New to all this

[Guest guest]

Ok let me start off by telling you about our family. I am and I

have 2 sons. Caleb 3 and 1. Me and my boyfriend only have

together but Caleb calls him daddy and well he really is in a way and

Matt has a 7 yr old daughter. Anyhow Caleb was diagnosed with Autism in

Sept.2006 and I am lost completely. I do not know where to begin. I

know my son changed after he hit 15 to 18 months. I ask about the Heavy

MEtal testing but no one here will tell me where I can get it done. I

found a DAN Dr but the consult is $385 and I think that is kinda high.

He will get me the kit for testing but I also have to pay for the test.

How do I get this done on my own? How did you all get this done? I know

something had to have happened to my son because he was fine and I mean

a completely different boy until after those check ups. I am just at a

lost on all this. Please if anyone can help me.....

[Guest guest]

Reply, I really do not know anyone doing this on their own. I having a DAN

doctor is a great start. This will be high - there's no question about it. I

suggest that you read the book Children with Starving Brains by J.

McCandless. It will explain just about everything. Many people on this list

use Andy

Cutler's chelation protocal to get rid of heavy metals but still go through a

doctor for the labs that involve the blood, urine, and stools.

Kathy H in Va

**************************************

See what's free at

http://www.aol.com.

[Guest guest]

>

> Ok let me start off by telling you about our family. I am and I

> have 2 sons. Caleb 3 and 1. Me and my boyfriend only have

> together but Caleb calls him daddy and well he really is in a way and

> Matt has a 7 yr old daughter. Anyhow Caleb was diagnosed with Autism in

> Sept.2006 and I am lost completely. I do not know where to begin. I

> know my son changed after he hit 15 to 18 months.

I ask about the Heavy

> MEtal testing but no one here will tell me where I can get it done.

You don't need heavy metals testing. Try an essential elements hair

test from doctors data inc. You can get the test without a physician

from www.directlabs.com Then post the results to this group for

interpretation.

Don't let anyone talk you into doing a urine challenge test. The dose

of challenge agent is too high and metals will be redistributed

causing more damage. The results aren't very meaningful.

I

> found a DAN Dr but the consult is $385 and I think that is kinda high.

> He will get me the kit for testing but I also have to pay for the test.

> How do I get this done on my own?

There is a supplement file in the files section here that is very good

and will help you decide how to supplement. There is a file 'Diet -

how to pick the right one for your kid'. Andy Cutler's two books -

Amalgam Illness and Hair Test Interpretation - are two useful resource

books to read and have on hand during chelation.

If your son has no amalgam fillings and no recent exposure to mercury

- from vaccines or high mercury fish for example - then it's ok to do

a trial of chelation using very low dose of chelator. Side effects

with chelation will confirm toxicity.

Chelation using Andy's protocol is very simple really. Moria has some

web pages to help. Look through these and ask questions in this group.

http://home.earthlink.net/~moriam/

Many chelate on their own without a doctor or ask their regular doctor

to be involved by running routine testing.

J

How did you all get this done? I know

> something had to have happened to my son because he was fine and I mean

> a completely different boy until after those check ups. I am just at a

> lost on all this. Please if anyone can help me.....

>

[Guest guest]

Welcome! There are many parents on this group doing chelation without

a doc, I'm one of them. The best test to start with is a hair elements

test from Doctor's Data, you can order it without a prescription from

Direct Labs, and if you call the order in and mention this list, they

will give you a discount. The last test I got in March was $73 with the

discount. Then apply the counting rules, info is here:

http://home.earthlink.net/~moriam/HOW_TO_hair_test.html

<http://home.earthlink.net/~moriam/HOW_TO_hair_test.html>

You can post the results here and get help interpreting it.

Check the files section of this list for the supplement file, this will

tell you the various supplements recommended for chelation.

It would also be a good idea to get Andy Cutler's books Amalgam Illness

and Hair Test Interpretation, they have been invaluable to me. You can

get them here:

http://www.noamalgam.com/booksforsale.html

<http://www.noamalgam.com/booksforsale.html>

This is a wonderful group, and I could not have done this without the

support and advice of parents here. There is a lot of info in the files

section, and you can search the entire archives of this list at:

http://onibasu.com/ <http://onibasu.com/>

Carmen

>

> Ok let me start off by telling you about our family. I am and

I

> have 2 sons. Caleb 3 and 1. Me and my boyfriend only have

> together but Caleb calls him daddy and well he really is in a way and

> Matt has a 7 yr old daughter. Anyhow Caleb was diagnosed with Autism

in

> Sept.2006 and I am lost completely. I do not know where to begin. I

> know my son changed after he hit 15 to 18 months. I ask about the

Heavy

> MEtal testing but no one here will tell me where I can get it done. I

> found a DAN Dr but the consult is $385 and I think that is kinda high.

