Re: scaphiocephalic head shape

[Guest guest]

Kendra,

Believe it or not, I actually thought of that right when I hit send.

I guess I am just a little slow. :-)

Thanks for the post

JUlie

> :

> Look in the database under " who are you again? "

> If you haven't filled in YOUR info (everyone!) please do so, so we

can keep track of you! ;o)

> Kendra in Canada

> For more plagio info, visit

> www.plagiocephaly.org/support

> .

> .

> .

> ----- Original Message -----

> From: fyveboyz@a...

> Plagiocephaly@y...

> Sent: Thursday, March 15, 2001 7:31 PM

> Subject: scaphiocephalic head shape

>

>

> Hi everyone, I am trying to get a list for myself of the babies

that

> have the elongated head shape. I was just wondering so I can

compare

> pics etc. If you dont mind letting me know that would be great.

> Maybe we could form a list of the different head shapes and the

> members (or babies) with that type for a quick reference. I

don't

> know it that is done or if it is even possible. Thanks

>

>

>

[Guest guest]

:

Look in the database under "who are you again?"

If you haven't filled in YOUR info (everyone!) please do so, so we can keep track of you! ;o)

Kendra in CanadaFor more plagio info, visitwww.plagiocephaly.org/support...

----- Original Message -----

From: fyveboyz@...

Plagiocephaly

Sent: Thursday, March 15, 2001 7:31 PM

Subject: scaphiocephalic head shape

Hi everyone, I am trying to get a list for myself of the babies that have the elongated head shape. I was just wondering so I can compare pics etc. If you dont mind letting me know that would be great. Maybe we could form a list of the different head shapes and the members (or babies) with that type for a quick reference. I don't know it that is done or if it is even possible. Thanks

[Guest guest]

has the elongated head shape. He also has ridging

(non-synostosic) on his coronal sutures and his metopic suture from the

fontanelle down to past the hair line (it is a wedge shaped ridge). The

ridging is getting more and more pronounced and the metopic suture

ridging is going further into the forehead.He has bifrontal bossing.

Deformation is equivalent on each side so there is no observable

assymetry.

's plastic surgeon from his cleft lip surgery pointed out his

head shape, tested for craniosynostosis and ordered the helmet. He

doesn't like to use the scaphiocephalic term and just regards it as

deformational plagiocephaly where the head is too long/narrow. I gather

that this is because there are peculiarlities to the head shapes

depending on whether it is an internal force (craniosynostosis) or

external force (plagiocephaly).

I will take photos of and my son 's head profiles.

had a similar head shape as a baby. I always wondered why his

head was so wide behind the ears. It seems that his forehead/face have

remained narrow (about 10cm) and his biparietal diameter (width behind

ears) is wider (about 15cm).

The orthopaedist who cast 's helmet didn't know how much it would

help as although it is long/narrow it is not assymetrical. I will be

happy if he can lay down without flattening his head further (the area

from his ears to his forehead on each side) and give his head a chance

to grow back out in those areas.

I feel that I was put in the position of whether or not to get a helmet

as it may or may not rectify itself and although it is narrow it is

symetrical. Am I putting him through something unneccessary? I guess

that if I don't and it doesn't rectify itself than it will be my fault

for not doing it, and I will have to live with that.

Joanne

-----Original Message-----

From: fyveboyz@... [mailto:fyveboyz@...]

Sent: Friday, 16 March 2001 1:32

Plagiocephaly

Subject: scaphiocephalic head shape

Hi everyone, I am trying to get a list for myself of the babies that

have the elongated head shape. I was just wondering so I can compare

pics etc. If you dont mind letting me know that would be great.

Maybe we could form a list of the different head shapes and the

members (or babies) with that type for a quick reference. I don't

know it that is done or if it is even possible. Thanks

[Guest guest]

Domi,

Are you having much success with the band?

-----Original Message-----

From: Dominika White [mailto:domi.nika@...]

Sent: Saturday, 17 March 2001 12:50

Plagiocephaly

Subject: Re: scaphiocephalic head shape

Aimee has that particular head shape....you can can include her webpage

in

your info....

It has an eagles eye view type pic on there....

http://pages.ivillage.com/mommie_domi/aimeeplagiopage/index.html

<http://pages.ivillage.com/mommie_domi/aimeeplagiopage/index.html>

Domi and Aimee (banded since Nov.29,2000)

[Guest guest]

Aimee has that particular head shape....you can can include her webpage in

your info....

It has an eagles eye view type pic on there....

http://pages.ivillage.com/mommie_domi/aimeeplagiopage/index.html

Domi and Aimee (banded since Nov.29,2000)

----- Original Message -----

From: <fyveboyz@...>

<Plagiocephaly >

Sent: Thursday, March 15, 2001 9:31 PM

Subject: scaphiocephalic head shape

> Hi everyone, I am trying to get a list for myself of the babies that

> have the elongated head shape. I was just wondering so I can compare

> pics etc. If you dont mind letting me know that would be great.

> Maybe we could form a list of the different head shapes and the

> members (or babies) with that type for a quick reference. I don't

> know it that is done or if it is even possible. Thanks

>

>

>

>

[Guest guest]

Domi;

Great web page. You are soo talented. It is amazing how much her

head looks like Sam. I cant wait to see the end result.

Thanks,

> Aimee has that particular head shape....you can can include her

webpage in

> your info....

> It has an eagles eye view type pic on there....

