/was: Re: Question about LA and copper levels

[Guest guest]

----- Original Message -----

From: anneecbrynn

Wondering how in the world a probiotic can

cause strep? Any ideas?

<<<Perhaps by overheating the immune system? We didn't have a problem at

first but the longer we used the VSL the more strep/respiratory we kept getting.

Then I happened to read a warning from one of Usman's patients on another board,

took out the VSL and the infections stopped. Could be coincidental but I don't

think so.

Is there any chance that it is helping to

pull latent stuff out?

<<<<I have no earthly idea about all the viral stuff, it's possible, but here

thinking it more likely was ramping things up too much. You'll know if the

infections keep getting more and more frequent, that's what happened here. I was

surprised because I believe thermophilus is present in all yogurt but I think it

is a matter of the amount. I know that not all kids have a problem with this

strain in large amounts so maybe that is not what you are dealing with. Just

thought it was worth mentioning.

I know we had strep before we started VSL,

but we are in the thick of it now. Getting a bit better with each

round of antibiotics, but I still don't like them. And I certainly

don't like the idea that somehow the VSL might cause it. If, on the

other hand, it is dealing with latent stuff (if that is possible),

then I am all for it.

Anne

Anne

> > > > >

> > > > > My son is 9 and I have restarted chelation using LA

> alone

> > > on

> > > > > the Cutler protocol. We stopped due to gut problems but I

> > > noticed

> > > > he

> > > > > regressed and flared just as much NOT on chelation as he

> did on

> > > it.

> > > > > The question is I just looked at his most recent lab

> results,

> > > which

> > > > > were October and his copper in the DD urine challenge

with

> DMPS

> > > was

> > > > > high, in the red, top of RR. However in his blood work it

> was

> > in

> > > > the

> > > > > lower half of the green, normal range. Another thing that

> > stood

> > > > out

> > > > > was cobalt was off the scale after the DMPS challenge (we

> don't

> > > > > normally use DMPS as he regressed on it and so expensive

> to

> > buy)

> > > In

> > > > > fact it was 0.091 and should have been less than 0.03.

His

> > > > porphyrin

> > > > > test results showed a real body burden of mercury and

> lead, as

> > > > > expected from his very high regular lab results.

> > > > >

> > > > > The thing is, when he is on a round of LA he does VERY

> well

> > > without

> > > > > the GI side effects he gets on DMSA. Always after a round

> he

> > > > crashes

> > > > > and gets confused and spacy. We all did a round of LA as

> we all

> > > > have

> > > > > lead poisoning. Which is the best chelator for lead and

> mercury

> > > > > between DMSA and LA please? I'd rather use the LA if it

is

> > > > possible.

> > > > > Please can you advise?

> > > > > Thanks,

> > > > > Sue

> > > > >

> > > >

> > >

> >

> >

> >

> >

> >

> >

[Guest guest]

I don't know specifically about strep but from what I understand your body

harbors bacteria all the time and it is only when the immune system gets

particularly stressed/low that we actually catch something.

[ ] /was: Re: Question about LA and copper levels

,

Yes, I remember when you were going through this. But I still don't

see how it could CAUSE strep, unless it has the strep bacteria in

it. This stuff is enough to drive one nutso.

Anne

> > > > > >

> > > > > > My son is 9 and I have restarted chelation using

LA

> > alone

> > > > on

> > > > > > the Cutler protocol. We stopped due to gut problems but

I

> > > > noticed

> > > > > he

> > > > > > regressed and flared just as much NOT on chelation as

he

> > did on

> > > > it.

> > > > > > The question is I just looked at his most recent lab

> > results,

> > > > which

> > > > > > were October and his copper in the DD urine challenge

> with

> > DMPS

> > > > was

> > > > > > high, in the red, top of RR. However in his blood work

it

> > was

> > > in

> > > > > the

> > > > > > lower half of the green, normal range. Another thing

that

> > > stood

> > > > > out

> > > > > > was cobalt was off the scale after the DMPS challenge

(we

> > don't

> > > > > > normally use DMPS as he regressed on it and so

expensive

> > to

> > > buy)

> > > > In

> > > > > > fact it was 0.091 and should have been less than 0.03.

