info, visitwww.plagiocephaly.org/support...

----- Original Message -----

From: Sue McAuliffe

Plagiocephaly

Sent: Friday, March 16, 2001 9:10 AM

Subject: Re: Check out NEUROSURGERY://ON-CALL Patient Resources

From the referenced article:"The first question one might ask is, what is the purpose of treating these children - in other words, what are the consequences of having this disorder? In virtually every case, OP is simply a cosmetic disorder - there is no evidence that OP functionally restricts brain growth, nor that it causes brain damage, intellectual impairment, or developmental delays. Once the child is able to sit and stand, the molding forces are removed and the deformity begins to improve. Although it may not resolve completely, the remaining occipital flattening is usually minor and is not visible because it is covered with hair as the child grows. The frontal differences are minimal and tend to resolve completely with time." This article is what the insurance companies are saying - that it's cosmetic! SuePhoenix, AZ (Riley - 2nd DOC 2/28/01)

[Guest guest]

What annoyed me (obviously) is that they say the " frontal differences are

minimal and tend to resolve completely with time. " THAT'S NOT WHAT I SEE WHEN

I LOOK AT MY BOY!!! I have also been told that it is irreversable without

corrective surgery by 2 Neurosurgeons.

I wonder what " minimal " means to them anyway? Obviously not what it means

to me because nothing about this seems minimal.

Amy