> He will get me the kit for testing but I also have to pay for the

test.

> How do I get this done on my own? How did you all get this done? I

know

> something had to have happened to my son because he was fine and I

mean

> a completely different boy until after those check ups. I am just at a

> lost on all this. Please if anyone can help me.....

>

[Guest guest]

Hi ,

Have you been to the Generation Rescue site? You can look for a Rescue

Angel in your area there. Its www.generationrescue.org

<http://www.generationrescue.org/>

You may also be interested in the group chelatingkids2.

Parents that are new to this might find a couple books helpful

" Facing Autism " by Lynn Hamilton

" Children with Starving Brains " by Dr. J McCandless

" What Your Doctor May NOT Tell You about Childhood Vaccinations " by Dr. S

Cave.

" Evidence of Harm " by Kirby

Dr Jepson and Dr. Bock both have new books out that I have not had the

opportunity to read. I have heard that they are excellent. Perhaps someone

else on the list can speak to those.

Pamela

" Courage is doing what you're afraid to do. There can be no courage unless

you're scared. "

Eddie Rickenbacker, top US fighter ace, WWI

_____

From: [mailto: ]

On Behalf Of

Sent: Saturday, June 23, 2007 9:43 PM

Subject: [ ] New to all this

Ok let me start off by telling you about our family. I am and I

have 2 sons. Caleb 3 and 1. Me and my boyfriend only have

together but Caleb calls him daddy and well he really is in a way and

Matt has a 7 yr old daughter. Anyhow Caleb was diagnosed with Autism in

Sept.2006 and I am lost completely. I do not know where to begin. I

know my son changed after he hit 15 to 18 months. I ask about the Heavy

MEtal testing but no one here will tell me where I can get it done. I

found a DAN Dr but the consult is $385 and I think that is kinda high.

He will get me the kit for testing but I also have to pay for the test.

How do I get this done on my own? How did you all get this done? I know

something had to have happened to my son because he was fine and I mean

a completely different boy until after those check ups. I am just at a

lost on all this. Please if anyone can help me.....

[Guest guest]

Hi ,

I do this on my own, using a pediatrician to requisition the tests I

cannot order myself. I also saw a DAN once, but realized that

although he had good intentions, I knew as much, if not more, than he

did, and getting to see him was very time consuming and expensive

because of the distance.

What vaccinations did your son receive at that time he regressed?

Consider getting a hair ELEMENTS test from Direct Labs

http://directlabs.com/. You order it yourself, post it here and get

help understanding it. Find a doctor who will run basic blood work

for you. And then read, read, read. If you can find a good DAN who

takes insurance, by all means use that doctor. But even if you use a

DAN, read, read, read. I have a document that might help you get

started. It is for people new to biomedical. Email me privately (by

changing the bar to my address) and I would be happy to send it

to you.

Anita

>

> Ok let me start off by telling you about our family. I am

and I

> have 2 sons. Caleb 3 and 1. Me and my boyfriend only have

> together but Caleb calls him daddy and well he really is in a way

and

> Matt has a 7 yr old daughter. Anyhow Caleb was diagnosed with

Autism in

> Sept.2006 and I am lost completely. I do not know where to begin. I

> know my son changed after he hit 15 to 18 months. I ask about the

Heavy

> MEtal testing but no one here will tell me where I can get it done.

I

> found a DAN Dr but the consult is $385 and I think that is kinda

high.

> He will get me the kit for testing but I also have to pay for the

test.

> How do I get this done on my own? How did you all get this done? I

know

> something had to have happened to my son because he was fine and I

mean

> a completely different boy until after those check ups. I am just

at a

> lost on all this. Please if anyone can help me.....

>

[Guest guest]

Okay, , what do you need first?

You could have his porphyrin test done through the lab in Paris at

www.labbio.net

to establish toxicity levels. The cost is around $120-130, I think. Ask them

for a urinary porphyrins test kit and follow the directions.

Barb

[ ] New to all this

Ok let me start off by telling you about our family. I am and I

have 2 sons. Caleb 3 and 1. Me and my boyfriend only have

together but Caleb calls him daddy and well he really is in a way and

Matt has a 7 yr old daughter. Anyhow Caleb was diagnosed with Autism in

Sept.2006 and I am lost completely. I do not know where to begin. I

know my son changed after he hit 15 to 18 months. I ask about the Heavy

MEtal testing but no one here will tell me where I can get it done. I

found a DAN Dr but the consult is $385 and I think that is kinda high.

