Re: LDN & Hashi's Success Stories?

[Guest guest]

Sue,  see item #3 below.  It's at this pagehttp://www.low dose naltrexone.org/#Cautionary_warnings> Cautionary warnings: Because LDN blocks opioid receptors throughout the body for three or four hours, people using medicine that is an opioid agonist, i.e. narcotic medication — such as Ultram (tramadol), morphine, Percocet, Duragesic patch or codeine-containing medication — should not take LDN until such medicine is completely out of one's system. Patients who have become dependant on daily use of narcotic-containing pain medication may require 10 days to 2 weeks of slowly weaning off of such drugs entirely (while first substituting full doses of non-narcotic pain medications) before being able to begin LDN safely. LDN should probably not be taken during pregnancy until research into that question is completed. Those patients who are taking thyroid hormone replacement for a diagnosis of Hashimoto’s thyroiditis with hypothyroidism ought to begin LDN at the lowest range (1.5mg for an adult). Be aware that LDN may lead to a prompt decrease in the autoimmune disorder, which then may require a rapid reduction in the dose of thyroid hormone replacement in order to avoid symptoms of hyperthyroidism. Full-dose naltrexone (50mg) carries a cautionary warning against its use in those with liver disease. This warning was placed because of adverse liver effects that were found in experiments involving 300mg daily. The 50mg dose does not apparently produce impairment of liver function nor, of course, do the much smaller 3mg and 4.5mg doses. People who have received organ transplants and who therefore are taking immunosuppressive medication on a permanent basis are cautioned against the use of LDN because it may act to counter the effect of those medications.   Good luck,   JackieMessages in this topic (1)Reply (via web post) | Start a new topicMessages Change settings via the Web ( ID required) Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional Visit Your Group |  Terms of Use | UnsubscribeRECENT ACTIVITY36New MembersVisit Your GroupMeditation andLovingkindnessA Groupto share and learn. HealthHealthy AgingImprove yourquality of life. FinanceIt's Now PersonalGuides, news,advice & more.. 

[Guest guest]

Hi SueYour experience mirrors my own - the only difference is my antibodies are close to 2,000.I'm still looking for a doc to support me with trying ldn, I too am tired of the yo-yo effect I'm having with the thyroid/Hashi issues. I figure I may try to taper my Amour down first after reading the caution for thyroid - before trying the 1.5 dose.I'm sure others on the list will post their own stories of trying ldn. I agree, feeling well for a change would be nice.AB [low dose naltrexone] LDN & Hashi's Success Stories?

Hi Everyone,

I am new to the board and was just wondering how many of you out

there have tried ldn that have Hashimoto's disease and if you have

had success with this or not?

I have been on Armour for about 3 years now and have been up and

down on the dosage, if I go up then hyper, go down and my T4 drops

too low. My antibodies are over 900 and I just don't feel well and

haven't for a long time.

One thing I read on the ldn site which was something I never new but

it said that people with hashi's tend to have low endorphins, I

don't know if I am wording that quite right but I noticed a few

years back that after exercising I quit getting that endorphin high

afterwords and have not had it since, in fact I feel horrible after

exercise.

I would love to hear any Hashi's feedback so I can go in armed and

ready to my new endo.

Thanks,

Sue

Ask a question on any topic and get answers from real people. Go to Answers.

[Guest guest]

I am HypoT and take 3mg LDN, 1/2 grai Armour AM & 1/2 grain PM. Marcie adelesbells <adelesbells1024@...> wrote: Hi SueYour experience mirrors my own - the only difference is my antibodies are close to 2,000.I'm still looking for a doc to

support me with trying ldn, I too am tired of the yo-yo effect I'm having with the thyroid/Hashi issues. I figure I may try to taper my Amour down first after reading the caution for thyroid - before trying the 1.5 dose.I'm sure others on the list will post their own stories of trying ldn. I agree, feeling well for a change would be nice.AB [low dose naltrexone] LDN & Hashi's Success Stories? Hi Everyone,I am new to the board and was just wondering how many of you out there have tried ldn that have Hashimoto's disease and if you have had success with this or not?I have been on

Armour for about 3 years now and have been up and down on the dosage, if I go up then hyper, go down and my T4 drops too low. My antibodies are over 900 and I just don't feel well and haven't for a long time.One thing I read on the ldn site which was something I never new but it said that people with hashi's tend to have low endorphins, I don't know if I am wording that quite right but I noticed a few years back that after exercising I quit getting that endorphin high afterwords and have not had it since, in fact I feel horrible after exercise.I would love to hear any Hashi's feedback so I can go in armed and ready to my new endo.Thanks,Sue Ask a question on any topic and get answers from real people. Go to Answers.

[Guest guest]

I am hypo through surgery, and take 100 mgs levothyroxine...No problems... Maybe because it was 'surgical' I am more stable, before it I was Hyper.....

