Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Hello all! I am so new to this. I have a 4mo son and he is so wonderful. I just was told today that he has severe Plagiocephaly. He was casted for a helmet or band thing and I was so overwhelmed with the whole situation that I didn't even get an explaination of what this thing is or does, except that it is supposed to help return my son's head to a normal or almost normal shape. They told me that he would have to wear it at least 3 months for 23 hours a day and that it could be as long as 7 months. I've been reading the boards on several different sites and everyone is talking about DOC and STAR. How do I know what my baby is going to get and how do I know what is best for his situation. Also, I was so taken back by the casting. I can't believe that there isn't another way to get an acurate casting of his head besides covering his entire head with plaster! I thought maybe they would use the same type of material they used for casting my feet for my orthodics. I don't know what to expect when we get our helmet/band in two weeks...they have to send the casting out to FL to get it made. My son hates hats so this should be fun. Another thing...they are doing a MRI brain scan with sedation. Has anyone had any experiences with this?? Thanks! Stasia/Pennsylvania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Hi Stasia! Chances are since the mold is being sent to Florida, you are getting the STARband which is what my 8 month old son has. You can go to the Orthomerica site (that's who makes the STARband) www.orthomerica.com. It really doesn't have too much info up though. You can look in the Files and check out Bryce's folder for pictures. We don't have before pictures in there though. He was considered " high moderate " . Not quite severe. I would say that we've had at least a 50% improvement and he's been wearing it for 2 months roughly. Good luck! Jess > Hello all! > > I am so new to this. I have a 4mo son and he is so wonderful. I > just was told today that he has severe Plagiocephaly. He was casted > for a helmet or band thing and I was so overwhelmed with the whole > situation that I didn't even get an explaination of what this thing > is or does, except that it is supposed to help return my son's head > to a normal or almost normal shape. > > They told me that he would have to wear it at least 3 months for 23 > hours a day and that it could be as long as 7 months. I've been > reading the boards on several different sites and everyone is talking > about DOC and STAR. How do I know what my baby is going to get and > how do I know what is best for his situation. > > Also, I was so taken back by the casting. I can't believe that there > isn't another way to get an acurate casting of his head besides > covering his entire head with plaster! I thought maybe they would > use the same type of material they used for casting my feet for my > orthodics. > > I don't know what to expect when we get our helmet/band in two > weeks...they have to send the casting out to FL to get it made. My > son hates hats so this should be fun. > > Another thing...they are doing a MRI brain scan with sedation. Has > anyone had any experiences with this?? > > Thanks! > Stasia/Pennsylvania Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.