>

> http://pages.ivillage.com/mommie_domi/aimeeplagiopage/index.html

>

>

> Domi and Aimee (banded since Nov.29,2000)

>

>

> ----- Original Message -----

> From: <fyveboyz@a...>

> <Plagiocephaly@y...>

> Sent: Thursday, March 15, 2001 9:31 PM

> Subject: scaphiocephalic head shape

>

>

> > Hi everyone, I am trying to get a list for myself of the babies

that

> > have the elongated head shape. I was just wondering so I can

compare

> > pics etc. If you dont mind letting me know that would be great.

> > Maybe we could form a list of the different head shapes and the

> > members (or babies) with that type for a quick reference. I don't

> > know it that is done or if it is even possible. Thanks

> >

> >

> >

> >

[Guest guest]

Joann,

Sam does not have assementary either, he really had a 'bump' in the

back because his went more to a point from the ears back. They were

not sure how a band would help with his shape either. We have gotten

some growth in width so we will be happy with whatever we get.

Thanks for answering.

>

>

> has the elongated head shape. He also has ridging

> (non-synostosic) on his coronal sutures and his metopic suture from

the

> fontanelle down to past the hair line (it is a wedge shaped ridge).

The

> ridging is getting more and more pronounced and the metopic suture

> ridging is going further into the forehead.He has bifrontal bossing.

> Deformation is equivalent on each side so there is no observable

> assymetry.

>

> 's plastic surgeon from his cleft lip surgery pointed out his

> head shape, tested for craniosynostosis and ordered the helmet. He

> doesn't like to use the scaphiocephalic term and just regards it as

> deformational plagiocephaly where the head is too long/narrow. I

gather

> that this is because there are peculiarlities to the head shapes

> depending on whether it is an internal force (craniosynostosis) or

> external force (plagiocephaly).

>

> I will take photos of and my son 's head profiles.

>

> had a similar head shape as a baby. I always wondered why his

> head was so wide behind the ears. It seems that his forehead/face

have

> remained narrow (about 10cm) and his biparietal diameter (width

behind

> ears) is wider (about 15cm).

>

> The orthopaedist who cast 's helmet didn't know how much it

would

> help as although it is long/narrow it is not assymetrical. I will be

> happy if he can lay down without flattening his head further (the

area

> from his ears to his forehead on each side) and give his head a

chance

> to grow back out in those areas.

>

> I feel that I was put in the position of whether or not to get a

helmet

> as it may or may not rectify itself and although it is narrow it is

> symetrical. Am I putting him through something unneccessary? I guess

> that if I don't and it doesn't rectify itself than it will be my

fault

> for not doing it, and I will have to live with that.

>

> Joanne

>

> -----Original Message-----

> From: fyveboyz@a... [mailto:fyveboyz@a...]

> Sent: Friday, 16 March 2001 1:32

> Plagiocephaly@y...

> Subject: scaphiocephalic head shape

>

>

> Hi everyone, I am trying to get a list for myself of the babies

that

> have the elongated head shape. I was just wondering so I can

compare

> pics etc. If you dont mind letting me know that would be great.

> Maybe we could form a list of the different head shapes and the

> members (or babies) with that type for a quick reference. I don't

> know it that is done or if it is even possible. Thanks

>

>

>

>

[Guest guest]

Joanne:

Have you talked to Cranial Technologies? They have a band made to corrected the scaphocephalic head shape! )

Kendra in CanadaFor more plagio info, visitwww.plagiocephaly.org/support...

----- Original Message -----

From: Joanne Hibble

Plagiocephaly

Sent: Friday, March 16, 2001 2:16 AM

Subject: RE: scaphiocephalic head shape

has the elongated head shape. He also has ridging(non-synostosic) on his coronal sutures and his metopic suture from thefontanelle down to past the hair line (it is a wedge shaped ridge). Theridging is getting more and more pronounced and the metopic sutureridging is going further into the forehead.He has bifrontal bossing.Deformation is equivalent on each side so there is no observableassymetry.'s plastic surgeon from his cleft lip surgery pointed out hishead shape, tested for craniosynostosis and ordered the helmet. Hedoesn't like to use the scaphiocephalic term and just regards it asdeformational plagiocephaly where the head is too long/narrow. I gatherthat this is because there are peculiarlities to the head shapesdepending on whether it is an internal force (craniosynostosis) orexternal force (plagiocephaly).I will take photos of and my son 's head profiles. had a similar head shape as a baby. I always wondered why hishead was so wide behind the ears. It seems that his forehead/face haveremained narrow (about 10cm) and his biparietal diameter (width behindears) is wider (about 15cm).The orthopaedist who cast 's helmet didn't know how much it wouldhelp as although it is long/narrow it is not assymetrical. I will behappy if he can lay down without flattening his head further (the areafrom his ears to his forehead on each side) and give his head a chanceto grow back out in those areas.I feel that I was put in the position of whether or not to get a helmetas it may or may not rectify itself and although it is narrow it issymetrical. Am I putting him through something unneccessary? I guessthat if I don't and it doesn't rectify itself than it will be my faultfor not doing it, and I will have to live with that. Joanne-----Original Message-----From: fyveboyz@... [mailto:fyveboyz@...]Sent: Friday, 16 March 2001 1:32Plagiocephaly Subject: scaphiocephalic head shapeHi everyone, I am trying to get a list for myself of the babies that have the elongated head shape. I was just wondering so I can compare pics etc. If you dont mind letting me know that would be great. Maybe we could form a list of the different head shapes and the members (or babies) with that type for a quick reference. I don't know it that is done or if it is even possible. Thanks