Re: band bashing(TO KENDRA)

[Guest guest]

very well said and thank you. the reason i finally decided to post my

pictures and letters was to do as youve said-tell a story so people

know whats out there regardless of what they are using. i contemplated

taking it off several times but decided (for now) to leave it because

i don't want others to go thru what we did. i want them to see what

a " mess-up can look like " and " feel the pain i felt " watching my

son go thru the tourture he did. and yes (thankyou) my main point was

to ask questions. i want whats best for my baby like everyone else,

otherwise why would we spend sooooo much time on this group. i

appreciate the reference and your attention to the sites overall

contents. A+ lisa

> Jill:

> I am not trying to be defensive, so just hear me out.

> I read every post that runs thru this group. I have never felt that

one member was " bashing " another over the choices they have made. The

members here are simply voicing their own experiences with the

products they have used. Some people are not happy with the DOC Band,

some are not happy with the STAR. Everyone has different situations,

and sometimes things don't work out. If you check the file created by

" aitensmom " in the FILES section, you will probably agree that that

particular situation wasn't a good one. This mom has never told

anyone NOT to get a STARband, but to ASK QUESTIONS. She is simply

telling HER story, and so she should!

> I think it is fabulous that there are other options out there, but

that doesn't mean that people should have to walk into this experience

blindly. I think that is important for the bad side to be told, just

as it is important to hear the good. Of course, I do agree with you

that we should not judge each other for the decisions we make, and we

certainly should not be arguing over which helmet is " the best " (even

though each of us will form an opinion). This is a SUPPORT group. I

also think that emotions can run really high in this group (after all,

we are a group of parents trying to do what's best for our children!),

and things can be taken a little too literally. We need to read

these messages at face value.

> Kendra in Canada

> For more plagio info, visit

> www.plagiocephaly.org/support

> .

> .

> .

> ----- Original Message -----

> From: jastss@h...

> Plagiocephaly@y...

> Sent: Monday, March 12, 2001 2:12 PM

> Subject: Star Band vs. DOC question

>

>

> Whomever it may concern,

> I'm pretty new to this group so I may have missed out on something,

> but I'm just wondering why some people are taking this STAR band/DOC

> band business so personally? I know that people are just trying to

> be helpful to those seeking advise when trying to decide how to help

> their child. But it seems to me that it has turned into some sort

> of " Mine's better than Yours " battle. Everyone here is just doing

> what they think is best for THEIR child. On the CT discussion

board,

> the issue became nasty and people forgot what the question really

was

> that was being asked. No, you shouldn't advertise anything but the

> DOC band on that site out of respect for CT and the people who are

> making that discussion board available. But that doesn't mean we

> should bash people that are using something other than a DOC. In my

> personal opinion, I think that people should stop judging other

> people's decisions and just talk about their own experiences with

the

> product they have used. Maybe STAR band didn't work for some of

you,

> but just say that and stop discouraging the thing. Can we just say

> what has worked and what hasn't without hurting other people? I'm

> not saying all of this to defend anyone. My son is in a DOC band,

> but that was just my own personal decision. If I had wanted to seek

> out advise from this board on trying to decide, it probably would

> have made me not want to even be part of this group. Luckily, I

> wasn't faced with having to make that decision. If anyone out there

> is trying to decide on one or the other, just listen to the facts

and

> not the arguing and hopefully you can make an educated choice

instead

> of a biased one.

> Hope I didn't step on anyone's toes because I really like this

group,

> but I just felt I needed to say all of this.

> Jill