Celia

[Guest guest]

From Dr. Gluck's LDN website:

For intial dosage of LDN in those patients who have Hashimoto's

thyroiditis with hypothyroidism and who are taking thyroid hormone

replacement medication, please read Cautionary Warnings (#3).

3. Those patients who are taking thyroid hormone replacement for a

diagnosis of Hashimoto's thyroiditis with hypothyroidism ought to

begin LDN at the lowest range (1.5mg for an adult). Be aware that LDN

may lead to a prompt decrease in the autoimmune disorder, which then

may require a rapid reduction in the dose of thyroid hormone

replacement in order to avoid symptoms of hyperthyroidism.

http://www.low dose naltrexone.org/

Art

--

>

> Hi Everyone,

>

> I am new to the board and was just wondering how many of you out

> there have tried ldn that have Hashimoto's disease and if you have

> had success with this or not?

>

> I have been on Armour for about 3 years now and have been up and

> down on the dosage, if I go up then hyper, go down and my T4 drops

> too low. My antibodies are over 900 and I just don't feel well and

> haven't for a long time.

>

> One thing I read on the ldn site which was something I never new

but

> it said that people with hashi's tend to have low endorphins, I

> don't know if I am wording that quite right but I noticed a few

> years back that after exercising I quit getting that endorphin high

> afterwords and have not had it since, in fact I feel horrible after

> exercise.

>

> I would love to hear any Hashi's feedback so I can go in armed and

> ready to my new endo.

>

> Thanks,

> Sue

>

[Guest guest]

Hi AB...

A new forum has just launched -- AHSTA

Alternative Health Solutions for Thyroid Autoimmunity.

http://www.ahsta.com/

I think you will find others like you dealing with the autoimmune

issues of thyroid disease.

Currently, the hot topic is LDN at AHSTA --- but I'm sure other topics

will be taking off soon too.

Hope to see you there...

Jann

[Guest guest]

>

> Hi Sue

> I am going to see a new endo to have my pituitary gland checked to

see if that is what is causing my problems. I just don't know where

to go from here, I have been down the adrenal fatigue road and took

cortisol for a few years with some success for a while. I have been

off of that since August and now my cortisol is high. I just know

the high antibodies have something to do with how I feel. It's

really hard to put into words how I feel, I have some really bad

anxiety some of the time but it is just my general sense of well

being, its just not right. I just don't laugh anymore, its just

like I exist, no joy to life like I used to have.

> Your experience mirrors my own - the only difference is my

antibodies are close to 2,000.

>

> I'm still looking for a doc to support me with trying ldn, I too

am tired of the yo-yo effect I'm having with the thyroid/Hashi

issues. I figure I may try to taper my Amour down first after

reading the caution for thyroid - before trying the 1.5 dose.

>

> I'm sure others on the list will post their own stories of trying

ldn. I agree, feeling well for a change would be nice.

>

> AB

>

> [low dose naltrexone] LDN & Hashi's Success Stories?

>

>

[Guest guest]

I have been on the sight and do know that if I do get a prescription

for it then I am going to have to lower my armour before I start. I

also have the name of a doctor in my area that prescribes ldn so if

they don't find anything wrong with my pituitary then I will try

this route.

Sue

> >

> > Hi Everyone,

> >

> > I am new to the board and was just wondering how many of you out

> > there have tried ldn that have Hashimoto's disease and if you

have

> > had success with this or not?

> >

> > I have been on Armour for about 3 years now and have been up and

> > down on the dosage, if I go up then hyper, go down and my T4

drops

> > too low. My antibodies are over 900 and I just don't feel well

and

> > haven't for a long time.

> >

> > One thing I read on the ldn site which was something I never new

> but

> > it said that people with hashi's tend to have low endorphins, I

> > don't know if I am wording that quite right but I noticed a few

> > years back that after exercising I quit getting that endorphin

high

> > afterwords and have not had it since, in fact I feel horrible

after

> > exercise.

> >

> > I would love to hear any Hashi's feedback so I can go in armed

and

> > ready to my new endo.

> >

> > Thanks,

> > Sue

> >

>

[Guest guest]

Hi SueI too went down the adrenal fatigue road (my ft3's were very low, out of range). I was on a low dose of Cortef for about a year...have been off it for 2 and seem okay. My mood is okay (anxiety at times) – but I now have horrible ibs that comes and goes and knocks me flat for days... or has me going to the emerg ward. I have days when I feel like all my muscles are very tense, sleep issues on and off and a host of weird symptoms. When my estrogen levels are lower most of my problems get worse – I've documented this, but it's obviously more complex than just keeping estro up.I've debated about going the pituitary route as well but 2 docs feel my issues are Hashi's based so ldn seems

worth a try first. AB [low dose naltrexone] LDN & Hashi's Success Stories?

>

>

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