He will get me the kit for testing but I also have to pay for the test.

How do I get this done on my own? How did you all get this done? I know

something had to have happened to my son because he was fine and I mean

a completely different boy until after those check ups. I am just at a

lost on all this. Please if anyone can help me.....

[Guest guest]

School definitely triggers his anxiety. In addition to the AS, he also was

diagnosed with a learning disability. While he is very intelligent and has

normal cogntive abilities, he really struggles (no surprise) in areas that

require good communication skills and certain types of memory work. He is so

stressed about appearing " stupid " or different in front of his peers that he is

totally spent by the time he gets home. He is fortunate and determined enough

that he actually has a small group of really good and loyal friends, but

whenever there is a ripple in the group (ie, he feels in the middle of an

argument or issue), he just cannot function. He is a wreck by the time he gets

home.

Regarding OCD...I would not be at all surprised. He is exceedingly fussy and

things have to look, feel, smell and taste just right. Routine is exceedingly

important to him. However, there are no really overt signs of it - he does not

have any routines he needs to repeat over and over...yet.

Your son is 21....did you find puberty really triggered stronger

reactions/symptoms?

Thanks so much for your response.

Maureen

3 kids - AS child is oldest. Will be 13 this summer and also has a heart

condition. Has had 2 heart surgeries. Middle son is totally easy-going and

healthy. He will be 11 this summer. Takes on way too much to " make up " for his

brother being difficult (he adores him). My youngest is a daughter who is 8 and

also has the heart problem as well as asthma and life-threatening food

allergies. She is bubbly and loud - always singing. She is a huge trigger for

her AS brother. They are polar opposites. It is a battle ground. Hubbie tries

hard to be patient but struggles to keep his cool in the face of a full on

melt-down so it is definitely my job to referee and be the one to help my AS boy

calm down and survive the storm. I am exhausted...and love them all so much I

just wish we could have some peace and be together without all the strife.

> >

> > Hi, there. My son is almost 13 and was only diagnosed with AS a yr ago. He

has struggled with health problems all his life, so his " intense " nature (and

all that goes with it) was largely attributed to all he had been through. Now we

are way ahead of the game, as we know what it is (and I had secretly suspected

autism since age 2 but with all the other worries, could not go there) but no

further ahead on helping him learn to " cope " or control his strong reactions. He

now has the appropriate help at school and does quite

>

[Guest guest]

Anytime! Totally agree with the comment re: Aspies maturing slower than most

kids. Mine is fortunate & determined enough to have a few close friends, but at

this age (turning 13), he could easily be left behind as he is definitely

showing signs of being less mature. The others' interests are changing and my

Aspie has not caught up...fingers crossed they don't leave him in the dust. I

know he is spending more and more time home alone, but think it is by

choice...so far.

> > > >

> > > >

> > > >

> > > > School definitely triggers his anxiety. In addition to the AS, he also

> > was diagnosed with a learning disability. While he is very intelligent and

> > has normal cogntive abilities, he really struggles (no surprise) in areas

> > that require good communication skills and certain types of memory work. He

> > is so stressed about appearing " stupid " or different in front of his peers

> > that he is totally spent by the time he gets home. He is fortunate and

> > >

> >

> >

> >

>

[Guest guest]

I'm also looking for a group for teens/young adults. I'm lucky to have a real

one that meets locally once a month and it has been a real eye opener. Am

thinking of starting a blog or a group just for teens/young adults... just

not sure how to squeeze more into my day. In the meantime, let's keep in touch

via this great group. My son is 18 and at the local community college. So far he

is doing OK because he is just taking classes he is interested in. He's avoiding

the required classes where he would absolutely have to have accommodations.

What university does your son go to? Is it AS-friendly? I need to figure what to

do after community college and am starting a list of colleges that would give my

son the extra hand holding he needs.

[Guest guest]

He is only 10 and in the 5th grade. I look forward to refering to this group in the near future! Thanks for your response!

From: <tamaoki_s@...>Subject: ( ) Re: New to all this Date: Thursday, April 29, 2010, 4:47 PM

I'm also looking for a group for teens/young adults. I'm lucky to have a real one that meets locally once a month and it has been a real eye opener. Am thinking of starting a blog or a group just for teens/young adults... just not sure how to squeeze more into my day. In the meantime, let's keep in touch via this great group. My son is 18 and at the local community college. So far he is doing OK because he is just taking classes he is interested in. He's avoiding the required classes where he would absolutely have to have accommodations. What university does your son go to? Is it AS-friendly? I need to figure what to do after community college and am starting a list of colleges that would give my son the extra hand holding he needs.