> His

> > > > > porphyrin

> > > > > > test results showed a real body burden of mercury and

> > lead, as

> > > > > > expected from his very high regular lab results.

> > > > > >

> > > > > > The thing is, when he is on a round of LA he does VERY

> > well

> > > > without

> > > > > > the GI side effects he gets on DMSA. Always after a

round

> > he

> > > > > crashes

> > > > > > and gets confused and spacy. We all did a round of LA

as

> > we all

> > > > > have

> > > > > > lead poisoning. Which is the best chelator for lead and

> > mercury

> > > > > > between DMSA and LA please? I'd rather use the LA if it

> is

> > > > > possible.

> > > > > > Please can you advise?

> > > > > > Thanks,

> > > > > > Sue

> > > > > >

> > > > >

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

>>I know we had strep before we started VSL,

> but we are in the thick of it now. Getting a bit better with each

> round of antibiotics, but I still don't like them.

I can't answer your specific question about the probiotics, but I

eliminated strep at my house with olive leaf extract.

Dana

[Guest guest]

----- Original Message -----

From: anneecbrynn

,

Yes, I agree that that is what happens for most people. But I tend

to think that for some of our kids, the immune system is so

dysfunctional that they catch something and the immune system doesn't

even know to try to deal with it, suppress it, whatever. Instead, it

just manifests in all kinds of wierd behavior and developmental

issues. I think that is why so many see boosts from immune system

intervention, i.e. the body, with help, starts to respond to stuff

that has gotten in and was left unaddressed. Or am I missing your

point?

<<<Anne, sometimes I know what I am talking about and sometimes I think I know

what I am talking about but concerning the immune system I know I don't know

what I am talking about.

Here we have been blocked at every corner with anything antiviral which always

produces symptoms that make her complain about sharp pains in her stomach. This

includes Virastop, Valtrex and OLE. We recently started her on Elderberry

extract, just 1/2 capsule spread throughout the day.

She was on this for about 10 days when I had her unexpectedly and because I

was rushed I did not empty the capsule 1/2 and gave her a full capsule to

swallow. And she got the most chicken poxy looking rash on her back I have ever

seen, minus the blisters. It was horrible and itched just like chicken pox. This

lasted for about two weeks and made her so miserable the first night she could

not sleep Now we have cold sores. All this from Elderberry extract.

I have read some studies that reported Elderberry extract could stop the

replication of Herpes I and II and also the Varicella virus, EBV virus (which

she tested negative for) so is this clearing latent viruses? Or something else?

I have no clue. Because she is largely recovered now the only way I can tell

about anything is to watch her handwriting which will vaccilate slightly with

improvement and decline and that has improved and is now consistently good. And

she seems to just feel better, is happier. But I am not quite sure what to

think about any of this.

Anne

> > > > > > >

> > > > > > > My son is 9 and I have restarted chelation

using

> LA

> > > alone

> > > > > on

> > > > > > > the Cutler protocol. We stopped due to gut problems

but

> I

> > > > > noticed

> > > > > > he

> > > > > > > regressed and flared just as much NOT on chelation as

> he

> > > did on

> > > > > it.

> > > > > > > The question is I just looked at his most recent lab

> > > results,

> > > > > which

> > > > > > > were October and his copper in the DD urine challenge

> > with

> > > DMPS

> > > > > was

> > > > > > > high, in the red, top of RR. However in his blood

work

> it

> > > was

> > > > in

> > > > > > the

> > > > > > > lower half of the green, normal range. Another thing

> that

> > > > stood

> > > > > > out

> > > > > > > was cobalt was off the scale after the DMPS challenge

> (we

> > > don't

> > > > > > > normally use DMPS as he regressed on it and so

> expensive

> > > to

> > > > buy)

> > > > > In

> > > > > > > fact it was 0.091 and should have been less than

0.03.

> > His

> > > > > > porphyrin

> > > > > > > test results showed a real body burden of mercury and

> > > lead, as

> > > > > > > expected from his very high regular lab results.

> > > > > > >

> > > > > > > The thing is, when he is on a round of LA he does

VERY

> > > well

> > > > > without

> > > > > > > the GI side effects he gets on DMSA. Always after a

> round

> > > he

> > > > > > crashes

> > > > > > > and gets confused and spacy. We all did a round of LA

> as

> > > we all

> > > > > > have

> > > > > > > lead poisoning. Which is the best chelator for lead

and

> > > mercury

> > > > > > > between DMSA and LA please? I'd rather use the LA if

it

> > is

> > > > > > possible.