[Guest guest]

Hi !! My DS is also 18 yrs. old , graduating senior this June and will also go to the local community college here. I live in Southern Calif. about 50 mi from Los Angeles. Where do you live? He has applied for the Disability program at out community college. Is your son currently taking advantage of the accomodations afforded to him at school? If so, what accomodations does he have?? how is he doing and what career does he want to be in?? I too am trying to look for a local support group here just for teens/young adult, but to no success. Good that you were able to locate one. Am thinking of starting one but do not know how to moderate it. What else is your son diagnosed w/ ? mine also has OCD. He gets so obsessed once a kids starts making friend w/ him as he is so lonely and desperately wants to have friends. He

prefers the younger kids as well -like 3-4 yrs. younger. I would appreciate your response and hopefully we can keep in touch. VickieFrom: <tamaoki_s@...>Subject: ( ) Re: New to all this Date: Thursday, April 29, 2010, 2:47 PM

I'm also looking for a group for teens/young adults. I'm lucky to have a real one that meets locally once a month and it has been a real eye opener. Am thinking of starting a blog or a group just for teens/young adults... just not sure how to squeeze more into my day. In the meantime, let's keep in touch via this great group. My son is 18 and at the local community college. So far he is doing OK because he is just taking classes he is interested in. He's avoiding the required classes where he would absolutely have to have accommodations.

What university does your son go to? Is it AS-friendly? I need to figure what to do after community college and am starting a list of colleges that would give my son the extra hand holding he needs.

[Guest guest]

Stay here! I think there are a lot of us with older kids and I enjoy

reading about the others. I have two with HFA, one is 13 yo and one is

21. My 21 yo is going to start college by taking a few classes this

summer. Fingers are crossed. He has dyslexia as well and would never

ask for help or admit he needs help. Never a dull moment!

Roxanna

Whenever I feel blue, I start breathing again.

( ) Re: New to all this

I'm also looking for a group for teens/young adults. I'm lucky to have

a real one that meets locally once a month and it has been a real eye

opener. Am thinking of starting a blog or a group just for

teens/young adults... just not sure how to squeeze more into my day. In

the meantime, let's keep in touch via this great group. My son is 18

and at the local community college. So far he is doing OK because he is

just taking classes he is interested in. He's avoiding the required

classes where he would absolutely have to have accommodations.

What university does your son go to? Is it AS-friendly? I need to

figure what to do after community college and am starting a list of

colleges that would give my son the extra hand holding he needs.

[Guest guest]

What social group did he like?

Roxanna

Whenever I feel blue, I start breathing again.

( ) Re: New to all this

This is a note to Vicki -

I'm in Northern California in the Bay Area and I found a support group

through a private school for AS kids, where my son went to high school.

The group isn't affiliated with the school, but the school lets them

use a classroom once a month for meetings. If you know of a school like

this in your area - maybe you can call and see if they have something

similar like this? A church may also have something like this, too.

The group was founded by four moms a few years ago. They take turns

leading the meetings. When there isn't a speaker, we just go around the

room and talk about a topic or share what's going on in our lives now.

When we put our heads together, it's amazing how much we can help each

other out.

There's usually about 20 parents who come. I feel so lucky to have this

group - but just wish I really had the time to follow up on all the

information they have to share. We have an informal mailing list, but

that's it. They don't have an online presence and so they are hard to

find. I don't think that our group even has a name! One of my personal

goals for this year is to come up with a way to share their resources

online - maybe a blog or a webpage. We know about the resources that

are local, but I'd love to hear what's going on in other places, too.

My son started college classes during his senior year of high school

and so he was already registered as a DS student by the time he

graduated. The advice we got for college was for my son to not worry

about being a fulltime student for the first year or two or to worry

about a major. That he should start by taking a couple of classes where

he has a good chance of success and won't be too anxious. And then

gradually he can get the required classes out of the way and figure out

what he wants to do. So that's what we are doing. He is registed with

the disability office on campus and so gets early registration. He is

purposely avoiding taking any classes where he might need other

accommodations & I'm not looking forward to that time since he is doing

so well now. He loves the classes he has (BUT I don't know his grades &

so don't really know if he really is doing OK.) He actually joined a

martial arts club and so spends most of Fridays working out with the

club on campus .

The other bit of advice we got in high school was for him to join a

social group. I've looked for one for years and suddenly found one that

he actually likes. So he does this once a week, plus an occasional

private session with the doctor who runs this group.

But he still does not drive. He can use public transportation though.

Still insists on wearing a jacket all the time, even in summer. Still

rarely talks to anyone. Still has such a long, long way to go.