> > > > > > > Please can you advise?

> > > > > > > Thanks,

> > > > > > > Sue

> > > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

----- Original Message -----

From: anneecbrynn

I can't imagine that her poxy/rash thing and her cold sores " came from " the

elderberry extract. Rather, the elderberry extract hunted down the

viruses in her system and started knocking them out. That would be

my thinking anyway, and is my thinking on the strep front for my

little guy.

<<<Just to me, this would be less clear with a probiotic that is known to

impact the immune system although I also found some evidence that Elderberry

extract was also indicated in raising beneficial cytokines, so maybe we are

saying the same thing.

I was able not to totally panic this time and withdraw it although I did

reduce the amount significantly and when I increased it just a little...along

came the cold sores.>>>>

I think testing doesn't tell you what is in there, just possibly the

extent to which your body, perhaps aided by vaccinations or

supplements, has identified and is trying to fight what is tested for.

<<<I do trust the no EBV finding, however she has not been tested for herpes

and/or varicella titers although she did have that dratted vax...wish we could

have a do over on that one.>>>>>

Does any of this make sense? FWIW, I tend to think that if I could

clear my little guy of all of his latent viral and bacterial issues

(of which I am convinced we have many, so this is pure and absolute

speculation), he might pass for NT. However, I am quite sure that

until his system is pretty clear of mercury and other icky stuff and

his methylation system is working well, he wouldn't be able to

maintain that status on his own.

<<<I think it's entirely possible that you are right about this, that his

behavior would be appropriate if cleared of viral issues. Her totally and

completely flawless social abilities came from Transfer Factor and I am pretty

convinced of this. It was unlike anything that occurred on or with chelation

that faded in and out and then was there. It was like something clicked, or a

light came on and it has never waivered. >>>>

Again, I, like you, am fully aware that I don't know what I am

talking about. :-)

<<<Ditto again but we managed to have a pretty good conversation despite this

:-) >>>

Anne

> > > > > > > >

> > > > > > > > My son is 9 and I have restarted chelation

> using

> > LA

> > > > alone

> > > > > > on

> > > > > > > > the Cutler protocol. We stopped due to gut problems

> but

> > I

> > > > > > noticed

> > > > > > > he

> > > > > > > > regressed and flared just as much NOT on chelation

as

> > he

> > > > did on

> > > > > > it.

> > > > > > > > The question is I just looked at his most recent

lab

> > > > results,

> > > > > > which

> > > > > > > > were October and his copper in the DD urine

challenge

> > > with

> > > > DMPS

> > > > > > was

> > > > > > > > high, in the red, top of RR. However in his blood

> work

> > it

> > > > was

> > > > > in

> > > > > > > the

> > > > > > > > lower half of the green, normal range. Another

thing

> > that

> > > > > stood

> > > > > > > out

> > > > > > > > was cobalt was off the scale after the DMPS

challenge

> > (we

> > > > don't

> > > > > > > > normally use DMPS as he regressed on it and so

> > expensive

> > > > to

> > > > > buy)

> > > > > > In

> > > > > > > > fact it was 0.091 and should have been less than

> 0.03.

> > > His

> > > > > > > porphyrin

> > > > > > > > test results showed a real body burden of mercury

and

> > > > lead, as

> > > > > > > > expected from his very high regular lab results.

> > > > > > > >

> > > > > > > > The thing is, when he is on a round of LA he does

> VERY

> > > > well

> > > > > > without

> > > > > > > > the GI side effects he gets on DMSA. Always after a

> > round

> > > > he

> > > > > > > crashes

> > > > > > > > and gets confused and spacy. We all did a round of

LA

> > as

> > > > we all

> > > > > > > have

> > > > > > > > lead poisoning. Which is the best chelator for lead

> and

> > > > mercury

> > > > > > > > between DMSA and LA please? I'd rather use the LA

if

> it

> > > is

> > > > > > > possible.

> > > > > > > > Please can you advise?

> > > > > > > > Thanks,

> > > > > > > > Sue

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >